WOMAN ONLY

anonymous

New member
Does anyone out here with cf have more then 1 child? i am 20 years old and i have a son who is 3 years old. i had a pretty hard time after the pregnancy, but i am starting to excercise n feel good again. I really want another baby within the next 2 or 3 years but i'm scared of getting really sick again. Has this happend to anyone else???
Heather 20 w/cf
 

anonymous

New member
Hi heather,

I am have not got any kids but i am tying now to have one i am 32, when you say you got sick afterwards what do you mean in what way did you get sick?? have you got a mild case of cf or not ??
and what do you do for fitness, if you don't mind me asking. and how do you find having a child and dealing with cf?

sorry this is not answer to your question.

Manda
 

Dea

New member
Hi Heather,
I am 31 w/CF...and have a daughter who is 6 1/2 and CF free. I too want another child...BUT...I do not want to risk my health again. I have a beautiful healthy daughter and want to see her grow up...so I have decided I would not have anymore. It is a very hard decision...but I love my daughter will all my heart...as I know you do your son. I'm sorry I cant help you with your decision...I think it is going to be something that only you can decide...I wish you the best of luck!
Dea
 

anonymous

New member
Hi Heather,

I have 2 daughters. After my first daughter was born I wanted another baby sooooo bad. I talked to my doctor and he said if I wanted another I should do it sooner than later. I was 34 when my first was born. I got pregnant again and had my second when I was 37. I did get sick after she was born, but I'm doing fine now at 44!

Good luck. It is such a difficult decision to make. Just make sure you have the support of your doctors and family.

Tammy 44wcf
 

anonymous

New member
for you womem with children, did it take a while to become pregnant. i have been trying a while and am beginning to lose hope.
 

anonymous

New member
Thanx everyone for your replies. For the woman who asked how long it took to get pregnant, it only took me about a month and i half, but i was pretty active if you know what i mean (haha). But dont give up, it will happen!! Take care everyone n best of luck to you all.
Heather 20 w/cf
 

anonymous

New member
Oh and for manda, i find it pretty difficult at times but i just try n keep my head up. My son also has cf so that makes it even more hard sometimes but he's really healthy thank god!!
Right now i just do like 60 jumping jacks everynite but it really helps me breathe deeper n cough stuff up.
Heather 20 w/cf
 

anonymous

New member
Just a thought. I am a women and I totally respect a womens need, and desire to have children. I have a deep desire in my heart to have one as well. Though I am comming to terms with the fact that I probably won't. I am in my early 30s. Something about creating something with someone you love and then having the life grow inside of you.. I can't imagine how wonderful that would be to experience. However, it is not an option for everywomen. I wish it were. I wish that everyone who desired to carry a baby would be able to.. but well I am not God so go figure out why thinks work out the way they do. I also know what it is like to be a child and to grow up feeling unloved and unwanted and more trouble then I was worth. I also know how powerful love can be when we get to chose our families. I guess what I am saying is and this is just food to ponder... If for some reason you are unable to have a baby...consider adoption. There are so many children in this world who are so rejected, abused and unloved that just want a little love and one thing I know is that CFers can love deeply and love life in a way that is different then a non sick person. So if you absoultly are unable to have a baby on your own or even if you are.. Consider opening your heart to some child that already exisits and just needs love. It is so rewarding more then you could ever know..
 

anonymous

New member
hi heather - wow a month and a half!! cool, well i'm hoping that when i start trying after xmas it won't take too long either!!! did u use the cough syrup - robittsun or something - at all? also, did u know your partner was a carrier before u started trying? i only ask as i'm waiting for my fiance's appointment to come through to find out if he is, and i'm not sure that if he is it would stop be wanting a child. i know obviously if he is then there will be a whole lot more i'll need to think about - its kind of scary tho just waiting and not knowing. pleased u are all doing well - and good luck to those who are trying!

Siobhan 20 w cf

x
 

anonymous

New member
Hi Heather,
I'm 39 and have one son, he was born when I was 25. When he was 3 I also very much wanted a second child. When I discussed it with my doctor, he said he would support me in any decision, but wanted me to think about what I have and what I would be risking. Although it was a difficult decision, I decided to leave well enough alone and not try for a second. It was more important for me to be able to maintain my health and not take the chance. Do I regret it now that my son is 14? No. I am very happy to have one wonderful, healthy child. I feel truly lucky. Hope this helps, good luck with your decision.
Kim 39w/cf
 

Dea

New member
It took me about a year and a half to become pregnant....and I am pretty healthy for a CFer...good lung function...minimal probs at the time.
Dea
31 w/CF
 

anonymous

New member
No, i didnt take any type of cough medicine or n e thing. My boyfriend was tested for the cf gene but it came back negative! we r now actually in the middle of a lawsuit against the hospital that tested him because they never told us they didnt do all the testing.
Heather 20 w/cf
 

HollyCatheryn

New member
Just for the sake of argument, when they do the standard test for carrying a CF gene, it is only about 70% accurate. My husband and I had the option offered to us numerous times, but decided not to test for the gene. We decided that our fertility was in God's hands and that if we did conceive, that child was meant to be. Also, for the sake of argument, just because you rule out the possibility of CF doesn't mean that you're going to get a perfect, healthy baby. Just something to think about. If you want a child, do you only want a child you know is going to be healthy? Then maybe you should rethink. Perhaps adopting, so you can see what you're getting into upfront is better for you. Second, every pregnancy is different, even for women without any health issues. No two are alike. You can make an educated gues based on certain health factors of how well you will tolderate it, but again, even healthy women go into a pregnancy no knowing exactly how their body will tolerate it. I know many women who have 5 children or more and they will tell you that each one's pregnancy and birth was unique. The best chance you can give yourself is to be as fit and healthy initially as possible and to keep it up throughout. It took my husband and I one year to conceive our daughter and we've been trying for the last 1 1/2 (since my cycles returned) to conceive again. I don't know if it is my CF that is preventing conception or if it is that I am still breastfeeding. Please don't think I am being harsh. I realize that that first paragraph can look rough of me. I guess I'm just trying to be honest. Please take it for what it's worth.
 

anonymous

New member
well u see u dont understand, i was told the test was 99 % accurate n my doctor told me after my son was born they didnt do all the tests they were supposed to do! so they r at fault, not me.\
Heather 20 w/cf
 

anonymous

New member
I have read about two different kinds of gene testing for CF, one test for several hundred mutations and the other tests for ALMOST every one they know of (I think a couple thousand? I'll have to look it up). The second test is significantly more expensive. I plan on having my husband (when I get one <img src="i/expressions/face-icon-small-smile.gif" border="0">) tested. My thought is that I would be scared of my baby getting sick more often b/c of my sickness. I ouldn't want them to culture psuedemonus from me at an early age. The other issue I worry about is that if I do end up dying when my child is still young, I think it would be so much more upsetting to them if I died from a disease that they had. So anyway, those are my reasons for wanting to do the gene testing.

That said, I think all the kids with cf that have a parent with cf probably do have an advantage in that their parent understands exactly how they are feeling and know everything about cf already! Heather, your doctor will probably be able to help you the most with this since he/she knows how your last pregnancy went and what your numbers are now. I think it's important to realize that if you have another child and that one has cf too, it could become extremely overwhelming to care for two sick children and yourself. Good luck with whatever you decide to do!
 
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