Sevenstars
New member
Definitely don't give up that soon, be aggressive now while his lung function hasn't been down for too long. Ask your doc if you can try any new treatments, or there could be something you're missing. My doc told me when my FEV1 was about 50% that I should just get used to that as my new baseline - I pressed him to let me try more things, and after starting colistin I got back up to 69% and I'm still climbing.
As for how your son feels, it is very easy for CFers to get used to functioning with crappy lung function - it's just how we survive. In comparison to how he felt when he was sick, I have no doubt that he does feel quite better. If he was really pressed though, through exercise, laughing, etc, I am sure he (and you) would see a difference in his capabilities. He would probably cough more or get tired sooner. It's great that he feels good enough to do what he used to though - keep him active, and don't give up hope on him getting some more improvement, not yet anyway.
As for how your son feels, it is very easy for CFers to get used to functioning with crappy lung function - it's just how we survive. In comparison to how he felt when he was sick, I have no doubt that he does feel quite better. If he was really pressed though, through exercise, laughing, etc, I am sure he (and you) would see a difference in his capabilities. He would probably cough more or get tired sooner. It's great that he feels good enough to do what he used to though - keep him active, and don't give up hope on him getting some more improvement, not yet anyway.