What kind of contact with a B.Cepacia person is allowed?

blopunky

New member
My oldest son(no cf) is in the 8th grade and I just found out that
a teacher in his building has B.Cepacia. My youngest son(with cf),
 is in the 3rd grade and not in this building.  My
question is Can my youngest get this if my oldest is exposed? What
if  this teacher, who has a child in the same building as my
youngest, comes in and is near him?  My youngest has
Psuedemonas  Arg.  And is on  TOBI 28/on 28/off.
 He was diagnosed at 2, he is 8 now.  If anyone has any
info. please help.<br>
Blopunkysmom
 

blopunky

New member
My oldest son(no cf) is in the 8th grade and I just found out that
a teacher in his building has B.Cepacia. My youngest son(with cf),
 is in the 3rd grade and not in this building.  My
question is Can my youngest get this if my oldest is exposed? What
if  this teacher, who has a child in the same building as my
youngest, comes in and is near him?  My youngest has
Psuedemonas  Arg.  And is on  TOBI 28/on 28/off.
 He was diagnosed at 2, he is 8 now.  If anyone has any
info. please help.<br>
Blopunkysmom
 

blopunky

New member
My oldest son(no cf) is in the 8th grade and I just found out that
a teacher in his building has B.Cepacia. My youngest son(with cf),
 is in the 3rd grade and not in this building.  My
question is Can my youngest get this if my oldest is exposed? What
if  this teacher, who has a child in the same building as my
youngest, comes in and is near him?  My youngest has
Psuedemonas  Arg.  And is on  TOBI 28/on 28/off.
 He was diagnosed at 2, he is 8 now.  If anyone has any
info. please help.<br>
Blopunkysmom
 
T

tammykrumrey

Guest
I have a 15 year old nephew w/CF who also has B. Cepacia. And I have two daughters, both with CF, who do not. We keep the kids away from each other. The doctor says at least 3 feet away, but lately I have been wanting to keep them even further away. I am just too nervous about the whole thing. He has had B. Cepacia for 5 years. I do give him hugs and kisses when I see him, and have never been told that I can't by the CF doctor. All three kids see the same CF doctor, so he is definately aware of the close relationship and the situation we are in. I was told that I could not pass it to my girls. Although I have had others on this forum say that I can merely by having close contact with him. Maybe I have just been lucky so far, I don't know. Maybe he just hasn't coughed on me and got it on my clothes. Who knows. But I still hug and give him kisses. I don't go up hugging on him when he is in the middle of a coughing fit or anything.
If it were me, I would request that your son be able to see and become familiar with who this teacher is and vise versa, so that they do know to stay at least completely across the room from each other. My children (who were 2 and 3 when my nephew was dx with B. Cepacia) and my nephew (who was 10 when he started culturing it) have learned how to stay away from each other easily. As a matter of fact, my children have been taught to stay across the room from ANYONE with CF. There is another child with CF in our small school of only 150 students. If we are someplace, and they see Dalton (my nephew) touch something, like the remote control, they will not touch it. They will ask me or someone else in the family to turn the channel. We do the best we can with it and still be a family.
I think your son is okay, as long as he knows who to stay away from. When first explaining it to my girls we just told them that Dalton had a bad cold that they could catch and that it would make them really sick, and that explaination worked for years, and still does.
 
T

tammykrumrey

Guest
I have a 15 year old nephew w/CF who also has B. Cepacia. And I have two daughters, both with CF, who do not. We keep the kids away from each other. The doctor says at least 3 feet away, but lately I have been wanting to keep them even further away. I am just too nervous about the whole thing. He has had B. Cepacia for 5 years. I do give him hugs and kisses when I see him, and have never been told that I can't by the CF doctor. All three kids see the same CF doctor, so he is definately aware of the close relationship and the situation we are in. I was told that I could not pass it to my girls. Although I have had others on this forum say that I can merely by having close contact with him. Maybe I have just been lucky so far, I don't know. Maybe he just hasn't coughed on me and got it on my clothes. Who knows. But I still hug and give him kisses. I don't go up hugging on him when he is in the middle of a coughing fit or anything.
If it were me, I would request that your son be able to see and become familiar with who this teacher is and vise versa, so that they do know to stay at least completely across the room from each other. My children (who were 2 and 3 when my nephew was dx with B. Cepacia) and my nephew (who was 10 when he started culturing it) have learned how to stay away from each other easily. As a matter of fact, my children have been taught to stay across the room from ANYONE with CF. There is another child with CF in our small school of only 150 students. If we are someplace, and they see Dalton (my nephew) touch something, like the remote control, they will not touch it. They will ask me or someone else in the family to turn the channel. We do the best we can with it and still be a family.
I think your son is okay, as long as he knows who to stay away from. When first explaining it to my girls we just told them that Dalton had a bad cold that they could catch and that it would make them really sick, and that explaination worked for years, and still does.
 
