Where were you...

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sawyer

New member
I've just been told I'm on the list two days ago and have lots and lots of questions. One thing I keep wondering is where I'll be when the call comes through and how will I react.

So I was wondering- to everyone who has received "The Call"- where were you? And what were your first thoughts?
 
S

sawyer

New member
I've just been told I'm on the list two days ago and have lots and lots of questions. One thing I keep wondering is where I'll be when the call comes through and how will I react.

So I was wondering- to everyone who has received "The Call"- where were you? And what were your first thoughts?
 
S

sawyer

New member
I've just been told I'm on the list two days ago and have lots and lots of questions. One thing I keep wondering is where I'll be when the call comes through and how will I react.
<br />
<br />So I was wondering- to everyone who has received "The Call"- where were you? And what were your first thoughts?
 
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summer732

New member
the first time I got called (it ended up being a dry run), I was on my couch sleeping off anesthesia. I was actually in the hospital that morning getting sinus catheters put in for intense tobi rinses. I got home, laid on the couch, the phone rang, and right up and out the door. My first reaction was to cry. It was an emotional call and I reacted with tears of happiness and of being terrified. Six hours later, and after not eating for almost 24 hours, I was told it was a dry run. When they told me it was a dry run, my first thought wasn't even being upset, it was "okay, can someone please go get me some food?".

The real call came at 7:30 in the morning. This time around, I was actually quite calm. I got out of bed, decided I really needed a shower and went to the hospital. I think the difference in my reaction to each call was due to the fact that I was finally ready when the real call came. It was 4 months in between the calls and in that 4 months, I had talked to so many post-transplant patients and asked every single question I could think of. I got to the point in my journey where I finally felt calm and at peace with my decision. And that's exactly when the call came, when I was ready for it!
 
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summer732

New member
the first time I got called (it ended up being a dry run), I was on my couch sleeping off anesthesia. I was actually in the hospital that morning getting sinus catheters put in for intense tobi rinses. I got home, laid on the couch, the phone rang, and right up and out the door. My first reaction was to cry. It was an emotional call and I reacted with tears of happiness and of being terrified. Six hours later, and after not eating for almost 24 hours, I was told it was a dry run. When they told me it was a dry run, my first thought wasn't even being upset, it was "okay, can someone please go get me some food?".

The real call came at 7:30 in the morning. This time around, I was actually quite calm. I got out of bed, decided I really needed a shower and went to the hospital. I think the difference in my reaction to each call was due to the fact that I was finally ready when the real call came. It was 4 months in between the calls and in that 4 months, I had talked to so many post-transplant patients and asked every single question I could think of. I got to the point in my journey where I finally felt calm and at peace with my decision. And that's exactly when the call came, when I was ready for it!
 
S

summer732

New member
the first time I got called (it ended up being a dry run), I was on my couch sleeping off anesthesia. I was actually in the hospital that morning getting sinus catheters put in for intense tobi rinses. I got home, laid on the couch, the phone rang, and right up and out the door. My first reaction was to cry. It was an emotional call and I reacted with tears of happiness and of being terrified. Six hours later, and after not eating for almost 24 hours, I was told it was a dry run. When they told me it was a dry run, my first thought wasn't even being upset, it was "okay, can someone please go get me some food?".
<br />
<br />The real call came at 7:30 in the morning. This time around, I was actually quite calm. I got out of bed, decided I really needed a shower and went to the hospital. I think the difference in my reaction to each call was due to the fact that I was finally ready when the real call came. It was 4 months in between the calls and in that 4 months, I had talked to so many post-transplant patients and asked every single question I could think of. I got to the point in my journey where I finally felt calm and at peace with my decision. And that's exactly when the call came, when I was ready for it!
 
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CountryGirl

New member
I had just gotten out of the hospital a few days before and thought I needed to go back in so I was at home calling my CF clinic back and forth about whether or not I should come back in or not. My CF nurse said she needed to go and would call me right back. I didn't suspect a thing but I would later find out they had gotten the news from my TX Drs that my lungs were in. This was around 330 in the afternoon and the TX surgeon called and said "we think we have lungs for you" and I said "Are you joking?" and he, in a serious voice as if I had asked him if pigs could fly said "No, how soon can you be here?" I immediatly started crying and called everyone I could think of.
My friend Amanda said she couldnt even understand what I was saying.
 
C

CountryGirl

New member
I had just gotten out of the hospital a few days before and thought I needed to go back in so I was at home calling my CF clinic back and forth about whether or not I should come back in or not. My CF nurse said she needed to go and would call me right back. I didn't suspect a thing but I would later find out they had gotten the news from my TX Drs that my lungs were in. This was around 330 in the afternoon and the TX surgeon called and said "we think we have lungs for you" and I said "Are you joking?" and he, in a serious voice as if I had asked him if pigs could fly said "No, how soon can you be here?" I immediatly started crying and called everyone I could think of.
My friend Amanda said she couldnt even understand what I was saying.
 
