What about playgroups/classes for our little ones?

gr33nie · Oct 24, 2006

Thanks everyone. 
 
I think that I will continue to bring Eli to the playgroup. I
do need friends and other mommy support and so does Eli. and
I do want him to feel as 'normal' as possible. 
 
Do you all do anything extra to help your child's immunity? 
 
We were prescribed a vitamin supplement that he will start taking
twice a day once he's one. Any other tricks to keep em'
healthy? 
 
Nice to meet you all btw. You all sounds like great
mommies<img src="i/expressions/face-icon-small-smile.gif" border="0"> 
 
Sarah

tammykrumrey · Oct 24, 2006

Sarah,
I agree with what the others have said. Let your daughter play with the other kids. I did not know my first daughter had CF until she was 14 months old. She was not in daycare, but still caught colds just like the rest of us. After my second daughter was born, also with CF, both of my girls started daycare part time. And they really didn't get sick any more than that of what the other kids did.
Our CF doctor at that time said that they are going to catch the 'bugs' going around, and that they might as well catch them while they are little and become 'immune' to the common ones instead of catching them when in school and missing out on their educational days.
I am cautious, just as mentioned above, about smoky places. We avoid them at all costs. And I am more careful around others with CF. It's one thing to catch 'colds and stuff' and another to catch the 'CF bugs'. Although we cannot live in a bubble!
Just take things day by day, and you will know what is best for your little girl<img src="i/expressions/face-icon-small-smile.gif" border="0">
Welcome to the group. There really are some amazing people here with a wealth of knowledge. I am always learning something knew, even still today, with having CF in my family for 15 years!

tammykrumrey · Oct 24, 2006

Sarah,
I agree with what the others have said. Let your daughter play with the other kids. I did not know my first daughter had CF until she was 14 months old. She was not in daycare, but still caught colds just like the rest of us. After my second daughter was born, also with CF, both of my girls started daycare part time. And they really didn't get sick any more than that of what the other kids did.
Our CF doctor at that time said that they are going to catch the 'bugs' going around, and that they might as well catch them while they are little and become 'immune' to the common ones instead of catching them when in school and missing out on their educational days.
I am cautious, just as mentioned above, about smoky places. We avoid them at all costs. And I am more careful around others with CF. It's one thing to catch 'colds and stuff' and another to catch the 'CF bugs'. Although we cannot live in a bubble!
Just take things day by day, and you will know what is best for your little girl<img src="i/expressions/face-icon-small-smile.gif" border="0">
Welcome to the group. There really are some amazing people here with a wealth of knowledge. I am always learning something knew, even still today, with having CF in my family for 15 years!

tammykrumrey · Oct 24, 2006

Sarah,
I agree with what the others have said. Let your daughter play with the other kids. I did not know my first daughter had CF until she was 14 months old. She was not in daycare, but still caught colds just like the rest of us. After my second daughter was born, also with CF, both of my girls started daycare part time. And they really didn't get sick any more than that of what the other kids did.
Our CF doctor at that time said that they are going to catch the 'bugs' going around, and that they might as well catch them while they are little and become 'immune' to the common ones instead of catching them when in school and missing out on their educational days.
I am cautious, just as mentioned above, about smoky places. We avoid them at all costs. And I am more careful around others with CF. It's one thing to catch 'colds and stuff' and another to catch the 'CF bugs'. Although we cannot live in a bubble!
Just take things day by day, and you will know what is best for your little girl<img src="i/expressions/face-icon-small-smile.gif" border="0">
Welcome to the group. There really are some amazing people here with a wealth of knowledge. I am always learning something knew, even still today, with having CF in my family for 15 years!

JRPandTJP · Oct 24, 2006

I was so paranoid the first year after diagnosis. It is hard to not feel suddenly vulnerable out there. Keep going...really nothing has changed. Your friends will be sensative to your needs and most will either keep kids home or forewarn you if they have a sniffle. I do avoid things at times when I know my friends children have really been down with something but ultimately you never know where they pick up a bug...could be the play date could be the store could be your husband...

We just try to carry purelle, practice before and after hand washing and eat well.

Live your life, your friends will miss you if you stop going and you probably need it more now than ever.

Warmly,
Jody

JRPandTJP · Oct 24, 2006

I was so paranoid the first year after diagnosis. It is hard to not feel suddenly vulnerable out there. Keep going...really nothing has changed. Your friends will be sensative to your needs and most will either keep kids home or forewarn you if they have a sniffle. I do avoid things at times when I know my friends children have really been down with something but ultimately you never know where they pick up a bug...could be the play date could be the store could be your husband...