T

tammykrumrey

Guest
I have a 15 year old nephew w/CF who also has B. Cepacia. And I have two daughters, both with CF, who do not. We keep the kids away from each other. The doctor says at least 3 feet away, but lately I have been wanting to keep them even further away. I am just too nervous about the whole thing. He has had B. Cepacia for 5 years. I do give him hugs and kisses when I see him, and have never been told that I can't by the CF doctor. All three kids see the same CF doctor, so he is definately aware of the close relationship and the situation we are in. I was told that I could not pass it to my girls. Although I have had others on this forum say that I can merely by having close contact with him. Maybe I have just been lucky so far, I don't know. Maybe he just hasn't coughed on me and got it on my clothes. Who knows. But I still hug and give him kisses. I don't go up hugging on him when he is in the middle of a coughing fit or anything.
If it were me, I would request that your son be able to see and become familiar with who this teacher is and vise versa, so that they do know to stay at least completely across the room from each other. My children (who were 2 and 3 when my nephew was dx with B. Cepacia) and my nephew (who was 10 when he started culturing it) have learned how to stay away from each other easily. As a matter of fact, my children have been taught to stay across the room from ANYONE with CF. There is another child with CF in our small school of only 150 students. If we are someplace, and they see Dalton (my nephew) touch something, like the remote control, they will not touch it. They will ask me or someone else in the family to turn the channel. We do the best we can with it and still be a family.
I think your son is okay, as long as he knows who to stay away from. When first explaining it to my girls we just told them that Dalton had a bad cold that they could catch and that it would make them really sick, and that explaination worked for years, and still does.
 

NoExcuses

New member
Bacteria can survive on survies for hours and sometimes days. so just "keeping distance" is going to help if a kid coughs into his hands, touches a door handle, and your kid touches the door handle and then touches his hands to his mouth 20 minutes later.

I would stay as far away from someone with B. Cepacia as I could.....
 

NoExcuses

New member
Bacteria can survive on survies for hours and sometimes days. so just "keeping distance" is going to help if a kid coughs into his hands, touches a door handle, and your kid touches the door handle and then touches his hands to his mouth 20 minutes later.

I would stay as far away from someone with B. Cepacia as I could.....
 

NoExcuses

New member
Bacteria can survive on survies for hours and sometimes days. so just "keeping distance" is going to help if a kid coughs into his hands, touches a door handle, and your kid touches the door handle and then touches his hands to his mouth 20 minutes later.

I would stay as far away from someone with B. Cepacia as I could.....
 

blopunky

New member
Thanks for the replys! I try not to go nuts over one particular
thing, since there are so many things I could go nuts over, but I
was stressing over that one. BTW when I tried to read the question
presented to me my comp. hit a glich, so I lost it before I could
read it, sorry!
 

blopunky

New member
Thanks for the replys! I try not to go nuts over one particular
thing, since there are so many things I could go nuts over, but I
was stressing over that one. BTW when I tried to read the question
presented to me my comp. hit a glich, so I lost it before I could
read it, sorry!
 

blopunky

New member
Thanks for the replys! I try not to go nuts over one particular
thing, since there are so many things I could go nuts over, but I
was stressing over that one. BTW when I tried to read the question
presented to me my comp. hit a glich, so I lost it before I could
read it, sorry!
 

