when did you take out baby?

[PedsNP2007]

Hi,
I tell parents that they should really limit contact the first month of life... Sick contacts especially.

The American Academy of Pediatrics has guidelines for mandatory septic (infection) work-up. For those babies 0-30 days old, if they have a fever, they are essentially given the full work-up (including a lumbar puncture to rule out meningitis). For babies 31-60 days, it is up to the ER staff to decide if they will do the full septic work-up (depending on how the baby looks/acts). From 60 days on, it is a limited work-up unless the history or physical exam is concerning for meningitis.

I know it is difficult with a new baby and having the CF news, but I would rather err on the side of caution. There are simple things that can cause fever in a baby, but given the significant impairment that meningitis can cause, it is a mandatory to do a full septic work-up as meningitis still is a high risk. I've seen what meningitis can do to babies untreated and I'd take a month isolated indoors with my baby than the other outcome.

My family has been helpful for my sister and brother in law in that, when they have wanted to go out, we have sat for the baby who is finally 7 weeks old. She most recently took him to a quiet mall to walk around. It's still a concern for infection. I know you can't protect them from everything, but the first 2 months, I would seriously keep out of crowds, maintain a "no-sick" contact protocol, and practice good hygeine (washing hands, etc)!!

Jenn
30 yo cf, critical care ped nurse practitioner

 

[PedsNP2007]

Hi,
I tell parents that they should really limit contact the first month of life... Sick contacts especially.

The American Academy of Pediatrics has guidelines for mandatory septic (infection) work-up. For those babies 0-30 days old, if they have a fever, they are essentially given the full work-up (including a lumbar puncture to rule out meningitis). For babies 31-60 days, it is up to the ER staff to decide if they will do the full septic work-up (depending on how the baby looks/acts). From 60 days on, it is a limited work-up unless the history or physical exam is concerning for meningitis.

I know it is difficult with a new baby and having the CF news, but I would rather err on the side of caution. There are simple things that can cause fever in a baby, but given the significant impairment that meningitis can cause, it is a mandatory to do a full septic work-up as meningitis still is a high risk. I've seen what meningitis can do to babies untreated and I'd take a month isolated indoors with my baby than the other outcome.

My family has been helpful for my sister and brother in law in that, when they have wanted to go out, we have sat for the baby who is finally 7 weeks old. She most recently took him to a quiet mall to walk around. It's still a concern for infection. I know you can't protect them from everything, but the first 2 months, I would seriously keep out of crowds, maintain a "no-sick" contact protocol, and practice good hygeine (washing hands, etc)!!

Jenn
30 yo cf, critical care ped nurse practitioner

 

[PedsNP2007]

Hi,
I tell parents that they should really limit contact the first month of life... Sick contacts especially.

The American Academy of Pediatrics has guidelines for mandatory septic (infection) work-up. For those babies 0-30 days old, if they have a fever, they are essentially given the full work-up (including a lumbar puncture to rule out meningitis). For babies 31-60 days, it is up to the ER staff to decide if they will do the full septic work-up (depending on how the baby looks/acts). From 60 days on, it is a limited work-up unless the history or physical exam is concerning for meningitis.

I know it is difficult with a new baby and having the CF news, but I would rather err on the side of caution. There are simple things that can cause fever in a baby, but given the significant impairment that meningitis can cause, it is a mandatory to do a full septic work-up as meningitis still is a high risk. I've seen what meningitis can do to babies untreated and I'd take a month isolated indoors with my baby than the other outcome.

My family has been helpful for my sister and brother in law in that, when they have wanted to go out, we have sat for the baby who is finally 7 weeks old. She most recently took him to a quiet mall to walk around. It's still a concern for infection. I know you can't protect them from everything, but the first 2 months, I would seriously keep out of crowds, maintain a "no-sick" contact protocol, and practice good hygeine (washing hands, etc)!!

Jenn
30 yo cf, critical care ped nurse practitioner

 

[PedsNP2007]

Hi,
I tell parents that they should really limit contact the first month of life... Sick contacts especially.

