rubyroselee
New member
Hi everyone,
Before I start, let me backtrack a little. In my teens and early twenties, my FEV1 hovered around 70-75%. I could count on it dipping down into the 60's when I wasn't feeling well. I never ever thought I'd see a day when I would hit 80%. But then, by some miracle about 5 years ago, I hit 81% and I could not believe my eyes! Over the past 5 years, I have slowly crept upwards from 85%, to 90%, to 95%, and even to 100%. So now my new baseline (which is amazing to me) is about 95%.
I had a regular clinic appointment a month ago and the doctor found a bit of mucus plugging in my lower left lobe on x-ray along with the doctor hearing a lot of junk down there. My PFT's were not affected at all during that appointment (FEV1 was 96%), but he told me to increase Pulmozyme to 2x/day and add some manual CPT to that area. So I did.
I had a follow-up to that appointment yesterday. I was pretty worried because I have a head cold a cough from the drainage. I was thinking I would be lucky if I was at my baseline. But to my complete surprise, I blew a 114%! WHAT?!?!?!?!
Could this measurement really be real? Has anyone ever had a dramatic increase like that? Sometimes I wonder if the machines are really accurate at my clinic. I guess I feel really good except for the head cold, so maybe it really is true. But goodness! I would have never expected those numbers. I am just worried that the machinery is not calibrated correctly, even though they confirmed that it was twice. I thought that the damage was already done when my PFT's were in the 60's and 70's.
Secondly, he said I have a new bacteria...but I can't remember the name of it. Can anyone give me some names of CF bugs that are somewhat common? I think if I saw the name I would know what it was. It was a name that I've heard of before, it's pretty common in CF, but it's not as common as staph or pseudomonas. Thanks.
Before I start, let me backtrack a little. In my teens and early twenties, my FEV1 hovered around 70-75%. I could count on it dipping down into the 60's when I wasn't feeling well. I never ever thought I'd see a day when I would hit 80%. But then, by some miracle about 5 years ago, I hit 81% and I could not believe my eyes! Over the past 5 years, I have slowly crept upwards from 85%, to 90%, to 95%, and even to 100%. So now my new baseline (which is amazing to me) is about 95%.
I had a regular clinic appointment a month ago and the doctor found a bit of mucus plugging in my lower left lobe on x-ray along with the doctor hearing a lot of junk down there. My PFT's were not affected at all during that appointment (FEV1 was 96%), but he told me to increase Pulmozyme to 2x/day and add some manual CPT to that area. So I did.
I had a follow-up to that appointment yesterday. I was pretty worried because I have a head cold a cough from the drainage. I was thinking I would be lucky if I was at my baseline. But to my complete surprise, I blew a 114%! WHAT?!?!?!?!
Could this measurement really be real? Has anyone ever had a dramatic increase like that? Sometimes I wonder if the machines are really accurate at my clinic. I guess I feel really good except for the head cold, so maybe it really is true. But goodness! I would have never expected those numbers. I am just worried that the machinery is not calibrated correctly, even though they confirmed that it was twice. I thought that the damage was already done when my PFT's were in the 60's and 70's.
Secondly, he said I have a new bacteria...but I can't remember the name of it. Can anyone give me some names of CF bugs that are somewhat common? I think if I saw the name I would know what it was. It was a name that I've heard of before, it's pretty common in CF, but it's not as common as staph or pseudomonas. Thanks.