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what's going on here?
- Thread starter cysticfibrosisgirl
- Start date
Yeah, I agree with Laura...you should just try to be really assertive with your clinic and insist that you need to be seen NOW. Honestly, I've rarely heard of a CF clinic that would make you wait almost a month when your symptoms are that severe. I mean, it's not like you have a splinter!! If being assertive doesn't work, be aggressive.
Also, I'm not sure exactly who you've talked to when you tried to get an appointment. If you haven't yet, try to talk to the nurse coordinator for the CF center/clinic. Usually they can pull strings and fit you in when the regular appointment scheduling people have no idea how crucial it is. When I'm sick, I call my nurse directly and she always says, come in - we'll fit you in. No questions asked.
If that doesn't work, try to speak to the social worker. If that doesn't work, try to speak to the doctor directly or even call the hospital and ask for the pulmonary doctor on-call. Then tell them you know your body and you are NOT well and need to be seen immediately. Good Luck!!
Also, I'm not sure exactly who you've talked to when you tried to get an appointment. If you haven't yet, try to talk to the nurse coordinator for the CF center/clinic. Usually they can pull strings and fit you in when the regular appointment scheduling people have no idea how crucial it is. When I'm sick, I call my nurse directly and she always says, come in - we'll fit you in. No questions asked.
If that doesn't work, try to speak to the social worker. If that doesn't work, try to speak to the doctor directly or even call the hospital and ask for the pulmonary doctor on-call. Then tell them you know your body and you are NOT well and need to be seen immediately. Good Luck!!
Yeah, I agree with Laura...you should just try to be really assertive with your clinic and insist that you need to be seen NOW. Honestly, I've rarely heard of a CF clinic that would make you wait almost a month when your symptoms are that severe. I mean, it's not like you have a splinter!! If being assertive doesn't work, be aggressive.
Also, I'm not sure exactly who you've talked to when you tried to get an appointment. If you haven't yet, try to talk to the nurse coordinator for the CF center/clinic. Usually they can pull strings and fit you in when the regular appointment scheduling people have no idea how crucial it is. When I'm sick, I call my nurse directly and she always says, come in - we'll fit you in. No questions asked.
If that doesn't work, try to speak to the social worker. If that doesn't work, try to speak to the doctor directly or even call the hospital and ask for the pulmonary doctor on-call. Then tell them you know your body and you are NOT well and need to be seen immediately. Good Luck!!
Also, I'm not sure exactly who you've talked to when you tried to get an appointment. If you haven't yet, try to talk to the nurse coordinator for the CF center/clinic. Usually they can pull strings and fit you in when the regular appointment scheduling people have no idea how crucial it is. When I'm sick, I call my nurse directly and she always says, come in - we'll fit you in. No questions asked.
If that doesn't work, try to speak to the social worker. If that doesn't work, try to speak to the doctor directly or even call the hospital and ask for the pulmonary doctor on-call. Then tell them you know your body and you are NOT well and need to be seen immediately. Good Luck!!
Yeah, I agree with Laura...you should just try to be really assertive with your clinic and insist that you need to be seen NOW. Honestly, I've rarely heard of a CF clinic that would make you wait almost a month when your symptoms are that severe. I mean, it's not like you have a splinter!! If being assertive doesn't work, be aggressive.
Also, I'm not sure exactly who you've talked to when you tried to get an appointment. If you haven't yet, try to talk to the nurse coordinator for the CF center/clinic. Usually they can pull strings and fit you in when the regular appointment scheduling people have no idea how crucial it is. When I'm sick, I call my nurse directly and she always says, come in - we'll fit you in. No questions asked.
If that doesn't work, try to speak to the social worker. If that doesn't work, try to speak to the doctor directly or even call the hospital and ask for the pulmonary doctor on-call. Then tell them you know your body and you are NOT well and need to be seen immediately. Good Luck!!
Also, I'm not sure exactly who you've talked to when you tried to get an appointment. If you haven't yet, try to talk to the nurse coordinator for the CF center/clinic. Usually they can pull strings and fit you in when the regular appointment scheduling people have no idea how crucial it is. When I'm sick, I call my nurse directly and she always says, come in - we'll fit you in. No questions asked.
If that doesn't work, try to speak to the social worker. If that doesn't work, try to speak to the doctor directly or even call the hospital and ask for the pulmonary doctor on-call. Then tell them you know your body and you are NOT well and need to be seen immediately. Good Luck!!
Yeah, I agree with Laura...you should just try to be really assertive with your clinic and insist that you need to be seen NOW. Honestly, I've rarely heard of a CF clinic that would make you wait almost a month when your symptoms are that severe. I mean, it's not like you have a splinter!! If being assertive doesn't work, be aggressive.
Also, I'm not sure exactly who you've talked to when you tried to get an appointment. If you haven't yet, try to talk to the nurse coordinator for the CF center/clinic. Usually they can pull strings and fit you in when the regular appointment scheduling people have no idea how crucial it is. When I'm sick, I call my nurse directly and she always says, come in - we'll fit you in. No questions asked.
