Whats the lowest PFT and Highest you got it back up to?

[kswitch]

i dawdled in the low to mid sixties for years while under the care of a county pulmonologist. i got all the way down to 42 by the time i was able to get seen at a cf center. after two weeks in the hospital, i bounced up to 78. since then i've dropped as low as 54 and recently pft'd at 72.

i attribute the fluxuation to bad habits dying hard; and the 72 is attributed to better diet, slightly more excercise, regular cpt, and hypertonic.

 

[kswitch]

i dawdled in the low to mid sixties for years while under the care of a county pulmonologist. i got all the way down to 42 by the time i was able to get seen at a cf center. after two weeks in the hospital, i bounced up to 78. since then i've dropped as low as 54 and recently pft'd at 72.

i attribute the fluxuation to bad habits dying hard; and the 72 is attributed to better diet, slightly more excercise, regular cpt, and hypertonic.

 

[kswitch]

i dawdled in the low to mid sixties for years while under the care of a county pulmonologist. i got all the way down to 42 by the time i was able to get seen at a cf center. after two weeks in the hospital, i bounced up to 78. since then i've dropped as low as 54 and recently pft'd at 72.

i attribute the fluxuation to bad habits dying hard; and the 72 is attributed to better diet, slightly more excercise, regular cpt, and hypertonic.

 

[kswitch]

i dawdled in the low to mid sixties for years while under the care of a county pulmonologist. i got all the way down to 42 by the time i was able to get seen at a cf center. after two weeks in the hospital, i bounced up to 78. since then i've dropped as low as 54 and recently pft'd at 72.

i attribute the fluxuation to bad habits dying hard; and the 72 is attributed to better diet, slightly more excercise, regular cpt, and hypertonic.

 

[nicolaj]

Hey!
My pfts have always been around the 60s, but about 2years ago they dropped all the way down to 15%. This was a very scary time for me! through hard work and determination ive managed to double my pft to around 30%. i no i will never be as good as 60% because of lung damage. but im so proud to have got them to 30. If you want something, you can achieve it!!

nicola x

 

[nicolaj]

Hey!
My pfts have always been around the 60s, but about 2years ago they dropped all the way down to 15%. This was a very scary time for me! through hard work and determination ive managed to double my pft to around 30%. i no i will never be as good as 60% because of lung damage. but im so proud to have got them to 30. If you want something, you can achieve it!!

nicola x

 

[nicolaj]

Hey!
My pfts have always been around the 60s, but about 2years ago they dropped all the way down to 15%. This was a very scary time for me! through hard work and determination ive managed to double my pft to around 30%. i no i will never be as good as 60% because of lung damage. but im so proud to have got them to 30. If you want something, you can achieve it!!

nicola x

 

[nicolaj]

Hey!
My pfts have always been around the 60s, but about 2years ago they dropped all the way down to 15%. This was a very scary time for me! through hard work and determination ive managed to double my pft to around 30%. i no i will never be as good as 60% because of lung damage. but im so proud to have got them to 30. If you want something, you can achieve it!!

nicola x

 

[nicolaj]

Hey!
My pfts have always been around the 60s, but about 2years ago they dropped all the way down to 15%. This was a very scary time for me! through hard work and determination ive managed to double my pft to around 30%. i no i will never be as good as 60% because of lung damage. but im so proud to have got them to 30. If you want something, you can achieve it!!

nicola x

 

[nicolaj]

Hey!
My pfts have always been around the 60s, but about 2years ago they dropped all the way down to 15%. This was a very scary time for me! through hard work and determination ive managed to double my pft to around 30%. i no i will never be as good as 60% because of lung damage. but im so proud to have got them to 30. If you want something, you can achieve it!!

nicola x

 

[DarbSkull]

81% FEV1 when I was diagnosed, it went down to 65% baseline after about 4 years before I started seeing my current doc. After 2 years of aggressive IV therapy (3 weeks every 3 months) and pretty good compliance with breathing treatements (probably 90% compliance) and some form of exercise 3 or 4 times a week my baseline is now 79%.

I've been on HS for about 7 weeks now and haven't seen any improvement yet. I am trying to get into the Denufosol trial hoping that I can get my FEV1 a little higher.

