what on earth do I have?

randomgirl · Sep 24, 2009

I have alot of random symptoms that don't really go with each other but I know there's something abnormal. I started out with what I thought was dizzyness about 2 weeks ago but the ear/throat/nose doctor said that I had imbalance problems (because I can't walk straight after a few steps). He thought I had an inner ear problem that will go away.

About 3 or 4 days ago, I have completely lost my appetite. The most I eat is just a little handful of nuts for a meal sometimes. I've never had a big appetite though.

And then for over a day (yesterday) I had a fever (only reaching 100.4)...but not anymore.

And I've always been overly tired for the past few years but since the past week or so, it's gotten alot worse. I can walk around but I just HAVE to lay down for a while after and then I want to sleep forever.

And to be more related to CF, I can't breath in deeply (which isn't really a big deal). But it's weird because my lungs are feeling like they are getting sick but I just had 3 weeks of iv antibiotics (zosyn and tobramycin). It's only been 2 weeks since I got my picc line out.

Sorry it's alot of info but this stuff is drivin me crazy...so if anyone can relate or figure out what these symptoms mean then let me know please<img src="">

randomgirl · Sep 24, 2009

I have alot of random symptoms that don't really go with each other but I know there's something abnormal. I started out with what I thought was dizzyness about 2 weeks ago but the ear/throat/nose doctor said that I had imbalance problems (because I can't walk straight after a few steps). He thought I had an inner ear problem that will go away.

About 3 or 4 days ago, I have completely lost my appetite. The most I eat is just a little handful of nuts for a meal sometimes. I've never had a big appetite though.

And then for over a day (yesterday) I had a fever (only reaching 100.4)...but not anymore.

And I've always been overly tired for the past few years but since the past week or so, it's gotten alot worse. I can walk around but I just HAVE to lay down for a while after and then I want to sleep forever.

And to be more related to CF, I can't breath in deeply (which isn't really a big deal). But it's weird because my lungs are feeling like they are getting sick but I just had 3 weeks of iv antibiotics (zosyn and tobramycin). It's only been 2 weeks since I got my picc line out.

Sorry it's alot of info but this stuff is drivin me crazy...so if anyone can relate or figure out what these symptoms mean then let me know please<img src="">

randomgirl · Sep 24, 2009

I have alot of random symptoms that don't really go with each other but I know there's something abnormal. I started out with what I thought was dizzyness about 2 weeks ago but the ear/throat/nose doctor said that I had imbalance problems (because I can't walk straight after a few steps). He thought I had an inner ear problem that will go away.

About 3 or 4 days ago, I have completely lost my appetite. The most I eat is just a little handful of nuts for a meal sometimes. I've never had a big appetite though.

And then for over a day (yesterday) I had a fever (only reaching 100.4)...but not anymore.

And I've always been overly tired for the past few years but since the past week or so, it's gotten alot worse. I can walk around but I just HAVE to lay down for a while after and then I want to sleep forever.

And to be more related to CF, I can't breath in deeply (which isn't really a big deal). But it's weird because my lungs are feeling like they are getting sick but I just had 3 weeks of iv antibiotics (zosyn and tobramycin). It's only been 2 weeks since I got my picc line out.

Sorry it's alot of info but this stuff is drivin me crazy...so if anyone can relate or figure out what these symptoms mean then let me know please<img src="">

randomgirl · Sep 24, 2009

I have alot of random symptoms that don't really go with each other but I know there's something abnormal. I started out with what I thought was dizzyness about 2 weeks ago but the ear/throat/nose doctor said that I had imbalance problems (because I can't walk straight after a few steps). He thought I had an inner ear problem that will go away.

About 3 or 4 days ago, I have completely lost my appetite. The most I eat is just a little handful of nuts for a meal sometimes. I've never had a big appetite though.

And then for over a day (yesterday) I had a fever (only reaching 100.4)...but not anymore.

And I've always been overly tired for the past few years but since the past week or so, it's gotten alot worse. I can walk around but I just HAVE to lay down for a while after and then I want to sleep forever.

And to be more related to CF, I can't breath in deeply (which isn't really a big deal). But it's weird because my lungs are feeling like they are getting sick but I just had 3 weeks of iv antibiotics (zosyn and tobramycin). It's only been 2 weeks since I got my picc line out.

Sorry it's alot of info but this stuff is drivin me crazy...so if anyone can relate or figure out what these symptoms mean then let me know please<img src="">

randomgirl · Sep 24, 2009

I have alot of random symptoms that don't really go with each other but I know there's something abnormal. I started out with what I thought was dizzyness about 2 weeks ago but the ear/throat/nose doctor said that I had imbalance problems (because I can't walk straight after a few steps). He thought I had an inner ear problem that will go away.
 
 About 3 or 4 days ago, I have completely lost my appetite. The most I eat is just a little handful of nuts for a meal sometimes. I've never had a big appetite though.
 
 And then for over a day (yesterday) I had a fever (only reaching 100.4)...but not anymore.
 
