What have you learned?

robert321

New member
the list is far too long... thank you to all who have answered my questions, posted on other questions and basically everyone that has posted just about anything. I have learned so much from you all. When i first found this site i knew only what the drs and the books i got from the drs, now i feel that i'm fully ready to tackle anything cf throws my way, and if not i'll just post a thread about it and i'm sure you all will be able to tell me how to handle it. Thank You
 

robert321

New member
the list is far too long... thank you to all who have answered my questions, posted on other questions and basically everyone that has posted just about anything. I have learned so much from you all. When i first found this site i knew only what the drs and the books i got from the drs, now i feel that i'm fully ready to tackle anything cf throws my way, and if not i'll just post a thread about it and i'm sure you all will be able to tell me how to handle it. Thank You
 

robert321

New member
the list is far too long... thank you to all who have answered my questions, posted on other questions and basically everyone that has posted just about anything. I have learned so much from you all. When i first found this site i knew only what the drs and the books i got from the drs, now i feel that i'm fully ready to tackle anything cf throws my way, and if not i'll just post a thread about it and i'm sure you all will be able to tell me how to handle it. Thank You
 

robert321

New member
the list is far too long... thank you to all who have answered my questions, posted on other questions and basically everyone that has posted just about anything. I have learned so much from you all. When i first found this site i knew only what the drs and the books i got from the drs, now i feel that i'm fully ready to tackle anything cf throws my way, and if not i'll just post a thread about it and i'm sure you all will be able to tell me how to handle it. Thank You
 

kayleesgrandma

New member
Great thread!!! It's not just the things I've learned, but the friendships I have garnered here!!! Everyone here who has come into my life, people I will never forget, friends for life--about life!!! Because that's what CF IS--ABOUT LIFE!! To know there are so many others fighting the same fight, and we are all in it together. Everyone gives so much to each other here, LightNlife, Amy, Sean D, Allie, just to name a few--then there are ALL THE MOTHERS AND FATHERS who vent and share their fears, love, frustrations, and triumphs, with this disease--I can't even begin to name them all.

But the learning, it is all of the above that you others have stated. I would have never known about keeping nebs sterile, or GSH, or Oregano oil, or the vest, or FEV1'S, just everything!

Jeanne's dream for this site--was to get as much info out there so as to empower ourselves over this disease, and with the health care professionals who take care of us. I think it's working!!

GOD BLESS ALL OF YOU WHO ARE HELPING ME HELP KAYLEE FIGHT THIS FIGHT!!!
 

kayleesgrandma

New member
Great thread!!! It's not just the things I've learned, but the friendships I have garnered here!!! Everyone here who has come into my life, people I will never forget, friends for life--about life!!! Because that's what CF IS--ABOUT LIFE!! To know there are so many others fighting the same fight, and we are all in it together. Everyone gives so much to each other here, LightNlife, Amy, Sean D, Allie, just to name a few--then there are ALL THE MOTHERS AND FATHERS who vent and share their fears, love, frustrations, and triumphs, with this disease--I can't even begin to name them all.

But the learning, it is all of the above that you others have stated. I would have never known about keeping nebs sterile, or GSH, or Oregano oil, or the vest, or FEV1'S, just everything!

Jeanne's dream for this site--was to get as much info out there so as to empower ourselves over this disease, and with the health care professionals who take care of us. I think it's working!!

GOD BLESS ALL OF YOU WHO ARE HELPING ME HELP KAYLEE FIGHT THIS FIGHT!!!
 

kayleesgrandma

New member
Great thread!!! It's not just the things I've learned, but the friendships I have garnered here!!! Everyone here who has come into my life, people I will never forget, friends for life--about life!!! Because that's what CF IS--ABOUT LIFE!! To know there are so many others fighting the same fight, and we are all in it together. Everyone gives so much to each other here, LightNlife, Amy, Sean D, Allie, just to name a few--then there are ALL THE MOTHERS AND FATHERS who vent and share their fears, love, frustrations, and triumphs, with this disease--I can't even begin to name them all.

But the learning, it is all of the above that you others have stated. I would have never known about keeping nebs sterile, or GSH, or Oregano oil, or the vest, or FEV1'S, just everything!

Jeanne's dream for this site--was to get as much info out there so as to empower ourselves over this disease, and with the health care professionals who take care of us. I think it's working!!

GOD BLESS ALL OF YOU WHO ARE HELPING ME HELP KAYLEE FIGHT THIS FIGHT!!!
 

kayleesgrandma

New member
Great thread!!! It's not just the things I've learned, but the friendships I have garnered here!!! Everyone here who has come into my life, people I will never forget, friends for life--about life!!! Because that's what CF IS--ABOUT LIFE!! To know there are so many others fighting the same fight, and we are all in it together. Everyone gives so much to each other here, LightNlife, Amy, Sean D, Allie, just to name a few--then there are ALL THE MOTHERS AND FATHERS who vent and share their fears, love, frustrations, and triumphs, with this disease--I can't even begin to name them all.

