When there's a cure.....

[jmiller]

I SOOO agree on the laughing - I want to silent laugh and not have it end in a cough! can't wait for that. And I look forward to how much more "together" the other parts of my life can potentially be. I feel like I use so much of my discipline on maintaining the CF routine (treatments, sanitizing nebs, etc etc) that I am just all "routined-out" and don't have the energy to keep the house in great order... my junk drawers from overflowing, etc <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />And I LOVE salt too... but I can sacrifice a little salt <img src="i/expressions/face-icon-small-smile.gif" border="0"> maybe we won't crave it as much post-cure <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[mamaScarlett]

It would be wonderful to not be chained to a chest pt routine that dictates my schedule each day. While I hear other moms whine about nonsense, I sit and think about how much I'd be able to do with an extra 2 hrs each day! (not counting pill time, nutritional time, and other cf related time stealers)

The only thing I would miss would be a couple nurses and my docs, who are really nice people. But I have a feeling I'd get over that pretty fast!

 

[mamaScarlett]

It would be wonderful to not be chained to a chest pt routine that dictates my schedule each day. While I hear other moms whine about nonsense, I sit and think about how much I'd be able to do with an extra 2 hrs each day! (not counting pill time, nutritional time, and other cf related time stealers)

The only thing I would miss would be a couple nurses and my docs, who are really nice people. But I have a feeling I'd get over that pretty fast!

 

[mamaScarlett]

It would be wonderful to not be chained to a chest pt routine that dictates my schedule each day. While I hear other moms whine about nonsense, I sit and think about how much I'd be able to do with an extra 2 hrs each day! (not counting pill time, nutritional time, and other cf related time stealers)
<br />
<br />The only thing I would miss would be a couple nurses and my docs, who are really nice people. But I have a feeling I'd get over that pretty fast!

 

[missT]

What I won't miss about having CF
1. coughing during sex---and basically all other times
2. throwing up mucus and the eye tearing, draining feeling that comes after it.
3. All the time I have spent going to CF clinic.
4. the looks and comments I get about my cough.
5. Feeling tired ALL the time...and out of breath.
6. Being afraid of getting sick-leaving events and parties if someone sneezes next to me.
7. Being afraid of having children, getting married, and most of all DYING YOUNG.
8. Needles and getting Picc lines put in.
9. having to hide my picc line in the summer monthes...also, taking a shower with a picc.
10. The endless amount of money and energy spent on insurance bills.
11. the fear and panic of my lungs collapsing again.
12. The endless tissues I go through..lol
What I will miss about CF
1. CF is a monster and I will not miss a single thing.
This was a great post...I dream of this day all the time...to just be normal. Can we all just be normal for a slice of our lives? We have all suffered enough.

 

[missT]

What I won't miss about having CF
1. coughing during sex---and basically all other times
2. throwing up mucus and the eye tearing, draining feeling that comes after it.
3. All the time I have spent going to CF clinic.
4. the looks and comments I get about my cough.
5. Feeling tired ALL the time...and out of breath.
6. Being afraid of getting sick-leaving events and parties if someone sneezes next to me.
7. Being afraid of having children, getting married, and most of all DYING YOUNG.
8. Needles and getting Picc lines put in.
9. having to hide my picc line in the summer monthes...also, taking a shower with a picc.
10. The endless amount of money and energy spent on insurance bills.
11. the fear and panic of my lungs collapsing again.
12. The endless tissues I go through..lol
What I will miss about CF
1. CF is a monster and I will not miss a single thing.
This was a great post...I dream of this day all the time...to just be normal. Can we all just be normal for a slice of our lives? We have all suffered enough.

 

[missT]

What I won't miss about having CF
<br />1. coughing during sex---and basically all other times
<br />2. throwing up mucus and the eye tearing, draining feeling that comes after it.
<br />3. All the time I have spent going to CF clinic.
<br />4. the looks and comments I get about my cough.
<br />5. Feeling tired ALL the time...and out of breath.
<br />6. Being afraid of getting sick-leaving events and parties if someone sneezes next to me.
<br />7. Being afraid of having children, getting married, and most of all DYING YOUNG.
<br />8. Needles and getting Picc lines put in.
<br />9. having to hide my picc line in the summer monthes...also, taking a shower with a picc.
<br />10. The endless amount of money and energy spent on insurance bills.
<br />11. the fear and panic of my lungs collapsing again.
<br />12. The endless tissues I go through..lol
<br />What I will miss about CF
<br />1. CF is a monster and I will not miss a single thing.
<br />This was a great post...I dream of this day all the time...to just be normal. Can we all just be normal for a slice of our lives? We have all suffered enough.

 

[Jeana]

I will not miss

waking up earlier than everyone else to do my meds and staying up later (listening to my husband snore like he is right now) to do my meds

telling my boys that I can't chase them because I am too out of breath

wondering if I will live to see my sons graduate from high school, marry, have grandbabies for me

coughing when I try to yell at someone (don't do this a lot, but once in a while)

coughing when I want to roll with laughter

coughing when I want to lie on my back, change sides while sleeping, run the air conditioner, drive to work, play a sport...

