Well, I thought all was well

H

holmfamily1992

New member
It was only a couple of days ago when I updated my blog and said things were good and we only had one issue to deal with out of 4 CF kids...to me, thats great.

Ok so Dylan has an infection in his small airways so we're treating him with antibiotics. I get a call while at work yesterday from my husband which was really odd cause he never calls me there...Our clinic called and they got the results back on Ryan's fecal test. Pancreatic insufficient. Enzymes were and are one of the things I was hoping o never have to put my kids through. I know there are worse things and like I said, this was just ONE thing I didn't want to have to put them through.

Ok, so this is my question. Ryan is 6 years old, how on earth can make I make this even the smallest bit of enjoyment for him? He can't swallow them so I will have to break them open and put them in something. I thought about pudding, but pudding isn't suppose to be crunchy.

I need you guys on this...We are praying for no feeding tube with Ryan so I need some input!! I know some of you out there have had to deal with this and were able to come up with something for a picky, grumpy and just down right stubborn 6 year old!!

Freakin out here!!!
Tina

<img src="http://i284.photobucket.com/albums/ll15/holmfamiy/100_1001.jpg">
 
H

holmfamily1992

New member
It was only a couple of days ago when I updated my blog and said things were good and we only had one issue to deal with out of 4 CF kids...to me, thats great.

Ok so Dylan has an infection in his small airways so we're treating him with antibiotics. I get a call while at work yesterday from my husband which was really odd cause he never calls me there...Our clinic called and they got the results back on Ryan's fecal test. Pancreatic insufficient. Enzymes were and are one of the things I was hoping o never have to put my kids through. I know there are worse things and like I said, this was just ONE thing I didn't want to have to put them through.

Ok, so this is my question. Ryan is 6 years old, how on earth can make I make this even the smallest bit of enjoyment for him? He can't swallow them so I will have to break them open and put them in something. I thought about pudding, but pudding isn't suppose to be crunchy.

I need you guys on this...We are praying for no feeding tube with Ryan so I need some input!! I know some of you out there have had to deal with this and were able to come up with something for a picky, grumpy and just down right stubborn 6 year old!!

Freakin out here!!!
Tina

<img src="http://i284.photobucket.com/albums/ll15/holmfamiy/100_1001.jpg">
 
H

holmfamily1992

New member
It was only a couple of days ago when I updated my blog and said things were good and we only had one issue to deal with out of 4 CF kids...to me, thats great.

Ok so Dylan has an infection in his small airways so we're treating him with antibiotics. I get a call while at work yesterday from my husband which was really odd cause he never calls me there...Our clinic called and they got the results back on Ryan's fecal test. Pancreatic insufficient. Enzymes were and are one of the things I was hoping o never have to put my kids through. I know there are worse things and like I said, this was just ONE thing I didn't want to have to put them through.

Ok, so this is my question. Ryan is 6 years old, how on earth can make I make this even the smallest bit of enjoyment for him? He can't swallow them so I will have to break them open and put them in something. I thought about pudding, but pudding isn't suppose to be crunchy.

I need you guys on this...We are praying for no feeding tube with Ryan so I need some input!! I know some of you out there have had to deal with this and were able to come up with something for a picky, grumpy and just down right stubborn 6 year old!!

Freakin out here!!!
Tina

<img src="http://i284.photobucket.com/albums/ll15/holmfamiy/100_1001.jpg">
 
H

holmfamily1992

New member
It was only a couple of days ago when I updated my blog and said things were good and we only had one issue to deal with out of 4 CF kids...to me, thats great.

Ok so Dylan has an infection in his small airways so we're treating him with antibiotics. I get a call while at work yesterday from my husband which was really odd cause he never calls me there...Our clinic called and they got the results back on Ryan's fecal test. Pancreatic insufficient. Enzymes were and are one of the things I was hoping o never have to put my kids through. I know there are worse things and like I said, this was just ONE thing I didn't want to have to put them through.

Ok, so this is my question. Ryan is 6 years old, how on earth can make I make this even the smallest bit of enjoyment for him? He can't swallow them so I will have to break them open and put them in something. I thought about pudding, but pudding isn't suppose to be crunchy.

I need you guys on this...We are praying for no feeding tube with Ryan so I need some input!! I know some of you out there have had to deal with this and were able to come up with something for a picky, grumpy and just down right stubborn 6 year old!!

