What do you mean GI issues?

pepperderr · Mar 22, 2009

Both of my son's had normal sweat tests although I don't know the numbers. My youngest son is failure to thrive. I am going to push his doctor next week to do the genetic test for CF if the insurance will cover it so that is why I am in this group...waiting.

I've seen many people post that some people with CF have GI issues, what does that mean exactally? My son that is FTT has seen a GI doctor since he was 6 months old and had a feeding tube but according to what I have read, his poops don't seem to be too much like what all the people with CF here discribe. He was on zantac for quite a long time due to vomiting from reflux and I was told his stomach was inflamed at one point but that is about it.

My now 9yo son had reflux very bad until he was also treated for his asthma finally at 6yo. He used to throw up just about every night...no kidding...every night. He had a bleeding ulcer at 4yo. No one knows why really. Everyone says how could a 4you get an ulcer? He was throwing up blood and they showed me the hole in his stomach. He had an ulcer some how. He is now on prevacid every day. Is refulx common with CF or what are the GI issue people are talking about?

I have also read that sinus problems can be a sign of CF. My DH has had sinus surgery and has constant sinus problems...so do both of my son's. My DH is not living here at the moment due to being in the military but I swear he was constantly clearing his throat! It drove me crazy!! He was always spitting stuff up in the morning too. I so don't miss that! I just figured it was a gross "man" thing...sorry men LOL. He didn't cough a lot though. I am thinking maybe that is a sign that he is at least a carrier.

I don't know if I am though because as far as I can tell I don't have any symptoms of it at all. How common is it that people with CF have sinus problems too? Mostly what I am reading is they have lung issues and poop issues. Thanks for any input you will give me <img src="i/expressions/face-icon-small-blush.gif" border="0">). Oh and I wasn't sure which category this should go in os feel free to move it or tell me where to move it to if I should.

PEPPERDERR

pepperderr · Mar 22, 2009

Both of my son's had normal sweat tests although I don't know the numbers. My youngest son is failure to thrive. I am going to push his doctor next week to do the genetic test for CF if the insurance will cover it so that is why I am in this group...waiting.

I've seen many people post that some people with CF have GI issues, what does that mean exactally? My son that is FTT has seen a GI doctor since he was 6 months old and had a feeding tube but according to what I have read, his poops don't seem to be too much like what all the people with CF here discribe. He was on zantac for quite a long time due to vomiting from reflux and I was told his stomach was inflamed at one point but that is about it.

My now 9yo son had reflux very bad until he was also treated for his asthma finally at 6yo. He used to throw up just about every night...no kidding...every night. He had a bleeding ulcer at 4yo. No one knows why really. Everyone says how could a 4you get an ulcer? He was throwing up blood and they showed me the hole in his stomach. He had an ulcer some how. He is now on prevacid every day. Is refulx common with CF or what are the GI issue people are talking about?

I have also read that sinus problems can be a sign of CF. My DH has had sinus surgery and has constant sinus problems...so do both of my son's. My DH is not living here at the moment due to being in the military but I swear he was constantly clearing his throat! It drove me crazy!! He was always spitting stuff up in the morning too. I so don't miss that! I just figured it was a gross "man" thing...sorry men LOL. He didn't cough a lot though. I am thinking maybe that is a sign that he is at least a carrier.

I don't know if I am though because as far as I can tell I don't have any symptoms of it at all. How common is it that people with CF have sinus problems too? Mostly what I am reading is they have lung issues and poop issues. Thanks for any input you will give me <img src="i/expressions/face-icon-small-blush.gif" border="0">). Oh and I wasn't sure which category this should go in os feel free to move it or tell me where to move it to if I should.

PEPPERDERR

pepperderr · Mar 22, 2009

Both of my son's had normal sweat tests although I don't know the numbers. My youngest son is failure to thrive. I am going to push his doctor next week to do the genetic test for CF if the insurance will cover it so that is why I am in this group...waiting.

I've seen many people post that some people with CF have GI issues, what does that mean exactally? My son that is FTT has seen a GI doctor since he was 6 months old and had a feeding tube but according to what I have read, his poops don't seem to be too much like what all the people with CF here discribe. He was on zantac for quite a long time due to vomiting from reflux and I was told his stomach was inflamed at one point but that is about it.

My now 9yo son had reflux very bad until he was also treated for his asthma finally at 6yo. He used to throw up just about every night...no kidding...every night. He had a bleeding ulcer at 4yo. No one knows why really. Everyone says how could a 4you get an ulcer? He was throwing up blood and they showed me the hole in his stomach. He had an ulcer some how. He is now on prevacid every day. Is refulx common with CF or what are the GI issue people are talking about?

I have also read that sinus problems can be a sign of CF. My DH has had sinus surgery and has constant sinus problems...so do both of my son's. My DH is not living here at the moment due to being in the military but I swear he was constantly clearing his throat! It drove me crazy!! He was always spitting stuff up in the morning too. I so don't miss that! I just figured it was a gross "man" thing...sorry men LOL. He didn't cough a lot though. I am thinking maybe that is a sign that he is at least a carrier.

