Wet Cough

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valigirl21

Guest
That is his plan. He still doesn't want to diagnose my son with CF because his genetic tests was neg, although the CF specialist that the GI was consulting with on my son's case thinks that is exactly what it is. After reading all the symptoms from this site, I have to agree that he has at least 90% of them...except the genotype.
 
V

valigirl21

Guest
That is his plan. He still doesn't want to diagnose my son with CF because his genetic tests was neg, although the CF specialist that the GI was consulting with on my son's case thinks that is exactly what it is. After reading all the symptoms from this site, I have to agree that he has at least 90% of them...except the genotype.
 
V

valigirl21

Guest
That is his plan. He still doesn't want to diagnose my son with CF because his genetic tests was neg, although the CF specialist that the GI was consulting with on my son's case thinks that is exactly what it is. After reading all the symptoms from this site, I have to agree that he has at least 90% of them...except the genotype.
 
V

valigirl21

Guest
That is his plan. He still doesn't want to diagnose my son with CF because his genetic tests was neg, although the CF specialist that the GI was consulting with on my son's case thinks that is exactly what it is. After reading all the symptoms from this site, I have to agree that he has at least 90% of them...except the genotype.
 
V

valigirl21

Guest
That is his plan. He still doesn't want to diagnose my son with CF because his genetic tests was neg, although the CF specialist that the GI was consulting with on my son's case thinks that is exactly what it is. After reading all the symptoms from this site, I have to agree that he has at least 90% of them...except the genotype.
 

Nightwriter

New member
Hi Valerie,

While I don't want to second guess your doctor, I would like to make a comment or two. I think when your own instinct is telling you something doesn't sit right, it might be prudent to get a second opinion before taking an invasive action. Sure, it is possible the bronch may reveal something that couldn't have been identified through other means. But on the other hand, my question to the doctor is this: Is it possible that another culture would show something BEFORE be do a bronch?

I can only tell you how my doctor handles my coughs. Which may be entirely different from Noah's of course. My doctor does not do bronchs as a matter of routine, because there is a possibility of introducing new bugs into the lungs. Equipment is not always sterilized properly. So up until now, I haven't had a bronch and hope never to have to have one. My doctor has been able to identify my problems without the use of them.

You said Noah's IGG test was a little elevated. That test measures the most common antibodies in the body which fight bacterias AND viruses. So if it is a virus, an antibiotic would have no effect on it.

There is another test called an IgE blood test which also measures antibodies, but these cause the body to react against, pollen, fungus, spores, animal dander, etc. It can be used as a clue to whether allergies are causeing inflammation which causes a lot of unexplained coughs. I say clue, because the test can even be negative, and "allergens" or irritants can inflame the already hypersensitive airways of people with lung problems. Noah is also old enough to have allergy skin tests -- which may also provide clues. Again, they can't test for everything, but this is a start. And there are no tests for chemical sensitivities, but this can also cause exacerbations. Was Noah exposed to anything 3 weeks ago? New school, paint job, vacation, new furniture, etc.?

The other question I would ask the doctor is Noah's throat red, eardrums red and swollen? How does his chest sound? All clues towards inflammation if you can't find any bacterial, fungal, or viral reasons for his increased symptoms.

At any rate, I would investigate this further with other opinions.
 

Nightwriter

New member
Hi Valerie,

While I don't want to second guess your doctor, I would like to make a comment or two. I think when your own instinct is telling you something doesn't sit right, it might be prudent to get a second opinion before taking an invasive action. Sure, it is possible the bronch may reveal something that couldn't have been identified through other means. But on the other hand, my question to the doctor is this: Is it possible that another culture would show something BEFORE be do a bronch?

I can only tell you how my doctor handles my coughs. Which may be entirely different from Noah's of course. My doctor does not do bronchs as a matter of routine, because there is a possibility of introducing new bugs into the lungs. Equipment is not always sterilized properly. So up until now, I haven't had a bronch and hope never to have to have one. My doctor has been able to identify my problems without the use of them.

You said Noah's IGG test was a little elevated. That test measures the most common antibodies in the body which fight bacterias AND viruses. So if it is a virus, an antibiotic would have no effect on it.

