Why do you resist getting a port?

T

tleigh

New member
I had to smile when I read Skye's reply. I have a port-I am actually on my second one. I had one for four years and just a month ago it was replaced. However, I had to smile because I am debating getting an insulin pump!

I would highly recommend the port. As others have said it has made treatment much easier. One of things I have realized is that I am much more likely to do maintenance if it is convenient. The port is just that. I have MRSA along with M. Cheloni so I understand the concern of picking up bacteria. However, with the port I do all of my IV's through home health-staying away from picking up new bugs at the hospital really appeals to me!
 
T

tleigh

New member
I had to smile when I read Skye's reply. I have a port-I am actually on my second one. I had one for four years and just a month ago it was replaced. However, I had to smile because I am debating getting an insulin pump!

I would highly recommend the port. As others have said it has made treatment much easier. One of things I have realized is that I am much more likely to do maintenance if it is convenient. The port is just that. I have MRSA along with M. Cheloni so I understand the concern of picking up bacteria. However, with the port I do all of my IV's through home health-staying away from picking up new bugs at the hospital really appeals to me!
 
T

tleigh

New member
I had to smile when I read Skye's reply. I have a port-I am actually on my second one. I had one for four years and just a month ago it was replaced. However, I had to smile because I am debating getting an insulin pump!

I would highly recommend the port. As others have said it has made treatment much easier. One of things I have realized is that I am much more likely to do maintenance if it is convenient. The port is just that. I have MRSA along with M. Cheloni so I understand the concern of picking up bacteria. However, with the port I do all of my IV's through home health-staying away from picking up new bugs at the hospital really appeals to me!
 
T

tleigh

New member
I had to smile when I read Skye's reply. I have a port-I am actually on my second one. I had one for four years and just a month ago it was replaced. However, I had to smile because I am debating getting an insulin pump!

I would highly recommend the port. As others have said it has made treatment much easier. One of things I have realized is that I am much more likely to do maintenance if it is convenient. The port is just that. I have MRSA along with M. Cheloni so I understand the concern of picking up bacteria. However, with the port I do all of my IV's through home health-staying away from picking up new bugs at the hospital really appeals to me!
 
T

tleigh

New member
I had to smile when I read Skye's reply. I have a port-I am actually on my second one. I had one for four years and just a month ago it was replaced. However, I had to smile because I am debating getting an insulin pump!

I would highly recommend the port. As others have said it has made treatment much easier. One of things I have realized is that I am much more likely to do maintenance if it is convenient. The port is just that. I have MRSA along with M. Cheloni so I understand the concern of picking up bacteria. However, with the port I do all of my IV's through home health-staying away from picking up new bugs at the hospital really appeals to me!
 
L

LouLou

New member
Thank you everyone for your thoughtful replies. I will be going ahead with port placement in the next week or two. I'll let you all know how it goes.
 
L

LouLou

New member
Thank you everyone for your thoughtful replies. I will be going ahead with port placement in the next week or two. I'll let you all know how it goes.
 
L

LouLou

New member
Thank you everyone for your thoughtful replies. I will be going ahead with port placement in the next week or two. I'll let you all know how it goes.
 
L

LouLou

New member
Thank you everyone for your thoughtful replies. I will be going ahead with port placement in the next week or two. I'll let you all know how it goes.
 
L

LouLou

New member
Thank you everyone for your thoughtful replies. I will be going ahead with port placement in the next week or two. I'll let you all know how it goes.
 
I

iwantmypup

New member
"Feel like getting a port is "the beginning of the end.""
That's how I feel, replys on this forum have helped me, but that is definitely how I mostly felt.
I imagine that somewhere along the line, I'll get one..but until then, I am trying my hardest to not be hospitalized, so I won't have to get a PICC so much, so then I wouldn't need a port, haha

good luck with the placement!
 
I

iwantmypup

New member
"Feel like getting a port is "the beginning of the end.""
That's how I feel, replys on this forum have helped me, but that is definitely how I mostly felt.
I imagine that somewhere along the line, I'll get one..but until then, I am trying my hardest to not be hospitalized, so I won't have to get a PICC so much, so then I wouldn't need a port, haha

good luck with the placement!
 
I

iwantmypup

New member
"Feel like getting a port is "the beginning of the end.""
That's how I feel, replys on this forum have helped me, but that is definitely how I mostly felt.
I imagine that somewhere along the line, I'll get one..but until then, I am trying my hardest to not be hospitalized, so I won't have to get a PICC so much, so then I wouldn't need a port, haha

good luck with the placement!
 
