oh my god i have so many problems with my weight sometimes its up and sometimes down it is crazy i worry that if i exercise to much i will lose weight and then when i put weight on i get really pleased and then i see the dietician and she says about feeding tubes and then it makes me sad but i am stubborn and refuse to have it . i weigh the most i have all year so far and it is still going up for now from JOxxxx
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weight
- Thread starter anonymous
- Start date
i think thats 47 kgs? for a female of average height thats underweight. but we dont know how tall you are so we dont know! dont worry about the feeding tube thing. alot of dietitians use that to scare patients. one threatened to give me one years back because i wouldnt eat hospital food. who the heck in their right mind would eat a solidified potato mash clump?!? maybe you should work out some diet plan with the dietitician, or a different one if you feel shes pushy. i have plans for when i dont feel like eating and ones for when im a ravenous pig. also if you do the right exercise you wont lose weight from it.
butterfly31079
New member
Hello, I see that every one is posting about weight i am 20 w/ cf and buddy is it hard for me to gain weight i am 5'3 and weight 88.3 lbs. any tips. I eat like i am eating for 4. but I still dont gain. the highest i wight was 110 lbs. thats the most. but i cant get back up to there. I dont like the boost nor ensure, or carnation breakfast. any tips. thanks
hiya i have ensure i am not very keen on it either but i pour it in to a glass and hold my nose and drink i just think of all the calaries it has lol . have you tried scandi shake it is milkshake but one you make yourself it comes in strawberry ,vanilla,and choclate and if you put ice cream in it it tastes like mcdonalds milkshakes . best of luck from jo
Has anyone tried simple carbs? There's no fat, or very little, so it's easier to digest, even w/o enzymes, and your blood sugar goes up and down more, so you're hungry sooner...I know that's no help to people w/ CFRD, but it occured to me in the middle of the night.
Julie, intern at Atlanta CFF. No CF.
Julie, intern at Atlanta CFF. No CF.
i dunno where youre from but here in canada when im in the hospital they will get me cheeseburgers french fries chicken fingers
lasagna any thing i want even chocolate bars chips and chocolate milk cause i drink at least a litre per day!!! the best part is its all paid
for by my cf plan!!!!!!<img src="i/expressions/face-icon-small-smile.gif" border="0">
lasagna any thing i want even chocolate bars chips and chocolate milk cause i drink at least a litre per day!!! the best part is its all paid
for by my cf plan!!!!!!<img src="i/expressions/face-icon-small-smile.gif" border="0">
ORTONSGIRL84
New member
hospital food over here in the uk is horrible i was in for todays and i just had ensure drinks cos i couldnt stand the food it was to heathly for me to eat i find it so hard to get high fat food anymore cos the government aare going on about obesity but they do not think about the peeps who need all the fats and stuff . from JO
Here is a new possible therapy for you to gain weight.
Pediatric Pulmonology
Volume 38, Issue 2 , Pages 129 - 134Published Online: 14 May 2004Copyright © 2004 Wiley-Liss, Inc., A Wiley Company
Cyproheptadine is an effective appetite stimulant in cystic fibrosis
Douglas N. Homnick, MD, MPH 1 *, Benjamin D. Homnick 2, Andrew J. Reeves, RPh 1, John H. Marks, MD 1, Ronald S. Pimentel, MS 3, Sally K. Bonnema, RD, MA 4
1Division of Pediatric Pulmonology, Department of Pediatrics, Kalamazoo Center for Medical Studies, Michigan State University, Kalamazoo, Michigan
2Kalamazoo Area Mathematics and Science Center, Kalamazoo, Michigan
3Department of Statistics, Western Michigan University, Kalamazoo, Michigan
4Department of Nutrition, Bronson Hospital, Kalamazoo, Michigan
email: Douglas N. Homnick (Homnick@kcms.msu.edu)
*Correspondence to Douglas N. Homnick, Division of Pediatric Pulmonology, Department of Pediatrics, Kalamazoo Center for Medical Studies, Michigan State University, 1000 Oakland Drive, Kalamazoo, MI 49008.Presented at the 17th Annual North American Cystic Fibrosis Conference, Anaheim, California, October 6-19, 2003.
setDOI("ADOI=10.1002/ppul.20043")Funded by:
MSU/KCMS CF Center Grant
Bronson Community Research FundKeywords
cyproheptadine • antihistamines • appetite stimulants • cystic fibrosis
Abstract
Chronic pulmonary infection and intestinal malabsorption often lead to malnutrition in children and adults with cystic fibrosis (CF). Appetite stimulants, along with provision of adequate calories, may aid in overcoming nutritional deficits, allowing a better prognosis. We undertook a trial of cyproheptadine hydrochloride (CH) to determine its effectiveness as an appetite stimulant in 18 adults and children with CF. This was a 12-week, randomized, double-blind, controlled trial of CH vs. placebo. Eighteen subjects with documented CF (sweat or genetics positive), minimum age of 5 years, and ideal body weight for height <100% were entered, and 16 completed the study. Subjects were seen at baseline and every 4 weeks. Measures included baseline demographics, Shwachman score, anthropometrics (weight, height, body mass index, skin folds, and body composition by bioelectric impedance analysis), spirometry, caloric intake, days of oral (PO) and intravenous (IV) antibiotics, and a symptom and satisfaction survey. Subjects in the CH group showed significant increases in weight (mean 3.45 kg vs. 1.1 kg in the placebo group), height, BMI percentiles, ideal body weight/height, weight for age z-scores, and fat and fat-free mass. There were no changes or differences in PO or IV antibiotic use or spirometric changes. No significant side effects except transient mild sedation occurred in the CH group. Patient acceptance was good. In conclusion, CH appears to be an effective appetite stimulant with minimal side effects in children and adults with CF. Pediatr Pulmonol. © 2004 Wiley-Liss, Inc.
