What do you do?

luvmykids

New member
Just wondering how some of you cope and deal with having a cf child from a split home. My son just left for the summer and I'm a nervous wreck. I'm so afraid that he isn't getting the care that he does here at home. He probably is, I'm sure but how do you keep yourself from going crazy worrying?
 

luvmykids

New member
Just wondering how some of you cope and deal with having a cf child from a split home. My son just left for the summer and I'm a nervous wreck. I'm so afraid that he isn't getting the care that he does here at home. He probably is, I'm sure but how do you keep yourself from going crazy worrying?
 

luvmykids

New member
Just wondering how some of you cope and deal with having a cf child from a split home. My son just left for the summer and I'm a nervous wreck. I'm so afraid that he isn't getting the care that he does here at home. He probably is, I'm sure but how do you keep yourself from going crazy worrying?
 

luvmykids

New member
Just wondering how some of you cope and deal with having a cf child from a split home. My son just left for the summer and I'm a nervous wreck. I'm so afraid that he isn't getting the care that he does here at home. He probably is, I'm sure but how do you keep yourself from going crazy worrying?
 

luvmykids

New member
Just wondering how some of you cope and deal with having a cf child from a split home. My son just left for the summer and I'm a nervous wreck. I'm so afraid that he isn't getting the care that he does here at home. He probably is, I'm sure but how do you keep yourself from going crazy worrying?
 

LisaGreene

New member
That is so hard and something that many families deal with from all walks of life including other special needs. There is no easy answer but the best thing you can do is to help your child (when he is with you) learn to take good care of himself with as little adult supervision as possible.

If your son knows that his decisions, including his self care, affect him more than anyone else, then he is alot more likely to make good decisions on his own.

So, be a consultant parent when he is with you and not a helicopter or drill sergeant and he will be alot more likely to take good care of himself when you are not around. Then, you won't worry because you'll have confidence in him and feel good about the gifts of responsibility and independence that you've given him.

Here's a link to Love and Logic which will explain the difference between the 3 parenting styles: <a target=_blank class=ftalternatingbarlinklarge href="http://www.loveandlogic.com/pdfs/threetypes.pdf
">http://www.loveandlogic.com/pdfs/threetypes.pdf
</a>

Some things have to be turned over "to God" or "surrendured to the universe" or whatever you believe in. You can only do what you can do and have to let go of what you have no control over. I'm not saying this is easy. But it seems like the tighter we hold on, the harder it becomes. As soon as we "let go," things generally just fall into place naturally and work out. Especially with kids.

Go to your local library and check out the book I co-authored called "Parenting Children with Health Issues." It will give you some ways to respond to your child (under the encouragement section) that will help him take good care of himself including ways to respond to him when he is away from you.

I'll keep you in my thoughts over the summer- hang in there.
Hugs!
Lisa
 

LisaGreene

New member
That is so hard and something that many families deal with from all walks of life including other special needs. There is no easy answer but the best thing you can do is to help your child (when he is with you) learn to take good care of himself with as little adult supervision as possible.

If your son knows that his decisions, including his self care, affect him more than anyone else, then he is alot more likely to make good decisions on his own.

So, be a consultant parent when he is with you and not a helicopter or drill sergeant and he will be alot more likely to take good care of himself when you are not around. Then, you won't worry because you'll have confidence in him and feel good about the gifts of responsibility and independence that you've given him.

Here's a link to Love and Logic which will explain the difference between the 3 parenting styles: <a target=_blank class=ftalternatingbarlinklarge href="http://www.loveandlogic.com/pdfs/threetypes.pdf
">http://www.loveandlogic.com/pdfs/threetypes.pdf
</a>

Some things have to be turned over "to God" or "surrendured to the universe" or whatever you believe in. You can only do what you can do and have to let go of what you have no control over. I'm not saying this is easy. But it seems like the tighter we hold on, the harder it becomes. As soon as we "let go," things generally just fall into place naturally and work out. Especially with kids.

Go to your local library and check out the book I co-authored called "Parenting Children with Health Issues." It will give you some ways to respond to your child (under the encouragement section) that will help him take good care of himself including ways to respond to him when he is away from you.

I'll keep you in my thoughts over the summer- hang in there.
Hugs!
Lisa
 

LisaGreene

New member
That is so hard and something that many families deal with from all walks of life including other special needs. There is no easy answer but the best thing you can do is to help your child (when he is with you) learn to take good care of himself with as little adult supervision as possible.

If your son knows that his decisions, including his self care, affect him more than anyone else, then he is alot more likely to make good decisions on his own.

So, be a consultant parent when he is with you and not a helicopter or drill sergeant and he will be alot more likely to take good care of himself when you are not around. Then, you won't worry because you'll have confidence in him and feel good about the gifts of responsibility and independence that you've given him.