 And I've always been overly tired for the past few years but since the past week or so, it's gotten alot worse. I can walk around but I just HAVE to lay down for a while after and then I want to sleep forever.
 
 
 And to be more related to CF, I can't breath in deeply (which isn't really a big deal). But it's weird because my lungs are feeling like they are getting sick but I just had 3 weeks of iv antibiotics (zosyn and tobramycin). It's only been 2 weeks since I got my picc line out.
 
 
 Sorry it's alot of info but this stuff is drivin me crazy...so if anyone can relate or figure out what these symptoms mean then let me know please<img src="">

AnnieT · Sep 24, 2009

I would get a second opinion from my primary care doctor.

AnnieT · Sep 24, 2009

I would get a second opinion from my primary care doctor.

AnnieT · Sep 24, 2009

I would get a second opinion from my primary care doctor.

AnnieT · Sep 24, 2009

I would get a second opinion from my primary care doctor.

AnnieT · Sep 24, 2009

I would get a second opinion from my primary care doctor.

coltsfan715 · Sep 25, 2009

How is your Oxygen saturation doing?

Only ask because I would get light headed pre transplant if my O2 levels were low. Along with having no appetite the worse my O2 sats got. I would get hungry but wouldn't really eat.I was always fatigued feelnig and slept alot during the day and was very short of breath.

I would try to call your CF doc or a primary care doc and just ask if they can maybe set you up with a test to check your saturation levels. It may be as simple as you needing O2 when you sleep or something like that.

I am putting this out there not really know they level of lung involvement you have or how you have been doing so it may or may not apply. Just putting it out there cause I had alot of similar symptoms before I started using O2 and I actually had to be the one to bring it up to my doc after getting advice from people here and on other sites.

Best Of Luck - I hope it is not the oxygen issue but it may be worth checking out.

Lindsey

coltsfan715 · Sep 25, 2009

How is your Oxygen saturation doing?

Only ask because I would get light headed pre transplant if my O2 levels were low. Along with having no appetite the worse my O2 sats got. I would get hungry but wouldn't really eat.I was always fatigued feelnig and slept alot during the day and was very short of breath.

I would try to call your CF doc or a primary care doc and just ask if they can maybe set you up with a test to check your saturation levels. It may be as simple as you needing O2 when you sleep or something like that.

I am putting this out there not really know they level of lung involvement you have or how you have been doing so it may or may not apply. Just putting it out there cause I had alot of similar symptoms before I started using O2 and I actually had to be the one to bring it up to my doc after getting advice from people here and on other sites.

Best Of Luck - I hope it is not the oxygen issue but it may be worth checking out.

Lindsey

coltsfan715 · Sep 25, 2009

How is your Oxygen saturation doing?

Only ask because I would get light headed pre transplant if my O2 levels were low. Along with having no appetite the worse my O2 sats got. I would get hungry but wouldn't really eat.I was always fatigued feelnig and slept alot during the day and was very short of breath.

I would try to call your CF doc or a primary care doc and just ask if they can maybe set you up with a test to check your saturation levels. It may be as simple as you needing O2 when you sleep or something like that.

I am putting this out there not really know they level of lung involvement you have or how you have been doing so it may or may not apply. Just putting it out there cause I had alot of similar symptoms before I started using O2 and I actually had to be the one to bring it up to my doc after getting advice from people here and on other sites.

Best Of Luck - I hope it is not the oxygen issue but it may be worth checking out.

Lindsey

coltsfan715 · Sep 25, 2009

How is your Oxygen saturation doing?

Only ask because I would get light headed pre transplant if my O2 levels were low. Along with having no appetite the worse my O2 sats got. I would get hungry but wouldn't really eat.I was always fatigued feelnig and slept alot during the day and was very short of breath.

I would try to call your CF doc or a primary care doc and just ask if they can maybe set you up with a test to check your saturation levels. It may be as simple as you needing O2 when you sleep or something like that.

I am putting this out there not really know they level of lung involvement you have or how you have been doing so it may or may not apply. Just putting it out there cause I had alot of similar symptoms before I started using O2 and I actually had to be the one to bring it up to my doc after getting advice from people here and on other sites.

Best Of Luck - I hope it is not the oxygen issue but it may be worth checking out.

Lindsey

coltsfan715 · Sep 25, 2009

How is your Oxygen saturation doing?
 
 Only ask because I would get light headed pre transplant if my O2 levels were low. Along with having no appetite the worse my O2 sats got. I would get hungry but wouldn't really eat.I was always fatigued feelnig and slept alot during the day and was very short of breath.
 
 I would try to call your CF doc or a primary care doc and just ask if they can maybe set you up with a test to check your saturation levels. It may be as simple as you needing O2 when you sleep or something like that.
 
 I am putting this out there not really know they level of lung involvement you have or how you have been doing so it may or may not apply. Just putting it out there cause I had alot of similar symptoms before I started using O2 and I actually had to be the one to bring it up to my doc after getting advice from people here and on other sites.
 
 Best Of Luck - I hope it is not the oxygen issue but it may be worth checking out.
 
 Lindsey

randomgirl · Sep 26, 2009