Freakin out here!!!
Tina

<img src="http://i284.photobucket.com/albums/ll15/holmfamiy/100_1001.jpg">
 
H

holmfamily1992

New member
It was only a couple of days ago when I updated my blog and said things were good and we only had one issue to deal with out of 4 CF kids...to me, thats great.
<br />
<br />Ok so Dylan has an infection in his small airways so we're treating him with antibiotics. I get a call while at work yesterday from my husband which was really odd cause he never calls me there...Our clinic called and they got the results back on Ryan's fecal test. Pancreatic insufficient. Enzymes were and are one of the things I was hoping o never have to put my kids through. I know there are worse things and like I said, this was just ONE thing I didn't want to have to put them through.
<br />
<br />Ok, so this is my question. Ryan is 6 years old, how on earth can make I make this even the smallest bit of enjoyment for him? He can't swallow them so I will have to break them open and put them in something. I thought about pudding, but pudding isn't suppose to be crunchy.
<br />
<br />I need you guys on this...We are praying for no feeding tube with Ryan so I need some input!! I know some of you out there have had to deal with this and were able to come up with something for a picky, grumpy and just down right stubborn 6 year old!!
<br />
<br />Freakin out here!!!
<br />Tina
<br />
<br /><img src="http://i284.photobucket.com/albums/ll15/holmfamiy/100_1001.jpg">
 
L

Liza

New member
Hi, so many views and no suggestions, I am surprised. Well, I'll give you my mine. Ice cream! The microspheres pass well for "sprinkles". He just can't crunch them.

My daughter, Anna, was diagnosed at 3 yrs old and had to start enzymes right away. That was her problem then. She got a small scoop of ice cream before every meal, including breakfast. We did tell her it was her new medicine but that they were just like sprinkles but she couldn't chew them. We added a few colorful sprinkles too. At that time she took 2-3 capsules. She started swallowing her pills within a few months. She gradually started talking them in a spoon with less ice cream.

Taking enzymes really is no big deal. We had a harder time with breathing treatments than taking enzymes. Try the ice cream, it worked great for us. I hope it works for you.
 
L

Liza

New member
Hi, so many views and no suggestions, I am surprised. Well, I'll give you my mine. Ice cream! The microspheres pass well for "sprinkles". He just can't crunch them.

My daughter, Anna, was diagnosed at 3 yrs old and had to start enzymes right away. That was her problem then. She got a small scoop of ice cream before every meal, including breakfast. We did tell her it was her new medicine but that they were just like sprinkles but she couldn't chew them. We added a few colorful sprinkles too. At that time she took 2-3 capsules. She started swallowing her pills within a few months. She gradually started talking them in a spoon with less ice cream.

Taking enzymes really is no big deal. We had a harder time with breathing treatments than taking enzymes. Try the ice cream, it worked great for us. I hope it works for you.
 
L

Liza

New member
Hi, so many views and no suggestions, I am surprised. Well, I'll give you my mine. Ice cream! The microspheres pass well for "sprinkles". He just can't crunch them.

My daughter, Anna, was diagnosed at 3 yrs old and had to start enzymes right away. That was her problem then. She got a small scoop of ice cream before every meal, including breakfast. We did tell her it was her new medicine but that they were just like sprinkles but she couldn't chew them. We added a few colorful sprinkles too. At that time she took 2-3 capsules. She started swallowing her pills within a few months. She gradually started talking them in a spoon with less ice cream.

Taking enzymes really is no big deal. We had a harder time with breathing treatments than taking enzymes. Try the ice cream, it worked great for us. I hope it works for you.
 
L

Liza

New member
Hi, so many views and no suggestions, I am surprised. Well, I'll give you my mine. Ice cream! The microspheres pass well for "sprinkles". He just can't crunch them.

My daughter, Anna, was diagnosed at 3 yrs old and had to start enzymes right away. That was her problem then. She got a small scoop of ice cream before every meal, including breakfast. We did tell her it was her new medicine but that they were just like sprinkles but she couldn't chew them. We added a few colorful sprinkles too. At that time she took 2-3 capsules. She started swallowing her pills within a few months. She gradually started talking them in a spoon with less ice cream.

Taking enzymes really is no big deal. We had a harder time with breathing treatments than taking enzymes. Try the ice cream, it worked great for us. I hope it works for you.
 
L

Liza

New member
Hi, so many views and no suggestions, I am surprised. Well, I'll give you my mine. Ice cream! The microspheres pass well for "sprinkles". He just can't crunch them.
<br />
<br />My daughter, Anna, was diagnosed at 3 yrs old and had to start enzymes right away. That was her problem then. She got a small scoop of ice cream before every meal, including breakfast. We did tell her it was her new medicine but that they were just like sprinkles but she couldn't chew them. We added a few colorful sprinkles too. At that time she took 2-3 capsules. She started swallowing her pills within a few months. She gradually started talking them in a spoon with less ice cream.
<br />
<br />Taking enzymes really is no big deal. We had a harder time with breathing treatments than taking enzymes. Try the ice cream, it worked great for us. I hope it works for you.
<br />
<br />
 
M

Mommafirst

Guest
Hi Tina!!

I'm sorry to hear you got additional yucky news. Everytime we have to add an extra med its always a blow.