Here's a link to Love and Logic which will explain the difference between the 3 parenting styles: <a target=_blank class=ftalternatingbarlinklarge href="http://www.loveandlogic.com/pdfs/threetypes.pdf
">http://www.loveandlogic.com/pdfs/threetypes.pdf
</a>

Some things have to be turned over "to God" or "surrendured to the universe" or whatever you believe in. You can only do what you can do and have to let go of what you have no control over. I'm not saying this is easy. But it seems like the tighter we hold on, the harder it becomes. As soon as we "let go," things generally just fall into place naturally and work out. Especially with kids.

Go to your local library and check out the book I co-authored called "Parenting Children with Health Issues." It will give you some ways to respond to your child (under the encouragement section) that will help him take good care of himself including ways to respond to him when he is away from you.

I'll keep you in my thoughts over the summer- hang in there.
Hugs!
Lisa
 

LisaGreene

New member
That is so hard and something that many families deal with from all walks of life including other special needs. There is no easy answer but the best thing you can do is to help your child (when he is with you) learn to take good care of himself with as little adult supervision as possible.

If your son knows that his decisions, including his self care, affect him more than anyone else, then he is alot more likely to make good decisions on his own.

So, be a consultant parent when he is with you and not a helicopter or drill sergeant and he will be alot more likely to take good care of himself when you are not around. Then, you won't worry because you'll have confidence in him and feel good about the gifts of responsibility and independence that you've given him.

Here's a link to Love and Logic which will explain the difference between the 3 parenting styles: <a target=_blank class=ftalternatingbarlinklarge href="http://www.loveandlogic.com/pdfs/threetypes.pdf
">http://www.loveandlogic.com/pdfs/threetypes.pdf
</a>

Some things have to be turned over "to God" or "surrendured to the universe" or whatever you believe in. You can only do what you can do and have to let go of what you have no control over. I'm not saying this is easy. But it seems like the tighter we hold on, the harder it becomes. As soon as we "let go," things generally just fall into place naturally and work out. Especially with kids.

Go to your local library and check out the book I co-authored called "Parenting Children with Health Issues." It will give you some ways to respond to your child (under the encouragement section) that will help him take good care of himself including ways to respond to him when he is away from you.

I'll keep you in my thoughts over the summer- hang in there.
Hugs!
Lisa
 

LisaGreene

New member
That is so hard and something that many families deal with from all walks of life including other special needs. There is no easy answer but the best thing you can do is to help your child (when he is with you) learn to take good care of himself with as little adult supervision as possible.
<br />
<br />If your son knows that his decisions, including his self care, affect him more than anyone else, then he is alot more likely to make good decisions on his own.
<br />
<br />So, be a consultant parent when he is with you and not a helicopter or drill sergeant and he will be alot more likely to take good care of himself when you are not around. Then, you won't worry because you'll have confidence in him and feel good about the gifts of responsibility and independence that you've given him.
<br />
<br />Here's a link to Love and Logic which will explain the difference between the 3 parenting styles: <a target=_blank class=ftalternatingbarlinklarge href="http://www.loveandlogic.com/pdfs/threetypes.pdf
<br />">http://www.loveandlogic.com/pdfs/threetypes.pdf
<br /></a>
<br />
<br />Some things have to be turned over "to God" or "surrendured to the universe" or whatever you believe in. You can only do what you can do and have to let go of what you have no control over. I'm not saying this is easy. But it seems like the tighter we hold on, the harder it becomes. As soon as we "let go," things generally just fall into place naturally and work out. Especially with kids.
<br />
<br />Go to your local library and check out the book I co-authored called "Parenting Children with Health Issues." It will give you some ways to respond to your child (under the encouragement section) that will help him take good care of himself including ways to respond to him when he is away from you.
<br />
<br />I'll keep you in my thoughts over the summer- hang in there.
<br />Hugs!
<br />Lisa
 

RebekahsMom

New member
I know exactly how you feel! I was crazy with worry last summer when she was over at her father's house for 6 days then with me for 1 day. She came home on July 3rd with a horrible cough! By the time I picked her up, though, it was too late to go to the doctor since he was closed for the holiday. I got her an appointment on Monday morning and guess what. Once again, she had pneumonia. She had been telling me that she wasn't doing her vest and medicine, but since she was just 4, I didn't know if she was telling the truth or not. Last August I found out that he had taken her to a place called "The Hitch Lot". It's a bar. Under 21 can be in until 9 pm since they serve food. However, it's a bar! A 4 year old child does not need to be in that environment. Yes, he had her in there until 9 pm. They also smoke in this bar. I was absolutely furious! His reasoning - "It's my best friend's bar!" & "I took her out when they smoked!" No, he didn't take her out, and even if he had, he still took her back in after they were done smoking at the table. I called the Child Abuse Hotline and told them of her health history and where he took her and was told that the information I gave them did not meet the criteria to do an investigation. WHAT?! How can I protect my child if he won't and they can't??

