Great thread!!! It's not just the things I've learned, but the friendships I have garnered here!!! Everyone here who has come into my life, people I will never forget, friends for life--about life!!! Because that's what CF IS--ABOUT LIFE!! To know there are so many others fighting the same fight, and we are all in it together. Everyone gives so much to each other here, LightNlife, Amy, Sean D, Allie, just to name a few--then there are ALL THE MOTHERS AND FATHERS who vent and share their fears, love, frustrations, and triumphs, with this disease--I can't even begin to name them all.
But the learning, it is all of the above that you others have stated. I would have never known about keeping nebs sterile, or GSH, or Oregano oil, or the vest, or FEV1'S, just everything!
Jeanne's dream for this site--was to get as much info out there so as to empower ourselves over this disease, and with the health care professionals who take care of us. I think it's working!!
GOD BLESS ALL OF YOU WHO ARE HELPING ME HELP KAYLEE FIGHT THIS FIGHT!!!