I

iwantmypup

New member
"Feel like getting a port is "the beginning of the end.""
That's how I feel, replys on this forum have helped me, but that is definitely how I mostly felt.
I imagine that somewhere along the line, I'll get one..but until then, I am trying my hardest to not be hospitalized, so I won't have to get a PICC so much, so then I wouldn't need a port, haha

good luck with the placement!
 
I

iwantmypup

New member
<br />
<br />"Feel like getting a port is "the beginning of the end.""
<br />That's how I feel, replys on this forum have helped me, but that is definitely how I mostly felt.
<br />I imagine that somewhere along the line, I'll get one..but until then, I am trying my hardest to not be hospitalized, so I won't have to get a PICC so much, so then I wouldn't need a port, haha
<br />
<br />good luck with the placement!
 
M

meggzzie

Guest
I was pretty hesitant about getting a port, mainly as I was 11 and hated the idea of an op to get it. But i'd been getting IVs every 3-4 months since I was 7 and it just made sense. They'd already wrecked one vein, to the point where it was once nice and fat and bouncy, to become a non-existent vein with the nick name 'woody'. I also didn't like the idea of needing it flushed every month.

I got the port and it was SO much easier. I didn't have to explain why I had a bandage round my arm (or my wrist - they used the veins on the side if my wrists for the last few picc lines before i got my port) and more importantly, I never used to fully use my arm when there was a picc line in it. For some weird reason i would refuse to bend my arm for the two weeks when it was in the bend of my elbow. which frustrated many people. So having full mobility back was good.

The ONLY downside was that my first port blocked after a few months, although I think this is cause they tried to take blood from it and it didn't agree. And when it was due a flush, in popped the needle, they tried to flush it with saline, and it wouldn't budge. And the tube in my neck hurt like hell. My second port lasted for 5 years (im proud of that) and number 3 is going strong after 1 1/2 years.

However, whenever they flush it, i do hold my breath for a second, hoping its gonna work. I ALWAYS worry it's going to block! oh, I suppose the scars are a downside, but its easy to ignore them. I've never been a strapless top kinda girl anyway. It is a bit obvious given the fact im CFer skinny, but I'm trying to gain weight so hopefully this will become less obvious.

I think the best thing is that I can't feel the meds. In a picc, i would always have and uncomfortable, sometimes actually painful feeling. A cold IV on a hot day is heaven!

Oh and it was never the beginning of the end for me. My pfts now are 60-70 and im improving them now through exercise. I dont know how high they were when I was 11!
 
M

meggzzie

Guest
I was pretty hesitant about getting a port, mainly as I was 11 and hated the idea of an op to get it. But i'd been getting IVs every 3-4 months since I was 7 and it just made sense. They'd already wrecked one vein, to the point where it was once nice and fat and bouncy, to become a non-existent vein with the nick name 'woody'. I also didn't like the idea of needing it flushed every month.

I got the port and it was SO much easier. I didn't have to explain why I had a bandage round my arm (or my wrist - they used the veins on the side if my wrists for the last few picc lines before i got my port) and more importantly, I never used to fully use my arm when there was a picc line in it. For some weird reason i would refuse to bend my arm for the two weeks when it was in the bend of my elbow. which frustrated many people. So having full mobility back was good.

The ONLY downside was that my first port blocked after a few months, although I think this is cause they tried to take blood from it and it didn't agree. And when it was due a flush, in popped the needle, they tried to flush it with saline, and it wouldn't budge. And the tube in my neck hurt like hell. My second port lasted for 5 years (im proud of that) and number 3 is going strong after 1 1/2 years.

However, whenever they flush it, i do hold my breath for a second, hoping its gonna work. I ALWAYS worry it's going to block! oh, I suppose the scars are a downside, but its easy to ignore them. I've never been a strapless top kinda girl anyway. It is a bit obvious given the fact im CFer skinny, but I'm trying to gain weight so hopefully this will become less obvious.

I think the best thing is that I can't feel the meds. In a picc, i would always have and uncomfortable, sometimes actually painful feeling. A cold IV on a hot day is heaven!

Oh and it was never the beginning of the end for me. My pfts now are 60-70 and im improving them now through exercise. I dont know how high they were when I was 11!
 
M

meggzzie

Guest
I was pretty hesitant about getting a port, mainly as I was 11 and hated the idea of an op to get it. But i'd been getting IVs every 3-4 months since I was 7 and it just made sense. They'd already wrecked one vein, to the point where it was once nice and fat and bouncy, to become a non-existent vein with the nick name 'woody'. I also didn't like the idea of needing it flushed every month.

I got the port and it was SO much easier. I didn't have to explain why I had a bandage round my arm (or my wrist - they used the veins on the side if my wrists for the last few picc lines before i got my port) and more importantly, I never used to fully use my arm when there was a picc line in it. For some weird reason i would refuse to bend my arm for the two weeks when it was in the bend of my elbow. which frustrated many people. So having full mobility back was good.

