Why do people bother

C

CFTEAMA

New member
This is not an issue. Yes I do have cystic fibrosis I have an atypical case of CF. I was dx as a young teen. This is not unsual. I take treatments everyday 2x day to keep my lungs at the best they can be. I also have CVID this is an immune issue. I get sick with severe infection fast. I have had MRSA 4 times on my skin. and a blood infection I also have Anemia and pre-cancerous cells from to many x-rays. I have had x-rays since birth for congenital hip issues.

And yes I have DF508 and M470V so my case is different from the norm. I do not and have never be dx with Munchausen Syndrome. It is a serious illness of the mind and I have seen a women with it at the docs once. She would keep saying that her babys feet where swelling. when they where not. She was quite mentally impaired and was putting her baby in danger! However, I do have Asbergers Syndrome with a very high IQ. and this can make is hard for me to talk and say whats on my mind sometimes.

I was dx with CF at our U center. My docs I have now have been talking to the U. About my care. Now becuase I have CVID and CF things get very very hard to work with. with CVID everything can make you sick. I hope it is clear now what I am saying.

Due to the illnesses I have not done any of the rites of passage that everyone does.

I do not drive
I do not go to school
and I do not have a job.
I never could graduate from high school
But I want to be a gentic doctor.

-------------------------
I AM SORRY OK. now plase say your sorry to.
 
C

CFTEAMA

New member
This is not an issue. Yes I do have cystic fibrosis I have an atypical case of CF. I was dx as a young teen. This is not unsual. I take treatments everyday 2x day to keep my lungs at the best they can be. I also have CVID this is an immune issue. I get sick with severe infection fast. I have had MRSA 4 times on my skin. and a blood infection I also have Anemia and pre-cancerous cells from to many x-rays. I have had x-rays since birth for congenital hip issues.

And yes I have DF508 and M470V so my case is different from the norm. I do not and have never be dx with Munchausen Syndrome. It is a serious illness of the mind and I have seen a women with it at the docs once. She would keep saying that her babys feet where swelling. when they where not. She was quite mentally impaired and was putting her baby in danger! However, I do have Asbergers Syndrome with a very high IQ. and this can make is hard for me to talk and say whats on my mind sometimes.

I was dx with CF at our U center. My docs I have now have been talking to the U. About my care. Now becuase I have CVID and CF things get very very hard to work with. with CVID everything can make you sick. I hope it is clear now what I am saying.

Due to the illnesses I have not done any of the rites of passage that everyone does.

I do not drive
I do not go to school
and I do not have a job.
I never could graduate from high school
But I want to be a gentic doctor.

-------------------------
I AM SORRY OK. now plase say your sorry to.
 
C

CFTEAMA

New member
This is not an issue. Yes I do have cystic fibrosis I have an atypical case of CF. I was dx as a young teen. This is not unsual. I take treatments everyday 2x day to keep my lungs at the best they can be. I also have CVID this is an immune issue. I get sick with severe infection fast. I have had MRSA 4 times on my skin. and a blood infection I also have Anemia and pre-cancerous cells from to many x-rays. I have had x-rays since birth for congenital hip issues.

And yes I have DF508 and M470V so my case is different from the norm. I do not and have never be dx with Munchausen Syndrome. It is a serious illness of the mind and I have seen a women with it at the docs once. She would keep saying that her babys feet where swelling. when they where not. She was quite mentally impaired and was putting her baby in danger! However, I do have Asbergers Syndrome with a very high IQ. and this can make is hard for me to talk and say whats on my mind sometimes.

I was dx with CF at our U center. My docs I have now have been talking to the U. About my care. Now becuase I have CVID and CF things get very very hard to work with. with CVID everything can make you sick. I hope it is clear now what I am saying.

Due to the illnesses I have not done any of the rites of passage that everyone does.

I do not drive
I do not go to school
and I do not have a job.
I never could graduate from high school
But I want to be a gentic doctor.

-------------------------
I AM SORRY OK. now plase say your sorry to.
 
C

CFTEAMA

New member
This is not an issue. Yes I do have cystic fibrosis I have an atypical case of CF. I was dx as a young teen. This is not unsual. I take treatments everyday 2x day to keep my lungs at the best they can be. I also have CVID this is an immune issue. I get sick with severe infection fast. I have had MRSA 4 times on my skin. and a blood infection I also have Anemia and pre-cancerous cells from to many x-rays. I have had x-rays since birth for congenital hip issues.

And yes I have DF508 and M470V so my case is different from the norm. I do not and have never be dx with Munchausen Syndrome. It is a serious illness of the mind and I have seen a women with it at the docs once. She would keep saying that her babys feet where swelling. when they where not. She was quite mentally impaired and was putting her baby in danger! However, I do have Asbergers Syndrome with a very high IQ. and this can make is hard for me to talk and say whats on my mind sometimes.

I was dx with CF at our U center. My docs I have now have been talking to the U. About my care. Now becuase I have CVID and CF things get very very hard to work with. with CVID everything can make you sick. I hope it is clear now what I am saying.

Due to the illnesses I have not done any of the rites of passage that everyone does.

I do not drive
I do not go to school
and I do not have a job.
I never could graduate from high school
But I want to be a gentic doctor.

-------------------------
I AM SORRY OK. now plase say your sorry to.
 
C

CFTEAMA

New member
This is not an issue. Yes I do have cystic fibrosis I have an atypical case of CF. I was dx as a young teen. This is not unsual. I take treatments everyday 2x day to keep my lungs at the best they can be. I also have CVID this is an immune issue. I get sick with severe infection fast. I have had MRSA 4 times on my skin. and a blood infection I also have Anemia and pre-cancerous cells from to many x-rays. I have had x-rays since birth for congenital hip issues.
<br />
<br />And yes I have DF508 and M470V so my case is different from the norm. I do not and have never be dx with Munchausen Syndrome. It is a serious illness of the mind and I have seen a women with it at the docs once. She would keep saying that her babys feet where swelling. when they where not. She was quite mentally impaired and was putting her baby in danger! However, I do have Asbergers Syndrome with a very high IQ. and this can make is hard for me to talk and say whats on my mind sometimes.
<br />
<br />I was dx with CF at our U center. My docs I have now have been talking to the U. About my care. Now becuase I have CVID and CF things get very very hard to work with. with CVID everything can make you sick. I hope it is clear now what I am saying.
<br />
<br />Due to the illnesses I have not done any of the rites of passage that everyone does.
<br />
<br />I do not drive
<br />I do not go to school
<br />and I do not have a job.
<br />I never could graduate from high school
<br />But I want to be a gentic doctor.
<br />
<br />-------------------------
<br />I AM SORRY OK. now plase say your sorry to.
 
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