The American Academy of Pediatrics has guidelines for mandatory septic (infection) work-up. For those babies 0-30 days old, if they have a fever, they are essentially given the full work-up (including a lumbar puncture to rule out meningitis). For babies 31-60 days, it is up to the ER staff to decide if they will do the full septic work-up (depending on how the baby looks/acts). From 60 days on, it is a limited work-up unless the history or physical exam is concerning for meningitis.

I know it is difficult with a new baby and having the CF news, but I would rather err on the side of caution. There are simple things that can cause fever in a baby, but given the significant impairment that meningitis can cause, it is a mandatory to do a full septic work-up as meningitis still is a high risk. I've seen what meningitis can do to babies untreated and I'd take a month isolated indoors with my baby than the other outcome.

My family has been helpful for my sister and brother in law in that, when they have wanted to go out, we have sat for the baby who is finally 7 weeks old. She most recently took him to a quiet mall to walk around. It's still a concern for infection. I know you can't protect them from everything, but the first 2 months, I would seriously keep out of crowds, maintain a "no-sick" contact protocol, and practice good hygeine (washing hands, etc)!!

Jenn
30 yo cf, critical care ped nurse practitioner

 

[PedsNP2007]

Hi,
<br />I tell parents that they should really limit contact the first month of life... Sick contacts especially.
<br />
<br />The American Academy of Pediatrics has guidelines for mandatory septic (infection) work-up. For those babies 0-30 days old, if they have a fever, they are essentially given the full work-up (including a lumbar puncture to rule out meningitis). For babies 31-60 days, it is up to the ER staff to decide if they will do the full septic work-up (depending on how the baby looks/acts). From 60 days on, it is a limited work-up unless the history or physical exam is concerning for meningitis.
<br />
<br />I know it is difficult with a new baby and having the CF news, but I would rather err on the side of caution. There are simple things that can cause fever in a baby, but given the significant impairment that meningitis can cause, it is a mandatory to do a full septic work-up as meningitis still is a high risk. I've seen what meningitis can do to babies untreated and I'd take a month isolated indoors with my baby than the other outcome.
<br />
<br />My family has been helpful for my sister and brother in law in that, when they have wanted to go out, we have sat for the baby who is finally 7 weeks old. She most recently took him to a quiet mall to walk around. It's still a concern for infection. I know you can't protect them from everything, but the first 2 months, I would seriously keep out of crowds, maintain a "no-sick" contact protocol, and practice good hygeine (washing hands, etc)!!
<br />
<br />Jenn
<br />30 yo cf, critical care ped nurse practitioner

 

[Jane]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>NancyLKF</b></i>

What does RSV stand for?</end quote></div>

<a target=_blank class=ftalternatingbarlinklarge href="http://kidshealth.org/parent/infections/lung/rsv.html">http://kidshealth.org/parent/infections/lung/rsv.html</a>

 

[Jane]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>NancyLKF</b></i>

What does RSV stand for?</end quote></div>

<a target=_blank class=ftalternatingbarlinklarge href="http://kidshealth.org/parent/infections/lung/rsv.html">http://kidshealth.org/parent/infections/lung/rsv.html</a>

 

[Jane]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>NancyLKF</b></i>

What does RSV stand for?</end quote></div>

<a target=_blank class=ftalternatingbarlinklarge href="http://kidshealth.org/parent/infections/lung/rsv.html">http://kidshealth.org/parent/infections/lung/rsv.html</a>

 

[Jane]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>NancyLKF</b></i>

What does RSV stand for?</end quote>

<a target=_blank class=ftalternatingbarlinklarge href="http://kidshealth.org/parent/infections/lung/rsv.html">http://kidshealth.org/parent/infections/lung/rsv.html</a>

 

[Jane]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>NancyLKF</b></i>
<br />
<br /> What does RSV stand for?</end quote>
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://kidshealth.org/parent/infections/lung/rsv.html">http://kidshealth.org/parent/infections/lung/rsv.html</a>

 

[Buckeye]

RSV is bad enough in babies without CF, but in babies with CF it can be pretty bad. There is a shot they can give your baby to protect them against RSV though - it's called Synagis. Check with your Ped or CF Center and they should be able to get it approved through your insurance. Insurance companies don't like to cover it becasuse it is expensive, but they normally do cover it if it's for a preemie or child with CF.

