What is considered an acute drop in FEV1?

alwaysursamor

New member
Ever since I got switched from kids to adults I haven't been
admitted I do home IV's.  You can tell your doctor I want them
They can't deny you.
 

anonymous

New member
I have no idea about the admitting problem, but I know that my doctor always wants to put me in the hospital. If I was a good patient I would go in but I don't. He wouldn't do that if he would get less money right?

Also, what about the doctor's in the US that are starting to put people in the hospital every 3 months? That would hurt them too then right?

Just wondering, I have no experience in this so I don't know what to think

Sue 24w/CF
 

alwaysursamor

New member
o yeah and amy is sooooo right. Don't ever put so much trust into
you system that you think is about the people HAHA its about the
money thats how the world is ran
 

Ender

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>alwaysursamor</b></i>

o yeah and amy is sooooo right. Don't ever put so much trust into
you system that you think is about the people HAHA its about the
money thats how the world is ran</end quote></div>

I would only hope that my doctors do it for the people and not for "bonuses" based on how many people they admit. Maybe I'm just naive...
 

Chaggie

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i> I have no idea
about the admitting problem, but I know that my doctor always wants
to put me in the hospital. If I was a good patient I would go in
but I don't. He wouldn't do that if he would get less money right?
Also, what about the doctor's in the US that are starting to put
people in the hospital every 3 months? That would hurt them too
then right? Just wondering, I have no experience in this so I don't
know what to think Sue 24w/CF</end quote></div><br>
<br>
Mine is the same way.  As soon as my pft's start dropping he
wants to put me in, my baseline is usually  around 120,
although recently my fev's have been dropping(for no apparent
reason), I rarely do unless I'm really feeling sick, that
hasn't happened in 8 years and I ended up on home IV's.  
 

anonymous

New member
I have MRSA too and they wont do anything about it I have been to the ER 8 times in 3 weeks and now I am fighting to see infectious disease dr, its who needs to handle it...your not alont in this fight.
 

anonymous

New member
I have MRSA too and they wont do anything about it I have been to the ER 8 times in 3 weeks and now I am fighting to see infectious disease dr, its who needs to handle it...your not alont in this fight.
 

anonymous

New member
I have MRSA too and they wont do anything about it I have been to the ER 8 times in 3 weeks and now I am fighting to see infectious disease dr, its who needs to handle it...your not alont in this fight.
 

Scarlett81

New member
This is a difficult situation, weight the pros and cons carefully. Only you can decide if you shoudl sue or not. To some it would not be worth it, to others it might be.

Have you contacted a lawyer yet? Just for a consultation? A very good person to contact would be Beth Suffian-poor Beth, she must receive 100 phone calls a day from all of us...(she's an awesome person, very smart and always helpful) She is a lawyer in Texas, she has Cf, and she specializes in Cf related cases. I'm not saying she'll take the case, but she'll probably be willing to talk to you over the phone, get the facts, and advise you as to whether or not you really have a case. She'd also know if there are guidelines (Cf foundation or otherwise) as to how low a persons PFTs should dip before treatment.

Regardless, as a layman, I would think that even if there aren't written guidelines, it does violate a MAJOR ethical code, and the bottom line is sadly, a person with Cf could die under that doc's care. There should be consequences.

I was in a situation once, and I can't go into detail, but it a teeny bit similar. I person harmed me and I wanted to take legal action. I knew I probably wouldn't receive anything that would compensate in any way for what I lost. But in the end the reason I did it was for other people that we felt should be protected from this person. BUT like I said, everyone's different. You may not be in the same position. If you chose not to do anything, I wouldn't think that was wrong either.

I think you'll have a hard time finding a doctor to testify whether in person or by written letter in your behalf. A shame, but all too common. Maybe just see what you can do, call Beth, or another lawyer just to talk. And you were wise to not name the person here-I wouldn't give too much away if you intend to sue!!
 

Scarlett81

New member
This is a difficult situation, weight the pros and cons carefully. Only you can decide if you shoudl sue or not. To some it would not be worth it, to others it might be.

Have you contacted a lawyer yet? Just for a consultation? A very good person to contact would be Beth Suffian-poor Beth, she must receive 100 phone calls a day from all of us...(she's an awesome person, very smart and always helpful) She is a lawyer in Texas, she has Cf, and she specializes in Cf related cases. I'm not saying she'll take the case, but she'll probably be willing to talk to you over the phone, get the facts, and advise you as to whether or not you really have a case. She'd also know if there are guidelines (Cf foundation or otherwise) as to how low a persons PFTs should dip before treatment.

Regardless, as a layman, I would think that even if there aren't written guidelines, it does violate a MAJOR ethical code, and the bottom line is sadly, a person with Cf could die under that doc's care. There should be consequences.

I was in a situation once, and I can't go into detail, but it a teeny bit similar. I person harmed me and I wanted to take legal action. I knew I probably wouldn't receive anything that would compensate in any way for what I lost. But in the end the reason I did it was for other people that we felt should be protected from this person. BUT like I said, everyone's different. You may not be in the same position. If you chose not to do anything, I wouldn't think that was wrong either.

I think you'll have a hard time finding a doctor to testify whether in person or by written letter in your behalf. A shame, but all too common. Maybe just see what you can do, call Beth, or another lawyer just to talk. And you were wise to not name the person here-I wouldn't give too much away if you intend to sue!!
 

Scarlett81

New member
This is a difficult situation, weight the pros and cons carefully. Only you can decide if you shoudl sue or not. To some it would not be worth it, to others it might be.

Have you contacted a lawyer yet? Just for a consultation? A very good person to contact would be Beth Suffian-poor Beth, she must receive 100 phone calls a day from all of us...(she's an awesome person, very smart and always helpful) She is a lawyer in Texas, she has Cf, and she specializes in Cf related cases. I'm not saying she'll take the case, but she'll probably be willing to talk to you over the phone, get the facts, and advise you as to whether or not you really have a case. She'd also know if there are guidelines (Cf foundation or otherwise) as to how low a persons PFTs should dip before treatment.

Regardless, as a layman, I would think that even if there aren't written guidelines, it does violate a MAJOR ethical code, and the bottom line is sadly, a person with Cf could die under that doc's care. There should be consequences.

I was in a situation once, and I can't go into detail, but it a teeny bit similar. I person harmed me and I wanted to take legal action. I knew I probably wouldn't receive anything that would compensate in any way for what I lost. But in the end the reason I did it was for other people that we felt should be protected from this person. BUT like I said, everyone's different. You may not be in the same position. If you chose not to do anything, I wouldn't think that was wrong either.

I think you'll have a hard time finding a doctor to testify whether in person or by written letter in your behalf. A shame, but all too common. Maybe just see what you can do, call Beth, or another lawyer just to talk. And you were wise to not name the person here-I wouldn't give too much away if you intend to sue!!
 
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