When is it time?

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randomgirl

New member
I don't mean to complain but I was just wondering how do you know when your about to die?  I know it's different for everyone but maybe there's a few symptoms that most people have?  I only want to know because I'm soooo exhausted and I feel so ready to just stop breathing.  I'm totally fine with dieing though.  I've been on the lung/liver transplant list for almost a year now.  I don't know what my FEV1 scores are (probably in the 20's).  I use oxygen at 2 Liters when I sleep (which is most of the time) and sometimes while I'm awake.  I'm really not trying to be negative or anything....I'm just curious because I constantly feel exhausted.  Thanks <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
R

randomgirl

New member
I don't mean to complain but I was just wondering how do you know when your about to die? I know it's different for everyone but maybe there's a few symptoms that most people have? I only want to know because I'm soooo exhausted and I feel so ready to just stop breathing. I'm totally fine with dieing though. I've been on the lung/liver transplant list for almost a year now. I don't know what my FEV1 scores are (probably in the 20's). I use oxygen at 2 Liters when I sleep (which is most of the time) and sometimes while I'm awake. I'm really not trying to be negative or anything....I'm just curious because I constantly feel exhausted. Thanks <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
R

randomgirl

New member
I don't mean to complain but I was just wondering how do you know when your about to die? I know it's different for everyone but maybe there's a few symptoms that most people have? I only want to know because I'm soooo exhausted and I feel so ready to just stop breathing. I'm totally fine with dieing though. I've been on the lung/liver transplant list for almost a year now. I don't know what my FEV1 scores are (probably in the 20's). I use oxygen at 2 Liters when I sleep (which is most of the time) and sometimes while I'm awake. I'm really not trying to be negative or anything....I'm just curious because I constantly feel exhausted. Thanks <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
T

Treble

New member
That's actually a very good question, but also probably a very difficult one to answer. I'm curious to know what people have to say about this one too now. XD
 
T

Treble

New member
That's actually a very good question, but also probably a very difficult one to answer. I'm curious to know what people have to say about this one too now. XD
 
T

Treble

New member
That's actually a very good question, but also probably a very difficult one to answer. I'm curious to know what people have to say about this one too now. XD
 
K

KristenLilysMom

New member
Replying to this thread breaks my heart because I know it maybe a question my daughter will one day ask - but, I want to help anyone who is brave enough to ask it. I am a Registered Nurse and have had the priviledge of being present multiple times as people have passed. Some seem to need the permission of their families to let go, some need privacy and wait until the room is empty, even if their family has been on a constant vigil. Others fight the failing of their body up to the very last minute. The most important thing is that you are comfortable, both physically and emotionally. It is your decision both to fight and to know when enough is enough. The brutal part is just because you are ready to die does not always mean that your body is ready too. Quality of Life is the main issue, I sincerly hope that your care team has ensured that absolutly everything is being done to maximize your function and comfort, and if not advocate for yourself to get what you need to be more comfortable!

I am not a Doctor but if you are still at home and maintaining on 2L O2 you most likely still have a ways to go, but you do need to make decisions about your end of life care - do you want to go into hospital or be on constant O2, be intubated and/or resuscitated should your heart stop. Given your age these are decisions you must make and then discuss with your family. Appoint a Power of Attorny whom you trust to carry out your wishes. As a healthcare provider there is nothing worse then knowing family are making decisions I know the patient would not agree with purely because the approprate legal paperwork has not been completed.

Good Luck, Be Brave and trust yourself to make the right decisions - you know you best.
 
K

KristenLilysMom

New member
Replying to this thread breaks my heart because I know it maybe a question my daughter will one day ask - but, I want to help anyone who is brave enough to ask it. I am a Registered Nurse and have had the priviledge of being present multiple times as people have passed. Some seem to need the permission of their families to let go, some need privacy and wait until the room is empty, even if their family has been on a constant vigil. Others fight the failing of their body up to the very last minute. The most important thing is that you are comfortable, both physically and emotionally. It is your decision both to fight and to know when enough is enough. The brutal part is just because you are ready to die does not always mean that your body is ready too. Quality of Life is the main issue, I sincerly hope that your care team has ensured that absolutly everything is being done to maximize your function and comfort, and if not advocate for yourself to get what you need to be more comfortable!

I am not a Doctor but if you are still at home and maintaining on 2L O2 you most likely still have a ways to go, but you do need to make decisions about your end of life care - do you want to go into hospital or be on constant O2, be intubated and/or resuscitated should your heart stop. Given your age these are decisions you must make and then discuss with your family. Appoint a Power of Attorny whom you trust to carry out your wishes. As a healthcare provider there is nothing worse then knowing family are making decisions I know the patient would not agree with purely because the approprate legal paperwork has not been completed.

Good Luck, Be Brave and trust yourself to make the right decisions - you know you best.
 
K

KristenLilysMom

New member
Replying to this thread breaks my heart because I know it maybe a question my daughter will one day ask - but, I want to help anyone who is brave enough to ask it. I am a Registered Nurse and have had the priviledge of being present multiple times as people have passed. Some seem to need the permission of their families to let go, some need privacy and wait until the room is empty, even if their family has been on a constant vigil. Others fight the failing of their body up to the very last minute. The most important thing is that you are comfortable, both physically and emotionally. It is your decision both to fight and to know when enough is enough. The brutal part is just because you are ready to die does not always mean that your body is ready too. Quality of Life is the main issue, I sincerly hope that your care team has ensured that absolutly everything is being done to maximize your function and comfort, and if not advocate for yourself to get what you need to be more comfortable!
<br />
<br />I am not a Doctor but if you are still at home and maintaining on 2L O2 you most likely still have a ways to go, but you do need to make decisions about your end of life care - do you want to go into hospital or be on constant O2, be intubated and/or resuscitated should your heart stop. Given your age these are decisions you must make and then discuss with your family. Appoint a Power of Attorny whom you trust to carry out your wishes. As a healthcare provider there is nothing worse then knowing family are making decisions I know the patient would not agree with purely because the approprate legal paperwork has not been completed.
<br />
<br />Good Luck, Be Brave and trust yourself to make the right decisions - you know you best.
 
