Will I Have To Go Back To Work After Transplant?

[summer732]

Pam,

The only thing I'm not sure about is insurance and how long you will be covered for with the government. Transplant meds are expensive. I did a back to work program for 9 months while I still collected my benefits to make sure that I was fit to work. After my 9 months, I called SSA and told them I was going to continue work and I stopped getting my checks and that was that (well it was a bit more involved than that, but that's the short story.)

And I totally understand not working, but I have to say, not once throughout all of my high school jobs, college internships, or the last 3 years of real world working has having cystic fibrosis, or doctors appointments, or hospital stays ever affected my career (knock on wood). I think that is pretty much against the law....

 

[summer732]

Pam,

The only thing I'm not sure about is insurance and how long you will be covered for with the government. Transplant meds are expensive. I did a back to work program for 9 months while I still collected my benefits to make sure that I was fit to work. After my 9 months, I called SSA and told them I was going to continue work and I stopped getting my checks and that was that (well it was a bit more involved than that, but that's the short story.)

And I totally understand not working, but I have to say, not once throughout all of my high school jobs, college internships, or the last 3 years of real world working has having cystic fibrosis, or doctors appointments, or hospital stays ever affected my career (knock on wood). I think that is pretty much against the law....

 

[summer732]

Pam,

The only thing I'm not sure about is insurance and how long you will be covered for with the government. Transplant meds are expensive. I did a back to work program for 9 months while I still collected my benefits to make sure that I was fit to work. After my 9 months, I called SSA and told them I was going to continue work and I stopped getting my checks and that was that (well it was a bit more involved than that, but that's the short story.)

And I totally understand not working, but I have to say, not once throughout all of my high school jobs, college internships, or the last 3 years of real world working has having cystic fibrosis, or doctors appointments, or hospital stays ever affected my career (knock on wood). I think that is pretty much against the law....

 

[summer732]

Pam,

The only thing I'm not sure about is insurance and how long you will be covered for with the government. Transplant meds are expensive. I did a back to work program for 9 months while I still collected my benefits to make sure that I was fit to work. After my 9 months, I called SSA and told them I was going to continue work and I stopped getting my checks and that was that (well it was a bit more involved than that, but that's the short story.)

And I totally understand not working, but I have to say, not once throughout all of my high school jobs, college internships, or the last 3 years of real world working has having cystic fibrosis, or doctors appointments, or hospital stays ever affected my career (knock on wood). I think that is pretty much against the law....

 

[summer732]

Pam,
<br />
<br />The only thing I'm not sure about is insurance and how long you will be covered for with the government. Transplant meds are expensive. I did a back to work program for 9 months while I still collected my benefits to make sure that I was fit to work. After my 9 months, I called SSA and told them I was going to continue work and I stopped getting my checks and that was that (well it was a bit more involved than that, but that's the short story.)
<br />
<br />And I totally understand not working, but I have to say, not once throughout all of my high school jobs, college internships, or the last 3 years of real world working has having cystic fibrosis, or doctors appointments, or hospital stays ever affected my career (knock on wood). I think that is pretty much against the law....

 

[Tumbleweed]

my sister has gotten fired from several different jobs because of CF. i'm glad to hear that you haven't. it is against the law, but they were tricky and told her they were firing her for different reasons. she would come back from long hospital stays and they would say they were letting her go for "bla bla bla" but it was so obvious that it was because she was away from work. sure she could take them to court, but is it really worth it? for her it was just easier to find a new job...

sorry to go off on a tangent, but i have seen my sister lose several jobs because of her health already- and her FEV1s are still in the 70's

 

[Tumbleweed]

my sister has gotten fired from several different jobs because of CF. i'm glad to hear that you haven't. it is against the law, but they were tricky and told her they were firing her for different reasons. she would come back from long hospital stays and they would say they were letting her go for "bla bla bla" but it was so obvious that it was because she was away from work. sure she could take them to court, but is it really worth it? for her it was just easier to find a new job...

sorry to go off on a tangent, but i have seen my sister lose several jobs because of her health already- and her FEV1s are still in the 70's

 

[Tumbleweed]

my sister has gotten fired from several different jobs because of CF. i'm glad to hear that you haven't. it is against the law, but they were tricky and told her they were firing her for different reasons. she would come back from long hospital stays and they would say they were letting her go for "bla bla bla" but it was so obvious that it was because she was away from work. sure she could take them to court, but is it really worth it? for her it was just easier to find a new job...

sorry to go off on a tangent, but i have seen my sister lose several jobs because of her health already- and her FEV1s are still in the 70's

 

[Tumbleweed]

my sister has gotten fired from several different jobs because of CF. i'm glad to hear that you haven't. it is against the law, but they were tricky and told her they were firing her for different reasons. she would come back from long hospital stays and they would say they were letting her go for "bla bla bla" but it was so obvious that it was because she was away from work. sure she could take them to court, but is it really worth it? for her it was just easier to find a new job...

sorry to go off on a tangent, but i have seen my sister lose several jobs because of her health already- and her FEV1s are still in the 70's

 

[Tumbleweed]

my sister has gotten fired from several different jobs because of CF. i'm glad to hear that you haven't. it is against the law, but they were tricky and told her they were firing her for different reasons. she would come back from long hospital stays and they would say they were letting her go for "bla bla bla" but it was so obvious that it was because she was away from work. sure she could take them to court, but is it really worth it? for her it was just easier to find a new job...
<br />
<br />sorry to go off on a tangent, but i have seen my sister lose several jobs because of her health already- and her FEV1s are still in the 70's