Why doesn't it seem like doctors are super aggressive with sinuses?

edan · Nov 16, 2011

Thanks everyone. I definitely want tO avoid taking anything out or any kind if surgery. We are doing saline rinses with the netipot. A doctor recommended using hts for this, but she already just barely tolerates the regular saline. I have often wondered what wool happen if we poured the pulmozyme in there. Haven't dared done it, but curious if anyone ha tried. Also, has anyone had luck adding baking soda and/or baby shampoo? I wonder if the chances of introducing bad bacteria wig these far outweigh any potential benefits?

Thanks,
Edan

Ratatosk · Nov 16, 2011

We do regular saline with the neil med bottle, not the neti pot when DS gets congested. His issues on top of the extra thick mucus is that during Tobi, his nasal passages get inflamed. I DID try HTS ONCE in his sinus rinse and he told me it burned, so never again. It's hard enough getting him to do the regular rinses, but he knows how grossed out I get when he gets stuff out and laughs at my gagging.

Ratatosk · Nov 16, 2011

We do regular saline with the neil med bottle, not the neti pot when DS gets congested. His issues on top of the extra thick mucus is that during Tobi, his nasal passages get inflamed. I DID try HTS ONCE in his sinus rinse and he told me it burned, so never again. It's hard enough getting him to do the regular rinses, but he knows how grossed out I get when he gets stuff out and laughs at my gagging.

Ratatosk · Nov 16, 2011

We do regular saline with the neil med bottle, not the neti pot when DS gets congested. His issues on top of the extra thick mucus is that during Tobi, his nasal passages get inflamed. I DID try HTS ONCE in his sinus rinse and he told me it burned, so never again. It's hard enough getting him to do the regular rinses, but he knows how grossed out I get when he gets stuff out and laughs at my gagging.

PatrickM · Nov 16, 2011

My 14 y.o. son has had several sinus surgeries and they have occurred in spurts. He would have one, we'd see improvement and then when he would have symptoms again we'd try another surgery. His last surgery which was his 4th in 18 months they put the baby shampoo in his sinus during the surgery. Apparently the baby shampoo breaks down the biofilm, something I don't really understand. My son gets what they call mucus seals and so the theory was clean out the mucus seal, start fresh and then do the baby shampoo rinses so the biofilm wouldn't build up again. He had this surgery in 3/10, we didn't see any dramatic improvement after the surgery, we did the baby shampoo rinses for a while , he hated those so we switched back to a homemade hypertonic rinse. His sinus stuff did improve though, it just wasn't dramatic, like right after the surgery, we just slowly noticed he wasn't so bothered his sinus stuff.

Someone also recently posted in the adult section about a sinus rinse she was using called Alkalol that she found helpful. I think the title of her post is "sinus treatment that is really helping me". Might be worth a try.

And we do put baking soda in our hypertonic saline rinse we make to rinse with.

I am always interested in the sinus nebulizers, that makes so much sense to me. Have you googled those on line?

Finally I should just note I really trusted the ENT who put that baby shampoo in the sinus during the surgery. It sounds like such a risky thing but he operated on my son when he was 2 months old and only 8 lbs, and I think very highly of him.

Good luck.

Tara

PatrickM · Nov 16, 2011

My 14 y.o. son has had several sinus surgeries and they have occurred in spurts. He would have one, we'd see improvement and then when he would have symptoms again we'd try another surgery. His last surgery which was his 4th in 18 months they put the baby shampoo in his sinus during the surgery. Apparently the baby shampoo breaks down the biofilm, something I don't really understand. My son gets what they call mucus seals and so the theory was clean out the mucus seal, start fresh and then do the baby shampoo rinses so the biofilm wouldn't build up again. He had this surgery in 3/10, we didn't see any dramatic improvement after the surgery, we did the baby shampoo rinses for a while , he hated those so we switched back to a homemade hypertonic rinse. His sinus stuff did improve though, it just wasn't dramatic, like right after the surgery, we just slowly noticed he wasn't so bothered his sinus stuff.

Someone also recently posted in the adult section about a sinus rinse she was using called Alkalol that she found helpful. I think the title of her post is "sinus treatment that is really helping me". Might be worth a try.

And we do put baking soda in our hypertonic saline rinse we make to rinse with.

