What do I do?

Diane

New member
John, Im sorry you are still having this problem with SOB. I hope there will be an answer and a remedy for you soon. An allergy could be the culprit, and i hope it is , since that would be more readily treatable. I never had allergies my whole life till i was in my 20's. Now in my 40's i seem to have some asthma components with my cf. I think i may have mentioned to you about my Dr. prescribing Singulair for me and it has helped a lot. It could very well be possible you may be having some allergic or astmatic reaction to something. Allergy testing sounds like a good idea to me.
 

Diane

New member
John, Im sorry you are still having this problem with SOB. I hope there will be an answer and a remedy for you soon. An allergy could be the culprit, and i hope it is , since that would be more readily treatable. I never had allergies my whole life till i was in my 20's. Now in my 40's i seem to have some asthma components with my cf. I think i may have mentioned to you about my Dr. prescribing Singulair for me and it has helped a lot. It could very well be possible you may be having some allergic or astmatic reaction to something. Allergy testing sounds like a good idea to me.
 

Diane

New member
John, Im sorry you are still having this problem with SOB. I hope there will be an answer and a remedy for you soon. An allergy could be the culprit, and i hope it is , since that would be more readily treatable. I never had allergies my whole life till i was in my 20's. Now in my 40's i seem to have some asthma components with my cf. I think i may have mentioned to you about my Dr. prescribing Singulair for me and it has helped a lot. It could very well be possible you may be having some allergic or astmatic reaction to something. Allergy testing sounds like a good idea to me.
 

Diane

New member
John, Im sorry you are still having this problem with SOB. I hope there will be an answer and a remedy for you soon. An allergy could be the culprit, and i hope it is , since that would be more readily treatable. I never had allergies my whole life till i was in my 20's. Now in my 40's i seem to have some asthma components with my cf. I think i may have mentioned to you about my Dr. prescribing Singulair for me and it has helped a lot. It could very well be possible you may be having some allergic or astmatic reaction to something. Allergy testing sounds like a good idea to me.
 

Diane

New member
John, Im sorry you are still having this problem with SOB. I hope there will be an answer and a remedy for you soon. An allergy could be the culprit, and i hope it is , since that would be more readily treatable. I never had allergies my whole life till i was in my 20's. Now in my 40's i seem to have some asthma components with my cf. I think i may have mentioned to you about my Dr. prescribing Singulair for me and it has helped a lot. It could very well be possible you may be having some allergic or astmatic reaction to something. Allergy testing sounds like a good idea to me.
 

jfarel

New member
Well, I'm on 2 liters o O2 now and it has helped feel a little better. Still not sure I have gotten to the root of the problem though. Maybe the O2 will help my body recover better and the abx to work better.
 

jfarel

New member
Well, I'm on 2 liters o O2 now and it has helped feel a little better. Still not sure I have gotten to the root of the problem though. Maybe the O2 will help my body recover better and the abx to work better.
 

jfarel

New member
Well, I'm on 2 liters o O2 now and it has helped feel a little better. Still not sure I have gotten to the root of the problem though. Maybe the O2 will help my body recover better and the abx to work better.
 

jfarel

New member
Well, I'm on 2 liters o O2 now and it has helped feel a little better. Still not sure I have gotten to the root of the problem though. Maybe the O2 will help my body recover better and the abx to work better.
 

jfarel

New member
Well, I'm on 2 liters o O2 now and it has helped feel a little better. Still not sure I have gotten to the root of the problem though. Maybe the O2 will help my body recover better and the abx to work better.
 

dramamama

New member
Hi There-
My bet is that you are having inflammation as a result of your formula night feeds.

You could be allergic to corn syrup solids (most cfers are and this causes bloating and inflammation) or you could possibly be reacting to the medium chain triglycerides which come from coconut. While this is more unlikely, it is a possibility.

Could you try different night feed mix? Perhaps Medi-clear or UltraClear, both rice based hypoallergenic mixes that you can mix with almond milk and various nut butters.

mandy
 

dramamama

New member
Hi There-
My bet is that you are having inflammation as a result of your formula night feeds.

You could be allergic to corn syrup solids (most cfers are and this causes bloating and inflammation) or you could possibly be reacting to the medium chain triglycerides which come from coconut. While this is more unlikely, it is a possibility.

Could you try different night feed mix? Perhaps Medi-clear or UltraClear, both rice based hypoallergenic mixes that you can mix with almond milk and various nut butters.

mandy
 

dramamama

New member
Hi There-
My bet is that you are having inflammation as a result of your formula night feeds.

You could be allergic to corn syrup solids (most cfers are and this causes bloating and inflammation) or you could possibly be reacting to the medium chain triglycerides which come from coconut. While this is more unlikely, it is a possibility.

Could you try different night feed mix? Perhaps Medi-clear or UltraClear, both rice based hypoallergenic mixes that you can mix with almond milk and various nut butters.

mandy
 

dramamama

New member
Hi There-
My bet is that you are having inflammation as a result of your formula night feeds.

You could be allergic to corn syrup solids (most cfers are and this causes bloating and inflammation) or you could possibly be reacting to the medium chain triglycerides which come from coconut. While this is more unlikely, it is a possibility.

Could you try different night feed mix? Perhaps Medi-clear or UltraClear, both rice based hypoallergenic mixes that you can mix with almond milk and various nut butters.

mandy
 

dramamama

New member
Hi There-
My bet is that you are having inflammation as a result of your formula night feeds.

You could be allergic to corn syrup solids (most cfers are and this causes bloating and inflammation) or you could possibly be reacting to the medium chain triglycerides which come from coconut. While this is more unlikely, it is a possibility.

Could you try different night feed mix? Perhaps Medi-clear or UltraClear, both rice based hypoallergenic mixes that you can mix with almond milk and various nut butters.

mandy
 
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