Why do you come to this site?

[Jane]

I come here to learn more about the disease my boys are progressing into.

I come here to listen to stories of how others deal with their daily stresses because it helps me know there are others like me and my family.

I come here because most people I know don't understand what it is like to raise children with CF.

I come here because I learn more about living with CF from interesting, intelligent, compassionate, people with Cf than our doctors.

I come here because it makes me feel good when I can offer some helpful advice to others.

I come here because sometimes watching other people's drama is easier than watching my own.

 

[CowTown]

I first started to come here to get inspiration for exercising. I was unmotivated and needed some encouragement from ppl with cf. I think I got that and now, I keep coming here to be around others who have cf and have to deal with ongoing stuff - like me. The vocabulary used here can basically only be understood here, not with most other people in my life. Other people don't get "ports, piccs, ivs, vests, PFTs, zithromycin side effects, cough-gag-cough-vomit-ahhhhh," and so on. This is a regular world for me, and yet no one else that I know of in person can relate. This is why I keep coming here now.

 

[CowTown]

I first started to come here to get inspiration for exercising. I was unmotivated and needed some encouragement from ppl with cf. I think I got that and now, I keep coming here to be around others who have cf and have to deal with ongoing stuff - like me. The vocabulary used here can basically only be understood here, not with most other people in my life. Other people don't get "ports, piccs, ivs, vests, PFTs, zithromycin side effects, cough-gag-cough-vomit-ahhhhh," and so on. This is a regular world for me, and yet no one else that I know of in person can relate. This is why I keep coming here now.

 

[CowTown]

I first started to come here to get inspiration for exercising. I was unmotivated and needed some encouragement from ppl with cf. I think I got that and now, I keep coming here to be around others who have cf and have to deal with ongoing stuff - like me. The vocabulary used here can basically only be understood here, not with most other people in my life. Other people don't get "ports, piccs, ivs, vests, PFTs, zithromycin side effects, cough-gag-cough-vomit-ahhhhh," and so on. This is a regular world for me, and yet no one else that I know of in person can relate. This is why I keep coming here now.

 

[Allie]

I think of this place like a big extended family too, like a constant family reunion. There will be people you can't stand, people you adore, and the one guy who always get drunk and tries to make out with his cousin.

 

[Allie]

I think of this place like a big extended family too, like a constant family reunion. There will be people you can't stand, people you adore, and the one guy who always get drunk and tries to make out with his cousin.

 

[Allie]

I think of this place like a big extended family too, like a constant family reunion. There will be people you can't stand, people you adore, and the one guy who always get drunk and tries to make out with his cousin.

 

[JazzysMom]

This group is my family, my outlet & my connection to those that truly get it. Yes I have my husband & daughter, yes I have friends outside of the virtual world. I originally came here to find someone that understood what I was going thru. I ended up finding more than that. I found I can offer info to people. I can lend an ear or a hand. yes we have arguments & yes the last thing I want in my life is more fighting, but when its all said & done I love everyone. I might not agree with everyone, but I love them.

 

[JazzysMom]

This group is my family, my outlet & my connection to those that truly get it. Yes I have my husband & daughter, yes I have friends outside of the virtual world. I originally came here to find someone that understood what I was going thru. I ended up finding more than that. I found I can offer info to people. I can lend an ear or a hand. yes we have arguments & yes the last thing I want in my life is more fighting, but when its all said & done I love everyone. I might not agree with everyone, but I love them.

 

[JazzysMom]

This group is my family, my outlet & my connection to those that truly get it. Yes I have my husband & daughter, yes I have friends outside of the virtual world. I originally came here to find someone that understood what I was going thru. I ended up finding more than that. I found I can offer info to people. I can lend an ear or a hand. yes we have arguments & yes the last thing I want in my life is more fighting, but when its all said & done I love everyone. I might not agree with everyone, but I love them.

 

[LisaV]

I come to

- share experience, strength, and hope
- learn from people who are affected by cf but from a different angle than me
- hang out with people who have become friends - like family- and who get my outlook on life which has been changed permanently by having the privledge of living with my late husband

 

[LisaV]

I come to

- share experience, strength, and hope
- learn from people who are affected by cf but from a different angle than me
- hang out with people who have become friends - like family- and who get my outlook on life which has been changed permanently by having the privledge of living with my late husband

 

[LisaV]

I come to

- share experience, strength, and hope
- learn from people who are affected by cf but from a different angle than me
- hang out with people who have become friends - like family- and who get my outlook on life which has been changed permanently by having the privledge of living with my late husband

 

