<img src="i/expressions/face-icon-small-confused.gif" border="0"><img src="i/expressions/face-icon-small-sad.gif" border="0"> My name is sara i am 15 yrs old, i live with my dad and my mom moved out when i was 10. She now lives in New jersey. I hate having to deal with being differen than every one else. it is hard to deal with now because i never want to take aresoles or sometimes even my medicine b/c people will notice i have something wrong with me. I need help. What should i do cuz i don't want to get sick.
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what do u do when u have lost hope!
- Thread starter smbear89
- Start date
C
ColinDShots
Guest
Some day you will learn that you want to be different than every body else. Haveing CF has made me who I am and made you who you are. You have a different set of problems than the norman 15 year old. CF makes you look at life in a new light, a light that most people dont see untill they get old, or never at all. If you stick to doing all of your treatments you will stay helther for longer. We all have been through it.
Have a good day.
Colin
colinmaydahl@hotmail.com
Have a good day.
Colin
colinmaydahl@hotmail.com
Sara,
I am proud of you for telling us how you feel. It is ok to be different, even if it means not liking what makes you different.
It is important that you do your treatments and take your meds. You should always be proud of who you are and do your best not to worry what others think....and I know this will not always be easy. There is nothing 'wrong with you'. You have a condition which requires you to take extra care of yourself but other than that you are the same as any of your friends. If your CF team has a social worker try speaking to them and they may be able to help you work through this.
I hope I was some help to you.
Heather
I am proud of you for telling us how you feel. It is ok to be different, even if it means not liking what makes you different.
It is important that you do your treatments and take your meds. You should always be proud of who you are and do your best not to worry what others think....and I know this will not always be easy. There is nothing 'wrong with you'. You have a condition which requires you to take extra care of yourself but other than that you are the same as any of your friends. If your CF team has a social worker try speaking to them and they may be able to help you work through this.
I hope I was some help to you.
Heather
Sara,
I am a 16yr old boy with CF. I felt the way that you are feeling many times. At times, i even stopped taking my meds, which was a very bad idea, because i ended up getting hospitalized. Just remember to keep taking your meds, and do whatever it is your soposed to do. I have an advanced stage of Pseudemonia, but i am very healthy. I play baseball, football, basketball, and tennis. If you do what your soposed to do, you can do anything. REMEMBER THAT!!
I am a 16yr old boy with CF. I felt the way that you are feeling many times. At times, i even stopped taking my meds, which was a very bad idea, because i ended up getting hospitalized. Just remember to keep taking your meds, and do whatever it is your soposed to do. I have an advanced stage of Pseudemonia, but i am very healthy. I play baseball, football, basketball, and tennis. If you do what your soposed to do, you can do anything. REMEMBER THAT!!
AbsintheSorrow
New member
This is hard to keep in mind when you're trying to fit in... but after the 6th grade, I stopped trying to fit in, so take me word for it.... Being different is far more interesting in the end anyway. And if people won't like you for who you are despite the CF... then basically, I say, SCREW 'EM!
DEAR SARA I FIND THAT IN SOME WAY OR ANOTHER EVERYONE IS DIFFERENT AND YOU KNOW WOT IT IS NOT SOMETHING THAT ANYONE SHOULD BE A SHAMED OF I HAVE STRUGGLED WITH FINDING FRIENDS THAT WILL EXCEPT ME AND MY ILLNESS AND I HAVE SOME FANTASTIC FRIENDS NOW THEY ALWAYS LOOK AFTER ME WHEN WE GO OUT THEY ALWAYS ASK ME QUESTIONS AND ONE OF MY FRIENDS MAKES ME LAUGH WHISLT I AM COUGHING BY SAYING COUGH IT UP. AND ANOTHER FRIEND WAS DOING A COURSE AT COLLEGE ON CF AND SHE WOULD COME TO ME AND ASK QUESTIONS AND I FELT GREAT THAT I COULD HELP HER . BUT ONE THING YOU HAVE TO DO SARA IS KEPP TAKING YOUR MEDS PLEASE THAT IS THE WORST THING YOU COULD DO IS TO STOP THEM THEY ARE WOT KEEPS US ALL GOING AND TICKING I NO IT IS HARD TAKING THEM IN FRONT OF PEOPLE AT SCHOOL ESPECIALLY BUT IT IS NEEDE SO KEEP YA CHIN UP BEST WISHES FROM JO P.S HERE IS MY EMAIL ADDRESS IF YOU NEED TO TALK ButtonNO1@aol.com
Hey everyone
my name is sophie, I'm 16 and from australia and have CF for that long.... I'm thinking of getting tested for diabetes pretty soon, as i have a few symptoms (ie. loss of energy, and have generally felt quite bad) and i was just wondering if anyone has diabetes as well as CF here, and who could tell me what it felt like before you were diagnosed?
Keep smiling guys!
<img src="i/expressions/face-icon-small-happy.gif" border="0">
my name is sophie, I'm 16 and from australia and have CF for that long.... I'm thinking of getting tested for diabetes pretty soon, as i have a few symptoms (ie. loss of energy, and have generally felt quite bad) and i was just wondering if anyone has diabetes as well as CF here, and who could tell me what it felt like before you were diagnosed?
Keep smiling guys!
