i don't know what to say to you except that i have felt the same as you. this time last year, i fell asleep every night with the thought that this might be it, believing that death would be easier on me than life with CF. i knew things weren't going to get better, that i was at the bottom, physically, mentally, and emotionally. i felt alone, i wasn't concerned with how others would deal with my death...i knew all their lives would move on with out me.
also, i felt completely let down by my doctors, i was alternately angry, depressed, remorseful, sad...rarely ever happy. i had pneumonia, even after the fifth hospital stay in 7 months, i couldn't move let alone breathe due to crazy painful pleurisy and arthritis, i spent my days in bed coughing up into a bucket (i was too tired to aim anymore!) half naked aside from my sexy picc dressing because of severe fever and chills, and at the end, i couldn't keep food down (and added another bucket to my bedside!) i remember my mom helping me into a bath one day, and she helped me because i couldn't stop shaking, and i just started crying, sobbing actually. this was NOT how i imagined my life to be at 30. i was sick of being sick. and hopeless about the future. death felt like the easiest way for me.
CF SUCKS. IT IS NOT MY FRIEND. during the last year, some things have changed, some small, and some not-so-small. i started seeing another CF doctor while mine was on vacation, and his caring and new approach got me thinking that maybe this wasn't the end for me. and i'm still here. a lot of days ARE really hard, and i STILL feel alone in the world a lot of the time. but i still laugh, and have people that i love alot, and a little bit of hope, and two dogs to hug when all else fails.
i'll be thinking of you ok.