What are the best books about CF?

  • Thread starter CombustibleCetacean
  • Start date
A

Aspiemom

Guest
John Hopkins gave me one, but I found it difficult to understand, then Vanderbilt gave me 2. One was geared more toward children w/ CF and the other is the absolute <b>BEST</b>. My whole family has been reading it as it is very easy to understand, covers just EVERYTHING and is so informative. I've been recommending it to everyone!

<u><b>"NOW THAT I HAVE CF"</b> Information for Men and Women Diagnosed as Adults</u>
Editors: Eileen Wilderman, Barbara Palys, John R. Palys

It is more for people diagnosed as Adults, but I recommend it for others, also as it is very educational. You can't buy it. You should be able to get it free from your CF Center. If they don't have it on hand, tell them Solvay Pharmaceuticals provides it for free to clinics for patients.

Hope this helps!
 
A

Aspiemom

Guest
John Hopkins gave me one, but I found it difficult to understand, then Vanderbilt gave me 2. One was geared more toward children w/ CF and the other is the absolute <b>BEST</b>. My whole family has been reading it as it is very easy to understand, covers just EVERYTHING and is so informative. I've been recommending it to everyone!

<u><b>"NOW THAT I HAVE CF"</b> Information for Men and Women Diagnosed as Adults</u>
Editors: Eileen Wilderman, Barbara Palys, John R. Palys

It is more for people diagnosed as Adults, but I recommend it for others, also as it is very educational. You can't buy it. You should be able to get it free from your CF Center. If they don't have it on hand, tell them Solvay Pharmaceuticals provides it for free to clinics for patients.

Hope this helps!
 
A

Aspiemom

Guest
John Hopkins gave me one, but I found it difficult to understand, then Vanderbilt gave me 2. One was geared more toward children w/ CF and the other is the absolute <b>BEST</b>. My whole family has been reading it as it is very easy to understand, covers just EVERYTHING and is so informative. I've been recommending it to everyone!

<u><b>"NOW THAT I HAVE CF"</b> Information for Men and Women Diagnosed as Adults</u>
Editors: Eileen Wilderman, Barbara Palys, John R. Palys

It is more for people diagnosed as Adults, but I recommend it for others, also as it is very educational. You can't buy it. You should be able to get it free from your CF Center. If they don't have it on hand, tell them Solvay Pharmaceuticals provides it for free to clinics for patients.

Hope this helps!
 
A

Aspiemom

Guest
John Hopkins gave me one, but I found it difficult to understand, then Vanderbilt gave me 2. One was geared more toward children w/ CF and the other is the absolute <b>BEST</b>. My whole family has been reading it as it is very easy to understand, covers just EVERYTHING and is so informative. I've been recommending it to everyone!

<u><b>"NOW THAT I HAVE CF"</b> Information for Men and Women Diagnosed as Adults</u>
Editors: Eileen Wilderman, Barbara Palys, John R. Palys

It is more for people diagnosed as Adults, but I recommend it for others, also as it is very educational. You can't buy it. You should be able to get it free from your CF Center. If they don't have it on hand, tell them Solvay Pharmaceuticals provides it for free to clinics for patients.

Hope this helps!
 
A

Aspiemom

Guest
John Hopkins gave me one, but I found it difficult to understand, then Vanderbilt gave me 2. One was geared more toward children w/ CF and the other is the absolute <b>BEST</b>. My whole family has been reading it as it is very easy to understand, covers just EVERYTHING and is so informative. I've been recommending it to everyone!

<u><b>"NOW THAT I HAVE CF"</b> Information for Men and Women Diagnosed as Adults</u>
Editors: Eileen Wilderman, Barbara Palys, John R. Palys

It is more for people diagnosed as Adults, but I recommend it for others, also as it is very educational. You can't buy it. You should be able to get it free from your CF Center. If they don't have it on hand, tell them Solvay Pharmaceuticals provides it for free to clinics for patients.

Hope this helps!
 
E

Emily65Roses

New member
If you're interested in the transplant view of things, I say check out Laura Rothenberg's Breathing For a Living. She wrote it and it's all about her transplant.
 
