I'm fourteen.
The hospitals and medications aren't so bad, I promise. Maybe a lot at times, but nothing I can't deal with...everyone has something, right? I consider myself normal--I have CF to think about, but that doesn't stop me from hanging out with friends, and playing sports and instruments. I know you've probably heard this a million times but your daughter is going to turn out fine...even better than fine because she is a CF girl which makes her stronger and smarter than most people by definition lol. I know my parents must have been so devestated to find out my diagnosis...like, they thought the cough was bad, but cystic fibrosis? Thinking of the future is scary for anyone assosiated with CF...but people with CF can have perfectly fulfilling lives despite something "extra" to deal with. And trust me...I have those morbid thoughts all the time, and I'm sure my parents do too, but I'm starting to realize that, although the future could hold lots of hard times, I know I can get through them, because there're always good things along with the bad things, and special moments are even more special when you have CF...life is truly precious, and this is clearer for a CFer, and their parents, I'm guessing, from the start. Is that such a bad way to live life, with every moment special? No...the future doesn't matter, all that matters is now, and staying healthy now, and you really should live life to the fullest. So good luck...CF is a hard journey but I really wouldn't have it any other way...it's made me who I am.
So, there's the philosophy of a teenage girl...I don't know if it will help any...
PS: I love the name ellie it is just too adorable <img src="i/expressions/face-icon-small-smile.gif" border="0">
The hospitals and medications aren't so bad, I promise. Maybe a lot at times, but nothing I can't deal with...everyone has something, right? I consider myself normal--I have CF to think about, but that doesn't stop me from hanging out with friends, and playing sports and instruments. I know you've probably heard this a million times but your daughter is going to turn out fine...even better than fine because she is a CF girl which makes her stronger and smarter than most people by definition lol. I know my parents must have been so devestated to find out my diagnosis...like, they thought the cough was bad, but cystic fibrosis? Thinking of the future is scary for anyone assosiated with CF...but people with CF can have perfectly fulfilling lives despite something "extra" to deal with. And trust me...I have those morbid thoughts all the time, and I'm sure my parents do too, but I'm starting to realize that, although the future could hold lots of hard times, I know I can get through them, because there're always good things along with the bad things, and special moments are even more special when you have CF...life is truly precious, and this is clearer for a CFer, and their parents, I'm guessing, from the start. Is that such a bad way to live life, with every moment special? No...the future doesn't matter, all that matters is now, and staying healthy now, and you really should live life to the fullest. So good luck...CF is a hard journey but I really wouldn't have it any other way...it's made me who I am.
So, there's the philosophy of a teenage girl...I don't know if it will help any...
PS: I love the name ellie it is just too adorable <img src="i/expressions/face-icon-small-smile.gif" border="0">