Wondering what to expect

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peter

New member
Somethings you and your wife can ponder positively are:
<br />1)Wow. What's the chance your pediatrician (incidentally)actually did a cf center residency?
<br />2)All evidence says the sooner you know the better ("what you don't know won't hurt you" has no place in CF). Proactive is really important. So tell her and get her on the page.
<br />3)Frances Collins found the CFTR gene, is head of the NIH (and all of its Billion's research dollars) and wants the government to be more proactive in disease research and treatment (let's not get political here about too much government).
<br />4)The President has passed a law (Affordable Care Act) with the Congress to ensure your son will have medical care and insurance and not be a 3rd world statistic.
<br />5)you have this site to come to 24/7. This is a global site (107 countries) and people are on all the time (most are lurking by the thousands) without logging on or registering but always will jump in if needed.
<br />6) there are over 2.2 million messages you can search here by terminology and find threads to suit your son's needs and your questions.
<br />7) although totally out in the open, this is really a private and confidential place. Learn how to private message so your wife can speak plainly and honestly to other mothers here; in private!
 
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welshwitch

Guest
My regimen is pretty straightforward: eat right, get enough sleep, get enough calories.

For lung clearance I do a ton of cardio and also a breathing treatment called Pulmozyme. Some CF patients also use The Vest, which I don't have, but may be looking into getting one at some point.

The reason you have to be proactive is that our lungs always have mucus in them. When you're not sick it's mainly annoying, but if you get like the common cold it can manifest into a lung infection which can have you coughing for weeks.

Other CFers need more aggressive treatment, like IV antibiotic meds when they get sick. I have been fortunate to not need them yet.

Other than that a positive attitude and a healthy emotional state can do wonders! I am a normal adult, CF is just something I have and have to deal with.
 
W

welshwitch

Guest
My regimen is pretty straightforward: eat right, get enough sleep, get enough calories.

For lung clearance I do a ton of cardio and also a breathing treatment called Pulmozyme. Some CF patients also use The Vest, which I don't have, but may be looking into getting one at some point.

The reason you have to be proactive is that our lungs always have mucus in them. When you're not sick it's mainly annoying, but if you get like the common cold it can manifest into a lung infection which can have you coughing for weeks.

Other CFers need more aggressive treatment, like IV antibiotic meds when they get sick. I have been fortunate to not need them yet.

Other than that a positive attitude and a healthy emotional state can do wonders! I am a normal adult, CF is just something I have and have to deal with.
 
W

welshwitch

Guest
My regimen is pretty straightforward: eat right, get enough sleep, get enough calories.
<br />
<br />For lung clearance I do a ton of cardio and also a breathing treatment called Pulmozyme. Some CF patients also use The Vest, which I don't have, but may be looking into getting one at some point.
<br />
<br />The reason you have to be proactive is that our lungs always have mucus in them. When you're not sick it's mainly annoying, but if you get like the common cold it can manifest into a lung infection which can have you coughing for weeks.
<br />
<br />Other CFers need more aggressive treatment, like IV antibiotic meds when they get sick. I have been fortunate to not need them yet.
<br />
<br />Other than that a positive attitude and a healthy emotional state can do wonders! I am a normal adult, CF is just something I have and have to deal with.
 
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