I'm pretty sure I could get mine a little higher if I did more cardio, but I don't have the willpower. I really hate cardio. <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[DarbSkull]

81% FEV1 when I was diagnosed, it went down to 65% baseline after about 4 years before I started seeing my current doc. After 2 years of aggressive IV therapy (3 weeks every 3 months) and pretty good compliance with breathing treatements (probably 90% compliance) and some form of exercise 3 or 4 times a week my baseline is now 79%.

I've been on HS for about 7 weeks now and haven't seen any improvement yet. I am trying to get into the Denufosol trial hoping that I can get my FEV1 a little higher.

I'm pretty sure I could get mine a little higher if I did more cardio, but I don't have the willpower. I really hate cardio. <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[DarbSkull]

81% FEV1 when I was diagnosed, it went down to 65% baseline after about 4 years before I started seeing my current doc. After 2 years of aggressive IV therapy (3 weeks every 3 months) and pretty good compliance with breathing treatements (probably 90% compliance) and some form of exercise 3 or 4 times a week my baseline is now 79%.

I've been on HS for about 7 weeks now and haven't seen any improvement yet. I am trying to get into the Denufosol trial hoping that I can get my FEV1 a little higher.

I'm pretty sure I could get mine a little higher if I did more cardio, but I don't have the willpower. I really hate cardio. <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[DarbSkull]

81% FEV1 when I was diagnosed, it went down to 65% baseline after about 4 years before I started seeing my current doc. After 2 years of aggressive IV therapy (3 weeks every 3 months) and pretty good compliance with breathing treatements (probably 90% compliance) and some form of exercise 3 or 4 times a week my baseline is now 79%.

I've been on HS for about 7 weeks now and haven't seen any improvement yet. I am trying to get into the Denufosol trial hoping that I can get my FEV1 a little higher.

I'm pretty sure I could get mine a little higher if I did more cardio, but I don't have the willpower. I really hate cardio. <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[DarbSkull]

81% FEV1 when I was diagnosed, it went down to 65% baseline after about 4 years before I started seeing my current doc. After 2 years of aggressive IV therapy (3 weeks every 3 months) and pretty good compliance with breathing treatements (probably 90% compliance) and some form of exercise 3 or 4 times a week my baseline is now 79%.

I've been on HS for about 7 weeks now and haven't seen any improvement yet. I am trying to get into the Denufosol trial hoping that I can get my FEV1 a little higher.

I'm pretty sure I could get mine a little higher if I did more cardio, but I don't have the willpower. I really hate cardio. <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[DarbSkull]

81% FEV1 when I was diagnosed, it went down to 65% baseline after about 4 years before I started seeing my current doc. After 2 years of aggressive IV therapy (3 weeks every 3 months) and pretty good compliance with breathing treatements (probably 90% compliance) and some form of exercise 3 or 4 times a week my baseline is now 79%.

I've been on HS for about 7 weeks now and haven't seen any improvement yet. I am trying to get into the Denufosol trial hoping that I can get my FEV1 a little higher.

I'm pretty sure I could get mine a little higher if I did more cardio, but I don't have the willpower. I really hate cardio. <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Jem]

<b>What the lowest your pft's have been?</b>

41%

<b>How high did you get it back up to?</b>

48%

<b>How did you do it?</b>

With being consistent doing my vest treatments and adding 7%HS to my regime. I believe HS has been a huge benefit to me with helping to clear out my lung. I am not much of a mucus producer unless I am sick and doing the HS combined with the vest helps me to bring up stuff I otherwise would not be able to.

<b>How long did or has it stayed up?</b>

It took 14 months. It has been at 48% for the last 6 months. I hope it even goes higher especially now since I am using the eflow and have begun Tobramycin one month on, one month off. This is a new neb for me.


As far as hemoptysis...I understand your fear. I lost a lung to chronic severe hemoptysis, 1/2 when I was 19 and the rest of my left lung at 40. Since the removal of the rest of my left lung I have had several very minor bleeds...2 tsps or less several times a year in the last 4 years. The first time I took HS (March of 2006) is was 3% and I coughed up foamy blood after half my treatment. I was scared and stopped but the next day I began again because I had heard so many good things about HS. I did fine and moved up to 7% one month later.

Sometimes during the first 6 months of using HS I would get a little streaking but it never turned into an active bleed. The last active bleed I had was last September...2 teaspoons after finishing lunch out with friends. I felt fine but started an oral antibiotic at my doctor's request.

