what's going on here?

C

cysticfibrosisgirl

New member
Hey,
I have been more shortness of breath and have been having lots of chest pain and chest rashs on my chest. Needing to use my oxygen all day and night. Having to use more cans of tube-feeding food plus eatting more doing the day. Body pain in my jonts and all over. Head aches often, blueish nail beds. very white face even with my oxygen on. and losing my leg mass in my legs. and other places.

I am really upset allot. I con't get in to the Mayo clinic CF center till oct. And that's that I have tryed to get in sooner but can't. The other doc I could see for this I can't see for like two weeks. But this is not sounding good to me? what do you think is going on with me? Could this be CF getting worse? It does not feel like a lung infecticon to me.. But it may be. but why would a lung infection cause so mcuh issues?!

Please help me! I need to see what you people think this is.. or if any of you people have been thru this.
Thanks<img src="i/expressions/face-icon-small-confused.gif" border="0">
 
C

cysticfibrosisgirl

New member
Hey,
I have been more shortness of breath and have been having lots of chest pain and chest rashs on my chest. Needing to use my oxygen all day and night. Having to use more cans of tube-feeding food plus eatting more doing the day. Body pain in my jonts and all over. Head aches often, blueish nail beds. very white face even with my oxygen on. and losing my leg mass in my legs. and other places.

I am really upset allot. I con't get in to the Mayo clinic CF center till oct. And that's that I have tryed to get in sooner but can't. The other doc I could see for this I can't see for like two weeks. But this is not sounding good to me? what do you think is going on with me? Could this be CF getting worse? It does not feel like a lung infecticon to me.. But it may be. but why would a lung infection cause so mcuh issues?!

Please help me! I need to see what you people think this is.. or if any of you people have been thru this.
Thanks<img src="i/expressions/face-icon-small-confused.gif" border="0">
 
C

cysticfibrosisgirl

New member
Hey,
I have been more shortness of breath and have been having lots of chest pain and chest rashs on my chest. Needing to use my oxygen all day and night. Having to use more cans of tube-feeding food plus eatting more doing the day. Body pain in my jonts and all over. Head aches often, blueish nail beds. very white face even with my oxygen on. and losing my leg mass in my legs. and other places.

I am really upset allot. I con't get in to the Mayo clinic CF center till oct. And that's that I have tryed to get in sooner but can't. The other doc I could see for this I can't see for like two weeks. But this is not sounding good to me? what do you think is going on with me? Could this be CF getting worse? It does not feel like a lung infecticon to me.. But it may be. but why would a lung infection cause so mcuh issues?!

Please help me! I need to see what you people think this is.. or if any of you people have been thru this.
Thanks<img src="i/expressions/face-icon-small-confused.gif" border="0">
 
C

cysticfibrosisgirl

New member
Hey,
I have been more shortness of breath and have been having lots of chest pain and chest rashs on my chest. Needing to use my oxygen all day and night. Having to use more cans of tube-feeding food plus eatting more doing the day. Body pain in my jonts and all over. Head aches often, blueish nail beds. very white face even with my oxygen on. and losing my leg mass in my legs. and other places.

I am really upset allot. I con't get in to the Mayo clinic CF center till oct. And that's that I have tryed to get in sooner but can't. The other doc I could see for this I can't see for like two weeks. But this is not sounding good to me? what do you think is going on with me? Could this be CF getting worse? It does not feel like a lung infecticon to me.. But it may be. but why would a lung infection cause so mcuh issues?!

Please help me! I need to see what you people think this is.. or if any of you people have been thru this.
Thanks<img src="i/expressions/face-icon-small-confused.gif" border="0">
 
C

cysticfibrosisgirl

New member
Hey,
I have been more shortness of breath and have been having lots of chest pain and chest rashs on my chest. Needing to use my oxygen all day and night. Having to use more cans of tube-feeding food plus eatting more doing the day. Body pain in my jonts and all over. Head aches often, blueish nail beds. very white face even with my oxygen on. and losing my leg mass in my legs. and other places.

I am really upset allot. I con't get in to the Mayo clinic CF center till oct. And that's that I have tryed to get in sooner but can't. The other doc I could see for this I can't see for like two weeks. But this is not sounding good to me? what do you think is going on with me? Could this be CF getting worse? It does not feel like a lung infecticon to me.. But it may be. but why would a lung infection cause so mcuh issues?!

Please help me! I need to see what you people think this is.. or if any of you people have been thru this.
Thanks<img src="i/expressions/face-icon-small-confused.gif" border="0">
 
B

bittyhorse23

New member
IMO you should go to your local ER. They may be able to help you and maybe if you show your clinic you are at the ER they will be willing to take you sooner? It doesn't sound like any fun what you are going through and you shouldn't take the chance of it getting any worse!!
 
B

bittyhorse23

New member
IMO you should go to your local ER. They may be able to help you and maybe if you show your clinic you are at the ER they will be willing to take you sooner? It doesn't sound like any fun what you are going through and you shouldn't take the chance of it getting any worse!!
 
B

bittyhorse23

New member
IMO you should go to your local ER. They may be able to help you and maybe if you show your clinic you are at the ER they will be willing to take you sooner? It doesn't sound like any fun what you are going through and you shouldn't take the chance of it getting any worse!!
 
B

bittyhorse23

New member
IMO you should go to your local ER. They may be able to help you and maybe if you show your clinic you are at the ER they will be willing to take you sooner? It doesn't sound like any fun what you are going through and you shouldn't take the chance of it getting any worse!!
 
B

bittyhorse23

New member
IMO you should go to your local ER. They may be able to help you and maybe if you show your clinic you are at the ER they will be willing to take you sooner? It doesn't sound like any fun what you are going through and you shouldn't take the chance of it getting any worse!!
 
H

hbollotte

New member
i hate to be rude, but it sounds like your cf clinic sucks. my cf clinic will work me in anytime. i would go to the er if i were you or see if you can get in to see another cf doctor at a different clinic. don't wait until october!!!
 
H

hbollotte

New member
i hate to be rude, but it sounds like your cf clinic sucks. my cf clinic will work me in anytime. i would go to the er if i were you or see if you can get in to see another cf doctor at a different clinic. don't wait until october!!!
 
H

hbollotte

New member
i hate to be rude, but it sounds like your cf clinic sucks. my cf clinic will work me in anytime. i would go to the er if i were you or see if you can get in to see another cf doctor at a different clinic. don't wait until october!!!
 
H

hbollotte

New member
i hate to be rude, but it sounds like your cf clinic sucks. my cf clinic will work me in anytime. i would go to the er if i were you or see if you can get in to see another cf doctor at a different clinic. don't wait until october!!!
 
H

hbollotte

New member
i hate to be rude, but it sounds like your cf clinic sucks. my cf clinic will work me in anytime. i would go to the er if i were you or see if you can get in to see another cf doctor at a different clinic. don't wait until october!!!
 
You must log in or register to reply here.
Top