There is another test called an IgE blood test which also measures antibodies, but these cause the body to react against, pollen, fungus, spores, animal dander, etc. It can be used as a clue to whether allergies are causeing inflammation which causes a lot of unexplained coughs. I say clue, because the test can even be negative, and "allergens" or irritants can inflame the already hypersensitive airways of people with lung problems. Noah is also old enough to have allergy skin tests -- which may also provide clues. Again, they can't test for everything, but this is a start. And there are no tests for chemical sensitivities, but this can also cause exacerbations. Was Noah exposed to anything 3 weeks ago? New school, paint job, vacation, new furniture, etc.?

The other question I would ask the doctor is Noah's throat red, eardrums red and swollen? How does his chest sound? All clues towards inflammation if you can't find any bacterial, fungal, or viral reasons for his increased symptoms.

At any rate, I would investigate this further with other opinions.
 

Nightwriter

New member
Hi Valerie,

While I don't want to second guess your doctor, I would like to make a comment or two. I think when your own instinct is telling you something doesn't sit right, it might be prudent to get a second opinion before taking an invasive action. Sure, it is possible the bronch may reveal something that couldn't have been identified through other means. But on the other hand, my question to the doctor is this: Is it possible that another culture would show something BEFORE be do a bronch?

I can only tell you how my doctor handles my coughs. Which may be entirely different from Noah's of course. My doctor does not do bronchs as a matter of routine, because there is a possibility of introducing new bugs into the lungs. Equipment is not always sterilized properly. So up until now, I haven't had a bronch and hope never to have to have one. My doctor has been able to identify my problems without the use of them.

You said Noah's IGG test was a little elevated. That test measures the most common antibodies in the body which fight bacterias AND viruses. So if it is a virus, an antibiotic would have no effect on it.

There is another test called an IgE blood test which also measures antibodies, but these cause the body to react against, pollen, fungus, spores, animal dander, etc. It can be used as a clue to whether allergies are causeing inflammation which causes a lot of unexplained coughs. I say clue, because the test can even be negative, and "allergens" or irritants can inflame the already hypersensitive airways of people with lung problems. Noah is also old enough to have allergy skin tests -- which may also provide clues. Again, they can't test for everything, but this is a start. And there are no tests for chemical sensitivities, but this can also cause exacerbations. Was Noah exposed to anything 3 weeks ago? New school, paint job, vacation, new furniture, etc.?

The other question I would ask the doctor is Noah's throat red, eardrums red and swollen? How does his chest sound? All clues towards inflammation if you can't find any bacterial, fungal, or viral reasons for his increased symptoms.

At any rate, I would investigate this further with other opinions.
 

Nightwriter

New member
Hi Valerie,

While I don't want to second guess your doctor, I would like to make a comment or two. I think when your own instinct is telling you something doesn't sit right, it might be prudent to get a second opinion before taking an invasive action. Sure, it is possible the bronch may reveal something that couldn't have been identified through other means. But on the other hand, my question to the doctor is this: Is it possible that another culture would show something BEFORE be do a bronch?

I can only tell you how my doctor handles my coughs. Which may be entirely different from Noah's of course. My doctor does not do bronchs as a matter of routine, because there is a possibility of introducing new bugs into the lungs. Equipment is not always sterilized properly. So up until now, I haven't had a bronch and hope never to have to have one. My doctor has been able to identify my problems without the use of them.

You said Noah's IGG test was a little elevated. That test measures the most common antibodies in the body which fight bacterias AND viruses. So if it is a virus, an antibiotic would have no effect on it.

There is another test called an IgE blood test which also measures antibodies, but these cause the body to react against, pollen, fungus, spores, animal dander, etc. It can be used as a clue to whether allergies are causeing inflammation which causes a lot of unexplained coughs. I say clue, because the test can even be negative, and "allergens" or irritants can inflame the already hypersensitive airways of people with lung problems. Noah is also old enough to have allergy skin tests -- which may also provide clues. Again, they can't test for everything, but this is a start. And there are no tests for chemical sensitivities, but this can also cause exacerbations. Was Noah exposed to anything 3 weeks ago? New school, paint job, vacation, new furniture, etc.?

The other question I would ask the doctor is Noah's throat red, eardrums red and swollen? How does his chest sound? All clues towards inflammation if you can't find any bacterial, fungal, or viral reasons for his increased symptoms.

At any rate, I would investigate this further with other opinions.
 

