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what are the chances
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sweetwhite30
New member
my son whom is 7 has not 2 whole chromozones but only 1 whole one and a half of another one which are both c.f double delta 508 genes and is checked yearly to see if the half one started to grow...weird but very interesting to learn it was for me anyhow...
sweetwhite30
New member
my son whom is 7 has not 2 whole chromozones but only 1 whole one and a half of another one which are both c.f double delta 508 genes and is checked yearly to see if the half one started to grow...weird but very interesting to learn it was for me anyhow...
sweetwhite30
New member
my son whom is 7 has not 2 whole chromozones but only 1 whole one and a half of another one which are both c.f double delta 508 genes and is checked yearly to see if the half one started to grow...weird but very interesting to learn it was for me anyhow...
fourkidsmom
New member
Katie:
Wow- this blows me away. I just read your post and we wonder this ourselves about this. We have a 5 yr old boy with cystic fibrosis and a 4 yr old girl with chromosome 9q 21.2 q 22.1 deletion. They said her chromosome deletion is a "fluke", but how strange for you to also have a chromsome issue with another child. We have 4 children total, but the 5 and 4 yr old are ours together. I had a son and he had a daughter when we married. (they are healthy) I would like to talk more with you on this. If you want to send me a private message--please do. I know chromosome issues vary greatly!!! We are learning alot, but it is so different from the cystic fibrosis. We learned about her deletion when she was 1 from her having 2 long seizures and running lots of tests, etc..
(SORRY--I just read that your son with CF has the chromosome issue too, I misread, I would still like to talk to you if you want to. )
Fourkidsmom
Wow- this blows me away. I just read your post and we wonder this ourselves about this. We have a 5 yr old boy with cystic fibrosis and a 4 yr old girl with chromosome 9q 21.2 q 22.1 deletion. They said her chromosome deletion is a "fluke", but how strange for you to also have a chromsome issue with another child. We have 4 children total, but the 5 and 4 yr old are ours together. I had a son and he had a daughter when we married. (they are healthy) I would like to talk more with you on this. If you want to send me a private message--please do. I know chromosome issues vary greatly!!! We are learning alot, but it is so different from the cystic fibrosis. We learned about her deletion when she was 1 from her having 2 long seizures and running lots of tests, etc..
(SORRY--I just read that your son with CF has the chromosome issue too, I misread, I would still like to talk to you if you want to. )
Fourkidsmom
fourkidsmom
New member
Katie:
Wow- this blows me away. I just read your post and we wonder this ourselves about this. We have a 5 yr old boy with cystic fibrosis and a 4 yr old girl with chromosome 9q 21.2 q 22.1 deletion. They said her chromosome deletion is a "fluke", but how strange for you to also have a chromsome issue with another child. We have 4 children total, but the 5 and 4 yr old are ours together. I had a son and he had a daughter when we married. (they are healthy) I would like to talk more with you on this. If you want to send me a private message--please do. I know chromosome issues vary greatly!!! We are learning alot, but it is so different from the cystic fibrosis. We learned about her deletion when she was 1 from her having 2 long seizures and running lots of tests, etc..
(SORRY--I just read that your son with CF has the chromosome issue too, I misread, I would still like to talk to you if you want to. )
Fourkidsmom
Wow- this blows me away. I just read your post and we wonder this ourselves about this. We have a 5 yr old boy with cystic fibrosis and a 4 yr old girl with chromosome 9q 21.2 q 22.1 deletion. They said her chromosome deletion is a "fluke", but how strange for you to also have a chromsome issue with another child. We have 4 children total, but the 5 and 4 yr old are ours together. I had a son and he had a daughter when we married. (they are healthy) I would like to talk more with you on this. If you want to send me a private message--please do. I know chromosome issues vary greatly!!! We are learning alot, but it is so different from the cystic fibrosis. We learned about her deletion when she was 1 from her having 2 long seizures and running lots of tests, etc..
(SORRY--I just read that your son with CF has the chromosome issue too, I misread, I would still like to talk to you if you want to. )
Fourkidsmom
fourkidsmom
New member
Katie:
Wow- this blows me away. I just read your post and we wonder this ourselves about this. We have a 5 yr old boy with cystic fibrosis and a 4 yr old girl with chromosome 9q 21.2 q 22.1 deletion. They said her chromosome deletion is a "fluke", but how strange for you to also have a chromsome issue with another child. We have 4 children total, but the 5 and 4 yr old are ours together. I had a son and he had a daughter when we married. (they are healthy) I would like to talk more with you on this. If you want to send me a private message--please do. I know chromosome issues vary greatly!!! We are learning alot, but it is so different from the cystic fibrosis. We learned about her deletion when she was 1 from her having 2 long seizures and running lots of tests, etc..
(SORRY--I just read that your son with CF has the chromosome issue too, I misread, I would still like to talk to you if you want to. )
Fourkidsmom
Wow- this blows me away. I just read your post and we wonder this ourselves about this. We have a 5 yr old boy with cystic fibrosis and a 4 yr old girl with chromosome 9q 21.2 q 22.1 deletion. They said her chromosome deletion is a "fluke", but how strange for you to also have a chromsome issue with another child. We have 4 children total, but the 5 and 4 yr old are ours together. I had a son and he had a daughter when we married. (they are healthy) I would like to talk more with you on this. If you want to send me a private message--please do. I know chromosome issues vary greatly!!! We are learning alot, but it is so different from the cystic fibrosis. We learned about her deletion when she was 1 from her having 2 long seizures and running lots of tests, etc..
(SORRY--I just read that your son with CF has the chromosome issue too, I misread, I would still like to talk to you if you want to. )
Fourkidsmom