COUGHING, period.

 

[Jeana]

I will not miss

waking up earlier than everyone else to do my meds and staying up later (listening to my husband snore like he is right now) to do my meds

telling my boys that I can't chase them because I am too out of breath

wondering if I will live to see my sons graduate from high school, marry, have grandbabies for me

coughing when I try to yell at someone (don't do this a lot, but once in a while)

coughing when I want to roll with laughter

coughing when I want to lie on my back, change sides while sleeping, run the air conditioner, drive to work, play a sport...

COUGHING, period.

 

[Jeana]

I will not miss
<br />
<br />waking up earlier than everyone else to do my meds and staying up later (listening to my husband snore like he is right now) to do my meds
<br />
<br />telling my boys that I can't chase them because I am too out of breath
<br />
<br />wondering if I will live to see my sons graduate from high school, marry, have grandbabies for me
<br />
<br />coughing when I try to yell at someone (don't do this a lot, but once in a while)
<br />
<br />coughing when I want to roll with laughter
<br />
<br />coughing when I want to lie on my back, change sides while sleeping, run the air conditioner, drive to work, play a sport...
<br />
<br />COUGHING, period.

 

[gunelle]

I agree with most of what missT says. About being afraid when someone is sick around you, that you are going to catch it. The whole thing with children, will I be able to take care of a child, when I take so much time, taking care of myself. Not being able to go to bed at 6 in the evening and wake up at 1 in the next day if I feel like it. Being tired and not being able to do things others can. The aching body.

But I will miss the CF community. This site and other blogs I follow. The togetherness I feel when reading other stories similar to mine. That I am not alone in this. Although I was only diagnosed 2 and a half year ago, I feel CF is a part of me, my person. It's a part of me, and if that is gone, I think I will feel like something is missing. But that said, I wish to God that a cure will be found so children/people won't have to die.

 

[gunelle]

I agree with most of what missT says. About being afraid when someone is sick around you, that you are going to catch it. The whole thing with children, will I be able to take care of a child, when I take so much time, taking care of myself. Not being able to go to bed at 6 in the evening and wake up at 1 in the next day if I feel like it. Being tired and not being able to do things others can. The aching body.

But I will miss the CF community. This site and other blogs I follow. The togetherness I feel when reading other stories similar to mine. That I am not alone in this. Although I was only diagnosed 2 and a half year ago, I feel CF is a part of me, my person. It's a part of me, and if that is gone, I think I will feel like something is missing. But that said, I wish to God that a cure will be found so children/people won't have to die.

 

[gunelle]

I agree with most of what missT says. About being afraid when someone is sick around you, that you are going to catch it. The whole thing with children, will I be able to take care of a child, when I take so much time, taking care of myself. Not being able to go to bed at 6 in the evening and wake up at 1 in the next day if I feel like it. Being tired and not being able to do things others can. The aching body.
<br />
<br />But I will miss the CF community. This site and other blogs I follow. The togetherness I feel when reading other stories similar to mine. That I am not alone in this. Although I was only diagnosed 2 and a half year ago, I feel CF is a part of me, my person. It's a part of me, and if that is gone, I think I will feel like something is missing. But that said, I wish to God that a cure will be found so children/people won't have to die.

 

[theLostMiler]

I know i wont miss searching for a topic and reading through old threads only to see so many posters and repliers have gone home... Thats been on my mind a bit lately as it keeps happening to me :/

 

[theLostMiler]

I know i wont miss searching for a topic and reading through old threads only to see so many posters and repliers have gone home... Thats been on my mind a bit lately as it keeps happening to me :/

 

[theLostMiler]

I know i wont miss searching for a topic and reading through old threads only to see so many posters and repliers have gone home... Thats been on my mind a bit lately as it keeps happening to me :/

 

[Solo]

The absolute only thing I will miss is my excellent team of doctors/hospital staff. They are very knowledgeable and actually care about their patients. But that's it. There's a whole laundry list of things, mostly what others have said, but there is definitely no love loss between me and diabetes. I *think* I will somehow manage to endure the days without sticking myself before meals and checking my blood sugars. As if CF isn't bad enough, having diabetes on top of it is like throwing salt in an open wound.

 

[Solo]

The absolute only thing I will miss is my excellent team of doctors/hospital staff. They are very knowledgeable and actually care about their patients. But that's it. There's a whole laundry list of things, mostly what others have said, but there is definitely no love loss between me and diabetes. I *think* I will somehow manage to endure the days without sticking myself before meals and checking my blood sugars. As if CF isn't bad enough, having diabetes on top of it is like throwing salt in an open wound.

 

[Solo]

The absolute only thing I will miss is my excellent team of doctors/hospital staff. They are very knowledgeable and actually care about their patients. But that's it. There's a whole laundry list of things, mostly what others have said, but there is definitely no love loss between me and diabetes. I *think* I will somehow manage to endure the days without sticking myself before meals and checking my blood sugars. As if CF isn't bad enough, having diabetes on top of it is like throwing salt in an open wound.

 

[mamerth]

I agree with Solo. I will miss my doctors and nurses... we have become close.

I won't miss this disease at all.