We just try to carry purelle, practice before and after hand washing and eat well.

Live your life, your friends will miss you if you stop going and you probably need it more now than ever.

Warmly,
Jody

JRPandTJP · Oct 24, 2006

I was so paranoid the first year after diagnosis. It is hard to not feel suddenly vulnerable out there. Keep going...really nothing has changed. Your friends will be sensative to your needs and most will either keep kids home or forewarn you if they have a sniffle. I do avoid things at times when I know my friends children have really been down with something but ultimately you never know where they pick up a bug...could be the play date could be the store could be your husband...

We just try to carry purelle, practice before and after hand washing and eat well.

Live your life, your friends will miss you if you stop going and you probably need it more now than ever.

Warmly,
Jody

amysmom · Oct 24, 2006

<div class="FTQUOTE"><begin quote>Originally posted by: gr33nie Hello I am really
new to all of this. My son Eli who is almost 1 yr old was
just dx two weeks ago. Before he was dx I used to take him to
a playgroup once a week with about 4 or 5 other moms and their
babies. We were very lax about letting the kids play with
toys that the other had played with. It was very common for
one child to stick something in their mouth and the next thing you
know another child has the same thing in their mouth. I just wonder
if I should still be a part of this group. If I do go back,
what kind of precautions do I have to take. I'd hate to be
the mom always sanitizing everything. I also worry about when
it's my turn to host it at my house and there are lots of babies
handling Eli's toys. How do other parents of children with CF
handled this? (Eli was also taking a music class with similar
issues) Thanks very much Sarah</end quote></div>

amysmom · Oct 24, 2006

<div class="FTQUOTE"><begin quote>Originally posted by: gr33nie Hello I am really
new to all of this. My son Eli who is almost 1 yr old was
just dx two weeks ago. Before he was dx I used to take him to
a playgroup once a week with about 4 or 5 other moms and their
babies. We were very lax about letting the kids play with
toys that the other had played with. It was very common for
one child to stick something in their mouth and the next thing you
know another child has the same thing in their mouth. I just wonder
if I should still be a part of this group. If I do go back,
what kind of precautions do I have to take. I'd hate to be
the mom always sanitizing everything. I also worry about when
it's my turn to host it at my house and there are lots of babies
handling Eli's toys. How do other parents of children with CF
handled this? (Eli was also taking a music class with similar
issues) Thanks very much Sarah</end quote></div>

amysmom · Oct 24, 2006

<div class="FTQUOTE"><begin quote>Originally posted by: gr33nie Hello I am really
new to all of this. My son Eli who is almost 1 yr old was
just dx two weeks ago. Before he was dx I used to take him to
a playgroup once a week with about 4 or 5 other moms and their
babies. We were very lax about letting the kids play with
toys that the other had played with. It was very common for
one child to stick something in their mouth and the next thing you
know another child has the same thing in their mouth. I just wonder
if I should still be a part of this group. If I do go back,
what kind of precautions do I have to take. I'd hate to be
the mom always sanitizing everything. I also worry about when
it's my turn to host it at my house and there are lots of babies
handling Eli's toys. How do other parents of children with CF
handled this? (Eli was also taking a music class with similar
issues) Thanks very much Sarah</end quote></div>

amysmom · Oct 24, 2006

<div class="FTQUOTE"><begin quote>Originally posted by: gr33nie Hello I am really
new to all of this. My son Eli who is almost 1 yr old was
just dx two weeks ago. Before he was dx I used to take him to
a playgroup once a week with about 4 or 5 other moms and their
babies. We were very lax about letting the kids play with
toys that the other had played with. It was very common for
one child to stick something in their mouth and the next thing you
know another child has the same thing in their mouth. I just wonder
if I should still be a part of this group. If I do go back,
what kind of precautions do I have to take. I'd hate to be
the mom always sanitizing everything. I also worry about when
it's my turn to host it at my house and there are lots of babies
handling Eli's toys. How do other parents of children with CF
handled this? (Eli was also taking a music class with similar
issues) Thanks very much Sarah</end quote></div> 
 
 
Sara, I had to deal with this when my daughter, Amy, was
young. I remember thinking I had to make a choice between
'quantity' and 'quality' of life for her. I chose 'quality'
(within reason) so that she would grow up feeling the same as other
children. Her CF doctor also told me that Amy would build
immunities being around other children who may pass on a cold to
her and not to keep her away from them. I did wash her hands
and toys after she played with friends but not in an obvious way,
so again she didn't grow up with the feeling of a 'panicky' mom,
which would create self-consciousness and that feeling, again, that
she was weird and different. I'm sure I, like you, feel
friends were crucial to her happiness and development so I would
take a few minor precautions and (try to!) forget about the
rest.

