What do you think?

[Rebjane]

So I was thinking about the compressors we use for the nebs day in and day out. Something like the Pari is just not great for CF kids/adults who do back to back multiple nebs a day. We recently purchased a Mobilaire compressor which is SOOOOOO much better. It works faster and has not broken down.

Then I got to thinking about how much time and research goes into developing inhalation meds for CF, what about the mode of transfer of meds; the compressor.

Do they have a compressor that has good PSI (like the Mobilaire) and something more "forceable" like bipap or cpap to force the inhaled meds deeper and into the smaller airway in a positive airway compression type thing? Am I making sense? Wondering what you all think?

 

[Rebjane]

So I was thinking about the compressors we use for the nebs day in and day out. Something like the Pari is just not great for CF kids/adults who do back to back multiple nebs a day. We recently purchased a Mobilaire compressor which is SOOOOOO much better. It works faster and has not broken down.

Then I got to thinking about how much time and research goes into developing inhalation meds for CF, what about the mode of transfer of meds; the compressor.

Do they have a compressor that has good PSI (like the Mobilaire) and something more "forceable" like bipap or cpap to force the inhaled meds deeper and into the smaller airway in a positive airway compression type thing? Am I making sense? Wondering what you all think?

 

[Rebjane]

So I was thinking about the compressors we use for the nebs day in and day out. Something like the Pari is just not great for CF kids/adults who do back to back multiple nebs a day. We recently purchased a Mobilaire compressor which is SOOOOOO much better. It works faster and has not broken down.
<br />
<br />Then I got to thinking about how much time and research goes into developing inhalation meds for CF, what about the mode of transfer of meds; the compressor.
<br />
<br />Do they have a compressor that has good PSI (like the Mobilaire) and something more "forceable" like bipap or cpap to force the inhaled meds deeper and into the smaller airway in a positive airway compression type thing? Am I making sense? Wondering what you all think?

 

[dukeblue1206]

I think you are making sense. I have had Pari's for 10 years and they need to be replaced about every 8 months because they quick putting out enough air and it makes my treatments take forever. Pari just does not cut it with someone who has to sit down and do an hours worth of treatments twice a day like I do.

 

[dukeblue1206]

I think you are making sense. I have had Pari's for 10 years and they need to be replaced about every 8 months because they quick putting out enough air and it makes my treatments take forever. Pari just does not cut it with someone who has to sit down and do an hours worth of treatments twice a day like I do.

 

[dukeblue1206]

I think you are making sense. I have had Pari's for 10 years and they need to be replaced about every 8 months because they quick putting out enough air and it makes my treatments take forever. Pari just does not cut it with someone who has to sit down and do an hours worth of treatments twice a day like I do.

 

[hmw]

I think the most progress has been made with the e-flow type technology. Now what they need to do is make it more widely AVAILABLE instead of on the ridiculous 'lease' basis from only specialty pharmacies, etc the way it is now. It ought to be as available as the other nebs and more affordable.

 

[hmw]

I think the most progress has been made with the e-flow type technology. Now what they need to do is make it more widely AVAILABLE instead of on the ridiculous 'lease' basis from only specialty pharmacies, etc the way it is now. It ought to be as available as the other nebs and more affordable.

 

[hmw]

I think the most progress has been made with the e-flow type technology. Now what they need to do is make it more widely AVAILABLE instead of on the ridiculous 'lease' basis from only specialty pharmacies, etc the way it is now. It ought to be as available as the other nebs and more affordable.

 

[Giggles]

I think the eflow technology is great but the metal heads clog if you use more than one med with them. I use Alterra for Cayston and Trio for Colistin. Metal heads stay ok as long as no other meds are being used in the metal head. For instance I was using my TRIO to do Pulmozyme and ALbuterol along with the Colistin and it was just too much for the head. It clogged and defeated the purpose of using the TRIO. So now I am back to the Pari LC Plus for Pulmozyme and Albuterol. I agree we need better equipement and also need more metal heads for each drug.

 

[Giggles]

I think the eflow technology is great but the metal heads clog if you use more than one med with them. I use Alterra for Cayston and Trio for Colistin. Metal heads stay ok as long as no other meds are being used in the metal head. For instance I was using my TRIO to do Pulmozyme and ALbuterol along with the Colistin and it was just too much for the head. It clogged and defeated the purpose of using the TRIO. So now I am back to the Pari LC Plus for Pulmozyme and Albuterol. I agree we need better equipement and also need more metal heads for each drug.