Received: 21 October 2003; Revised: 16 January 2004; Accepted: 17 January 2004Digital Object Identifier (DOI)
Joanne M. Schum
Cystic Fibrosis
Bi-lateral Lung Transplant Recipient
September 12, 1997
University of North Carolina Hospitals Chapel Hill
Residence: Upstate New York
email: luckylungsforjo@aol.com
Manager of: Transplant Support - Lung, Heart/Lung, Heart
http://groups.msn.com/TransplantSupportLungHeartLungHeart
"Taking Flight - Inspirational Stories of Lung Transplantation"
Compiled by Joanne Schum
Authored by lung recipients around the world
http://www.trafford.com/robots/02-0497.html
http://www.trafford.com/
Lungs for Life Foundation
http://www.lungsforlife.org
Joanne's Bracelet, Transplant Awareness Bracelet, CF Awareness Bracelet
http://www.lungsforlife.org/other_ways/lfl_store.htm
Pediatric Pulmonology
Volume 38, Issue 2 , Pages 129 - 134Published Online: 14 May 2004Copyright © 2004 Wiley-Liss, Inc., A Wiley Company
Cyproheptadine is an effective appetite stimulant in cystic fibrosis
Douglas N. Homnick, MD, MPH 1 *, Benjamin D. Homnick 2, Andrew J. Reeves, RPh 1, John H. Marks, MD 1, Ronald S. Pimentel, MS 3, Sally K. Bonnema, RD, MA 4
1Division of Pediatric Pulmonology, Department of Pediatrics, Kalamazoo Center for Medical Studies, Michigan State University, Kalamazoo, Michigan
2Kalamazoo Area Mathematics and Science Center, Kalamazoo, Michigan
3Department of Statistics, Western Michigan University, Kalamazoo, Michigan
4Department of Nutrition, Bronson Hospital, Kalamazoo, Michigan
email: Douglas N. Homnick (Homnick@kcms.msu.edu)
*Correspondence to Douglas N. Homnick, Division of Pediatric Pulmonology, Department of Pediatrics, Kalamazoo Center for Medical Studies, Michigan State University, 1000 Oakland Drive, Kalamazoo, MI 49008.Presented at the 17th Annual North American Cystic Fibrosis Conference, Anaheim, California, October 6-19, 2003.
setDOI("ADOI=10.1002/ppul.20043")Funded by:
MSU/KCMS CF Center Grant
Bronson Community Research FundKeywords
cyproheptadine • antihistamines • appetite stimulants • cystic fibrosis
Abstract
Chronic pulmonary infection and intestinal malabsorption often lead to malnutrition in children and adults with cystic fibrosis (CF). Appetite stimulants, along with provision of adequate calories, may aid in overcoming nutritional deficits, allowing a better prognosis. We undertook a trial of cyproheptadine hydrochloride (CH) to determine its effectiveness as an appetite stimulant in 18 adults and children with CF. This was a 12-week, randomized, double-blind, controlled trial of CH vs. placebo. Eighteen subjects with documented CF (sweat or genetics positive), minimum age of 5 years, and ideal body weight for height <100% were entered, and 16 completed the study. Subjects were seen at baseline and every 4 weeks. Measures included baseline demographics, Shwachman score, anthropometrics (weight, height, body mass index, skin folds, and body composition by bioelectric impedance analysis), spirometry, caloric intake, days of oral (PO) and intravenous (IV) antibiotics, and a symptom and satisfaction survey. Subjects in the CH group showed significant increases in weight (mean 3.45 kg vs. 1.1 kg in the placebo group), height, BMI percentiles, ideal body weight/height, weight for age z-scores, and fat and fat-free mass. There were no changes or differences in PO or IV antibiotic use or spirometric changes. No significant side effects except transient mild sedation occurred in the CH group. Patient acceptance was good. In conclusion, CH appears to be an effective appetite stimulant with minimal side effects in children and adults with CF. Pediatr Pulmonol. © 2004 Wiley-Liss, Inc.
Received: 21 October 2003; Revised: 16 January 2004; Accepted: 17 January 2004Digital Object Identifier (DOI)
Joanne M. Schum
Cystic Fibrosis
Bi-lateral Lung Transplant Recipient
September 12, 1997
University of North Carolina Hospitals Chapel Hill
Residence: Upstate New York
email: luckylungsforjo@aol.com
Manager of: Transplant Support - Lung, Heart/Lung, Heart
http://groups.msn.com/TransplantSupportLungHeartLungHeart
"Taking Flight - Inspirational Stories of Lung Transplantation"
Compiled by Joanne Schum
Authored by lung recipients around the world
http://www.trafford.com/robots/02-0497.html
http://www.trafford.com/
Lungs for Life Foundation
http://www.lungsforlife.org
Joanne's Bracelet, Transplant Awareness Bracelet, CF Awareness Bracelet
http://www.lungsforlife.org/other_ways/lfl_store.htm