I am always interested in the sinus nebulizers, that makes so much sense to me. Have you googled those on line?

Finally I should just note I really trusted the ENT who put that baby shampoo in the sinus during the surgery. It sounds like such a risky thing but he operated on my son when he was 2 months old and only 8 lbs, and I think very highly of him.

Good luck.

Tara

PatrickM · Nov 16, 2011

My 14 y.o. son has had several sinus surgeries and they have occurred in spurts. He would have one, we'd see improvement and then when he would have symptoms again we'd try another surgery. His last surgery which was his 4th in 18 months they put the baby shampoo in his sinus during the surgery. Apparently the baby shampoo breaks down the biofilm, something I don't really understand. My son gets what they call mucus seals and so the theory was clean out the mucus seal, start fresh and then do the baby shampoo rinses so the biofilm wouldn't build up again. He had this surgery in 3/10, we didn't see any dramatic improvement after the surgery, we did the baby shampoo rinses for a while , he hated those so we switched back to a homemade hypertonic rinse. His sinus stuff did improve though, it just wasn't dramatic, like right after the surgery, we just slowly noticed he wasn't so bothered his sinus stuff.

Someone also recently posted in the adult section about a sinus rinse she was using called Alkalol that she found helpful. I think the title of her post is "sinus treatment that is really helping me". Might be worth a try.

And we do put baking soda in our hypertonic saline rinse we make to rinse with.

I am always interested in the sinus nebulizers, that makes so much sense to me. Have you googled those on line?

Finally I should just note I really trusted the ENT who put that baby shampoo in the sinus during the surgery. It sounds like such a risky thing but he operated on my son when he was 2 months old and only 8 lbs, and I think very highly of him.

Good luck.

Tara

edan · Nov 16, 2011

Thanks everone for your posts! I hope to get more. And Tara, I did see the post in the adult section. I copied and saved it off<img src="i/expressions/face-icon-small-smile.gif" border="0">

Edan

edan · Nov 16, 2011

Thanks everone for your posts! I hope to get more. And Tara, I did see the post in the adult section. I copied and saved it off<img src="i/expressions/face-icon-small-smile.gif" border="0">

Edan

edan · Nov 16, 2011

Thanks everone for your posts! I hope to get more. And Tara, I did see the post in the adult section. I copied and saved it off<img src="i/expressions/face-icon-small-smile.gif" border="0">

Edan

Ratatosk · Nov 16, 2011

My only issue with the post in the adult section was her comment that it burned like the fire of a million suns or something to that affect, so while I might try it on myself I think I'd have a very difficult time convincing an 8 year old that it's a good idea.

I've heard of a few people using sinus nebulizers, I believe Pari makes one. Also, there are some people who do antibiotic rinses as well.

Ratatosk · Nov 16, 2011

My only issue with the post in the adult section was her comment that it burned like the fire of a million suns or something to that affect, so while I might try it on myself I think I'd have a very difficult time convincing an 8 year old that it's a good idea.

I've heard of a few people using sinus nebulizers, I believe Pari makes one. Also, there are some people who do antibiotic rinses as well.

Ratatosk · Nov 16, 2011

My only issue with the post in the adult section was her comment that it burned like the fire of a million suns or something to that affect, so while I might try it on myself I think I'd have a very difficult time convincing an 8 year old that it's a good idea.

I've heard of a few people using sinus nebulizers, I believe Pari makes one. Also, there are some people who do antibiotic rinses as well.

hmw · Nov 16, 2011

Our clinic is pretty proactive with sinuses. We do sinus rinses when Emily is congested, and they always ask a extensive list of questions related to sinus issues at her clinic visits. When she had just a few infections in a relatively short period of time, she was sent to an ent.
 
 Katie~ I do believe sleep studies are a valuable source of information. If the dr recommends it, I would do it. They know how to handle children of all ages, and they can learn SO much from them.
 
 'Burning like fire...' In our experience, no this did not happen. I did it myself before we did it with Emily for the first time to minimize the freak-out factor for her and it was surprisingly easier than I thought it would be and less uncomfortable, as long as it's done correctly. Emily tolerates them just fine, and did not complain of pain even the first time.
 
