What's your lung function and what can you do with it?

N

nocode

New member
Hi,

I've always been curious about this...Mine are as follows:
- FEV1 - 35% (for the last 10 years)
- Vital Capacity - 2 liters
- I feel tired quickly during physical activity, but I can lead a reasonably normal life: work 24h a week (I'm a soft-skills trainer), can go out, go shopping, go for walks, travel a lot (I actually live abroad), live by myself, etc. Have had 1 hospitalization, 3 years ago. No pancreatic insufficiency (I don't take enzyms). But my numbers are so low that I am constantly worried about it.
What about you?
Thanks & have a great day!
 
N

nocode

New member
Hi,

I've always been curious about this...Mine are as follows:
- FEV1 - 35% (for the last 10 years)
- Vital Capacity - 2 liters
- I feel tired quickly during physical activity, but I can lead a reasonably normal life: work 24h a week (I'm a soft-skills trainer), can go out, go shopping, go for walks, travel a lot (I actually live abroad), live by myself, etc. Have had 1 hospitalization, 3 years ago. No pancreatic insufficiency (I don't take enzyms). But my numbers are so low that I am constantly worried about it.
What about you?
Thanks & have a great day!
 
C

CyrilCrodius

New member
Last time I think I tested at 27%. I don't do much. I stopped college 2 years ago because I was getting hospitalized every session which made things very difficult to deal with. I am now on disability. I have been sitting on my skinny behind in front of the computer since then. I blame my sedentarity for my current condition. I was much healthier when I was in college and I would probably have remained healthier for a longer time if I hadn't stopped. Now I'm very easily exhausted. Friends came over last week and we walked to the convenience store which is about 300m away from here. When they left, I was tired. More tired than I would have been after a gym class when I entered college with a FEV1 of about 42% 6 years ago.
 
C

CyrilCrodius

New member
Last time I think I tested at 27%. I don't do much. I stopped college 2 years ago because I was getting hospitalized every session which made things very difficult to deal with. I am now on disability. I have been sitting on my skinny behind in front of the computer since then. I blame my sedentarity for my current condition. I was much healthier when I was in college and I would probably have remained healthier for a longer time if I hadn't stopped. Now I'm very easily exhausted. Friends came over last week and we walked to the convenience store which is about 300m away from here. When they left, I was tired. More tired than I would have been after a gym class when I entered college with a FEV1 of about 42% 6 years ago.
 
N

nocode

New member
I agree that staying as active as possible is more benefitial than not, but this is easier said than done.
My doctor recently told me that with my numbers, most people don't do anything, and because I have always pushed myself I can still do "so much". But even knowing that, I still find it difficult to motivate myself to work out because I get so tired...
Can't you do any sort of activity now that you have more time, at your own pace?
 
N

nocode

New member
I agree that staying as active as possible is more benefitial than not, but this is easier said than done.
My doctor recently told me that with my numbers, most people don't do anything, and because I have always pushed myself I can still do "so much". But even knowing that, I still find it difficult to motivate myself to work out because I get so tired...
Can't you do any sort of activity now that you have more time, at your own pace?
 
C

CyrilCrodius

New member
The weirdest is the sick/not sick dichotomy that appears. You are sick, in the sense that your body malfunctions and bends your will. Yet, if you just sit there and do nothing, you don't feel the restrictions that the disease puts on your body, so you don't feel sick. For the restrictions that are there to feel, they have been so gradual that they became "normality", so it is normal to you.
 
C

CyrilCrodius

New member
The weirdest is the sick/not sick dichotomy that appears. You are sick, in the sense that your body malfunctions and bends your will. Yet, if you just sit there and do nothing, you don't feel the restrictions that the disease puts on your body, so you don't feel sick. For the restrictions that are there to feel, they have been so gradual that they became "normality", so it is normal to you.
 
N

nocode

New member
That's so true, very ironic. I constantly feel guilty if a day goes by when I'm not active, but if i'm resting that's when I feel most comfortable. Another irony.
 
N

nocode

New member
That's so true, very ironic. I constantly feel guilty if a day goes by when I'm not active, but if i'm resting that's when I feel most comfortable. Another irony.
 
H

Havoc

New member
I agree wholeheartedly with the exercise bit. I know a few people with similar numbers to yours (or lower) with a really good quality of life. As much exercise as you can tolerate would be a good place to start.
 
H

Havoc

New member
I agree wholeheartedly with the exercise bit. I know a few people with similar numbers to yours (or lower) with a really good quality of life. As much exercise as you can tolerate would be a good place to start.
 
P

Printer

Active member
FEV1 = 75%. I was going to run the Boston Marathon yesterday but it was just too hot. 94F in some places.

Bill
 
P

Printer

Active member
FEV1 = 75%. I was going to run the Boston Marathon yesterday but it was just too hot. 94F in some places.

Bill
 
I

Incomudrox

New member
My FEV1 was 22-28% for the last year, I was reasonably sedentary. No o2. I could lead a normal life however. I've now started exercising, I can ride 10 miles on my bike at a good pace, sometimes stop and go because I live in a major city. I work out at the gym 5 days a week lifting weights. My FEV1 is now 37%.
 
I

Incomudrox

New member
My FEV1 was 22-28% for the last year, I was reasonably sedentary. No o2. I could lead a normal life however. I've now started exercising, I can ride 10 miles on my bike at a good pace, sometimes stop and go because I live in a major city. I work out at the gym 5 days a week lifting weights. My FEV1 is now 37%.
 
P

PinkPigg

New member
I've been around 26% for the past three years. I stopped working three years ago to focus on my health. I'm still pretty active and try to work out at least five days a week. I totally agree on the dichotomy thing. Today was a "bad" day and I took a nap and was pretty lazy after going to pulmonary rehab.

My previous plateau was at 40% FEV1. I stabilized there after almost being transplanted due to massive infection and right heart failure at 23. I was there for around 17 years. Exercise was the biggest reason I did so well for that long. Getting an extra almost 20 years is so worth the exercise. Who knows maybe I can hit 25 years before transplant <img src="i/expressions/face-icon-small-smile.gif" border="0">

Good luck to you!

Peace,
Steph
 
P

PinkPigg

New member
I've been around 26% for the past three years. I stopped working three years ago to focus on my health. I'm still pretty active and try to work out at least five days a week. I totally agree on the dichotomy thing. Today was a "bad" day and I took a nap and was pretty lazy after going to pulmonary rehab.

My previous plateau was at 40% FEV1. I stabilized there after almost being transplanted due to massive infection and right heart failure at 23. I was there for around 17 years. Exercise was the biggest reason I did so well for that long. Getting an extra almost 20 years is so worth the exercise. Who knows maybe I can hit 25 years before transplant <img src="i/expressions/face-icon-small-smile.gif" border="0">

Good luck to you!

Peace,
Steph
 
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