I do know now that he in fact doesn't do her breathing treatments when she is there. She was there the last week in May, and her home health nurse called me on that Friday and told me the only breathing treatments she got were the ones that the nurses gave her. See, I only send what she needs while she is there. Last summer while she was there (before coming home with pneumonia) he said he had the nurse give her extra breathing treatments. I checked with her and yes, she confirmed it. HOWEVER, he never called me to get more to replace the ones the nurse gave her during the day. I suspected before that he hadn't been giving her the treatments, and now I have proof from a professional. He also doesn't hook her up to her vest. She says he turns the vest on, but she is in the living room playing and the machine is in his room. Now, he lives in a short, double wide trailer, but the tubes aren't THAT long! What is a parent to do? Once my husband and I have the money saved up, I will go for total custody with supervised visitation so that I will always know that she is getting every thing that she is supposed to get.

Sorry this is so long, it just really irritates me that he doesn't care enough to follow Dr's orders. He gives her all the oral meds, so why not the breathing treatments and vest treatments???
 

RebekahsMom

New member
I know exactly how you feel! I was crazy with worry last summer when she was over at her father's house for 6 days then with me for 1 day. She came home on July 3rd with a horrible cough! By the time I picked her up, though, it was too late to go to the doctor since he was closed for the holiday. I got her an appointment on Monday morning and guess what. Once again, she had pneumonia. She had been telling me that she wasn't doing her vest and medicine, but since she was just 4, I didn't know if she was telling the truth or not. Last August I found out that he had taken her to a place called "The Hitch Lot". It's a bar. Under 21 can be in until 9 pm since they serve food. However, it's a bar! A 4 year old child does not need to be in that environment. Yes, he had her in there until 9 pm. They also smoke in this bar. I was absolutely furious! His reasoning - "It's my best friend's bar!" & "I took her out when they smoked!" No, he didn't take her out, and even if he had, he still took her back in after they were done smoking at the table. I called the Child Abuse Hotline and told them of her health history and where he took her and was told that the information I gave them did not meet the criteria to do an investigation. WHAT?! How can I protect my child if he won't and they can't??

I do know now that he in fact doesn't do her breathing treatments when she is there. She was there the last week in May, and her home health nurse called me on that Friday and told me the only breathing treatments she got were the ones that the nurses gave her. See, I only send what she needs while she is there. Last summer while she was there (before coming home with pneumonia) he said he had the nurse give her extra breathing treatments. I checked with her and yes, she confirmed it. HOWEVER, he never called me to get more to replace the ones the nurse gave her during the day. I suspected before that he hadn't been giving her the treatments, and now I have proof from a professional. He also doesn't hook her up to her vest. She says he turns the vest on, but she is in the living room playing and the machine is in his room. Now, he lives in a short, double wide trailer, but the tubes aren't THAT long! What is a parent to do? Once my husband and I have the money saved up, I will go for total custody with supervised visitation so that I will always know that she is getting every thing that she is supposed to get.

Sorry this is so long, it just really irritates me that he doesn't care enough to follow Dr's orders. He gives her all the oral meds, so why not the breathing treatments and vest treatments???
 

RebekahsMom

New member
I know exactly how you feel! I was crazy with worry last summer when she was over at her father's house for 6 days then with me for 1 day. She came home on July 3rd with a horrible cough! By the time I picked her up, though, it was too late to go to the doctor since he was closed for the holiday. I got her an appointment on Monday morning and guess what. Once again, she had pneumonia. She had been telling me that she wasn't doing her vest and medicine, but since she was just 4, I didn't know if she was telling the truth or not. Last August I found out that he had taken her to a place called "The Hitch Lot". It's a bar. Under 21 can be in until 9 pm since they serve food. However, it's a bar! A 4 year old child does not need to be in that environment. Yes, he had her in there until 9 pm. They also smoke in this bar. I was absolutely furious! His reasoning - "It's my best friend's bar!" & "I took her out when they smoked!" No, he didn't take her out, and even if he had, he still took her back in after they were done smoking at the table. I called the Child Abuse Hotline and told them of her health history and where he took her and was told that the information I gave them did not meet the criteria to do an investigation. WHAT?! How can I protect my child if he won't and they can't??

I do know now that he in fact doesn't do her breathing treatments when she is there. She was there the last week in May, and her home health nurse called me on that Friday and told me the only breathing treatments she got were the ones that the nurses gave her. See, I only send what she needs while she is there. Last summer while she was there (before coming home with pneumonia) he said he had the nurse give her extra breathing treatments. I checked with her and yes, she confirmed it. HOWEVER, he never called me to get more to replace the ones the nurse gave her during the day. I suspected before that he hadn't been giving her the treatments, and now I have proof from a professional. He also doesn't hook her up to her vest. She says he turns the vest on, but she is in the living room playing and the machine is in his room. Now, he lives in a short, double wide trailer, but the tubes aren't THAT long! What is a parent to do? Once my husband and I have the money saved up, I will go for total custody with supervised visitation so that I will always know that she is getting every thing that she is supposed to get.