 While everyone is different and I'm not doubting his/her perception, I wonder about a few things... if 1/ this person mixed the solution at greater than the recommended strength or 2/ this person mixed the solution herself and didn't buffer the sodium chloride with baking soda (Edan: the premixed already contain baking soda, otherwise the straight sodium WOULD burn like crazy!!!) or 3/ this person used cold water rather than water at or a littler warmer than body temp or 4/ this person squirted the water with great force, tried to breathe or keep the mouth shut or otherwise did something that got the water in places it's not supposed to go. You should hang your head forward, mouth open, and let the water run out your mouth as well as your nostrils. Gross, yes, but it's how to do it and it's astonishing what will come out.
 
 Be positive with your child and emphasize the GROSS factor when doing it the first time. That worked with Emily. She tries to see how far she can make the mucus hang before it breaks off (sorry for the tmi haha!!) She has gone from nose to approaching sink drain. Not exaggerating. And this when blowing her nose produces nothing!

hmw · Nov 16, 2011

Our clinic is pretty proactive with sinuses. We do sinus rinses when Emily is congested, and they always ask a extensive list of questions related to sinus issues at her clinic visits. When she had just a few infections in a relatively short period of time, she was sent to an ent.
 
 Katie~ I do believe sleep studies are a valuable source of information. If the dr recommends it, I would do it. They know how to handle children of all ages, and they can learn SO much from them.
 
 'Burning like fire...' In our experience, no this did not happen. I did it myself before we did it with Emily for the first time to minimize the freak-out factor for her and it was surprisingly easier than I thought it would be and less uncomfortable, as long as it's done correctly. Emily tolerates them just fine, and did not complain of pain even the first time.
 
 While everyone is different and I'm not doubting his/her perception, I wonder about a few things... if 1/ this person mixed the solution at greater than the recommended strength or 2/ this person mixed the solution herself and didn't buffer the sodium chloride with baking soda (Edan: the premixed already contain baking soda, otherwise the straight sodium WOULD burn like crazy!!!) or 3/ this person used cold water rather than water at or a littler warmer than body temp or 4/ this person squirted the water with great force, tried to breathe or keep the mouth shut or otherwise did something that got the water in places it's not supposed to go. You should hang your head forward, mouth open, and let the water run out your mouth as well as your nostrils. Gross, yes, but it's how to do it and it's astonishing what will come out.
 
 Be positive with your child and emphasize the GROSS factor when doing it the first time. That worked with Emily. She tries to see how far she can make the mucus hang before it breaks off (sorry for the tmi haha!!) She has gone from nose to approaching sink drain. Not exaggerating. And this when blowing her nose produces nothing!

hmw · Nov 16, 2011

Our clinic is pretty proactive with sinuses. We do sinus rinses when Emily is congested, and they always ask a extensive list of questions related to sinus issues at her clinic visits. When she had just a few infections in a relatively short period of time, she was sent to an ent.
 
 Katie~ I do believe sleep studies are a valuable source of information. If the dr recommends it, I would do it. They know how to handle children of all ages, and they can learn SO much from them.
 
 'Burning like fire...' In our experience, no this did not happen. I did it myself before we did it with Emily for the first time to minimize the freak-out factor for her and it was surprisingly easier than I thought it would be and less uncomfortable, as long as it's done correctly. Emily tolerates them just fine, and did not complain of pain even the first time.
 
 While everyone is different and I'm not doubting his/her perception, I wonder about a few things... if 1/ this person mixed the solution at greater than the recommended strength or 2/ this person mixed the solution herself and didn't buffer the sodium chloride with baking soda (Edan: the premixed already contain baking soda, otherwise the straight sodium WOULD burn like crazy!!!) or 3/ this person used cold water rather than water at or a littler warmer than body temp or 4/ this person squirted the water with great force, tried to breathe or keep the mouth shut or otherwise did something that got the water in places it's not supposed to go. You should hang your head forward, mouth open, and let the water run out your mouth as well as your nostrils. Gross, yes, but it's how to do it and it's astonishing what will come out.
 
 Be positive with your child and emphasize the GROSS factor when doing it the first time. That worked with Emily. She tries to see how far she can make the mucus hang before it breaks off (sorry for the tmi haha!!) She has gone from nose to approaching sink drain. Not exaggerating. And this when blowing her nose produces nothing!