blopunky

New member
this is to ktsmom- I am so sorry being this long in responding to
your question. I am new to all this and I just found your post!
 He(blopunky) has been on TOBI since august 20,2004. Up until
then he had never grown P.argenosa. Let me tell you it was a
shocker! Especially when they told me that once they grow this they
almost never get rid of it.  He started TOBI that week and
 at his next appt.(3months) he didn't grow it again.
 They kept him on the 28/on 28/off schedule through winter
 and at his May appt. they let him have the summer off because
he still hadn't grown it again.  We continued the schedule the
same as before with summers off until this past April- you guessed
it, it's back! I was so disappointed!! But he did go a long time
between growing it though. So it  can happen.<br>
I don't think that it is anything that I did though, just a
blessing from God. As for complications from TOBI, I can't think of
any other than he is extremely moody while he is on it and his
appetite actually goes down, which is the opposite of what I was
told would happen-go figure! Usually in our family if something is
going to happen it will happen to him! I really don't know how long
TOBI has been around though, sorry. I wish you alot of luck and
read everything you can get your eyes on. Most important--you know
your child better than anyone, if you have questions-ask! It
doesn't matter how many times you have to do it to get an answer.
My son's doctor decided to stop practicing altogether and we are
facing another doctor. He treated the adults in the same office. I
am nervous about this because I don't know what to expect from him.
I'm hoping it will all go well, blopunky sees him Oct.26th.  I
agree with you that "forever" is a harsh word. That's
what they told us about TOBI as well.  On a different note-I
sighned up for a blog and got one, funny thing is, I can't post
anything on it! I hope to be going on it soon, but until then I'll
be looking here every weekday( I don't have a computer at home), so
if I can help or just talk about anything-just ask!!! Again, sorry
this is so late. Blopunk's mom.
 

blopunky

New member
this is to ktsmom- I am so sorry being this long in responding to
your question. I am new to all this and I just found your post!
 He(blopunky) has been on TOBI since august 20,2004. Up until
then he had never grown P.argenosa. Let me tell you it was a
shocker! Especially when they told me that once they grow this they
almost never get rid of it.  He started TOBI that week and
 at his next appt.(3months) he didn't grow it again.
 They kept him on the 28/on 28/off schedule through winter
 and at his May appt. they let him have the summer off because
he still hadn't grown it again.  We continued the schedule the
same as before with summers off until this past April- you guessed
it, it's back! I was so disappointed!! But he did go a long time
between growing it though. So it  can happen.<br>
I don't think that it is anything that I did though, just a
blessing from God. As for complications from TOBI, I can't think of
any other than he is extremely moody while he is on it and his
appetite actually goes down, which is the opposite of what I was
told would happen-go figure! Usually in our family if something is
going to happen it will happen to him! I really don't know how long
TOBI has been around though, sorry. I wish you alot of luck and
read everything you can get your eyes on. Most important--you know
your child better than anyone, if you have questions-ask! It
doesn't matter how many times you have to do it to get an answer.
My son's doctor decided to stop practicing altogether and we are
facing another doctor. He treated the adults in the same office. I
am nervous about this because I don't know what to expect from him.
I'm hoping it will all go well, blopunky sees him Oct.26th.  I
agree with you that "forever" is a harsh word. That's
what they told us about TOBI as well.  On a different note-I
sighned up for a blog and got one, funny thing is, I can't post
anything on it! I hope to be going on it soon, but until then I'll
be looking here every weekday( I don't have a computer at home), so
if I can help or just talk about anything-just ask!!! Again, sorry
this is so late. Blopunk's mom.
 

blopunky

New member
this is to ktsmom- I am so sorry being this long in responding to
your question. I am new to all this and I just found your post!
 He(blopunky) has been on TOBI since august 20,2004. Up until
then he had never grown P.argenosa. Let me tell you it was a
shocker! Especially when they told me that once they grow this they
almost never get rid of it.  He started TOBI that week and
 at his next appt.(3months) he didn't grow it again.
 They kept him on the 28/on 28/off schedule through winter
 and at his May appt. they let him have the summer off because
he still hadn't grown it again.  We continued the schedule the
same as before with summers off until this past April- you guessed
it, it's back! I was so disappointed!! But he did go a long time
between growing it though. So it  can happen.<br>
I don't think that it is anything that I did though, just a
blessing from God. As for complications from TOBI, I can't think of
any other than he is extremely moody while he is on it and his
appetite actually goes down, which is the opposite of what I was
told would happen-go figure! Usually in our family if something is
going to happen it will happen to him! I really don't know how long
TOBI has been around though, sorry. I wish you alot of luck and
read everything you can get your eyes on. Most important--you know
your child better than anyone, if you have questions-ask! It
doesn't matter how many times you have to do it to get an answer.
My son's doctor decided to stop practicing altogether and we are
facing another doctor. He treated the adults in the same office. I
am nervous about this because I don't know what to expect from him.
I'm hoping it will all go well, blopunky sees him Oct.26th.  I
agree with you that "forever" is a harsh word. That's
what they told us about TOBI as well.  On a different note-I
sighned up for a blog and got one, funny thing is, I can't post
anything on it! I hope to be going on it soon, but until then I'll
be looking here every weekday( I don't have a computer at home), so
if I can help or just talk about anything-just ask!!! Again, sorry
this is so late. Blopunk's mom.
 
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