<img src="i/expressions/face-icon-small-happy.gif" border="0">
HI SOPHIE CF AND DIABETES IS KNOW AS CFRD CYSTIC FIBROSIS RELATED DIABETES I MIGHT HAVE IT I HAVE TO CHECK MY GLUCOSE LEVELS EVERYDAY BY PRICKING MY FINGER AND PUTTING SOME BLOOD ON AND A MACHINE IT IS NOT PAINFUL THANK GOD (A BABY WHEN IT COMES TO NEEDLES) IF YOU ARE WORRIED THEN GET TESTED BUT ALSO SOME OF THEM SYMPTOMS ARE PART OF CF AS WELL . BEST WISHES FROM JO 20 W/CF UK
Sophie,
I do have CF & diabetes. Some of my symptoms of low sugars were feeling shakey inside, sweaty & disoriented and hard to concentrate on what I was doing.
Symptoms of high blood sugars are feeling worn out & sleepy, having frequent urination, blurred vision (which I rarely have), hungry & just not feeling right.
I hope this helps. There are a lot of pills here in the US for diabetes, as I'm sure there are in Australia too. I take one w/ meals & that seems to work. If that doesn't continue to control my blood sugar levels, then insulin shots will be needed, but for now the pill works.
One other note, when on steroids, I have to adjust my dosage of pills because steroids can make the blood sugar readings high. It would probably be a good idea to at least do a few blood sugar readings just to get an idea how your levels are. Good luck <img src="i/expressions/face-icon-small-smile.gif" border="0"> LJ
I do have CF & diabetes. Some of my symptoms of low sugars were feeling shakey inside, sweaty & disoriented and hard to concentrate on what I was doing.
Symptoms of high blood sugars are feeling worn out & sleepy, having frequent urination, blurred vision (which I rarely have), hungry & just not feeling right.
I hope this helps. There are a lot of pills here in the US for diabetes, as I'm sure there are in Australia too. I take one w/ meals & that seems to work. If that doesn't continue to control my blood sugar levels, then insulin shots will be needed, but for now the pill works.
One other note, when on steroids, I have to adjust my dosage of pills because steroids can make the blood sugar readings high. It would probably be a good idea to at least do a few blood sugar readings just to get an idea how your levels are. Good luck <img src="i/expressions/face-icon-small-smile.gif" border="0"> LJ
Hi Sarra,
I know it is very rough growing up with CF especially at your age, but don't ever give up. My opinion, we want more people to know about CF and its symptoms and daily regimens. So don't be afraid of taking your medicine or telling anyone what you have. The more they know, the more they can help with research and fund raisers. Whick will lead one day to a CURE. Look at how far we have come in the past few years. This is my moto "DON'T LET CF CONTROL YOU, YOU CONTROL IT". NEVER EVER GIVE UP!!
I know it is very rough growing up with CF especially at your age, but don't ever give up. My opinion, we want more people to know about CF and its symptoms and daily regimens. So don't be afraid of taking your medicine or telling anyone what you have. The more they know, the more they can help with research and fund raisers. Whick will lead one day to a CURE. Look at how far we have come in the past few years. This is my moto "DON'T LET CF CONTROL YOU, YOU CONTROL IT". NEVER EVER GIVE UP!!
<img src="i/expressions/face-icon-small-cool.gif" border="0"> G'Day!!! it's Soph from OZ! Again!
Thankyou to 'Jo' and 'LJ' for your message replies... they've actually built my confidence up a little bit... and that definately can't be a bad thing!
I'm probably going for an oral glucose tolerance test on the weekend... so hopefully that should get a few worries sorted.
Thanks again, you've been a great help....
Good luck and HUG to everyone here,
and i'd just like to say.....
********GO AUSTRALIAN CYCLINGGGGGGGGGG!!!!! *********
woot woo! yeahhh
lol, from soph <img src="i/expressions/face-icon-small-happy.gif" border="0">
Thankyou to 'Jo' and 'LJ' for your message replies... they've actually built my confidence up a little bit... and that definately can't be a bad thing!
I'm probably going for an oral glucose tolerance test on the weekend... so hopefully that should get a few worries sorted.
Thanks again, you've been a great help....
Good luck and HUG to everyone here,
and i'd just like to say.....
********GO AUSTRALIAN CYCLINGGGGGGGGGG!!!!! *********
woot woo! yeahhh
lol, from soph <img src="i/expressions/face-icon-small-happy.gif" border="0">
I went through the same thing when i was younger (im 22 now), I don't like people knowing and I wish I just did not have this and could go a day with out doing any of the meds.
the fact is there is nothing wrong with you, you just gotta hang in there and stick with it and do your meds, don't worry about other people!
just hang in there and do your meds, its the only way to keep you doing well!
the fact is there is nothing wrong with you, you just gotta hang in there and stick with it and do your meds, don't worry about other people!
just hang in there and do your meds, its the only way to keep you doing well!
Sara,
I have a great book that you should read and I really believe that it will touch you. The book is called Till Death Do Us Part. The author is Lurlene McDaniel. After that book read the sequel called For better, for worser, forever. Lurlene McDaniel is a great author.
I have a great book that you should read and I really believe that it will touch you. The book is called Till Death Do Us Part. The author is Lurlene McDaniel. After that book read the sequel called For better, for worser, forever. Lurlene McDaniel is a great author.
AbsintheSorrow
New member
I loved those books. There's also some good biographies... Though older, there's Alex: The Life of a Child by Frank Deford. And Breathing For a Living (an autobiography) by Laura Rothenberg. Breathing is an absolutely favorite of mine. I've read that book cover to cover a good 5 times at least.
NoDayButToday
New member
I really didn't like that Lurlene McDaniel book- it was very hokey, but thats just me. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Personally, I loved Give Me One Wish by Jacquie Gordon. It's also little old, but I thought it was great.
AbsintheSorrow
New member
Oh it was totally hokey and extremely dramatic. lol, for some reason I soak up that junk.