[icefisherman]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Allie</b></i>

I think of this place like a big extended family too, like a constant family reunion. There will be people you can't stand, people you adore, and the one guy who always get drunk and tries to make out with his cousin.</end quote></div>

hey, why do you have to rat on me like that!
lol, j/k.
I come here to see how different people deal with the situation, and see what the normal is for things. It's also a great place to get answers to anything from "real people". people disagree and have different views, but all in all we are a whole with one thing in common. People are here when i need them, and i try to be there for everyone. that's why i come back.
Ben

 

[icefisherman]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Allie</b></i>

I think of this place like a big extended family too, like a constant family reunion. There will be people you can't stand, people you adore, and the one guy who always get drunk and tries to make out with his cousin.</end quote></div>

hey, why do you have to rat on me like that!
lol, j/k.
I come here to see how different people deal with the situation, and see what the normal is for things. It's also a great place to get answers to anything from "real people". people disagree and have different views, but all in all we are a whole with one thing in common. People are here when i need them, and i try to be there for everyone. that's why i come back.
Ben

 

[icefisherman]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Allie</b></i>

I think of this place like a big extended family too, like a constant family reunion. There will be people you can't stand, people you adore, and the one guy who always get drunk and tries to make out with his cousin.</end quote></div>

hey, why do you have to rat on me like that!
lol, j/k.
I come here to see how different people deal with the situation, and see what the normal is for things. It's also a great place to get answers to anything from "real people". people disagree and have different views, but all in all we are a whole with one thing in common. People are here when i need them, and i try to be there for everyone. that's why i come back.
Ben

 

[spicyone18]

I don't remember how I stumbled apawn this site. But I continue to visit this site b/c I to see it as a family. I don't post to often but I do read just about everything. LOL I come to learn of others experiences that I may face one day. I also continue to visit simply b/c I've come addicted to it. <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[spicyone18]

I don't remember how I stumbled apawn this site. But I continue to visit this site b/c I to see it as a family. I don't post to often but I do read just about everything. LOL I come to learn of others experiences that I may face one day. I also continue to visit simply b/c I've come addicted to it. <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[spicyone18]

I don't remember how I stumbled apawn this site. But I continue to visit this site b/c I to see it as a family. I don't post to often but I do read just about everything. LOL I come to learn of others experiences that I may face one day. I also continue to visit simply b/c I've come addicted to it. <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[coltsfan715]

I stumbled across this site about a year ago. Actually around this time last year (maybe November). I was having a hard time emotionally with CF and feeling like I was fighting a losing battle - and even worse fighting with a bunch of people that didn't understand because they didn't have CF. I had been doing everything like my doctors said and still I kept getting sick. I had a partial lung collapse and the climb back from that has been horrendously long. I was in the armpit of that climb back when I started searching for info online.

I was doing general searches for alternative therapies and treatments for CF. I am not sure of the search I did that brought this site up, but something I searched for did. I came to this site and was amazed. I had not had many people with CF in my life in recent years (I had a hard time as my friends began passing away when I was younger so I withdrew from others with CF) and I found myself drawn to these people. They were people like me and surprisingly(to me) there were so many people my age and older. There were people that had been sick and had been able to climb out of the hole and there were people that were not that fortunate. I will say though .. there were enough people that had made the climb back up (at least a little bit) that it gave me hope.

That is part of the reason I started coming here. I will say when I first started frequenting the boards I was an anon. I posted and signed my name but I did not have a user ID for several months and to be honest I almost left never to return because of some of the people on here and their attitudes. I didn't check the boards for several weeks after about a month of coming around. Then I had a problem and I didn't know what to do about it ... I didn't know where to go to get more info - the ONLY place I could think of was "that site," so I came back. I posted my question and had a ton of response with good info that actually lefd to getting the problem resolved. I got a user ID shortly after that, and I have been coming around ever since.

I came here looking for info, looking for hope and inspiration that things could get better for me, and that I hadn't slipped on that banana peel to never get up off the ground. I stay because I have met some wonderful people, made wonderful friendships and truly care about the people on this site. I don't know what I would do if I were unable to come here anymore. I can honestly say I have NEVER been this attached to anything online before EVER, but this IS my other family .... I just hope I am NOT the drunk crazy cousin that I hear people talking about ... then again if I am I guess there ARE worse things lol.

Some people on here can be rough around the edges ... trust me I almost stopped coming here because of some of the people (they will remain nameless). Then I realized just because they are not all people I would hang out with in person doesn't mean I should deny myself the opportunity to get to know the other people on this site. It also doesn't mean I should deny myself the chance to get such great info from such qualified sources. We all have so much info to impart to one another, so many experiences to share, so much hope and joy to spread to one another (along with some harsh doses of reality at times) and also plenty of shoulders to go around when we need one to cry on. I love this place and the people in it - that is why I keep coming back.

Take Care,
Lindsey