what horrible conditions to be hospitilized in!

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shamrock

New member
So do you expect the entire population of Irish CF people to up and move sticks? Where would they go?

Imagine if your wee child with cf wasn't too sick, perhaps requiring ivs maybe twice a year max, you live in a council house (one provided by the government), and don't have a substantial income, what country is going to take you? If you moved anywhere, then in my opinion your child would be worse off. No money, no food, etc etc.

I am well aware that the conditions are dire, but a simple 'move out of the country' solution is far easier said then done.

And your grandmother who lived and moved during world war 2, lived in a completely different economy; policies nowadays are a lot more complicated.

I'm sorry, but I don't really think you have thought through your comment to be honest.
 
N

NoExcuses

New member
This will be my last post on this topic because I don't want to go back and forth.

Even if it's easier said that done, just because it's hard, doesn't mean it can be done. Many things are easier said that done.

If I had CF child, i wouldn't be living in house provided by the government. I would never have a child unless I could financially stand on my own two feet. I just wouldn't.

And I would spend every waking moment finding a way to go to a country with better healthcare.

I know in the European Union, for example, you can move anywhere within the EU. Many other countries in the EU don't have hospital situations like the one described above.

I would clean toilets. I would lick the toilets. I would do anything so that my child would receive better healthcare than that.

There is always a way. Even if it's hard.

So don't be sorry, because I have thought my comment through.
 
N

NoExcuses

New member
This will be my last post on this topic because I don't want to go back and forth.

Even if it's easier said that done, just because it's hard, doesn't mean it can be done. Many things are easier said that done.

If I had CF child, i wouldn't be living in house provided by the government. I would never have a child unless I could financially stand on my own two feet. I just wouldn't.

And I would spend every waking moment finding a way to go to a country with better healthcare.

I know in the European Union, for example, you can move anywhere within the EU. Many other countries in the EU don't have hospital situations like the one described above.

I would clean toilets. I would lick the toilets. I would do anything so that my child would receive better healthcare than that.

There is always a way. Even if it's hard.

So don't be sorry, because I have thought my comment through.
 
N

NoExcuses

New member
This will be my last post on this topic because I don't want to go back and forth.

Even if it's easier said that done, just because it's hard, doesn't mean it can be done. Many things are easier said that done.

If I had CF child, i wouldn't be living in house provided by the government. I would never have a child unless I could financially stand on my own two feet. I just wouldn't.

And I would spend every waking moment finding a way to go to a country with better healthcare.

I know in the European Union, for example, you can move anywhere within the EU. Many other countries in the EU don't have hospital situations like the one described above.

I would clean toilets. I would lick the toilets. I would do anything so that my child would receive better healthcare than that.

There is always a way. Even if it's hard.

So don't be sorry, because I have thought my comment through.
 
R

ReneeP

New member
I would like to tell you how rude, inconsiderate and mean those comments are, but then I would be acting like you.

What I will say instead is that I think you should run for president. If you could make all our worlds as perfect as yours is, we'd all be so much better off.
 
R

ReneeP

New member
I would like to tell you how rude, inconsiderate and mean those comments are, but then I would be acting like you.

What I will say instead is that I think you should run for president. If you could make all our worlds as perfect as yours is, we'd all be so much better off.
 
R

ReneeP

New member
I would like to tell you how rude, inconsiderate and mean those comments are, but then I would be acting like you.

What I will say instead is that I think you should run for president. If you could make all our worlds as perfect as yours is, we'd all be so much better off.
 
C

consmom

New member
I hate to say it but I agree that if the last poster thinks that the system in the USA is the be all of medical care then they need a reality check ! I am Welsh and living in the states, I know that the medical is good but only if you have the means to afford it. My son was diagnosed at birth, we finally got subsidised medical two years ago (he is nearly 8 ) I have to work full time just to cover all the extras he needs for his care. I often have to decide if I stay home or go to work, you don't have to make those awful choices in other countries. As for cleanliness in our hospitals, when was your last admit ? We used to go to the top childrens hospital and after fighting his infection we ALWAYS were left with a secondary infection to fight after, that he picked up at the hospital.
Every country, every hospital and every disease has its bad side and things that need to improve. For anyone to think that just because they have to deal with less than perfect conditions that they need to pick up and leave thier home, family and thier lives for a so called better systen has never had to deal with immigration, or caring for a child with cf thousands of miles away from any support system and scraping by paycheck to paycheck.
I wish I had your idealic life just not your narrow view on perfection and what is really important to theese children. I know that my son would in a heartbeat trade the great care he gets here for a few hours with his grandparents and cousins.
I am sorry but I know so many who would up and move to europe just to have the extra help that we don't get here. The next time you see your child with thier extended family take a look at thier faces and imagine taking that away from them for a clean room that , touch wood, you may need once a year. It would make more sense to say .. ok maybe its a bad hospital try another. Remember we are all dealing with our own issues to do with cf, please don't judge.
 
