mamaScarlett
Active member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>AleksandraKaczynska</b></i>
If they are not intereset and seem not to believe us or take Asia's cf lightly - since Asia is in good health - I usually say something very simple and send them to the internet without telling where to look. These people seem to need scaring - it may sound horrible - but it works. </end quote><br>I agree 100%.<br>While I don't feel a need to explain the hard facts to aquaintences, I get so irritated at close friends and really irritated at relatives that should know better but don't. I especially see this with in law relatives, bc they haven't know me since birth when kids with cf didn't live past 12-they diminish what I have constantly and expect wayyyy too much of me. They've known me for ten years now, so there's really no excuse since they have seen me sick plenty of time. I can't tell you how many times I've wanted to yell "Google it!" to people. <br>And yes I've had the desire numerous times to tell the worst case scenario of things bc people just seem to think I have asthma or something. <br><br>People in general just don't know enough about Cf. I used to tell people that only about 30,000 americans have Cf. I don't do that anymore bc I think it makes people think its this weirdo ultra rare thing that is so rare they don't have to worry about it. #1-I don't believe that only 30,000 americans have it, I think its much more than that. #2-Theres tons of carriers out there. <br>
If they are not intereset and seem not to believe us or take Asia's cf lightly - since Asia is in good health - I usually say something very simple and send them to the internet without telling where to look. These people seem to need scaring - it may sound horrible - but it works. </end quote><br>I agree 100%.<br>While I don't feel a need to explain the hard facts to aquaintences, I get so irritated at close friends and really irritated at relatives that should know better but don't. I especially see this with in law relatives, bc they haven't know me since birth when kids with cf didn't live past 12-they diminish what I have constantly and expect wayyyy too much of me. They've known me for ten years now, so there's really no excuse since they have seen me sick plenty of time. I can't tell you how many times I've wanted to yell "Google it!" to people. <br>And yes I've had the desire numerous times to tell the worst case scenario of things bc people just seem to think I have asthma or something. <br><br>People in general just don't know enough about Cf. I used to tell people that only about 30,000 americans have Cf. I don't do that anymore bc I think it makes people think its this weirdo ultra rare thing that is so rare they don't have to worry about it. #1-I don't believe that only 30,000 americans have it, I think its much more than that. #2-Theres tons of carriers out there. <br>