The ONLY downside was that my first port blocked after a few months, although I think this is cause they tried to take blood from it and it didn't agree. And when it was due a flush, in popped the needle, they tried to flush it with saline, and it wouldn't budge. And the tube in my neck hurt like hell. My second port lasted for 5 years (im proud of that) and number 3 is going strong after 1 1/2 years.

However, whenever they flush it, i do hold my breath for a second, hoping its gonna work. I ALWAYS worry it's going to block! oh, I suppose the scars are a downside, but its easy to ignore them. I've never been a strapless top kinda girl anyway. It is a bit obvious given the fact im CFer skinny, but I'm trying to gain weight so hopefully this will become less obvious.

I think the best thing is that I can't feel the meds. In a picc, i would always have and uncomfortable, sometimes actually painful feeling. A cold IV on a hot day is heaven!

Oh and it was never the beginning of the end for me. My pfts now are 60-70 and im improving them now through exercise. I dont know how high they were when I was 11!
 
M

meggzzie

Guest
I was pretty hesitant about getting a port, mainly as I was 11 and hated the idea of an op to get it. But i'd been getting IVs every 3-4 months since I was 7 and it just made sense. They'd already wrecked one vein, to the point where it was once nice and fat and bouncy, to become a non-existent vein with the nick name 'woody'. I also didn't like the idea of needing it flushed every month.

I got the port and it was SO much easier. I didn't have to explain why I had a bandage round my arm (or my wrist - they used the veins on the side if my wrists for the last few picc lines before i got my port) and more importantly, I never used to fully use my arm when there was a picc line in it. For some weird reason i would refuse to bend my arm for the two weeks when it was in the bend of my elbow. which frustrated many people. So having full mobility back was good.

The ONLY downside was that my first port blocked after a few months, although I think this is cause they tried to take blood from it and it didn't agree. And when it was due a flush, in popped the needle, they tried to flush it with saline, and it wouldn't budge. And the tube in my neck hurt like hell. My second port lasted for 5 years (im proud of that) and number 3 is going strong after 1 1/2 years.

However, whenever they flush it, i do hold my breath for a second, hoping its gonna work. I ALWAYS worry it's going to block! oh, I suppose the scars are a downside, but its easy to ignore them. I've never been a strapless top kinda girl anyway. It is a bit obvious given the fact im CFer skinny, but I'm trying to gain weight so hopefully this will become less obvious.

I think the best thing is that I can't feel the meds. In a picc, i would always have and uncomfortable, sometimes actually painful feeling. A cold IV on a hot day is heaven!

Oh and it was never the beginning of the end for me. My pfts now are 60-70 and im improving them now through exercise. I dont know how high they were when I was 11!
 
M

meggzzie

Guest
I was pretty hesitant about getting a port, mainly as I was 11 and hated the idea of an op to get it. But i'd been getting IVs every 3-4 months since I was 7 and it just made sense. They'd already wrecked one vein, to the point where it was once nice and fat and bouncy, to become a non-existent vein with the nick name 'woody'. I also didn't like the idea of needing it flushed every month.
<br />
<br />I got the port and it was SO much easier. I didn't have to explain why I had a bandage round my arm (or my wrist - they used the veins on the side if my wrists for the last few picc lines before i got my port) and more importantly, I never used to fully use my arm when there was a picc line in it. For some weird reason i would refuse to bend my arm for the two weeks when it was in the bend of my elbow. which frustrated many people. So having full mobility back was good.
<br />
<br />The ONLY downside was that my first port blocked after a few months, although I think this is cause they tried to take blood from it and it didn't agree. And when it was due a flush, in popped the needle, they tried to flush it with saline, and it wouldn't budge. And the tube in my neck hurt like hell. My second port lasted for 5 years (im proud of that) and number 3 is going strong after 1 1/2 years.
<br />
<br />However, whenever they flush it, i do hold my breath for a second, hoping its gonna work. I ALWAYS worry it's going to block! oh, I suppose the scars are a downside, but its easy to ignore them. I've never been a strapless top kinda girl anyway. It is a bit obvious given the fact im CFer skinny, but I'm trying to gain weight so hopefully this will become less obvious.
<br />
<br />I think the best thing is that I can't feel the meds. In a picc, i would always have and uncomfortable, sometimes actually painful feeling. A cold IV on a hot day is heaven!
<br />
<br />Oh and it was never the beginning of the end for me. My pfts now are 60-70 and im improving them now through exercise. I dont know how high they were when I was 11!
 
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