 

[Buckeye]

RSV is bad enough in babies without CF, but in babies with CF it can be pretty bad. There is a shot they can give your baby to protect them against RSV though - it's called Synagis. Check with your Ped or CF Center and they should be able to get it approved through your insurance. Insurance companies don't like to cover it becasuse it is expensive, but they normally do cover it if it's for a preemie or child with CF.

 

[Buckeye]

RSV is bad enough in babies without CF, but in babies with CF it can be pretty bad. There is a shot they can give your baby to protect them against RSV though - it's called Synagis. Check with your Ped or CF Center and they should be able to get it approved through your insurance. Insurance companies don't like to cover it becasuse it is expensive, but they normally do cover it if it's for a preemie or child with CF.

 

[Buckeye]

RSV is bad enough in babies without CF, but in babies with CF it can be pretty bad. There is a shot they can give your baby to protect them against RSV though - it's called Synagis. Check with your Ped or CF Center and they should be able to get it approved through your insurance. Insurance companies don't like to cover it becasuse it is expensive, but they normally do cover it if it's for a preemie or child with CF.

 

[Buckeye]

RSV is bad enough in babies without CF, but in babies with CF it can be pretty bad. There is a shot they can give your baby to protect them against RSV though - it's called Synagis. Check with your Ped or CF Center and they should be able to get it approved through your insurance. Insurance companies don't like to cover it becasuse it is expensive, but they normally do cover it if it's for a preemie or child with CF.

 

[SARAHSARAH253]

Hi Nancy,

I think all of us new cf moms at times share the feeling of being isolated from the world. I think it's tough on any couple to have a new baby, but the added stress of cf can be sometimes more than a new parent can handle alone.

When we first found out our son had cf, I was completely lost.....and angry......I read that whold damn book "What to Expect when your Expecting"..and I sure didn't remember expecting all that we were going through.

One woman on here told me about a year ago..The first year is the toughest.......I have to agree now that we have made it through. Things do some how go back to a new kind of normal.

Our son came home at the end of September, so I was scared as hell to take him out in the "World"....We spent the first witer mainly at home/grandmas/aunties houses. Our son also got the syngagis shots last winter and again this winter...Our son also still has not had a runny nose/cold ear infection/fever...nothing yet and he is almost 18 months old. KNOCK ON WOOD. I credit alot of his good health to using Grandmas for babysitters, so I could do my shopping/errands with him safe at home during the winter months.

My advise would be to plan times when you and your husband can get out of the house alone, just for a few hours. After a few month past and you think your brave enough plan a night/weekend away. And most important try and embrase the time you think your going crazy with your baby "on" you ALL the time. Because this time will pass so fast......Before you know it, it will be spring and you can start having adventures with your little girl.

Love,
Sarah

Mommy to johnny almost 18 months old.....

 

[SARAHSARAH253]

Hi Nancy,

I think all of us new cf moms at times share the feeling of being isolated from the world. I think it's tough on any couple to have a new baby, but the added stress of cf can be sometimes more than a new parent can handle alone.

When we first found out our son had cf, I was completely lost.....and angry......I read that whold damn book "What to Expect when your Expecting"..and I sure didn't remember expecting all that we were going through.

One woman on here told me about a year ago..The first year is the toughest.......I have to agree now that we have made it through. Things do some how go back to a new kind of normal.

Our son came home at the end of September, so I was scared as hell to take him out in the "World"....We spent the first witer mainly at home/grandmas/aunties houses. Our son also got the syngagis shots last winter and again this winter...Our son also still has not had a runny nose/cold ear infection/fever...nothing yet and he is almost 18 months old. KNOCK ON WOOD. I credit alot of his good health to using Grandmas for babysitters, so I could do my shopping/errands with him safe at home during the winter months.

My advise would be to plan times when you and your husband can get out of the house alone, just for a few hours. After a few month past and you think your brave enough plan a night/weekend away. And most important try and embrase the time you think your going crazy with your baby "on" you ALL the time. Because this time will pass so fast......Before you know it, it will be spring and you can start having adventures with your little girl.

Love,
Sarah

Mommy to johnny almost 18 months old.....

