what would you do??

A

anonymous

New member
I am currently 25 weeks pregnant and just a few weeks ago we found out we were both carriers. Last week we found out our daughter HAS CF. Because we now know that we are carriers we are not going to have any more babies. The baby I am pregnant with now is our first and will now be our only. We do not feel guilty about this. We've decided having another one just wouldn't be fair to either baby. Just my thought.

Jen
 
A

anonymous

New member
my brother 22, was diaganosed with cf at the age of 3 years old. he has turned into a bitter, hateful, ungreatful human being and is rude to me and his mother. he refuses to talk to me when i call him, all i get is a hang up, he refuses to visit me or let me go to visit him.(he lives 2 hours away from me). this is my only sibling. our father passed away back in 1987, and our mother lives in oregon. talking to him is like talking to the dead. the conversations when he doesnt hang up on me are, uh huh, and yeah...he is rude 2 his mom 2. this breaks my heart. he doesn't work, and i dont know if he is able 2 because he doesn't have much energy, and he gets $700 a month from dissability which $350 of that goes towards his room for rent, then his car payment is $250, so no wonder he is depressed, he is struggling. i am inbetween jobs right now and am unable to help him. when i did have money, i sent him some every month. since that has stopped, he really hates me.. this breaks my heart but i dont knot what to do???any suggestions??????
 
A

anonymous

New member
Well I am a mother of a beautiful 17 year old CFER and I did not know until about 5 months ago. I would have never terminated her now that we know I pray for a cure everyday. I love her with every breath and to not have ever had her sunshine in my life would be a sin. Love yourself as someone else loves you


Debra Grier mother of Tina<img src="i/expressions/heart.gif" border="0">
 
A

anonymous

New member
Well I am a mother of a beautiful 17 year old CFER and I did not know until about 5 months ago. I would have never terminated her now that we know I pray for a cure everyday. I love her with every breath and to not have ever had her sunshine in my life would be a sin. Love yourself as someone else loves you


Debra Grier mother of Tina<img src="i/expressions/heart.gif" border="0">
 
T

thelizardqueen

New member
The way I see it, is that if my parents had terminated I would never have lived. I'm turning 25 in September. That's 25 years of living I never would have gotten.
 
T

thelizardqueen

New member
The way I see it, is that if my parents had terminated I would never have lived. I'm turning 25 in September. That's 25 years of living I never would have gotten.
 
J

JazzysMom

New member
and not only would it have been 25 years of not living, but U wouldnt be able to talk about it now! HA




****NO DISRESPECT MEANT TO ANYONE****
 
J

JazzysMom

New member
and not only would it have been 25 years of not living, but U wouldnt be able to talk about it now! HA




****NO DISRESPECT MEANT TO ANYONE****
 
V

Vampy

New member
I would wanted to be born. although i am only 20 and have been in the hospital more then 30 times and i take alot of meds and i suffer cf. I have to admit my life wasnt such a bad life after all...i mean as i look at it im engaged to the most wonderful man i could have gotten..he helps me with remembering my treatments i have a horrible memory problem and he supports me 100 percent.
in another way of saying
No matter how bad a hand was delt to you, you always have the power to turn it around to make the best of it. <img src="i/expressions/angel_ani.gif" border="0">
 
V

Vampy

New member
I would wanted to be born. although i am only 20 and have been in the hospital more then 30 times and i take alot of meds and i suffer cf. I have to admit my life wasnt such a bad life after all...i mean as i look at it im engaged to the most wonderful man i could have gotten..he helps me with remembering my treatments i have a horrible memory problem and he supports me 100 percent.
in another way of saying
No matter how bad a hand was delt to you, you always have the power to turn it around to make the best of it. <img src="i/expressions/angel_ani.gif" border="0">
 
A

anonymous

New member
I don't think I would have chosen to be born. DO NOT confuse tyhis with a wish to die. Now I'm here and I'm having a good time (most of the time) and I have a great family and cool friends etc. But in all honesty I probably would not have chosen to be born into a body with CF. See that's why I think this question is sort of pointless, because it's really a very belief sytem based thing. I think that's why we've seen so many mentions of God. I believe in God. I do not believe God has anything to do with our health. I think he is involved with our spiritual health, i don't think he gives a rats behind about physical health. Think what a life is too him- a split second, and in the end we ALL die, so I think how it happens is probably rather irrelevant in his book. I think when I was born my soul just landed in the next baby on deck so to speak, but that's just the way I look at it, part big plan (fate) and part sheer dumb luck. I'm a cool cat and I know it, but dig it, I think I probably could be a pretty alright person in a body that works too. I would very much like to go for a jog somedays....fat chance <img src="i/expressions/face-icon-small-smile.gif" border="0">

