<blockquote>Quote<br><hr><i>Originally posted by: <b>Anonymous</b></i>One day, your child will look at you and ask you why they were born with CF. Are you going to have an answer for him or her?<hr></blockquote>i'm 20 and have CF. when i was a child, i used to ask that. my mother would always tell me that nobody is perfectly healthy. that some kids have this and some have that, and when i brought up names of my best friends, who were indeed healthy, she'd tell me that they also get the flu, and colds and whatnot. then she'd remind me of the children's hospital in odessa, ukraine, where we went every summer until i was 10 and we moved to israel. we'd stay there for a month, there were a lot of kids with various illnesses there and we'd all get treatments. there were a lot of kids with cerebral palsy, all my girl friends i made there had CP. mom would talk about them and say that here, see how katja walks, or how lena can barely walk, you can walk normally and you need to be thankful, because there are worse things than CF.during my teens i sometimes blamed my parents for having me. they knew i could have cf because they already lost a child to this disease. so i blamed. and they don't have an answer as to why they had me and neither do i. we all make our choices. they aren't always wise choices. but you know, everything happens for a reason. we all have a reason for being here and i did some good things in my life, they aren't great wonderful stuff but i made some people happy with some gestures, and maybe that is why i'm here, because if i wasn't here, who would have done it for those people? there won't ever be an answer to that question.
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What do you let your kids do?
- Thread starter anonymous
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I know that this is a scary situation, and I know how you feel as I just had my second child on Sept. 19, we had him tested when I was 10 weeks along and thankfully he is just a carrier. But my daughter who will be 3 in Dec. has cf. Yes this is a very harsh and horrible disease and it will not be easy , you will have nights that you will stay up half the night with coughing fits or fever and there will be weeks at a time that you spend in the hospital with iv's and oxygen hooked up, but that child is a human life!!! God did not create that "soul" for you to suffer he created that life to teach you something and to bring a tremendous amount of joy to your life. I can't imagine if we had ended our daughters life just because of this disease and if our son would have had cf we would not have ended his life either. I believe that we are all put here for a reason, to make someone smile, understand, or just to be a friend to someone in need we all have a purpose. please think long and hard about the facts of the disease and get into contact with your local cf center and then make a decison.
I am so thankful for my life and I have always been thankful for it. Some people are healthy yes, but their life is not perfect. Some people live in abusive homes, others are emotionally unwell, and others have diseases that are much worse than CF. No matter who you are you have some aspect of your life which is not pleasant. For me that is CF and honestly I am soooo thankful its JUST CF. I have a family who loves me, I am emotionally stable, never been abused or neglected. To me CF seems mild compared to what life could have handed me. I was given a great life and I believe CF is something that was given to me so that I could better appreciate life and others who are in my life.
I don't think anyone can answer that question but you. Only you know what you can deal with. Unfair, is bringing a child into this world when you are not prepared to give that child your everything! You are blessed to have the ability to make this decision; Do what is right by your unborn child and do not let anyone make you feel guilty for whatever decision you make.
wow...i didn't realize how sad reading a post like this would make me. I have beautiful 20 month old twins. My little spitfire of a daughter was dx with cf at 6 weeks, and truthfully I couldn't imagine life without her and I pray that I never have to. And yet, I couldn't imagine having made the choice to experience life without her. Are there reasons to terminate a pregnancy because of a genetic disorder (fatal or not)? Some may think so, but my life is so full of joy and blessings and miracles wrapped up into that one little girl. She teaches me about love, faith, frustration on a daily basis...and I am a better person for having been given this child.So that being said...I am 6 weeks pregnant. There is a 25% chance that this baby will have CF. I love this baby already. I can't wait to see those precious smiles, hold those tiny hands, kiss that sweet face...CF or not, this baby has already wormed his/her way into my heart and I can't imagine conciously choosing to terminate this precious life that grows within me.ChristieMommy to Malachi w/o CF and Mylee w CF Mommy to a sweet baby waiting to be born
To the Women who is Pregnant with CF Child --Katrina I am with YOU!!! I must say that I am really shocked at some of the things that people have said. I hope that no child ever hears that if their mom had it to do over again she would have aborted him. That is really hard to hear for me. There are no guarantees when God gives you a baby. Each child is special and unique in their own way. In todays, day and age I find it very hard to believe that CF children die at 2 or 3 years old. Rarely, (Thank God) you hear in the teens. But, it is unusual with the wonderful treatments and care that these kids receive from their very trained medical staffs. I have two daughters with CF and although it can be very draining -- I would not send them back or wish them away on even our worst day. They too have asked why do I have this?? But, I explained it the same way as Katrina. If we were all perfect, wouldnt this be such a boring world. God throws us this curves to help us grow spiritually and emotionally. It is how we deal with it all that helps us and all around us. Keep the faith -- Stay strong and you will know in your heart what you should do. My girls are 7 and 10 and you wouldnt know anything was wrong with them!! They look beautiful and healthy and I wouldnt give up one of their hugs or kisses for all of the money in the world. Debra