M
Mommafirst
Guest
Hi! I've been lurking around here about a month. I'm
new to the CF world. My 6 month old daughter was
recently diagnosed with "genetic" CF, but right now
is being considered asymptomatic. Other than MI at birth, she
is doing well. She did culture staph at our diagnosis clinic
appt, so they may not think she's asymptomatic anymore.
Anyway, before my daughter was born we moved to a new town.
I'd like to join a moms group with playgroups for my kids,
but I'm not sure whether I should discuss the CF in a brand new
situation. I'm concerned mostly about my daughter getting a
label that will follow her at least through high school. We
live in a small town and these moms will likely be the PTA moms of
the future.<br>
<br>
If I keep it to ourselves they'll likely think I'm a lunatic with
the purell and cleaning, but I'd rather be the one with the
weirdo tag.<br>
<br>
Any thoughts from those who have been there on who I should and
shouldn't tell?<br>
<br>
thanks,<br>
Heather<br>
<br>
mom to Alyssa --6mos w/cf and Richie (5) & Reese (2.5)
both being tested
new to the CF world. My 6 month old daughter was
recently diagnosed with "genetic" CF, but right now
is being considered asymptomatic. Other than MI at birth, she
is doing well. She did culture staph at our diagnosis clinic
appt, so they may not think she's asymptomatic anymore.
Anyway, before my daughter was born we moved to a new town.
I'd like to join a moms group with playgroups for my kids,
but I'm not sure whether I should discuss the CF in a brand new
situation. I'm concerned mostly about my daughter getting a
label that will follow her at least through high school. We
live in a small town and these moms will likely be the PTA moms of
the future.<br>
<br>
If I keep it to ourselves they'll likely think I'm a lunatic with
the purell and cleaning, but I'd rather be the one with the
weirdo tag.<br>
<br>
Any thoughts from those who have been there on who I should and
shouldn't tell?<br>
<br>
thanks,<br>
Heather<br>
<br>
mom to Alyssa --6mos w/cf and Richie (5) & Reese (2.5)
both being tested