Debbie
26wcf
aka littledebbie (forgot to login) <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
A

anonymous

New member
I don't think I would have chosen to be born. DO NOT confuse tyhis with a wish to die. Now I'm here and I'm having a good time (most of the time) and I have a great family and cool friends etc. But in all honesty I probably would not have chosen to be born into a body with CF. See that's why I think this question is sort of pointless, because it's really a very belief sytem based thing. I think that's why we've seen so many mentions of God. I believe in God. I do not believe God has anything to do with our health. I think he is involved with our spiritual health, i don't think he gives a rats behind about physical health. Think what a life is too him- a split second, and in the end we ALL die, so I think how it happens is probably rather irrelevant in his book. I think when I was born my soul just landed in the next baby on deck so to speak, but that's just the way I look at it, part big plan (fate) and part sheer dumb luck. I'm a cool cat and I know it, but dig it, I think I probably could be a pretty alright person in a body that works too. I would very much like to go for a jog somedays....fat chance <img src="i/expressions/face-icon-small-smile.gif" border="0">

Debbie
26wcf
aka littledebbie (forgot to login) <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
J

JBUCCA

New member
thats the most hardest question i think i cant even answer, i could go both ways. i would never want to bring someone in this world, to go through what i go trough or even worse... before i got pregnant, my husband was tested for the gene because if he did have the cf gene, we were not gonna try, i couldnt bring a baby to this world knowing they can be sick ... if i didnt know thats a different story, of coarse i would deal whth what ever god dealt me, but i wouldnt purposely try to get pregnant knowing my kid would have cf... thank god my husband was not a carrier so we now have a healthy son,
 
J

JBUCCA

New member
thats the most hardest question i think i cant even answer, i could go both ways. i would never want to bring someone in this world, to go through what i go trough or even worse... before i got pregnant, my husband was tested for the gene because if he did have the cf gene, we were not gonna try, i couldnt bring a baby to this world knowing they can be sick ... if i didnt know thats a different story, of coarse i would deal whth what ever god dealt me, but i wouldnt purposely try to get pregnant knowing my kid would have cf... thank god my husband was not a carrier so we now have a healthy son,
 
J

JBUCCA

New member
also, im glad i was born too. my mom had a baby before me who died, of lung infections. at 6 months old!!!! 2 years later i came along. she didnt know that i had cf till i was 7 years old and my mom and dad were both tested!! both cf carriers!!! then we knew my brother didnt die of lung infections and direaha, he had cf!!!! i feel for my mom she had no idea back then, she fould out i had cf and found out the real cause of her sons death in one day.... i cry just thinking about it... im glad today you can test yourself to see if you are a carrier or not before hand... she says of course i would of still had you but would of knew how to take care of you instead of going to 100 dr for 7 years!!!
 
J

JBUCCA

New member
also, im glad i was born too. my mom had a baby before me who died, of lung infections. at 6 months old!!!! 2 years later i came along. she didnt know that i had cf till i was 7 years old and my mom and dad were both tested!! both cf carriers!!! then we knew my brother didnt die of lung infections and direaha, he had cf!!!! i feel for my mom she had no idea back then, she fould out i had cf and found out the real cause of her sons death in one day.... i cry just thinking about it... im glad today you can test yourself to see if you are a carrier or not before hand... she says of course i would of still had you but would of knew how to take care of you instead of going to 100 dr for 7 years!!!
 
I

intheIMAGEofHim

New member
Oh wow...I must say that I would live this life in a heart beat. Even thought there has been so much suffering in this life of mine....the blessings, the love, the joy, the indescribable moments of just living...I would never trade for the world. To deny anyone...let alone someone with cf who can cherish life so much more than others...it would just be heartbreaking. <img src="i/expressions/heart.gif" border="0">
 
I

intheIMAGEofHim

New member
Oh wow...I must say that I would live this life in a heart beat. Even thought there has been so much suffering in this life of mine....the blessings, the love, the joy, the indescribable moments of just living...I would never trade for the world. To deny anyone...let alone someone with cf who can cherish life so much more than others...it would just be heartbreaking. <img src="i/expressions/heart.gif" border="0">
 
You must log in or register to reply here.
Top