RebekahsMom
New member
Chelsea, First of all, Paige is absolutely adorable. Now then, keep a positive attitude. You have to stay strong. Remember that if she does have CF, then it's better to know now, instead of going for a year or more with not knowing what is going on with her. Tx can be started right away and she will better for it. If she does test positive, then get hold of Jasper, Co. FSD to apply for Medical Assistance for a Disabled Child. The worse they can do is tell you no. It certainly won't hurt to try.
My daughter got a 'cold' on November 27, 2004 (11 months old). I tried everything I could to get her over it. We finally went to the doctor and got a script for Albuterol which didn't really help. I was then told it could be allergies and to give her an allergy medicine. No help. I kept telling her doc that in the mornings when she woke up, and when she would lay down to sleep, she sounded like I do when my bronchitis flares up. They said give her orange juice to try to cut through any mucus that she might have in the back of her throat. Again, no help. July, 2005, she was finally diagnosed with pneumonia after finally getting a chest x-ray (nurse's and doc's heard nothing when they listened to her lungs). Got on meds and it cleared up. Whew! Finally, some relief. 3 weeks later she had the same symptoms again. Another x-ray. Her primary care doc said he didn't see any pneumonia, but her lungs looked inflamed so he set us up with Children's Mercy at the pulmonary clinic. 2 weeks later we had the sweat chloride test with the results coming the next day. That was October 4, 2005. I went almost a year not knowing what was wrong with my daughter. I was devastated when she was diagnosed, but at least I finally had an answer.
We will keep you and your family in our prayers, and will try to answer any questions you might have. Let us know her results when you get them in.
My daughter got a 'cold' on November 27, 2004 (11 months old). I tried everything I could to get her over it. We finally went to the doctor and got a script for Albuterol which didn't really help. I was then told it could be allergies and to give her an allergy medicine. No help. I kept telling her doc that in the mornings when she woke up, and when she would lay down to sleep, she sounded like I do when my bronchitis flares up. They said give her orange juice to try to cut through any mucus that she might have in the back of her throat. Again, no help. July, 2005, she was finally diagnosed with pneumonia after finally getting a chest x-ray (nurse's and doc's heard nothing when they listened to her lungs). Got on meds and it cleared up. Whew! Finally, some relief. 3 weeks later she had the same symptoms again. Another x-ray. Her primary care doc said he didn't see any pneumonia, but her lungs looked inflamed so he set us up with Children's Mercy at the pulmonary clinic. 2 weeks later we had the sweat chloride test with the results coming the next day. That was October 4, 2005. I went almost a year not knowing what was wrong with my daughter. I was devastated when she was diagnosed, but at least I finally had an answer.
We will keep you and your family in our prayers, and will try to answer any questions you might have. Let us know her results when you get them in.