If that doesn't work, try to speak to the social worker. If that doesn't work, try to speak to the doctor directly or even call the hospital and ask for the pulmonary doctor on-call. Then tell them you know your body and you are NOT well and need to be seen immediately. Good Luck!!
Also, I'm not sure exactly who you've talked to when you tried to get an appointment. If you haven't yet, try to talk to the nurse coordinator for the CF center/clinic. Usually they can pull strings and fit you in when the regular appointment scheduling people have no idea how crucial it is. When I'm sick, I call my nurse directly and she always says, come in - we'll fit you in. No questions asked.
If that doesn't work, try to speak to the social worker. If that doesn't work, try to speak to the doctor directly or even call the hospital and ask for the pulmonary doctor on-call. Then tell them you know your body and you are NOT well and need to be seen immediately. Good Luck!!
Yeah, I agree with Laura...you should just try to be really assertive with your clinic and insist that you need to be seen NOW. Honestly, I've rarely heard of a CF clinic that would make you wait almost a month when your symptoms are that severe. I mean, it's not like you have a splinter!! If being assertive doesn't work, be aggressive.
Also, I'm not sure exactly who you've talked to when you tried to get an appointment. If you haven't yet, try to talk to the nurse coordinator for the CF center/clinic. Usually they can pull strings and fit you in when the regular appointment scheduling people have no idea how crucial it is. When I'm sick, I call my nurse directly and she always says, come in - we'll fit you in. No questions asked.
If that doesn't work, try to speak to the social worker. If that doesn't work, try to speak to the doctor directly or even call the hospital and ask for the pulmonary doctor on-call. Then tell them you know your body and you are NOT well and need to be seen immediately. Good Luck!!
Also, I'm not sure exactly who you've talked to when you tried to get an appointment. If you haven't yet, try to talk to the nurse coordinator for the CF center/clinic. Usually they can pull strings and fit you in when the regular appointment scheduling people have no idea how crucial it is. When I'm sick, I call my nurse directly and she always says, come in - we'll fit you in. No questions asked.
If that doesn't work, try to speak to the social worker. If that doesn't work, try to speak to the doctor directly or even call the hospital and ask for the pulmonary doctor on-call. Then tell them you know your body and you are NOT well and need to be seen immediately. Good Luck!!
yep, ER. thats pretty bad. i cant believe the clinic is making you wait. ive never heard of clinics making sick patients wait. kick up the a hole for them! if they refuse to change their 'protocol' on sick patients who need be seen asap, you are going to have to make some noise!
yep, ER. thats pretty bad. i cant believe the clinic is making you wait. ive never heard of clinics making sick patients wait. kick up the a hole for them! if they refuse to change their 'protocol' on sick patients who need be seen asap, you are going to have to make some noise!
yep, ER. thats pretty bad. i cant believe the clinic is making you wait. ive never heard of clinics making sick patients wait. kick up the a hole for them! if they refuse to change their 'protocol' on sick patients who need be seen asap, you are going to have to make some noise!
yep, ER. thats pretty bad. i cant believe the clinic is making you wait. ive never heard of clinics making sick patients wait. kick up the a hole for them! if they refuse to change their 'protocol' on sick patients who need be seen asap, you are going to have to make some noise!
yep, ER. thats pretty bad. i cant believe the clinic is making you wait. ive never heard of clinics making sick patients wait. kick up the a hole for them! if they refuse to change their 'protocol' on sick patients who need be seen asap, you are going to have to make some noise!
jennastroitzel
New member
In my experience ERs know nothing about CF. Maybe I'm just unlucky. I usually have more luck trying via the nurses. I can't believe they think this can wait until October - seriosuly, are they mad? I really hope this gets sorted out NOW because I am worried by the things you just wrote. Take care and let us know how you get on. Hugs. Jx
jennastroitzel
New member
In my experience ERs know nothing about CF. Maybe I'm just unlucky. I usually have more luck trying via the nurses. I can't believe they think this can wait until October - seriosuly, are they mad? I really hope this gets sorted out NOW because I am worried by the things you just wrote. Take care and let us know how you get on. Hugs. Jx
jennastroitzel
New member
In my experience ERs know nothing about CF. Maybe I'm just unlucky. I usually have more luck trying via the nurses. I can't believe they think this can wait until October - seriosuly, are they mad? I really hope this gets sorted out NOW because I am worried by the things you just wrote. Take care and let us know how you get on. Hugs. Jx
jennastroitzel
New member
In my experience ERs know nothing about CF. Maybe I'm just unlucky. I usually have more luck trying via the nurses. I can't believe they think this can wait until October - seriosuly, are they mad? I really hope this gets sorted out NOW because I am worried by the things you just wrote. Take care and let us know how you get on. Hugs. Jx
jennastroitzel
New member
In my experience ERs know nothing about CF. Maybe I'm just unlucky. I usually have more luck trying via the nurses. I can't believe they think this can wait until October - seriosuly, are they mad? I really hope this gets sorted out NOW because I am worried by the things you just wrote. Take care and let us know how you get on. Hugs. Jx