Sorry this is so long, it just really irritates me that he doesn't care enough to follow Dr's orders. He gives her all the oral meds, so why not the breathing treatments and vest treatments???
 

RebekahsMom

New member
I know exactly how you feel! I was crazy with worry last summer when she was over at her father's house for 6 days then with me for 1 day. She came home on July 3rd with a horrible cough! By the time I picked her up, though, it was too late to go to the doctor since he was closed for the holiday. I got her an appointment on Monday morning and guess what. Once again, she had pneumonia. She had been telling me that she wasn't doing her vest and medicine, but since she was just 4, I didn't know if she was telling the truth or not. Last August I found out that he had taken her to a place called "The Hitch Lot". It's a bar. Under 21 can be in until 9 pm since they serve food. However, it's a bar! A 4 year old child does not need to be in that environment. Yes, he had her in there until 9 pm. They also smoke in this bar. I was absolutely furious! His reasoning - "It's my best friend's bar!" & "I took her out when they smoked!" No, he didn't take her out, and even if he had, he still took her back in after they were done smoking at the table. I called the Child Abuse Hotline and told them of her health history and where he took her and was told that the information I gave them did not meet the criteria to do an investigation. WHAT?! How can I protect my child if he won't and they can't??

I do know now that he in fact doesn't do her breathing treatments when she is there. She was there the last week in May, and her home health nurse called me on that Friday and told me the only breathing treatments she got were the ones that the nurses gave her. See, I only send what she needs while she is there. Last summer while she was there (before coming home with pneumonia) he said he had the nurse give her extra breathing treatments. I checked with her and yes, she confirmed it. HOWEVER, he never called me to get more to replace the ones the nurse gave her during the day. I suspected before that he hadn't been giving her the treatments, and now I have proof from a professional. He also doesn't hook her up to her vest. She says he turns the vest on, but she is in the living room playing and the machine is in his room. Now, he lives in a short, double wide trailer, but the tubes aren't THAT long! What is a parent to do? Once my husband and I have the money saved up, I will go for total custody with supervised visitation so that I will always know that she is getting every thing that she is supposed to get.

Sorry this is so long, it just really irritates me that he doesn't care enough to follow Dr's orders. He gives her all the oral meds, so why not the breathing treatments and vest treatments???
 

RebekahsMom

New member
I know exactly how you feel! I was crazy with worry last summer when she was over at her father's house for 6 days then with me for 1 day. She came home on July 3rd with a horrible cough! By the time I picked her up, though, it was too late to go to the doctor since he was closed for the holiday. I got her an appointment on Monday morning and guess what. Once again, she had pneumonia. She had been telling me that she wasn't doing her vest and medicine, but since she was just 4, I didn't know if she was telling the truth or not. Last August I found out that he had taken her to a place called "The Hitch Lot". It's a bar. Under 21 can be in until 9 pm since they serve food. However, it's a bar! A 4 year old child does not need to be in that environment. Yes, he had her in there until 9 pm. They also smoke in this bar. I was absolutely furious! His reasoning - "It's my best friend's bar!" & "I took her out when they smoked!" No, he didn't take her out, and even if he had, he still took her back in after they were done smoking at the table. I called the Child Abuse Hotline and told them of her health history and where he took her and was told that the information I gave them did not meet the criteria to do an investigation. WHAT?! How can I protect my child if he won't and they can't??
<br />
<br />I do know now that he in fact doesn't do her breathing treatments when she is there. She was there the last week in May, and her home health nurse called me on that Friday and told me the only breathing treatments she got were the ones that the nurses gave her. See, I only send what she needs while she is there. Last summer while she was there (before coming home with pneumonia) he said he had the nurse give her extra breathing treatments. I checked with her and yes, she confirmed it. HOWEVER, he never called me to get more to replace the ones the nurse gave her during the day. I suspected before that he hadn't been giving her the treatments, and now I have proof from a professional. He also doesn't hook her up to her vest. She says he turns the vest on, but she is in the living room playing and the machine is in his room. Now, he lives in a short, double wide trailer, but the tubes aren't THAT long! What is a parent to do? Once my husband and I have the money saved up, I will go for total custody with supervised visitation so that I will always know that she is getting every thing that she is supposed to get.
<br />
<br />Sorry this is so long, it just really irritates me that he doesn't care enough to follow Dr's orders. He gives her all the oral meds, so why not the breathing treatments and vest treatments???
 
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