C

consmom

New member
I hate to say it but I agree that if the last poster thinks that the system in the USA is the be all of medical care then they need a reality check ! I am Welsh and living in the states, I know that the medical is good but only if you have the means to afford it. My son was diagnosed at birth, we finally got subsidised medical two years ago (he is nearly 8 ) I have to work full time just to cover all the extras he needs for his care. I often have to decide if I stay home or go to work, you don't have to make those awful choices in other countries. As for cleanliness in our hospitals, when was your last admit ? We used to go to the top childrens hospital and after fighting his infection we ALWAYS were left with a secondary infection to fight after, that he picked up at the hospital.
Every country, every hospital and every disease has its bad side and things that need to improve. For anyone to think that just because they have to deal with less than perfect conditions that they need to pick up and leave thier home, family and thier lives for a so called better systen has never had to deal with immigration, or caring for a child with cf thousands of miles away from any support system and scraping by paycheck to paycheck.
I wish I had your idealic life just not your narrow view on perfection and what is really important to theese children. I know that my son would in a heartbeat trade the great care he gets here for a few hours with his grandparents and cousins.
I am sorry but I know so many who would up and move to europe just to have the extra help that we don't get here. The next time you see your child with thier extended family take a look at thier faces and imagine taking that away from them for a clean room that , touch wood, you may need once a year. It would make more sense to say .. ok maybe its a bad hospital try another. Remember we are all dealing with our own issues to do with cf, please don't judge.
 
C

consmom

New member
I hate to say it but I agree that if the last poster thinks that the system in the USA is the be all of medical care then they need a reality check ! I am Welsh and living in the states, I know that the medical is good but only if you have the means to afford it. My son was diagnosed at birth, we finally got subsidised medical two years ago (he is nearly 8 ) I have to work full time just to cover all the extras he needs for his care. I often have to decide if I stay home or go to work, you don't have to make those awful choices in other countries. As for cleanliness in our hospitals, when was your last admit ? We used to go to the top childrens hospital and after fighting his infection we ALWAYS were left with a secondary infection to fight after, that he picked up at the hospital.
Every country, every hospital and every disease has its bad side and things that need to improve. For anyone to think that just because they have to deal with less than perfect conditions that they need to pick up and leave thier home, family and thier lives for a so called better systen has never had to deal with immigration, or caring for a child with cf thousands of miles away from any support system and scraping by paycheck to paycheck.
I wish I had your idealic life just not your narrow view on perfection and what is really important to theese children. I know that my son would in a heartbeat trade the great care he gets here for a few hours with his grandparents and cousins.
I am sorry but I know so many who would up and move to europe just to have the extra help that we don't get here. The next time you see your child with thier extended family take a look at thier faces and imagine taking that away from them for a clean room that , touch wood, you may need once a year. It would make more sense to say .. ok maybe its a bad hospital try another. Remember we are all dealing with our own issues to do with cf, please don't judge.
 
S

shamrock

New member
<div class="FTQUOTE"><begin quote>TextIf I had CF child, i wouldn't be living in house provided by the government. I would never have a child unless I could financially stand on my own two feet. I just wouldn't. </end quote></div>

What if you had no other option but to live in a house provided by the govenment? What if, god forbid, something financially terrible happened you after you gave birth that meant you had no other option?

Also, many people are in a loop hole, where they are working their heads off (licking toilets etc) but don't earn enough to purchase a house. Surely, a stable home, which a council house is, is better then living on the streets. There is nothing wrong with living in a council house (well not over here anyway) at all. I am not saying that you think there is, but considering you would never live in one would suggest otherwise.

<div class="FTQUOTE"><begin quote>I know in the European Union, for example, you can move anywhere within the EU. Many other countries in the EU don't have hospital situations like the one described above.</end quote></div>

You need a visa to live in another country. Free travel is ok but not to live in. How would you expect to move a family, expect them to learn a whole new language, a whole new world. Of course it's possible, anything is possible, but not everything is practical.

<div class="FTQUOTE"><begin quote> So don't be sorry, because I have thought my comment through. </end quote></div>

I'm afraid you haven't. It seems to me that you made your comment, realised how silly it was, and are too stubborn to back down.

