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Where are we all from?
- Thread starter anonymous
- Start date
i am from Wisconsin, USA. I have a 2 year old son with CF (delta F508 mutation). Thankfully, he was diagnosed at his one week check up because WI is one of the few states in the US that screens newborns for 20 some different diseases, and CF happens to be one they screen for. I think it should be mandatory that each state screens newborns like WI does. It would save the families a lot of worry and headache and it would allow kids with CF to begin treatment right away!!Jodi, mom of Tucker w/cf
Hi, You know me, but not everyone does. I am from Montreal, Canada and I have a 3 year old daughter who was diagnosed at 8 weeks old. She is double Delta F508. She is pancreatic insufficient but her respiratory is good, aside from the odd cold. She used to get ear & sinus infections and also had reflux but seems to have outgrown all three (yeah!). Heather
AbsintheSorrow
New member
I'm from Connecticut, but I go to school in Boston (only 3 more weeks until summer!). My name is Emily, and I have one Delta F508, and one gene from my father, than when we were tested didn't even have a name yet. Don't know if it does now.
Hi,I'm Emily's mom. (Absinthesorrow several posts up) I am the Delta F508 and her dad is the mutant that 16 years ago was not yet identified. We live in a small town in Connecticut and Emily and her sister are 4th generation in this town. My grandfather was a founder in this town and I hope to grow old and die here! LOL <img src="i/expressions/face-icon-small-smile.gif" border="0">
Hey everybody, I am about the only one that I know of, whom doesn't know her daughters mutation. Does that make me a bad mother? We are from Sudbury, in Canada for those who don't know. My daughter was diagnosed at birth four years ago with CF, and I also have a three year old son wo/CF. Glad to talk to all of you, hope everything is great at your end. take care Nicky
Hi Nicky, I'm sure if you ask your clinic nurse she can tell you. It is important for them to know so I am sure it is in her file. It is not as important for you to know, so don't feel bad about that. We have enough on our plates as parents so don't add any pressure to yourself.
I also live in the Hamilton, Ontario area and attend McMaster CF Clinic. I have 14 yr old daughter with CF (diagnosed at age 6) and a 10 yr old son without CF.If the Mom who lives in Hamilton would like to contact me I'd love to talk - my e mail is :- quinn.ancaster@sympatico.ca.Colette