When and how to tell my son?

[bmombtoo]

Like Samsmom, Josh was diagnosed at age 12. He has been taking neb treatments pretty regulary since he was about 6 to nine months old. To him that's just the way things were. He knew he had asthma and the people we are usually with just knew it as part of his routine. Alos my older boys had to use the machine quite frequently so for us it seemed normal. Since his diagnosis of Cf, the meds are just routine. He knows he has CF and that it is mild for now. My first husband died when Josh was two and he lost his grandfather two years ago, so he has an idea of the finality of death. I'm sure as he gets older we will face more bumps in the road and we'll deal with them. I'm traing to be a psychologist so I stay pretty up on the need for emotional support.

He just got back from a five day trip with his class and went to the medical suite TID for meds. In the evening he took is pulmozyne. I asked him if the kids asked him what was up and he said no. "They know I have asthma and CF; some of them had to go to the nurse everday for meds too". Unfortunately for a child with a chronic illness meds everyday and routines are viewed as normal....<b>It is normal for them and for the family.</b>

 

[bmombtoo]

Like Samsmom, Josh was diagnosed at age 12. He has been taking neb treatments pretty regulary since he was about 6 to nine months old. To him that's just the way things were. He knew he had asthma and the people we are usually with just knew it as part of his routine. Alos my older boys had to use the machine quite frequently so for us it seemed normal. Since his diagnosis of Cf, the meds are just routine. He knows he has CF and that it is mild for now. My first husband died when Josh was two and he lost his grandfather two years ago, so he has an idea of the finality of death. I'm sure as he gets older we will face more bumps in the road and we'll deal with them. I'm traing to be a psychologist so I stay pretty up on the need for emotional support.

He just got back from a five day trip with his class and went to the medical suite TID for meds. In the evening he took is pulmozyne. I asked him if the kids asked him what was up and he said no. "They know I have asthma and CF; some of them had to go to the nurse everday for meds too". Unfortunately for a child with a chronic illness meds everyday and routines are viewed as normal....<b>It is normal for them and for the family.</b>

 

[bmombtoo]

Like Samsmom, Josh was diagnosed at age 12. He has been taking neb treatments pretty regulary since he was about 6 to nine months old. To him that's just the way things were. He knew he had asthma and the people we are usually with just knew it as part of his routine. Alos my older boys had to use the machine quite frequently so for us it seemed normal. Since his diagnosis of Cf, the meds are just routine. He knows he has CF and that it is mild for now. My first husband died when Josh was two and he lost his grandfather two years ago, so he has an idea of the finality of death. I'm sure as he gets older we will face more bumps in the road and we'll deal with them. I'm traing to be a psychologist so I stay pretty up on the need for emotional support.

He just got back from a five day trip with his class and went to the medical suite TID for meds. In the evening he took is pulmozyne. I asked him if the kids asked him what was up and he said no. "They know I have asthma and CF; some of them had to go to the nurse everday for meds too". Unfortunately for a child with a chronic illness meds everyday and routines are viewed as normal....<b>It is normal for them and for the family.</b>

 

[Ratatosk]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JazzysMom</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ratatosk</b></i>



We just figure we'll let DS believe that all the other kids do their vest & nebs at home before and afterschool and before bed. Heck, sometimes he INSISTS that I have an enzyme if I'm having a snack & glass of milk with him.

Seriously, we address the questions as they come about. He LOVES the mucinex commercial with the slimey green guys, so we tell him he needs to the the vest to get the booger monsters out of there.</end quote></div>



This just hit me rather funny so I need to inquire.......

Can I ask why? Is it because you dont think he can handle being "different" or is it easier for YOU not to correct him? WHat if he pushes meds on some other child who doesnt know any better? I dont mean to sound cruel, but this is possible. If he thinks all take & do the same then he might make sure it happens. NO?!</end quote></div>

Actually we joked about the thinking other kids do CPT/Vest because in the future we figured if he thought everyone else did it, he wouldn't be resistant in the future and give us trouble. At preschool the kids all know that he gets enzymes, in fact they were all concerned that he take his enzymes when he was at a birthday party recently. The only person he pushes enzymes on his me for some weird reason and he hasn't done it recently.

 

[Ratatosk]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JazzysMom</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ratatosk</b></i>



We just figure we'll let DS believe that all the other kids do their vest & nebs at home before and afterschool and before bed. Heck, sometimes he INSISTS that I have an enzyme if I'm having a snack & glass of milk with him.

Seriously, we address the questions as they come about. He LOVES the mucinex commercial with the slimey green guys, so we tell him he needs to the the vest to get the booger monsters out of there.</end quote></div>



This just hit me rather funny so I need to inquire.......

Can I ask why? Is it because you dont think he can handle being "different" or is it easier for YOU not to correct him? WHat if he pushes meds on some other child who doesnt know any better? I dont mean to sound cruel, but this is possible. If he thinks all take & do the same then he might make sure it happens. NO?!</end quote></div>

Actually we joked about the thinking other kids do CPT/Vest because in the future we figured if he thought everyone else did it, he wouldn't be resistant in the future and give us trouble. At preschool the kids all know that he gets enzymes, in fact they were all concerned that he take his enzymes when he was at a birthday party recently. The only person he pushes enzymes on his me for some weird reason and he hasn't done it recently.

 

[Ratatosk]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JazzysMom</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ratatosk</b></i>



We just figure we'll let DS believe that all the other kids do their vest & nebs at home before and afterschool and before bed. Heck, sometimes he INSISTS that I have an enzyme if I'm having a snack & glass of milk with him.

Seriously, we address the questions as they come about. He LOVES the mucinex commercial with the slimey green guys, so we tell him he needs to the the vest to get the booger monsters out of there.</end quote></div>



This just hit me rather funny so I need to inquire.......

Can I ask why? Is it because you dont think he can handle being "different" or is it easier for YOU not to correct him? WHat if he pushes meds on some other child who doesnt know any better? I dont mean to sound cruel, but this is possible. If he thinks all take & do the same then he might make sure it happens. NO?!</end quote></div>

Actually we joked about the thinking other kids do CPT/Vest because in the future we figured if he thought everyone else did it, he wouldn't be resistant in the future and give us trouble. At preschool the kids all know that he gets enzymes, in fact they were all concerned that he take his enzymes when he was at a birthday party recently. The only person he pushes enzymes on his me for some weird reason and he hasn't done it recently.