I don't know if I am though because as far as I can tell I don't have any symptoms of it at all. How common is it that people with CF have sinus problems too? Mostly what I am reading is they have lung issues and poop issues. Thanks for any input you will give me <img src="i/expressions/face-icon-small-blush.gif" border="0">). Oh and I wasn't sure which category this should go in os feel free to move it or tell me where to move it to if I should.

PEPPERDERR

pepperderr · Mar 22, 2009

Both of my son's had normal sweat tests although I don't know the numbers. My youngest son is failure to thrive. I am going to push his doctor next week to do the genetic test for CF if the insurance will cover it so that is why I am in this group...waiting.

I've seen many people post that some people with CF have GI issues, what does that mean exactally? My son that is FTT has seen a GI doctor since he was 6 months old and had a feeding tube but according to what I have read, his poops don't seem to be too much like what all the people with CF here discribe. He was on zantac for quite a long time due to vomiting from reflux and I was told his stomach was inflamed at one point but that is about it.

My now 9yo son had reflux very bad until he was also treated for his asthma finally at 6yo. He used to throw up just about every night...no kidding...every night. He had a bleeding ulcer at 4yo. No one knows why really. Everyone says how could a 4you get an ulcer? He was throwing up blood and they showed me the hole in his stomach. He had an ulcer some how. He is now on prevacid every day. Is refulx common with CF or what are the GI issue people are talking about?

I have also read that sinus problems can be a sign of CF. My DH has had sinus surgery and has constant sinus problems...so do both of my son's. My DH is not living here at the moment due to being in the military but I swear he was constantly clearing his throat! It drove me crazy!! He was always spitting stuff up in the morning too. I so don't miss that! I just figured it was a gross "man" thing...sorry men LOL. He didn't cough a lot though. I am thinking maybe that is a sign that he is at least a carrier.

I don't know if I am though because as far as I can tell I don't have any symptoms of it at all. How common is it that people with CF have sinus problems too? Mostly what I am reading is they have lung issues and poop issues. Thanks for any input you will give me <img src="i/expressions/face-icon-small-blush.gif" border="0">). Oh and I wasn't sure which category this should go in os feel free to move it or tell me where to move it to if I should.

PEPPERDERR

pepperderr · Mar 22, 2009

Both of my son's had normal sweat tests although I don't know the numbers. My youngest son is failure to thrive. I am going to push his doctor next week to do the genetic test for CF if the insurance will cover it so that is why I am in this group...waiting.
 
 I've seen many people post that some people with CF have GI issues, what does that mean exactally? My son that is FTT has seen a GI doctor since he was 6 months old and had a feeding tube but according to what I have read, his poops don't seem to be too much like what all the people with CF here discribe. He was on zantac for quite a long time due to vomiting from reflux and I was told his stomach was inflamed at one point but that is about it.
 
 My now 9yo son had reflux very bad until he was also treated for his asthma finally at 6yo. He used to throw up just about every night...no kidding...every night. He had a bleeding ulcer at 4yo. No one knows why really. Everyone says how could a 4you get an ulcer? He was throwing up blood and they showed me the hole in his stomach. He had an ulcer some how. He is now on prevacid every day. Is refulx common with CF or what are the GI issue people are talking about?
 
 I have also read that sinus problems can be a sign of CF. My DH has had sinus surgery and has constant sinus problems...so do both of my son's. My DH is not living here at the moment due to being in the military but I swear he was constantly clearing his throat! It drove me crazy!! He was always spitting stuff up in the morning too. I so don't miss that! I just figured it was a gross "man" thing...sorry men LOL. He didn't cough a lot though. I am thinking maybe that is a sign that he is at least a carrier.
 
 I don't know if I am though because as far as I can tell I don't have any symptoms of it at all. How common is it that people with CF have sinus problems too? Mostly what I am reading is they have lung issues and poop issues. Thanks for any input you will give me <img src="i/expressions/face-icon-small-blush.gif" border="0">). Oh and I wasn't sure which category this should go in os feel free to move it or tell me where to move it to if I should.
 
 PEPPERDERR

Jeana · Mar 22, 2009

To my knowledge, carriers do not have any symptoms whatsoever. My parents and siblings have no symptoms at least and my parents are for sure carriers and I imagine at least one of my 3 siblings is a carrier.

Although I am not personally on acid reflux medication, my CF care team always ask me if I am using anything like that, so it must be a problem for some CFers.

Hope that helps.

Jeana · Mar 22, 2009

To my knowledge, carriers do not have any symptoms whatsoever. My parents and siblings have no symptoms at least and my parents are for sure carriers and I imagine at least one of my 3 siblings is a carrier.

Although I am not personally on acid reflux medication, my CF care team always ask me if I am using anything like that, so it must be a problem for some CFers.

Hope that helps.