JennyCoulon · Nov 21, 2011

We are dealing with this now. Our 12 year old Mason has major sinus issues. He has this cough for no reason, his lungs are always clear and he was diagnosed about 8 months ago with allergy related asthma. He plays soccer so we were given an albuterol inhaler to give him 15-20 before doing this kind of activity. It worked great for about 4 months and then the cough came back. Since September he has been on Bactrum just as a precaution and then a oral steroid about 2 weeks after he was done with the Bactrum. We thought it was b/c of the weather changing here in Nebraska and it not knowing if it wants to be hot, cold, warm or cool and can change by the hour. We are still dealing with it and they have given him another round of 5 days of oral steroid b/c they think it might be inflammation. I guess I am at a loss, I want a solution to the problem not a band-aid for a short time. His cough has gotten better but I am frustrated and at a loss as to what we do next. I am worried that he is not only embarrassed that he coughs all of the time even when just sitting there doing nothing. He is in PE at school and he does that everyday for this mester. I sent an inhaler with him for him to take before PE but he still coughs. Any suggestions would be great.....

JennyCoulon · Nov 21, 2011

We are dealing with this now. Our 12 year old Mason has major sinus issues. He has this cough for no reason, his lungs are always clear and he was diagnosed about 8 months ago with allergy related asthma. He plays soccer so we were given an albuterol inhaler to give him 15-20 before doing this kind of activity. It worked great for about 4 months and then the cough came back. Since September he has been on Bactrum just as a precaution and then a oral steroid about 2 weeks after he was done with the Bactrum. We thought it was b/c of the weather changing here in Nebraska and it not knowing if it wants to be hot, cold, warm or cool and can change by the hour. We are still dealing with it and they have given him another round of 5 days of oral steroid b/c they think it might be inflammation. I guess I am at a loss, I want a solution to the problem not a band-aid for a short time. His cough has gotten better but I am frustrated and at a loss as to what we do next. I am worried that he is not only embarrassed that he coughs all of the time even when just sitting there doing nothing. He is in PE at school and he does that everyday for this mester. I sent an inhaler with him for him to take before PE but he still coughs. Any suggestions would be great.....

JennyCoulon · Nov 21, 2011

We are dealing with this now. Our 12 year old Mason has major sinus issues. He has this cough for no reason, his lungs are always clear and he was diagnosed about 8 months ago with allergy related asthma. He plays soccer so we were given an albuterol inhaler to give him 15-20 before doing this kind of activity. It worked great for about 4 months and then the cough came back. Since September he has been on Bactrum just as a precaution and then a oral steroid about 2 weeks after he was done with the Bactrum. We thought it was b/c of the weather changing here in Nebraska and it not knowing if it wants to be hot, cold, warm or cool and can change by the hour. We are still dealing with it and they have given him another round of 5 days of oral steroid b/c they think it might be inflammation. I guess I am at a loss, I want a solution to the problem not a band-aid for a short time. His cough has gotten better but I am frustrated and at a loss as to what we do next. I am worried that he is not only embarrassed that he coughs all of the time even when just sitting there doing nothing. He is in PE at school and he does that everyday for this mester. I sent an inhaler with him for him to take before PE but he still coughs. Any suggestions would be great.....

JENNYC · Nov 23, 2011

I wanted to chime in and tell you our experience. Abby started sinus surgeries when she was probably 4 and we have been through 10 total now, but I wouldn't trade for them. Before we had her sinus surgery she was miserable!! She couldn't breathe through her nose at all and snored extremely bad. She was so sick, constantly running fever and on this antibiotic then that trying to beat whatever was growing in her poor sinus'. Finally we had the surgery and let me tell you what a different baby girl I had!! She was so much better. It was such a relief not to see her struggling to breathe when she would eat, drink, and sleep. They told us that the polyps were so thick that it was hiding the bacteria behind them where the antibiotics just couldn't knock out what was making her run fever, not to mention that she was totally clogged up. Now she is on the sinus rinses(love them) and a sinus steroid spray(veramyst), hypertonic saline, singular, and zyrtec(even though she has no allergies, so the testing showed). The sinus surgery was a quick fix that I wouldn't hesitate to do again and again if it meant she felt better, and the sinus surgeries are not that bad or she has a high pain tolerance. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Good Luck!!!

Why doesn't it seem like doctors are super aggressive with sinuses?

edan

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