But the learning, it is all of the above that you others have stated. I would have never known about keeping nebs sterile, or GSH, or Oregano oil, or the vest, or FEV1'S, just everything!

Jeanne's dream for this site--was to get as much info out there so as to empower ourselves over this disease, and with the health care professionals who take care of us. I think it's working!!

GOD BLESS ALL OF YOU WHO ARE HELPING ME HELP KAYLEE FIGHT THIS FIGHT!!!
 

kayleesgrandma

New member
Great thread!!! It's not just the things I've learned, but the friendships I have garnered here!!! Everyone here who has come into my life, people I will never forget, friends for life--about life!!! Because that's what CF IS--ABOUT LIFE!! To know there are so many others fighting the same fight, and we are all in it together. Everyone gives so much to each other here, LightNlife, Amy, Sean D, Allie, just to name a few--then there are ALL THE MOTHERS AND FATHERS who vent and share their fears, love, frustrations, and triumphs, with this disease--I can't even begin to name them all.

But the learning, it is all of the above that you others have stated. I would have never known about keeping nebs sterile, or GSH, or Oregano oil, or the vest, or FEV1'S, just everything!

Jeanne's dream for this site--was to get as much info out there so as to empower ourselves over this disease, and with the health care professionals who take care of us. I think it's working!!

GOD BLESS ALL OF YOU WHO ARE HELPING ME HELP KAYLEE FIGHT THIS FIGHT!!!
 

kayleesgrandma

New member
Great thread!!! It's not just the things I've learned, but the friendships I have garnered here!!! Everyone here who has come into my life, people I will never forget, friends for life--about life!!! Because that's what CF IS--ABOUT LIFE!! To know there are so many others fighting the same fight, and we are all in it together. Everyone gives so much to each other here, LightNlife, Amy, Sean D, Allie, just to name a few--then there are ALL THE MOTHERS AND FATHERS who vent and share their fears, love, frustrations, and triumphs, with this disease--I can't even begin to name them all.

But the learning, it is all of the above that you others have stated. I would have never known about keeping nebs sterile, or GSH, or Oregano oil, or the vest, or FEV1'S, just everything!

Jeanne's dream for this site--was to get as much info out there so as to empower ourselves over this disease, and with the health care professionals who take care of us. I think it's working!!

GOD BLESS ALL OF YOU WHO ARE HELPING ME HELP KAYLEE FIGHT THIS FIGHT!!!
 

jdprecious

New member
about nac
what gene mutation jae has
what pft's are and how to read them
i learned i really knew little about the disease... time to educate myself and the others in my life

and Terri... im off to search oregano oil... haha cant even imagine what that does?!?! lol
 

jdprecious

New member
about nac
what gene mutation jae has
what pft's are and how to read them
i learned i really knew little about the disease... time to educate myself and the others in my life

and Terri... im off to search oregano oil... haha cant even imagine what that does?!?! lol
 

jdprecious

New member
about nac
what gene mutation jae has
what pft's are and how to read them
i learned i really knew little about the disease... time to educate myself and the others in my life

and Terri... im off to search oregano oil... haha cant even imagine what that does?!?! lol
 

jdprecious

New member
about nac
what gene mutation jae has
what pft's are and how to read them
i learned i really knew little about the disease... time to educate myself and the others in my life

and Terri... im off to search oregano oil... haha cant even imagine what that does?!?! lol
 

jdprecious

New member
about nac
what gene mutation jae has
what pft's are and how to read them
i learned i really knew little about the disease... time to educate myself and the others in my life

and Terri... im off to search oregano oil... haha cant even imagine what that does?!?! lol
 

jdprecious

New member
about nac
what gene mutation jae has
what pft's are and how to read them
i learned i really knew little about the disease... time to educate myself and the others in my life

and Terri... im off to search oregano oil... haha cant even imagine what that does?!?! lol
 

jfarel

New member
Basically everything about CF I've learned from this site. I talked to a parent of someone with cf the other day and they were like "You sound like a doctor." Well, learned it all here.
 

jfarel

New member
Basically everything about CF I've learned from this site. I talked to a parent of someone with cf the other day and they were like "You sound like a doctor." Well, learned it all here.
 

jfarel

New member
Basically everything about CF I've learned from this site. I talked to a parent of someone with cf the other day and they were like "You sound like a doctor." Well, learned it all here.
 

jfarel

New member
Basically everything about CF I've learned from this site. I talked to a parent of someone with cf the other day and they were like "You sound like a doctor." Well, learned it all here.
 
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