amysmom · Oct 24, 2006

<div class="FTQUOTE"><begin quote>Originally posted by: gr33nie Hello I am really
new to all of this. My son Eli who is almost 1 yr old was
just dx two weeks ago. Before he was dx I used to take him to
a playgroup once a week with about 4 or 5 other moms and their
babies. We were very lax about letting the kids play with
toys that the other had played with. It was very common for
one child to stick something in their mouth and the next thing you
know another child has the same thing in their mouth. I just wonder
if I should still be a part of this group. If I do go back,
what kind of precautions do I have to take. I'd hate to be
the mom always sanitizing everything. I also worry about when
it's my turn to host it at my house and there are lots of babies
handling Eli's toys. How do other parents of children with CF
handled this? (Eli was also taking a music class with similar
issues) Thanks very much Sarah</end quote></div> 
 
 
Sara, I had to deal with this when my daughter, Amy, was
young. I remember thinking I had to make a choice between
'quantity' and 'quality' of life for her. I chose 'quality'
(within reason) so that she would grow up feeling the same as other
children. Her CF doctor also told me that Amy would build
immunities being around other children who may pass on a cold to
her and not to keep her away from them. I did wash her hands
and toys after she played with friends but not in an obvious way,
so again she didn't grow up with the feeling of a 'panicky' mom,
which would create self-consciousness and that feeling, again, that
she was weird and different. I'm sure I, like you, feel
friends were crucial to her happiness and development so I would
take a few minor precautions and (try to!) forget about the
rest.

amysmom · Oct 24, 2006

<div class="FTQUOTE"><begin quote>Originally posted by: gr33nie Hello I am really
new to all of this. My son Eli who is almost 1 yr old was
just dx two weeks ago. Before he was dx I used to take him to
a playgroup once a week with about 4 or 5 other moms and their
babies. We were very lax about letting the kids play with
toys that the other had played with. It was very common for
one child to stick something in their mouth and the next thing you
know another child has the same thing in their mouth. I just wonder
if I should still be a part of this group. If I do go back,
what kind of precautions do I have to take. I'd hate to be
the mom always sanitizing everything. I also worry about when
it's my turn to host it at my house and there are lots of babies
handling Eli's toys. How do other parents of children with CF
handled this? (Eli was also taking a music class with similar
issues) Thanks very much Sarah</end quote></div> 
 
 
Sara, I had to deal with this when my daughter, Amy, was
young. I remember thinking I had to make a choice between
'quantity' and 'quality' of life for her. I chose 'quality'
(within reason) so that she would grow up feeling the same as other
children. Her CF doctor also told me that Amy would build
immunities being around other children who may pass on a cold to
her and not to keep her away from them. I did wash her hands
and toys after she played with friends but not in an obvious way,
so again she didn't grow up with the feeling of a 'panicky' mom,
which would create self-consciousness and that feeling, again, that
she was weird and different. I'm sure I, like you, feel
friends were crucial to her happiness and development so I would
take a few minor precautions and (try to!) forget about the
rest.

Allie · Oct 24, 2006

<div class="FTQUOTE"><begin quote>and that feeling, again, that she was weird and different.</end quote></div>

But Amy IS weird and different!!!! DOn't lie!!!!

And if they follow your advice, their kids might become like Amy, and God knows we don't need more Amys in the world lol.

<img src="">

Allie · Oct 24, 2006

<div class="FTQUOTE"><begin quote>and that feeling, again, that she was weird and different.</end quote></div>

But Amy IS weird and different!!!! DOn't lie!!!!

And if they follow your advice, their kids might become like Amy, and God knows we don't need more Amys in the world lol.

<img src="">

Allie · Oct 24, 2006

<div class="FTQUOTE"><begin quote>and that feeling, again, that she was weird and different.</end quote></div>

But Amy IS weird and different!!!! DOn't lie!!!!

And if they follow your advice, their kids might become like Amy, and God knows we don't need more Amys in the world lol.

<img src="">

NoExcuses · Oct 24, 2006

HAHAHAHAHA allie. you rock <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0">

NoExcuses · Oct 24, 2006

HAHAHAHAHA allie. you rock <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0">

NoExcuses · Oct 24, 2006

HAHAHAHAHA allie. you rock <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0">

What about playgroups/classes for our little ones?

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