I am glad that you are so motivated in life, and that if you ever had children, they will just have the best lives, but you shouldn't imply that people who live here don't care as much for their children as you would for yours. I have taken offence to your posts, because I know that my parents are the most caring and hard working parents I know, so to imply that IF you had kids that you wouldn't keep them where that is the state of our healthcare, is, simply offensive; not only to me, but im sure to all Irish parents who do their uptmost best for their children.

Two things are clearly evident from your posts Sasuka:
1) You don't have kids.
2) Ignorance is bliss.

Should you wish to come back and comment, I would welcome any further explanation of your comments, since you clearly know so much. But since you said you wouldn't , something tells me you won't. Take care!
 
S

shamrock

New member
<div class="FTQUOTE"><begin quote>TextIf I had CF child, i wouldn't be living in house provided by the government. I would never have a child unless I could financially stand on my own two feet. I just wouldn't. </end quote></div>

What if you had no other option but to live in a house provided by the govenment? What if, god forbid, something financially terrible happened you after you gave birth that meant you had no other option?

Also, many people are in a loop hole, where they are working their heads off (licking toilets etc) but don't earn enough to purchase a house. Surely, a stable home, which a council house is, is better then living on the streets. There is nothing wrong with living in a council house (well not over here anyway) at all. I am not saying that you think there is, but considering you would never live in one would suggest otherwise.

<div class="FTQUOTE"><begin quote>I know in the European Union, for example, you can move anywhere within the EU. Many other countries in the EU don't have hospital situations like the one described above.</end quote></div>

You need a visa to live in another country. Free travel is ok but not to live in. How would you expect to move a family, expect them to learn a whole new language, a whole new world. Of course it's possible, anything is possible, but not everything is practical.

<div class="FTQUOTE"><begin quote> So don't be sorry, because I have thought my comment through. </end quote></div>

I'm afraid you haven't. It seems to me that you made your comment, realised how silly it was, and are too stubborn to back down.

I am glad that you are so motivated in life, and that if you ever had children, they will just have the best lives, but you shouldn't imply that people who live here don't care as much for their children as you would for yours. I have taken offence to your posts, because I know that my parents are the most caring and hard working parents I know, so to imply that IF you had kids that you wouldn't keep them where that is the state of our healthcare, is, simply offensive; not only to me, but im sure to all Irish parents who do their uptmost best for their children.

Two things are clearly evident from your posts Sasuka:
1) You don't have kids.
2) Ignorance is bliss.

Should you wish to come back and comment, I would welcome any further explanation of your comments, since you clearly know so much. But since you said you wouldn't , something tells me you won't. Take care!
 
S

shamrock

New member
<div class="FTQUOTE"><begin quote>TextIf I had CF child, i wouldn't be living in house provided by the government. I would never have a child unless I could financially stand on my own two feet. I just wouldn't. </end quote></div>

What if you had no other option but to live in a house provided by the govenment? What if, god forbid, something financially terrible happened you after you gave birth that meant you had no other option?

Also, many people are in a loop hole, where they are working their heads off (licking toilets etc) but don't earn enough to purchase a house. Surely, a stable home, which a council house is, is better then living on the streets. There is nothing wrong with living in a council house (well not over here anyway) at all. I am not saying that you think there is, but considering you would never live in one would suggest otherwise.

<div class="FTQUOTE"><begin quote>I know in the European Union, for example, you can move anywhere within the EU. Many other countries in the EU don't have hospital situations like the one described above.</end quote></div>

You need a visa to live in another country. Free travel is ok but not to live in. How would you expect to move a family, expect them to learn a whole new language, a whole new world. Of course it's possible, anything is possible, but not everything is practical.

<div class="FTQUOTE"><begin quote> So don't be sorry, because I have thought my comment through. </end quote></div>

I'm afraid you haven't. It seems to me that you made your comment, realised how silly it was, and are too stubborn to back down.

I am glad that you are so motivated in life, and that if you ever had children, they will just have the best lives, but you shouldn't imply that people who live here don't care as much for their children as you would for yours. I have taken offence to your posts, because I know that my parents are the most caring and hard working parents I know, so to imply that IF you had kids that you wouldn't keep them where that is the state of our healthcare, is, simply offensive; not only to me, but im sure to all Irish parents who do their uptmost best for their children.

Two things are clearly evident from your posts Sasuka:
1) You don't have kids.
2) Ignorance is bliss.

Should you wish to come back and comment, I would welcome any further explanation of your comments, since you clearly know so much. But since you said you wouldn't , something tells me you won't. Take care!
 
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