Nightwriter

New member
Hi Valerie,
<br />
<br />While I don't want to second guess your doctor, I would like to make a comment or two. I think when your own instinct is telling you something doesn't sit right, it might be prudent to get a second opinion before taking an invasive action. Sure, it is possible the bronch may reveal something that couldn't have been identified through other means. But on the other hand, my question to the doctor is this: Is it possible that another culture would show something BEFORE be do a bronch?
<br />
<br />I can only tell you how my doctor handles my coughs. Which may be entirely different from Noah's of course. My doctor does not do bronchs as a matter of routine, because there is a possibility of introducing new bugs into the lungs. Equipment is not always sterilized properly. So up until now, I haven't had a bronch and hope never to have to have one. My doctor has been able to identify my problems without the use of them.
<br />
<br />You said Noah's IGG test was a little elevated. That test measures the most common antibodies in the body which fight bacterias AND viruses. So if it is a virus, an antibiotic would have no effect on it.
<br />
<br />There is another test called an IgE blood test which also measures antibodies, but these cause the body to react against, pollen, fungus, spores, animal dander, etc. It can be used as a clue to whether allergies are causeing inflammation which causes a lot of unexplained coughs. I say clue, because the test can even be negative, and "allergens" or irritants can inflame the already hypersensitive airways of people with lung problems. Noah is also old enough to have allergy skin tests -- which may also provide clues. Again, they can't test for everything, but this is a start. And there are no tests for chemical sensitivities, but this can also cause exacerbations. Was Noah exposed to anything 3 weeks ago? New school, paint job, vacation, new furniture, etc.?
<br />
<br />The other question I would ask the doctor is Noah's throat red, eardrums red and swollen? How does his chest sound? All clues towards inflammation if you can't find any bacterial, fungal, or viral reasons for his increased symptoms.
<br />
<br />At any rate, I would investigate this further with other opinions.
 

Buckeye

New member
Did he mention why he wants to do the Bronch - to just get some sputum or was it to take a good look around the lungs? Have they done a chest x-ray or CT yet - if so, does it show any damage or inflamation?I have to tell you that my son saw the head of the Pulmo dept at a very highly respected hospital when he was first diagnosed and he immediately referred us to the local CF Clinic. He made no bones about the fact that he was not as qualified to handle a CF case as the CF Clinic was. It wouldn't hurt to at least get a second opinion from the CF Clinic.
 

Buckeye

New member
Did he mention why he wants to do the Bronch - to just get some sputum or was it to take a good look around the lungs? Have they done a chest x-ray or CT yet - if so, does it show any damage or inflamation?I have to tell you that my son saw the head of the Pulmo dept at a very highly respected hospital when he was first diagnosed and he immediately referred us to the local CF Clinic. He made no bones about the fact that he was not as qualified to handle a CF case as the CF Clinic was. It wouldn't hurt to at least get a second opinion from the CF Clinic.
 

Buckeye

New member
Did he mention why he wants to do the Bronch - to just get some sputum or was it to take a good look around the lungs? Have they done a chest x-ray or CT yet - if so, does it show any damage or inflamation?I have to tell you that my son saw the head of the Pulmo dept at a very highly respected hospital when he was first diagnosed and he immediately referred us to the local CF Clinic. He made no bones about the fact that he was not as qualified to handle a CF case as the CF Clinic was. It wouldn't hurt to at least get a second opinion from the CF Clinic.
 

Buckeye

New member
Did he mention why he wants to do the Bronch - to just get some sputum or was it to take a good look around the lungs? Have they done a chest x-ray or CT yet - if so, does it show any damage or inflamation?I have to tell you that my son saw the head of the Pulmo dept at a very highly respected hospital when he was first diagnosed and he immediately referred us to the local CF Clinic. He made no bones about the fact that he was not as qualified to handle a CF case as the CF Clinic was. It wouldn't hurt to at least get a second opinion from the CF Clinic.
 

Buckeye

New member
Did he mention why he wants to do the Bronch - to just get some sputum or was it to take a good look around the lungs? Have they done a chest x-ray or CT yet - if so, does it show any damage or inflamation?<p>I have to tell you that my son saw the head of the Pulmo dept at a very highly respected hospital when he was first diagnosed and he immediately referred us to the local CF Clinic. He made no bones about the fact that he was not as qualified to handle a CF case as the CF Clinic was. It wouldn't hurt to at least get a second opinion from the CF Clinic.
 
V

valigirl21

Guest
Do I have to get a referral to the CF clinic? Can I just call them up and say, "Hey, my son most likely has CF, but there are no known genetic mutations? Can I get an appointment?"