E

Emily65Roses

New member
If you're interested in the transplant view of things, I say check out Laura Rothenberg's Breathing For a Living. She wrote it and it's all about her transplant.
 
E

Emily65Roses

New member
If you're interested in the transplant view of things, I say check out Laura Rothenberg's Breathing For a Living. She wrote it and it's all about her transplant.
 
E

Emily65Roses

New member
If you're interested in the transplant view of things, I say check out Laura Rothenberg's Breathing For a Living. She wrote it and it's all about her transplant.
 
E

Emily65Roses

New member
If you're interested in the transplant view of things, I say check out Laura Rothenberg's Breathing For a Living. She wrote it and it's all about her transplant.
 
B

blindhearted

New member
I have "Cystic Fibrosis: Medical Care". It's written by a few doctors. It's more of a medical point of view but very informative. I purchased mine on E-bay. Go to Ebay and type in cystic fibrosis, a list of things, including books will show up. Things on half.com show up too.

Added: I found this website that list books about CF. I do know how up to date it is, but I figured it would give you a start.

<a target=_blank class=ftalternatingbarlinklarge href="http://www3.nbnet.nb.ca/normap/cfbooks.htm
">http://www3.nbnet.nb.ca/normap/cfbooks.htm
</a>

Where can you purchase "Now that I have CF"? I have looked at amazon and ebay, cant seem to find it. Please send me info if you can. Thanks.
 
B

blindhearted

New member
I have "Cystic Fibrosis: Medical Care". It's written by a few doctors. It's more of a medical point of view but very informative. I purchased mine on E-bay. Go to Ebay and type in cystic fibrosis, a list of things, including books will show up. Things on half.com show up too.

Added: I found this website that list books about CF. I do know how up to date it is, but I figured it would give you a start.

<a target=_blank class=ftalternatingbarlinklarge href="http://www3.nbnet.nb.ca/normap/cfbooks.htm
">http://www3.nbnet.nb.ca/normap/cfbooks.htm
</a>

Where can you purchase "Now that I have CF"? I have looked at amazon and ebay, cant seem to find it. Please send me info if you can. Thanks.
 
B

blindhearted

New member
I have "Cystic Fibrosis: Medical Care". It's written by a few doctors. It's more of a medical point of view but very informative. I purchased mine on E-bay. Go to Ebay and type in cystic fibrosis, a list of things, including books will show up. Things on half.com show up too.

Added: I found this website that list books about CF. I do know how up to date it is, but I figured it would give you a start.

<a target=_blank class=ftalternatingbarlinklarge href="http://www3.nbnet.nb.ca/normap/cfbooks.htm
">http://www3.nbnet.nb.ca/normap/cfbooks.htm
</a>

Where can you purchase "Now that I have CF"? I have looked at amazon and ebay, cant seem to find it. Please send me info if you can. Thanks.
 
B

blindhearted

New member
I have "Cystic Fibrosis: Medical Care". It's written by a few doctors. It's more of a medical point of view but very informative. I purchased mine on E-bay. Go to Ebay and type in cystic fibrosis, a list of things, including books will show up. Things on half.com show up too.

Added: I found this website that list books about CF. I do know how up to date it is, but I figured it would give you a start.

<a target=_blank class=ftalternatingbarlinklarge href="http://www3.nbnet.nb.ca/normap/cfbooks.htm
">http://www3.nbnet.nb.ca/normap/cfbooks.htm
</a>

Where can you purchase "Now that I have CF"? I have looked at amazon and ebay, cant seem to find it. Please send me info if you can. Thanks.
 
B

blindhearted

New member
I have "Cystic Fibrosis: Medical Care". It's written by a few doctors. It's more of a medical point of view but very informative. I purchased mine on E-bay. Go to Ebay and type in cystic fibrosis, a list of things, including books will show up. Things on half.com show up too.

Added: I found this website that list books about CF. I do know how up to date it is, but I figured it would give you a start.

<a target=_blank class=ftalternatingbarlinklarge href="http://www3.nbnet.nb.ca/normap/cfbooks.htm
">http://www3.nbnet.nb.ca/normap/cfbooks.htm
</a>

Where can you purchase "Now that I have CF"? I have looked at amazon and ebay, cant seem to find it. Please send me info if you can. Thanks.
 
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