 

[Giggles]

I think the eflow technology is great but the metal heads clog if you use more than one med with them. I use Alterra for Cayston and Trio for Colistin. Metal heads stay ok as long as no other meds are being used in the metal head. For instance I was using my TRIO to do Pulmozyme and ALbuterol along with the Colistin and it was just too much for the head. It clogged and defeated the purpose of using the TRIO. So now I am back to the Pari LC Plus for Pulmozyme and Albuterol. I agree we need better equipement and also need more metal heads for each drug.

 

[scanboyd]

The Pulmo-Aide neb. compressor with the Pari LC neb. is hard to beat. I have 3, 2 that I use in different locations in the house that are(at least 5yrs. old) and one new one in the box. My neb. time for HTS and Xopenex and Acetylcysteine is about 1 1/4 hrs. In my opinion I really do not want to rush the HTS or Acetylcysteine, but take my time and get as much thick mucus out of my lungs as possible.

I do use the Altera eflow for Cayston and Tobi on alt. months. Using 1/2 doses of Tobi due to the efficencyy of the Altera head. I steam sterlize at least once a day all neb. Pari LC as well as the Altera. I used one Altera head for 3 months. The neb time got a little long, 3 min. with Cayston, usually runs less than two min., and the Tobi got to 5-6 min. usullay runs about 4 min. or less. Prior to using the Altera head for Tobi, it would take at least 30 min. to neb. it with the Pari LC. I rinse the Altera with "hot" and wash it in hot soapy water after each use. FYI

I started doing neb. rx 51 yrs. ago, on and off when I was younger, but now that I have gained a little wisdom, doing them 2-3 times a day for the last 13 yrs.

Hope this info helps.

 

[scanboyd]

The Pulmo-Aide neb. compressor with the Pari LC neb. is hard to beat. I have 3, 2 that I use in different locations in the house that are(at least 5yrs. old) and one new one in the box. My neb. time for HTS and Xopenex and Acetylcysteine is about 1 1/4 hrs. In my opinion I really do not want to rush the HTS or Acetylcysteine, but take my time and get as much thick mucus out of my lungs as possible.

I do use the Altera eflow for Cayston and Tobi on alt. months. Using 1/2 doses of Tobi due to the efficencyy of the Altera head. I steam sterlize at least once a day all neb. Pari LC as well as the Altera. I used one Altera head for 3 months. The neb time got a little long, 3 min. with Cayston, usually runs less than two min., and the Tobi got to 5-6 min. usullay runs about 4 min. or less. Prior to using the Altera head for Tobi, it would take at least 30 min. to neb. it with the Pari LC. I rinse the Altera with "hot" and wash it in hot soapy water after each use. FYI

I started doing neb. rx 51 yrs. ago, on and off when I was younger, but now that I have gained a little wisdom, doing them 2-3 times a day for the last 13 yrs.

Hope this info helps.

 

[scanboyd]

The Pulmo-Aide neb. compressor with the Pari LC neb. is hard to beat. I have 3, 2 that I use in different locations in the house that are(at least 5yrs. old) and one new one in the box. My neb. time for HTS and Xopenex and Acetylcysteine is about 1 1/4 hrs. In my opinion I really do not want to rush the HTS or Acetylcysteine, but take my time and get as much thick mucus out of my lungs as possible.
<br />
<br />I do use the Altera eflow for Cayston and Tobi on alt. months. Using 1/2 doses of Tobi due to the efficencyy of the Altera head. I steam sterlize at least once a day all neb. Pari LC as well as the Altera. I used one Altera head for 3 months. The neb time got a little long, 3 min. with Cayston, usually runs less than two min., and the Tobi got to 5-6 min. usullay runs about 4 min. or less. Prior to using the Altera head for Tobi, it would take at least 30 min. to neb. it with the Pari LC. I rinse the Altera with "hot" and wash it in hot soapy water after each use. FYI
<br />
<br />I started doing neb. rx 51 yrs. ago, on and off when I was younger, but now that I have gained a little wisdom, doing them 2-3 times a day for the last 13 yrs.
<br />
<br />Hope this info helps.