Alyssa swallows her pills whole. Here's how I taught her, maybe since Ryan is older you can get him to swallow them in no time.

I got some wider straws (McDonalds uses them) and would place a pill in the straw and then once its in a drink I'd put my finger on the top of the straw to fill the straw with a favorite drink. Then I'd put the straw in her mouth and release my finger. She'd swallow the whole strawful including the pill. In about a week, she didn't need the straw and could put the pills in her mouth and swallow with a drink.

They also make pill training cups. Solvay has given us a few, but I think you can buy one at a drug store. Any way, it has a little ledge up near where you put your mouth to place the pill. You put the drink in the bottom and when you tip it to drink it puts the pill and drink in your mouth at the same time.

Best of luck!!!!!
 
M

Mommafirst

Guest
Hi Tina!!

I'm sorry to hear you got additional yucky news. Everytime we have to add an extra med its always a blow.

Alyssa swallows her pills whole. Here's how I taught her, maybe since Ryan is older you can get him to swallow them in no time.

I got some wider straws (McDonalds uses them) and would place a pill in the straw and then once its in a drink I'd put my finger on the top of the straw to fill the straw with a favorite drink. Then I'd put the straw in her mouth and release my finger. She'd swallow the whole strawful including the pill. In about a week, she didn't need the straw and could put the pills in her mouth and swallow with a drink.

They also make pill training cups. Solvay has given us a few, but I think you can buy one at a drug store. Any way, it has a little ledge up near where you put your mouth to place the pill. You put the drink in the bottom and when you tip it to drink it puts the pill and drink in your mouth at the same time.

Best of luck!!!!!
 
M

Mommafirst

Guest
Hi Tina!!

I'm sorry to hear you got additional yucky news. Everytime we have to add an extra med its always a blow.

Alyssa swallows her pills whole. Here's how I taught her, maybe since Ryan is older you can get him to swallow them in no time.

I got some wider straws (McDonalds uses them) and would place a pill in the straw and then once its in a drink I'd put my finger on the top of the straw to fill the straw with a favorite drink. Then I'd put the straw in her mouth and release my finger. She'd swallow the whole strawful including the pill. In about a week, she didn't need the straw and could put the pills in her mouth and swallow with a drink.

They also make pill training cups. Solvay has given us a few, but I think you can buy one at a drug store. Any way, it has a little ledge up near where you put your mouth to place the pill. You put the drink in the bottom and when you tip it to drink it puts the pill and drink in your mouth at the same time.

Best of luck!!!!!
 
M

Mommafirst

Guest
Hi Tina!!

I'm sorry to hear you got additional yucky news. Everytime we have to add an extra med its always a blow.

Alyssa swallows her pills whole. Here's how I taught her, maybe since Ryan is older you can get him to swallow them in no time.

I got some wider straws (McDonalds uses them) and would place a pill in the straw and then once its in a drink I'd put my finger on the top of the straw to fill the straw with a favorite drink. Then I'd put the straw in her mouth and release my finger. She'd swallow the whole strawful including the pill. In about a week, she didn't need the straw and could put the pills in her mouth and swallow with a drink.

They also make pill training cups. Solvay has given us a few, but I think you can buy one at a drug store. Any way, it has a little ledge up near where you put your mouth to place the pill. You put the drink in the bottom and when you tip it to drink it puts the pill and drink in your mouth at the same time.

Best of luck!!!!!
 
M

Mommafirst

Guest
Hi Tina!!
<br />
<br />I'm sorry to hear you got additional yucky news. Everytime we have to add an extra med its always a blow.
<br />
<br />Alyssa swallows her pills whole. Here's how I taught her, maybe since Ryan is older you can get him to swallow them in no time.
<br />
<br />I got some wider straws (McDonalds uses them) and would place a pill in the straw and then once its in a drink I'd put my finger on the top of the straw to fill the straw with a favorite drink. Then I'd put the straw in her mouth and release my finger. She'd swallow the whole strawful including the pill. In about a week, she didn't need the straw and could put the pills in her mouth and swallow with a drink.
<br />
<br />They also make pill training cups. Solvay has given us a few, but I think you can buy one at a drug store. Any way, it has a little ledge up near where you put your mouth to place the pill. You put the drink in the bottom and when you tip it to drink it puts the pill and drink in your mouth at the same time.
<br />
<br />Best of luck!!!!!
 