C

CountryGirl

New member
I had just gotten out of the hospital a few days before and thought I needed to go back in so I was at home calling my CF clinic back and forth about whether or not I should come back in or not. My CF nurse said she needed to go and would call me right back. I didn't suspect a thing but I would later find out they had gotten the news from my TX Drs that my lungs were in. This was around 330 in the afternoon and the TX surgeon called and said "we think we have lungs for you" and I said "Are you joking?" and he, in a serious voice as if I had asked him if pigs could fly said "No, how soon can you be here?" I immediatly started crying and called everyone I could think of.
<br />My friend Amanda said she couldnt even understand what I was saying.
 
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NYCLawGirl

New member
I was finishing a late dinner at a fancy restaurant with the family a little over a week ago. I raced home and changed and headed in. I was shell shocked but had been through so many dry runs and kept thinking "surely it won't happen like THIS!" it did though, and a little over a week later I am SO HAPPY and going home Thursday!
 
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NYCLawGirl

New member
I was finishing a late dinner at a fancy restaurant with the family a little over a week ago. I raced home and changed and headed in. I was shell shocked but had been through so many dry runs and kept thinking "surely it won't happen like THIS!" it did though, and a little over a week later I am SO HAPPY and going home Thursday!
 
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NYCLawGirl

New member
I was finishing a late dinner at a fancy restaurant with the family a little over a week ago. I raced home and changed and headed in. I was shell shocked but had been through so many dry runs and kept thinking "surely it won't happen like THIS!" it did though, and a little over a week later I am SO HAPPY and going home Thursday!
 
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coltsfan715

New member
I got my call at 2:15 in the morning roughly and was just laying down in bed to try and sleep. I was surprised when I got called honestly. I had only been listed about 6 weeks and I remember asking the doc about 3-4 times if he was sure they matched ME. He finally just laughed and said yes if they didn't I wouldn't be calling you. Then he asked me if I wanted them - I paused and thought about all the what ifs and then said yes. I ended up not going to the hospital until about 8am and waited at the hospital until about 9pm for them to take me to the preop area and then into the OR. I woke up at 5:30 am the next morning and had a new set of lungs. My surgery started technically at 10ish and ended at around 3:30am.

My first thoughts were actually if I really needed the transplant - I felt decent at the time but after thinking realized that the only reason I felt decent was because I had been on IVs for 3 weeks.

Lindsey
 
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coltsfan715

New member
I got my call at 2:15 in the morning roughly and was just laying down in bed to try and sleep. I was surprised when I got called honestly. I had only been listed about 6 weeks and I remember asking the doc about 3-4 times if he was sure they matched ME. He finally just laughed and said yes if they didn't I wouldn't be calling you. Then he asked me if I wanted them - I paused and thought about all the what ifs and then said yes. I ended up not going to the hospital until about 8am and waited at the hospital until about 9pm for them to take me to the preop area and then into the OR. I woke up at 5:30 am the next morning and had a new set of lungs. My surgery started technically at 10ish and ended at around 3:30am.

My first thoughts were actually if I really needed the transplant - I felt decent at the time but after thinking realized that the only reason I felt decent was because I had been on IVs for 3 weeks.

Lindsey
 
C

coltsfan715

New member
I got my call at 2:15 in the morning roughly and was just laying down in bed to try and sleep. I was surprised when I got called honestly. I had only been listed about 6 weeks and I remember asking the doc about 3-4 times if he was sure they matched ME. He finally just laughed and said yes if they didn't I wouldn't be calling you. Then he asked me if I wanted them - I paused and thought about all the what ifs and then said yes. I ended up not going to the hospital until about 8am and waited at the hospital until about 9pm for them to take me to the preop area and then into the OR. I woke up at 5:30 am the next morning and had a new set of lungs. My surgery started technically at 10ish and ended at around 3:30am.
<br />
<br />My first thoughts were actually if I really needed the transplant - I felt decent at the time but after thinking realized that the only reason I felt decent was because I had been on IVs for 3 weeks.
<br />
<br />Lindsey
 
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Lex

New member
I was living at the hospital pre-TX, waiting. I was there for about 4 weeks, with 3 false alarms.

Eventually, they tried to send me home. On the day of my discharge, while waiting for the valet parking to bring my car around, I got the call.

My first thought was, "Not again."

Bad attitude....and my wife quickly reminded me of my situation.

I had imagined getting the call in every possible circumstance....while sleeping, showering, driving around, sitting on the couch.....etc. Never, never, did I imagine how it went down. I'm sure this echoes many stories.
 
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Lex

New member
I was living at the hospital pre-TX, waiting. I was there for about 4 weeks, with 3 false alarms.

Eventually, they tried to send me home. On the day of my discharge, while waiting for the valet parking to bring my car around, I got the call.

My first thought was, "Not again."

Bad attitude....and my wife quickly reminded me of my situation.

I had imagined getting the call in every possible circumstance....while sleeping, showering, driving around, sitting on the couch.....etc. Never, never, did I imagine how it went down. I'm sure this echoes many stories.
 
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