I never really understood what FEV meant or questioned my doctor about trying different meds. My lung function declined ever so slowly from 48% down to 41% over a 6 1/2 year period since my last surgery. It was when I became proactive because of the knowledge that I learned on this forum that I was able to bring my FEV 1 back up to 48%. I am very thankful to have cysticfibrosis.com at my fingertips. It provides a place where we can share and learn from each other.<img src="i/expressions/face-icon-small-smile.gif" border="0">

<b>Present meds and treatments:</b>
albuteral (twice a day)
Pulmozyme (once a day)
7% HS (twice a day)
Tobramycin (twice a day every other month)
Advair 100/50 (twice a day)
Respirtech vest 30 minutes twice a day
treadmill 35 minutes every other day

Good luck to you with preparing your body for pregnancy. BTW I had my three children after I had 1/2 of a lung removed. I did have a major bleed with my first pregnancy at 6 weeks. What a scare that was! But nothing after that or during the other two pregnancies.

Living in the present moment is what keeps me from worrying about tomorrow and I have a very strong faith life which keeps me centered. I hope you find what works for you.

I can see how much you want to be a mom and that you are trying to do all you can by gathering information. That's a great first step. I wish you well. Please keep up udated with how things are going.

 

[Jem]

<b>What the lowest your pft's have been?</b>

41%

<b>How high did you get it back up to?</b>

48%

<b>How did you do it?</b>

With being consistent doing my vest treatments and adding 7%HS to my regime. I believe HS has been a huge benefit to me with helping to clear out my lung. I am not much of a mucus producer unless I am sick and doing the HS combined with the vest helps me to bring up stuff I otherwise would not be able to.

<b>How long did or has it stayed up?</b>

It took 14 months. It has been at 48% for the last 6 months. I hope it even goes higher especially now since I am using the eflow and have begun Tobramycin one month on, one month off. This is a new neb for me.


As far as hemoptysis...I understand your fear. I lost a lung to chronic severe hemoptysis, 1/2 when I was 19 and the rest of my left lung at 40. Since the removal of the rest of my left lung I have had several very minor bleeds...2 tsps or less several times a year in the last 4 years. The first time I took HS (March of 2006) is was 3% and I coughed up foamy blood after half my treatment. I was scared and stopped but the next day I began again because I had heard so many good things about HS. I did fine and moved up to 7% one month later.

Sometimes during the first 6 months of using HS I would get a little streaking but it never turned into an active bleed. The last active bleed I had was last September...2 teaspoons after finishing lunch out with friends. I felt fine but started an oral antibiotic at my doctor's request.

I never really understood what FEV meant or questioned my doctor about trying different meds. My lung function declined ever so slowly from 48% down to 41% over a 6 1/2 year period since my last surgery. It was when I became proactive because of the knowledge that I learned on this forum that I was able to bring my FEV 1 back up to 48%. I am very thankful to have cysticfibrosis.com at my fingertips. It provides a place where we can share and learn from each other.<img src="i/expressions/face-icon-small-smile.gif" border="0">

<b>Present meds and treatments:</b>
albuteral (twice a day)
Pulmozyme (once a day)
7% HS (twice a day)
Tobramycin (twice a day every other month)
Advair 100/50 (twice a day)
Respirtech vest 30 minutes twice a day
treadmill 35 minutes every other day

Good luck to you with preparing your body for pregnancy. BTW I had my three children after I had 1/2 of a lung removed. I did have a major bleed with my first pregnancy at 6 weeks. What a scare that was! But nothing after that or during the other two pregnancies.

Living in the present moment is what keeps me from worrying about tomorrow and I have a very strong faith life which keeps me centered. I hope you find what works for you.

I can see how much you want to be a mom and that you are trying to do all you can by gathering information. That's a great first step. I wish you well. Please keep up udated with how things are going.

 

[Jem]

<b>What the lowest your pft's have been?</b>

41%

<b>How high did you get it back up to?</b>

48%

<b>How did you do it?</b>

With being consistent doing my vest treatments and adding 7%HS to my regime. I believe HS has been a huge benefit to me with helping to clear out my lung. I am not much of a mucus producer unless I am sick and doing the HS combined with the vest helps me to bring up stuff I otherwise would not be able to.

<b>How long did or has it stayed up?</b>

It took 14 months. It has been at 48% for the last 6 months. I hope it even goes higher especially now since I am using the eflow and have begun Tobramycin one month on, one month off. This is a new neb for me.