 

[SARAHSARAH253]

Hi Nancy,

I think all of us new cf moms at times share the feeling of being isolated from the world. I think it's tough on any couple to have a new baby, but the added stress of cf can be sometimes more than a new parent can handle alone.

When we first found out our son had cf, I was completely lost.....and angry......I read that whold damn book "What to Expect when your Expecting"..and I sure didn't remember expecting all that we were going through.

One woman on here told me about a year ago..The first year is the toughest.......I have to agree now that we have made it through. Things do some how go back to a new kind of normal.

Our son came home at the end of September, so I was scared as hell to take him out in the "World"....We spent the first witer mainly at home/grandmas/aunties houses. Our son also got the syngagis shots last winter and again this winter...Our son also still has not had a runny nose/cold ear infection/fever...nothing yet and he is almost 18 months old. KNOCK ON WOOD. I credit alot of his good health to using Grandmas for babysitters, so I could do my shopping/errands with him safe at home during the winter months.

My advise would be to plan times when you and your husband can get out of the house alone, just for a few hours. After a few month past and you think your brave enough plan a night/weekend away. And most important try and embrase the time you think your going crazy with your baby "on" you ALL the time. Because this time will pass so fast......Before you know it, it will be spring and you can start having adventures with your little girl.

Love,
Sarah

Mommy to johnny almost 18 months old.....

 

[SARAHSARAH253]

Hi Nancy,

I think all of us new cf moms at times share the feeling of being isolated from the world. I think it's tough on any couple to have a new baby, but the added stress of cf can be sometimes more than a new parent can handle alone.

When we first found out our son had cf, I was completely lost.....and angry......I read that whold damn book "What to Expect when your Expecting"..and I sure didn't remember expecting all that we were going through.

One woman on here told me about a year ago..The first year is the toughest.......I have to agree now that we have made it through. Things do some how go back to a new kind of normal.

Our son came home at the end of September, so I was scared as hell to take him out in the "World"....We spent the first witer mainly at home/grandmas/aunties houses. Our son also got the syngagis shots last winter and again this winter...Our son also still has not had a runny nose/cold ear infection/fever...nothing yet and he is almost 18 months old. KNOCK ON WOOD. I credit alot of his good health to using Grandmas for babysitters, so I could do my shopping/errands with him safe at home during the winter months.

My advise would be to plan times when you and your husband can get out of the house alone, just for a few hours. After a few month past and you think your brave enough plan a night/weekend away. And most important try and embrase the time you think your going crazy with your baby "on" you ALL the time. Because this time will pass so fast......Before you know it, it will be spring and you can start having adventures with your little girl.

Love,
Sarah

Mommy to johnny almost 18 months old.....

 

[SARAHSARAH253]

Hi Nancy,
<br />
<br />I think all of us new cf moms at times share the feeling of being isolated from the world. I think it's tough on any couple to have a new baby, but the added stress of cf can be sometimes more than a new parent can handle alone.
<br />
<br />When we first found out our son had cf, I was completely lost.....and angry......I read that whold damn book "What to Expect when your Expecting"..and I sure didn't remember expecting all that we were going through.
<br />
<br />One woman on here told me about a year ago..The first year is the toughest.......I have to agree now that we have made it through. Things do some how go back to a new kind of normal.
<br />
<br />Our son came home at the end of September, so I was scared as hell to take him out in the "World"....We spent the first witer mainly at home/grandmas/aunties houses. Our son also got the syngagis shots last winter and again this winter...Our son also still has not had a runny nose/cold ear infection/fever...nothing yet and he is almost 18 months old. KNOCK ON WOOD. I credit alot of his good health to using Grandmas for babysitters, so I could do my shopping/errands with him safe at home during the winter months.
<br />
<br />My advise would be to plan times when you and your husband can get out of the house alone, just for a few hours. After a few month past and you think your brave enough plan a night/weekend away. And most important try and embrase the time you think your going crazy with your baby "on" you ALL the time. Because this time will pass so fast......Before you know it, it will be spring and you can start having adventures with your little girl.
<br />
<br />Love,
<br />Sarah
<br />
<br />Mommy to johnny almost 18 months old.....