Which clinical trial are you in?

S

saveferris2009

New member
<b><u>One of the biggest barriers sitting between CFer's and new meds is clinical trial participation. </b></u>

I know many are doing their part by participating in clinical trials. I've heard amazing stories from those in denufosol, vertex, gilead trials, just to name a few.

I'd love to start a thread where those who have recently participated can talk about their experiences (good and bad).

Raising awareness for all of us about clinical trials is important - plus it's fun to get excited about the great experiences people have had on these new drugs.

(P.S. I realize Vertex is requiring people to sign confidentiality agreements now, so of course please don't violate those
).

And if you WANT to participate in a trial (remember, it doesn't have to be at your CF center), visit:

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/research/ClinicalResearch/Find/
">http://www.cff.org/research/ClinicalResearch/Find/
</a>


FIGHT ON
 
S

saveferris2009

New member
<b><u>One of the biggest barriers sitting between CFer's and new meds is clinical trial participation. </b></u>

I know many are doing their part by participating in clinical trials. I've heard amazing stories from those in denufosol, vertex, gilead trials, just to name a few.

I'd love to start a thread where those who have recently participated can talk about their experiences (good and bad).

Raising awareness for all of us about clinical trials is important - plus it's fun to get excited about the great experiences people have had on these new drugs.

(P.S. I realize Vertex is requiring people to sign confidentiality agreements now, so of course please don't violate those
).

And if you WANT to participate in a trial (remember, it doesn't have to be at your CF center), visit:

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/research/ClinicalResearch/Find/
">http://www.cff.org/research/ClinicalResearch/Find/
</a>


FIGHT ON
 
S

saveferris2009

New member
<b><u>One of the biggest barriers sitting between CFer's and new meds is clinical trial participation. </b></u>

I know many are doing their part by participating in clinical trials. I've heard amazing stories from those in denufosol, vertex, gilead trials, just to name a few.

I'd love to start a thread where those who have recently participated can talk about their experiences (good and bad).

Raising awareness for all of us about clinical trials is important - plus it's fun to get excited about the great experiences people have had on these new drugs.

(P.S. I realize Vertex is requiring people to sign confidentiality agreements now, so of course please don't violate those
).

And if you WANT to participate in a trial (remember, it doesn't have to be at your CF center), visit:

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/research/ClinicalResearch/Find/
">http://www.cff.org/research/ClinicalResearch/Find/
</a>


FIGHT ON
 
S

saveferris2009

New member
<b><u>One of the biggest barriers sitting between CFer's and new meds is clinical trial participation. </b></u>

I know many are doing their part by participating in clinical trials. I've heard amazing stories from those in denufosol, vertex, gilead trials, just to name a few.

I'd love to start a thread where those who have recently participated can talk about their experiences (good and bad).

Raising awareness for all of us about clinical trials is important - plus it's fun to get excited about the great experiences people have had on these new drugs.

(P.S. I realize Vertex is requiring people to sign confidentiality agreements now, so of course please don't violate those
).

And if you WANT to participate in a trial (remember, it doesn't have to be at your CF center), visit:

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/research/ClinicalResearch/Find/
">http://www.cff.org/research/ClinicalResearch/Find/
</a>


FIGHT ON
 
S

saveferris2009

New member
<b><u>One of the biggest barriers sitting between CFer's and new meds is clinical trial participation. </b></u>
<br />
<br />I know many are doing their part by participating in clinical trials. I've heard amazing stories from those in denufosol, vertex, gilead trials, just to name a few.
<br />
<br />I'd love to start a thread where those who have recently participated can talk about their experiences (good and bad).
<br />
<br />Raising awareness for all of us about clinical trials is important - plus it's fun to get excited about the great experiences people have had on these new drugs.
<br />
<br />(P.S. I realize Vertex is requiring people to sign confidentiality agreements now, so of course please don't violate those
).
<br />
<br />And if you WANT to participate in a trial (remember, it doesn't have to be at your CF center), visit:
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/research/ClinicalResearch/Find/
">http://www.cff.org/research/ClinicalResearch/Find/
</a><br />
<br />
<br />
<br />FIGHT ON
 
B

Brad

New member
<br /> It worked for me.
<br />
<br /> Does the link to your blog work? if so, this one should also..
 
I

Imogene

Administrator
Our link is a work in progress...

but it includes the travel distance. Thanks CF Health Opinion Leaders for the great suggestion!

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosis.com/clinicalTrial/">find the nearest clinical trial....</a>

Jeanne
 
I

Imogene

Administrator
Our link is a work in progress...

but it includes the travel distance. Thanks CF Health Opinion Leaders for the great suggestion!

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosis.com/clinicalTrial/">find the nearest clinical trial....</a>

Jeanne
 
I

Imogene

Administrator
Our link is a work in progress...

but it includes the travel distance. Thanks CF Health Opinion Leaders for the great suggestion!

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosis.com/clinicalTrial/">find the nearest clinical trial....</a>

Jeanne
 
I

Imogene

Administrator
Our link is a work in progress...

but it includes the travel distance. Thanks CF Health Opinion Leaders for the great suggestion!

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosis.com/clinicalTrial/">find the nearest clinical trial....</a>

Jeanne
 
I

Imogene

Administrator
Our link is a work in progress...
<br />
<br />but it includes the travel distance. Thanks CF Health Opinion Leaders for the great suggestion!
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosis.com/clinicalTrial/">find the nearest clinical trial....</a>
<br />
<br />Jeanne
 
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