As far as hemoptysis...I understand your fear. I lost a lung to chronic severe hemoptysis, 1/2 when I was 19 and the rest of my left lung at 40. Since the removal of the rest of my left lung I have had several very minor bleeds...2 tsps or less several times a year in the last 4 years. The first time I took HS (March of 2006) is was 3% and I coughed up foamy blood after half my treatment. I was scared and stopped but the next day I began again because I had heard so many good things about HS. I did fine and moved up to 7% one month later.

Sometimes during the first 6 months of using HS I would get a little streaking but it never turned into an active bleed. The last active bleed I had was last September...2 teaspoons after finishing lunch out with friends. I felt fine but started an oral antibiotic at my doctor's request.

I never really understood what FEV meant or questioned my doctor about trying different meds. My lung function declined ever so slowly from 48% down to 41% over a 6 1/2 year period since my last surgery. It was when I became proactive because of the knowledge that I learned on this forum that I was able to bring my FEV 1 back up to 48%. I am very thankful to have cysticfibrosis.com at my fingertips. It provides a place where we can share and learn from each other.<img src="i/expressions/face-icon-small-smile.gif" border="0">

<b>Present meds and treatments:</b>
albuteral (twice a day)
Pulmozyme (once a day)
7% HS (twice a day)
Tobramycin (twice a day every other month)
Advair 100/50 (twice a day)
Respirtech vest 30 minutes twice a day
treadmill 35 minutes every other day

Good luck to you with preparing your body for pregnancy. BTW I had my three children after I had 1/2 of a lung removed. I did have a major bleed with my first pregnancy at 6 weeks. What a scare that was! But nothing after that or during the other two pregnancies.

Living in the present moment is what keeps me from worrying about tomorrow and I have a very strong faith life which keeps me centered. I hope you find what works for you.

I can see how much you want to be a mom and that you are trying to do all you can by gathering information. That's a great first step. I wish you well. Please keep up udated with how things are going.

 

[Jem]

<b>What the lowest your pft's have been?</b>

41%

<b>How high did you get it back up to?</b>

48%

<b>How did you do it?</b>

With being consistent doing my vest treatments and adding 7%HS to my regime. I believe HS has been a huge benefit to me with helping to clear out my lung. I am not much of a mucus producer unless I am sick and doing the HS combined with the vest helps me to bring up stuff I otherwise would not be able to.

<b>How long did or has it stayed up?</b>

It took 14 months. It has been at 48% for the last 6 months. I hope it even goes higher especially now since I am using the eflow and have begun Tobramycin one month on, one month off. This is a new neb for me.


As far as hemoptysis...I understand your fear. I lost a lung to chronic severe hemoptysis, 1/2 when I was 19 and the rest of my left lung at 40. Since the removal of the rest of my left lung I have had several very minor bleeds...2 tsps or less several times a year in the last 4 years. The first time I took HS (March of 2006) is was 3% and I coughed up foamy blood after half my treatment. I was scared and stopped but the next day I began again because I had heard so many good things about HS. I did fine and moved up to 7% one month later.

Sometimes during the first 6 months of using HS I would get a little streaking but it never turned into an active bleed. The last active bleed I had was last September...2 teaspoons after finishing lunch out with friends. I felt fine but started an oral antibiotic at my doctor's request.

I never really understood what FEV meant or questioned my doctor about trying different meds. My lung function declined ever so slowly from 48% down to 41% over a 6 1/2 year period since my last surgery. It was when I became proactive because of the knowledge that I learned on this forum that I was able to bring my FEV 1 back up to 48%. I am very thankful to have cysticfibrosis.com at my fingertips. It provides a place where we can share and learn from each other.<img src="i/expressions/face-icon-small-smile.gif" border="0">

<b>Present meds and treatments:</b>
albuteral (twice a day)
Pulmozyme (once a day)
7% HS (twice a day)
Tobramycin (twice a day every other month)
Advair 100/50 (twice a day)
Respirtech vest 30 minutes twice a day
treadmill 35 minutes every other day

Good luck to you with preparing your body for pregnancy. BTW I had my three children after I had 1/2 of a lung removed. I did have a major bleed with my first pregnancy at 6 weeks. What a scare that was! But nothing after that or during the other two pregnancies.

Living in the present moment is what keeps me from worrying about tomorrow and I have a very strong faith life which keeps me centered. I hope you find what works for you.

I can see how much you want to be a mom and that you are trying to do all you can by gathering information. That's a great first step. I wish you well. Please keep up udated with how things are going.