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randmel89

New member
I believe in my heart that when it is my time I will know. I have known a lot of people who have died and my father in law who died right in front of our family he said he was going home now and loved all of us we all kissed him and then he was gone the machines beeped and beeped and so I believe when it is time for me to go I will just know.
 
R

randmel89

New member
I believe in my heart that when it is my time I will know. I have known a lot of people who have died and my father in law who died right in front of our family he said he was going home now and loved all of us we all kissed him and then he was gone the machines beeped and beeped and so I believe when it is time for me to go I will just know.
 
R

randmel89

New member
I believe in my heart that when it is my time I will know. I have known a lot of people who have died and my father in law who died right in front of our family he said he was going home now and loved all of us we all kissed him and then he was gone the machines beeped and beeped and so I believe when it is time for me to go I will just know.
 
J

just1more

New member
<P><div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Incomudrox</b></i> It's time to die when you give up. Plain and simple.</end quote></div> </P>
<P> </P>
<P>I have to disagree strongly.  This is neither a supportive post; nor an accurate one.</P>
<P> </P>
<P>Yes, sometimes people do "give up".  But since the OP has been listed for over a year that is clearly not the case.</P>
<P> </P>
<P>But just as likely it is possible to face death with dignity and grace.  We all die, some much younger than others.  To claim that accepting death and preparing for it is somehow giving up is insulting.</P>
<P> </P>
<P>Death is a uniquely personal act, nobody can tell you how or when you will die, and nobody can tell you how you should act when the time comes.</P>
<P>Some will fight to their dying breath; some will choose to go quietly with a loved one sitting beside them.  Neither is right or wrong, and nobody alive has the place to judge that decision.</P>
 
J

just1more

New member
<P><div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Incomudrox</b></i> It's time to die when you give up. Plain and simple.</end quote> </P>
<P></P>
<P>I have to disagree strongly. This is neither a supportive post; nor an accurate one.</P>
<P></P>
<P>Yes, sometimes people do "give up". But since the OP has been listed for over a year that is clearly not the case.</P>
<P></P>
<P>But just as likely it is possible to face death with dignity and grace. We all die, some much younger than others. To claim that accepting death and preparing for it is somehow giving up is insulting.</P>
<P></P>
<P>Death is a uniquely personal act, nobody can tell you how or when you will die, and nobody can tell you how you should act when the time comes.</P>
<P>Some will fight to their dying breath; some will choose to go quietly with a loved one sitting beside them. Neither is right or wrong, and nobody alive has the place to judge that decision.</P>
 
J

just1more

New member
<P><div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Incomudrox</b></i> It's time to die when you give up. Plain and simple.</end quote> </P>
<P></P>
<P>I have to disagree strongly. This is neither a supportive post; nor an accurate one.</P>
<P></P>
<P>Yes, sometimes people do "give up". But since the OP has been listed for over a year that is clearly not the case.</P>
<P></P>
<P>But just as likely it is possible to face death with dignity and grace. We all die, some much younger than others. To claim that accepting death and preparing for it is somehow giving up is insulting.</P>
<P></P>
<P>Death is a uniquely personal act, nobody can tell you how or when you will die, and nobody can tell you how you should act when the time comes.</P>
<P><BR>Some will fight to their dying breath; some will choose to go quietly with a loved one sitting beside them. Neither is right or wrong, and nobody alive has the place to judge that decision.</P>
 
J

JustDucky

New member
I agree with Tom. I too am a RN, when I was practicing I too cared for the dying. As Kristen stated, people have their own way of dealing with impending death and they do know when their time is near. If a patient said that they were going to die, I took it very seriously. It was always a feeling they would get, something they themselves had a hard time explaining to me when I asked them how they knew. Many would say they were just so tired, mentally and physically. The hardest ones to witness were the ones who struggled until the end, mentally they did not seem ready to go, but their bodies had other plans. Others were very much at peace. Those individuals had a look of tranquility about them, almost angelic. Some were scared, knew they were dying but were afraid of the unknown and if it would hurt. It was my job to comfort these people any way I could, medically and psychologically and I felt honored to care for them during their final journey.

Jenn 39 w/CF
 
J

JustDucky

New member
I agree with Tom. I too am a RN, when I was practicing I too cared for the dying. As Kristen stated, people have their own way of dealing with impending death and they do know when their time is near. If a patient said that they were going to die, I took it very seriously. It was always a feeling they would get, something they themselves had a hard time explaining to me when I asked them how they knew. Many would say they were just so tired, mentally and physically. The hardest ones to witness were the ones who struggled until the end, mentally they did not seem ready to go, but their bodies had other plans. Others were very much at peace. Those individuals had a look of tranquility about them, almost angelic. Some were scared, knew they were dying but were afraid of the unknown and if it would hurt. It was my job to comfort these people any way I could, medically and psychologically and I felt honored to care for them during their final journey.

Jenn 39 w/CF
 
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