Nightwriter, in response to some of your ? they have done a sputum test tho not regularly. A chest ct and x-ray have both been done, with no noticable lung damage. The problem is he keeps getting bronchitits, and the pulm is trying to figure iut why. He is also trying to find that last piece of evidence to concretely dx him with cf. The dx is just an opinion right now.(See above comment re: mutations). Also the tested ALL immunoglobulins and the IGG was the only one elevated. Tues. he is seeing a pedi hem/oc that specializes in immune disorders. Hopefully he can shed some light on the subject. And his ears and throat looked fine, but his chest was very congested, per pulm.

Thank you to everyone who is offering their feedback. I will definiately speak to the CF center, and the pulm. Please continue to post opinions and suggestions, as I'm not sure what I'm doing as yet.
 
V

valigirl21

Guest
Do I have to get a referral to the CF clinic? Can I just call them up and say, "Hey, my son most likely has CF, but there are no known genetic mutations? Can I get an appointment?"

Nightwriter, in response to some of your ? they have done a sputum test tho not regularly. A chest ct and x-ray have both been done, with no noticable lung damage. The problem is he keeps getting bronchitits, and the pulm is trying to figure iut why. He is also trying to find that last piece of evidence to concretely dx him with cf. The dx is just an opinion right now.(See above comment re: mutations). Also the tested ALL immunoglobulins and the IGG was the only one elevated. Tues. he is seeing a pedi hem/oc that specializes in immune disorders. Hopefully he can shed some light on the subject. And his ears and throat looked fine, but his chest was very congested, per pulm.

Thank you to everyone who is offering their feedback. I will definiately speak to the CF center, and the pulm. Please continue to post opinions and suggestions, as I'm not sure what I'm doing as yet.
 
V

valigirl21

Guest
Do I have to get a referral to the CF clinic? Can I just call them up and say, "Hey, my son most likely has CF, but there are no known genetic mutations? Can I get an appointment?"

Nightwriter, in response to some of your ? they have done a sputum test tho not regularly. A chest ct and x-ray have both been done, with no noticable lung damage. The problem is he keeps getting bronchitits, and the pulm is trying to figure iut why. He is also trying to find that last piece of evidence to concretely dx him with cf. The dx is just an opinion right now.(See above comment re: mutations). Also the tested ALL immunoglobulins and the IGG was the only one elevated. Tues. he is seeing a pedi hem/oc that specializes in immune disorders. Hopefully he can shed some light on the subject. And his ears and throat looked fine, but his chest was very congested, per pulm.

Thank you to everyone who is offering their feedback. I will definiately speak to the CF center, and the pulm. Please continue to post opinions and suggestions, as I'm not sure what I'm doing as yet.
 
V

valigirl21

Guest
Do I have to get a referral to the CF clinic? Can I just call them up and say, "Hey, my son most likely has CF, but there are no known genetic mutations? Can I get an appointment?"

Nightwriter, in response to some of your ? they have done a sputum test tho not regularly. A chest ct and x-ray have both been done, with no noticable lung damage. The problem is he keeps getting bronchitits, and the pulm is trying to figure iut why. He is also trying to find that last piece of evidence to concretely dx him with cf. The dx is just an opinion right now.(See above comment re: mutations). Also the tested ALL immunoglobulins and the IGG was the only one elevated. Tues. he is seeing a pedi hem/oc that specializes in immune disorders. Hopefully he can shed some light on the subject. And his ears and throat looked fine, but his chest was very congested, per pulm.

Thank you to everyone who is offering their feedback. I will definiately speak to the CF center, and the pulm. Please continue to post opinions and suggestions, as I'm not sure what I'm doing as yet.
 
V

valigirl21

Guest
Do I have to get a referral to the CF clinic? Can I just call them up and say, "Hey, my son most likely has CF, but there are no known genetic mutations? Can I get an appointment?"
<br />
<br />Nightwriter, in response to some of your ? they have done a sputum test tho not regularly. A chest ct and x-ray have both been done, with no noticable lung damage. The problem is he keeps getting bronchitits, and the pulm is trying to figure iut why. He is also trying to find that last piece of evidence to concretely dx him with cf. The dx is just an opinion right now.(See above comment re: mutations). Also the tested ALL immunoglobulins and the IGG was the only one elevated. Tues. he is seeing a pedi hem/oc that specializes in immune disorders. Hopefully he can shed some light on the subject. And his ears and throat looked fine, but his chest was very congested, per pulm.
<br />
<br />Thank you to everyone who is offering their feedback. I will definiately speak to the CF center, and the pulm. Please continue to post opinions and suggestions, as I'm not sure what I'm doing as yet.
<br />
 
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