What are signs of pancreatitis in young children?

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SarahProcter

Guest
I am going to ask this at our next clinic visit also but I thought that the parents here might have first-hand knowledge to share:

My toddler daughter is pancreatic sufficient. We are told that kids with CF who are PS are often at high risk for developing pancreatitis. What signs would one look for to notice such a condition, especially in a young child? Any input most appreciated, thanks!
 
S

SarahProcter

Guest
I am going to ask this at our next clinic visit also but I thought that the parents here might have first-hand knowledge to share:

My toddler daughter is pancreatic sufficient. We are told that kids with CF who are PS are often at high risk for developing pancreatitis. What signs would one look for to notice such a condition, especially in a young child? Any input most appreciated, thanks!
 
S

SarahProcter

Guest
I am going to ask this at our next clinic visit also but I thought that the parents here might have first-hand knowledge to share:
<br />
<br />My toddler daughter is pancreatic sufficient. We are told that kids with CF who are PS are often at high risk for developing pancreatitis. What signs would one look for to notice such a condition, especially in a young child? Any input most appreciated, thanks!
 
M

Mommafirst

Guest
Extreme pain and high fever. You won't be able to miss it.
 
M

Mommafirst

Guest
Extreme pain and high fever. You won't be able to miss it.
 
M

Mommafirst

Guest
Extreme pain and high fever. You won't be able to miss it.
 
S

SarahProcter

Guest
Well, that's oddly reassuring that it's impossible to miss!

My daughter's too young to reliably communicate symptoms, but sometimes seems to have zero appetite, nausea, and a belly ache, and I am glad to hear that that's not what we'd see if she was developing pancreatitis!
 
S

SarahProcter

Guest
Well, that's oddly reassuring that it's impossible to miss!

My daughter's too young to reliably communicate symptoms, but sometimes seems to have zero appetite, nausea, and a belly ache, and I am glad to hear that that's not what we'd see if she was developing pancreatitis!
 
S

SarahProcter

Guest
Well, that's oddly reassuring that it's impossible to miss!
<br />
<br />My daughter's too young to reliably communicate symptoms, but sometimes seems to have zero appetite, nausea, and a belly ache, and I am glad to hear that that's not what we'd see if she was developing pancreatitis!
 
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Mommafirst

Guest
YOu'd know because it will respond like any major infection, high white count, probably inability to keep things down, etc. I would definitely see a doctor with those symptoms though if they persist for long.
 
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Mommafirst

Guest
YOu'd know because it will respond like any major infection, high white count, probably inability to keep things down, etc. I would definitely see a doctor with those symptoms though if they persist for long.
 
M

Mommafirst

Guest
YOu'd know because it will respond like any major infection, high white count, probably inability to keep things down, etc. I would definitely see a doctor with those symptoms though if they persist for long.
 
M

MaksNana

New member
Hi SaraProctor,
I have always heard of kids that are PS might get pancreatitis, but, as in our case Mak has been in the hospital 6times in the past few months with pancreatitis, and she is "PI". She has been put on morphine due to the pain being so bad, and this is unusal for a PI person to get pancreatitis. They even did a GI scope to see how bad PI she is , and the numbers don't lie, she is very bad PI!

Symtoms are still the same though. Heather is right when she said it's impossible to miss.
The doctors say it is one of the worst pains a person can experience. And when you have an 8yr old screaming to go to the hospital, knowing what they go through when they are there, then you know it must be bad.

Your child wouldn't need to talk for you to know.They
usually just wake up and will start throwing up "bile" not
vomit, which will contain food contents in it.They might
have a 5min break between filling a plastic grocerie bag.Until they get to the hospital and put on fluids, Morphine, nausia meds, no food or drink (they don't want to anyways) and lots of prayer, you'll know it!
Also, sometimes the temp won't show up for about 8 to 12 hours after they throw up bile,this is how it's been in our case.Also, if it happens and your child is older they will complain of pain in the upper mid gastric area.

Sometimes the WBC won't be high right away, and the amylase and lipase takes anywhere to 24 to 48 hours to show abnormal.But, you would know from the non stop "bile", screaming, or so lethargic, they can't stand up, which this starts right away! And they would have to have emergency care within 24hours, due to dehydration, it messing up the metabolic system.
I pray your little one never experience's this, it is very serious, and painful !
God Bless,,,,karla <img src="i/expressions/heart.gif" border="0">
 
M

MaksNana

New member
Hi SaraProctor,
I have always heard of kids that are PS might get pancreatitis, but, as in our case Mak has been in the hospital 6times in the past few months with pancreatitis, and she is "PI". She has been put on morphine due to the pain being so bad, and this is unusal for a PI person to get pancreatitis. They even did a GI scope to see how bad PI she is , and the numbers don't lie, she is very bad PI!

Symtoms are still the same though. Heather is right when she said it's impossible to miss.
The doctors say it is one of the worst pains a person can experience. And when you have an 8yr old screaming to go to the hospital, knowing what they go through when they are there, then you know it must be bad.

