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what to stay away from
- Thread starter anonymous
- Start date
Emily65Roses
New member
Include anything that "normal" people should stay away from. I've been around paint and stuff before. The only other thing I would suggest to TRY and avoid (good frickin luck) is cigarette smoke.
Emily65Roses
New member
Hi Coll's mom!! That reminded me... people with really strong cologne or perfume drive me nuts. That stuff can really get me coughing sometimes. Hmm the more I think about it, the more I realize I react to "normal" stuff more than most. Perfumes, and lots of cleaning supplies can drive me nuts. But I wouldn't say, other than cigarette smoke, that there's something we should all universally avoid. It depends on each CF individual and what irritates their lungs.
Emily65Roses
New member
I never tried to keep track, so I honestly don't know. It seems to be anything as long as it's strong enough.
Emily65Roses
New member
Some people will tell you that. Because pseudomonas tends to grow in hot tubs, and pools. But I don't avoid them. Pseudomonas grows frickin everywhere, so there's no point in avoiding a good soak or swim.
Sewage and water that stands around for long periods without disinfectant are both risky, because they tend to grow not just Pseudomonas, but also other bacteria, such as Serratia, that can really be a problem for people with cf. (Incidentally, although it may sometimes seem that way, Pseudomonas is truly <u>not</u> everywhere; I've had water, water filters, toothbrushes, and nebulizer cups cultured at various times and have gotten only two positives for Pseudomonas -- one from a dirty pre-filter of a water purification system and the other from tap water after garden dirt had gotten in through broken pipes.) According to the Centers for Disease Control and Prevention, the tubing that dental assistants use to spray water into your mouth is often grossly contaminated with Pseudomonas, and it's likely to be in the biofilm form (i.e., mucoid), which is notoriously resistant to antibiotic treatment. So Jordan takes a little bottle of water to the dentist's to rinse with.
Not just cigaratte smoking, but other forms of air pollution (smog, vehicle exhaust) are especially bad for those with cf. Wood stoves and fireplaces are among the worst sources, but small airborne particles are generally problematic because they tend to get trapped in the cf lung, which is too "sticky" to be able to clear them effectively. Similarly, animal droppings can be big trouble if they get stirred up (that's how people typcially get hantavirus).
Bambi, Jordan's mom (also a public health scientist)
Not just cigaratte smoking, but other forms of air pollution (smog, vehicle exhaust) are especially bad for those with cf. Wood stoves and fireplaces are among the worst sources, but small airborne particles are generally problematic because they tend to get trapped in the cf lung, which is too "sticky" to be able to clear them effectively. Similarly, animal droppings can be big trouble if they get stirred up (that's how people typcially get hantavirus).
Bambi, Jordan's mom (also a public health scientist)
Mockingbird
New member
Just curious, why are you asking. =-)
Oh, and I don't know if anyone's mentioned it, but kitty litter is a big one. I know someone mentioned animal droppings, but kitty litter itself is bad too. Something that's in there, I guess. I always forget and I go to clean the cat box and it's hard to breathe. =-)
Oh, and I don't know if anyone's mentioned it, but kitty litter is a big one. I know someone mentioned animal droppings, but kitty litter itself is bad too. Something that's in there, I guess. I always forget and I go to clean the cat box and it's hard to breathe. =-)