B

babyluke

New member
Our son has taken enzymes since he was three months old, so I really don't have any suggestions for dealing with the stubborness (in some ways it is better when you do have to start all of this stuff when they are infants--then they don't remember a time when there was not a vest, meds., nebs, etc.--my older kids(w/o cf) are way more stubborn about medicine than Luke!) Anyway, I just wanted to mention that when Luke was an infant and we were still breaking them open, they told us at clinic that the enzymes work best when given on something "acidic" like applesauce. So we always opened his and fed them to him on applesauce. Make sure they put you on the small ones. It will be more pills, but the bigger ones are really big and it would probably be better for you and for him if he could just learn to swallow them. Luke learned to swallow his when he was about 20 months old. We started by putting the whole capsule in the applesause and then we put the capsule in a spoon full of water and now he puts the pill in his mouth and takes a drink.
And can I just say--you are amazing! I have seven kids, but only one has CF and there are days I feel like I am going to go crazy! I hope all goes well with your son!
Angela, Mom to 7 terrific kids, including Luke, 2 years old w/cf
 
B

babyluke

New member
Our son has taken enzymes since he was three months old, so I really don't have any suggestions for dealing with the stubborness (in some ways it is better when you do have to start all of this stuff when they are infants--then they don't remember a time when there was not a vest, meds., nebs, etc.--my older kids(w/o cf) are way more stubborn about medicine than Luke!) Anyway, I just wanted to mention that when Luke was an infant and we were still breaking them open, they told us at clinic that the enzymes work best when given on something "acidic" like applesauce. So we always opened his and fed them to him on applesauce. Make sure they put you on the small ones. It will be more pills, but the bigger ones are really big and it would probably be better for you and for him if he could just learn to swallow them. Luke learned to swallow his when he was about 20 months old. We started by putting the whole capsule in the applesause and then we put the capsule in a spoon full of water and now he puts the pill in his mouth and takes a drink.
And can I just say--you are amazing! I have seven kids, but only one has CF and there are days I feel like I am going to go crazy! I hope all goes well with your son!
Angela, Mom to 7 terrific kids, including Luke, 2 years old w/cf
 
B

babyluke

New member
Our son has taken enzymes since he was three months old, so I really don't have any suggestions for dealing with the stubborness (in some ways it is better when you do have to start all of this stuff when they are infants--then they don't remember a time when there was not a vest, meds., nebs, etc.--my older kids(w/o cf) are way more stubborn about medicine than Luke!) Anyway, I just wanted to mention that when Luke was an infant and we were still breaking them open, they told us at clinic that the enzymes work best when given on something "acidic" like applesauce. So we always opened his and fed them to him on applesauce. Make sure they put you on the small ones. It will be more pills, but the bigger ones are really big and it would probably be better for you and for him if he could just learn to swallow them. Luke learned to swallow his when he was about 20 months old. We started by putting the whole capsule in the applesause and then we put the capsule in a spoon full of water and now he puts the pill in his mouth and takes a drink.
And can I just say--you are amazing! I have seven kids, but only one has CF and there are days I feel like I am going to go crazy! I hope all goes well with your son!
Angela, Mom to 7 terrific kids, including Luke, 2 years old w/cf
 
B

babyluke

New member
Our son has taken enzymes since he was three months old, so I really don't have any suggestions for dealing with the stubborness (in some ways it is better when you do have to start all of this stuff when they are infants--then they don't remember a time when there was not a vest, meds., nebs, etc.--my older kids(w/o cf) are way more stubborn about medicine than Luke!) Anyway, I just wanted to mention that when Luke was an infant and we were still breaking them open, they told us at clinic that the enzymes work best when given on something "acidic" like applesauce. So we always opened his and fed them to him on applesauce. Make sure they put you on the small ones. It will be more pills, but the bigger ones are really big and it would probably be better for you and for him if he could just learn to swallow them. Luke learned to swallow his when he was about 20 months old. We started by putting the whole capsule in the applesause and then we put the capsule in a spoon full of water and now he puts the pill in his mouth and takes a drink.
And can I just say--you are amazing! I have seven kids, but only one has CF and there are days I feel like I am going to go crazy! I hope all goes well with your son!
Angela, Mom to 7 terrific kids, including Luke, 2 years old w/cf
 
B

babyluke

New member
Our son has taken enzymes since he was three months old, so I really don't have any suggestions for dealing with the stubborness (in some ways it is better when you do have to start all of this stuff when they are infants--then they don't remember a time when there was not a vest, meds., nebs, etc.--my older kids(w/o cf) are way more stubborn about medicine than Luke!) Anyway, I just wanted to mention that when Luke was an infant and we were still breaking them open, they told us at clinic that the enzymes work best when given on something "acidic" like applesauce. So we always opened his and fed them to him on applesauce. Make sure they put you on the small ones. It will be more pills, but the bigger ones are really big and it would probably be better for you and for him if he could just learn to swallow them. Luke learned to swallow his when he was about 20 months old. We started by putting the whole capsule in the applesause and then we put the capsule in a spoon full of water and now he puts the pill in his mouth and takes a drink.
<br />And can I just say--you are amazing! I have seven kids, but only one has CF and there are days I feel like I am going to go crazy! I hope all goes well with your son!
<br />Angela, Mom to 7 terrific kids, including Luke, 2 years old w/cf
 
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