Your child wouldn't need to talk for you to know.They
usually just wake up and will start throwing up "bile" not
vomit, which will contain food contents in it.They might
have a 5min break between filling a plastic grocerie bag.Until they get to the hospital and put on fluids, Morphine, nausia meds, no food or drink (they don't want to anyways) and lots of prayer, you'll know it!
Also, sometimes the temp won't show up for about 8 to 12 hours after they throw up bile,this is how it's been in our case.Also, if it happens and your child is older they will complain of pain in the upper mid gastric area.

Sometimes the WBC won't be high right away, and the amylase and lipase takes anywhere to 24 to 48 hours to show abnormal.But, you would know from the non stop "bile", screaming, or so lethargic, they can't stand up, which this starts right away! And they would have to have emergency care within 24hours, due to dehydration, it messing up the metabolic system.
I pray your little one never experience's this, it is very serious, and painful !
God Bless,,,,karla <img src="i/expressions/heart.gif" border="0">
 
M

MaksNana

New member
Hi SaraProctor,
<br />I have always heard of kids that are PS might get pancreatitis, but, as in our case Mak has been in the hospital 6times in the past few months with pancreatitis, and she is "PI". She has been put on morphine due to the pain being so bad, and this is unusal for a PI person to get pancreatitis. They even did a GI scope to see how bad PI she is , and the numbers don't lie, she is very bad PI!
<br />
<br />Symtoms are still the same though. Heather is right when she said it's impossible to miss.
<br />The doctors say it is one of the worst pains a person can experience. And when you have an 8yr old screaming to go to the hospital, knowing what they go through when they are there, then you know it must be bad.
<br />
<br />Your child wouldn't need to talk for you to know.They
<br />usually just wake up and will start throwing up "bile" not
<br />vomit, which will contain food contents in it.They might
<br /> have a 5min break between filling a plastic grocerie bag.Until they get to the hospital and put on fluids, Morphine, nausia meds, no food or drink (they don't want to anyways) and lots of prayer, you'll know it!
<br />Also, sometimes the temp won't show up for about 8 to 12 hours after they throw up bile,this is how it's been in our case.Also, if it happens and your child is older they will complain of pain in the upper mid gastric area.
<br />
<br />Sometimes the WBC won't be high right away, and the amylase and lipase takes anywhere to 24 to 48 hours to show abnormal.But, you would know from the non stop "bile", screaming, or so lethargic, they can't stand up, which this starts right away! And they would have to have emergency care within 24hours, due to dehydration, it messing up the metabolic system.
<br />I pray your little one never experience's this, it is very serious, and painful !
<br />God Bless,,,,karla <img src="i/expressions/heart.gif" border="0">
 
N

NAVCHAPDOC

New member
Here is what I can tell you from having a 2 year old daughter that has had it twice in the last 3 months. The first time she had it, she went to bed on a Friday evening totally fine. She woke up about 6 hours later limp as a cooked noodle and vomiting up pure bile.She could not hold he head up, no muscle tone at all. She looked like she was going to die. I have never seen a child look that sick. Once at the hospital, her amylase was right about 4000 and lipase was aboyt 3000. She was there for 5 days undergoing the usual treatment. The 2nd time, we didnt know it. Her and her brother both got sick at the same time with a GI bug. A week later, he pulled out of it, she didnt. I called the GI doc that worked her up the first time and requested labs. Her Amylase was 1300 and Lipase was 700. There was NO vomiting this time only loose foul smelling stool. She did from time to time hold her belly and say "ouch" that is what prompted me to call for the labs. I do not believe any Dr or study that says enzyme counts do not reflect the level of illness.
 
N

NAVCHAPDOC

New member
Here is what I can tell you from having a 2 year old daughter that has had it twice in the last 3 months. The first time she had it, she went to bed on a Friday evening totally fine. She woke up about 6 hours later limp as a cooked noodle and vomiting up pure bile.She could not hold he head up, no muscle tone at all. She looked like she was going to die. I have never seen a child look that sick. Once at the hospital, her amylase was right about 4000 and lipase was aboyt 3000. She was there for 5 days undergoing the usual treatment. The 2nd time, we didnt know it. Her and her brother both got sick at the same time with a GI bug. A week later, he pulled out of it, she didnt. I called the GI doc that worked her up the first time and requested labs. Her Amylase was 1300 and Lipase was 700. There was NO vomiting this time only loose foul smelling stool. She did from time to time hold her belly and say "ouch" that is what prompted me to call for the labs. I do not believe any Dr or study that says enzyme counts do not reflect the level of illness.
 
N

NAVCHAPDOC

New member
Here is what I can tell you from having a 2 year old daughter that has had it twice in the last 3 months. The first time she had it, she went to bed on a Friday evening totally fine. She woke up about 6 hours later limp as a cooked noodle and vomiting up pure bile.She could not hold he head up, no muscle tone at all. She looked like she was going to die. I have never seen a child look that sick. Once at the hospital, her amylase was right about 4000 and lipase was aboyt 3000. She was there for 5 days undergoing the usual treatment. The 2nd time, we didnt know it. Her and her brother both got sick at the same time with a GI bug. A week later, he pulled out of it, she didnt. I called the GI doc that worked her up the first time and requested labs. Her Amylase was 1300 and Lipase was 700. There was NO vomiting this time only loose foul smelling stool. She did from time to time hold her belly and say "ouch" that is what prompted me to call for the labs. I do not believe any Dr or study that says enzyme counts do not reflect the level of illness.
 
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