Jeana · Mar 22, 2009

To my knowledge, carriers do not have any symptoms whatsoever. My parents and siblings have no symptoms at least and my parents are for sure carriers and I imagine at least one of my 3 siblings is a carrier.

Although I am not personally on acid reflux medication, my CF care team always ask me if I am using anything like that, so it must be a problem for some CFers.

Hope that helps.

Jeana · Mar 22, 2009

To my knowledge, carriers do not have any symptoms whatsoever. My parents and siblings have no symptoms at least and my parents are for sure carriers and I imagine at least one of my 3 siblings is a carrier.

Although I am not personally on acid reflux medication, my CF care team always ask me if I am using anything like that, so it must be a problem for some CFers.

Hope that helps.

Jeana · Mar 22, 2009

To my knowledge, carriers do not have any symptoms whatsoever. My parents and siblings have no symptoms at least and my parents are for sure carriers and I imagine at least one of my 3 siblings is a carrier.
 
 Although I am not personally on acid reflux medication, my CF care team always ask me if I am using anything like that, so it must be a problem for some CFers.
 
 Hope that helps.

Jeana · Mar 22, 2009

GI stands for gastrointestinal. Here is a website that answers the GI issues. Also, it states why many CF patients use acid blockers and that is because the pancreatic enzymes need an alkaline atmosphere to work and oftentimes there is too much acid in the stomach. I love learning new things! <img src="i/expressions/face-icon-small-smile.gif" border="0">

Jeana · Mar 22, 2009

GI stands for gastrointestinal. Here is a website that answers the GI issues. Also, it states why many CF patients use acid blockers and that is because the pancreatic enzymes need an alkaline atmosphere to work and oftentimes there is too much acid in the stomach. I love learning new things! <img src="i/expressions/face-icon-small-smile.gif" border="0">

Jeana · Mar 22, 2009

GI stands for gastrointestinal. Here is a website that answers the GI issues. Also, it states why many CF patients use acid blockers and that is because the pancreatic enzymes need an alkaline atmosphere to work and oftentimes there is too much acid in the stomach. I love learning new things! <img src="i/expressions/face-icon-small-smile.gif" border="0">

Jeana · Mar 22, 2009

GI stands for gastrointestinal. Here is a website that answers the GI issues. Also, it states why many CF patients use acid blockers and that is because the pancreatic enzymes need an alkaline atmosphere to work and oftentimes there is too much acid in the stomach. I love learning new things! <img src="i/expressions/face-icon-small-smile.gif" border="0">

Jeana · Mar 22, 2009

GI stands for gastrointestinal. Here is a website that answers the GI issues. Also, it states why many CF patients use acid blockers and that is because the pancreatic enzymes need an alkaline atmosphere to work and oftentimes there is too much acid in the stomach. I love learning new things! <img src="i/expressions/face-icon-small-smile.gif" border="0">

Jeana · Mar 22, 2009

Oops, I forgot to paste in the website.
www.uams.edu/pediatrics/cf/what_is_CF.asp

Also, here is a website that states that CF carriers do not show symptoms--about 7th paragraph down.
<a target=_blank class=ftalternatingbarlinklarge href="http://kidshealth.org/parent/medical/lungs/cf.html">http://kidshealth.org/parent/medical/lungs/cf.html</a>

Jeana · Mar 22, 2009

Oops, I forgot to paste in the website.
www.uams.edu/pediatrics/cf/what_is_CF.asp

Also, here is a website that states that CF carriers do not show symptoms--about 7th paragraph down.
<a target=_blank class=ftalternatingbarlinklarge href="http://kidshealth.org/parent/medical/lungs/cf.html">http://kidshealth.org/parent/medical/lungs/cf.html</a>

Jeana · Mar 22, 2009

Oops, I forgot to paste in the website.
www.uams.edu/pediatrics/cf/what_is_CF.asp

Also, here is a website that states that CF carriers do not show symptoms--about 7th paragraph down.
<a target=_blank class=ftalternatingbarlinklarge href="http://kidshealth.org/parent/medical/lungs/cf.html">http://kidshealth.org/parent/medical/lungs/cf.html</a>

Jeana · Mar 22, 2009

Oops, I forgot to paste in the website.
www.uams.edu/pediatrics/cf/what_is_CF.asp

Also, here is a website that states that CF carriers do not show symptoms--about 7th paragraph down.
<a target=_blank class=ftalternatingbarlinklarge href="http://kidshealth.org/parent/medical/lungs/cf.html">http://kidshealth.org/parent/medical/lungs/cf.html</a>

Jeana · Mar 22, 2009

Oops, I forgot to paste in the website.
 www.uams.edu/pediatrics/cf/what_is_CF.asp
 
 Also, here is a website that states that CF carriers do not show symptoms--about 7th paragraph down.
 <a target=_blank class=ftalternatingbarlinklarge href="http://kidshealth.org/parent/medical/lungs/cf.html">http://kidshealth.org/parent/medical/lungs/cf.html</a>

What do you mean GI issues?

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