As I was exploring the forums, I came to this section and started reading through them...it sounds like it must be so hard for some of the parents and other people to go through CF diagnosis. I don't remember my diagnosis, of course, as I was diagnosed as a baby. My parents don't talk about it much. So, reading these, I guess it must have been a very similar experience for them with my diagnosis as it is for a lot of you on here. I was not expected to make it through my first few years and there were not as many new treatments then. But obviously, I am still here, not to mention doing just great! So what I'm saying is, even though my parents must have been as crushed and scared and guilty about my diagnosis as a lot of you on here seem to be, I am doing fine. There is no reason for the guilt...I am happy. I am healthy. And I don't feel guilty...CF just becomes, basically, a part of life. I just wanted to say this, mostly for the sake of my parents...it must have been a huge struggle for them, but I don't even realize that now...there must be an awful lot of superpeople on here <img src="i/expressions/face-icon-small-smile.gif" border="0">
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Wondering
- Thread starter smiles123
- Start date
As I was exploring the forums, I came to this section and started reading through them...it sounds like it must be so hard for some of the parents and other people to go through CF diagnosis. I don't remember my diagnosis, of course, as I was diagnosed as a baby. My parents don't talk about it much. So, reading these, I guess it must have been a very similar experience for them with my diagnosis as it is for a lot of you on here. I was not expected to make it through my first few years and there were not as many new treatments then. But obviously, I am still here, not to mention doing just great! So what I'm saying is, even though my parents must have been as crushed and scared and guilty about my diagnosis as a lot of you on here seem to be, I am doing fine. There is no reason for the guilt...I am happy. I am healthy. And I don't feel guilty...CF just becomes, basically, a part of life. I just wanted to say this, mostly for the sake of my parents...it must have been a huge struggle for them, but I don't even realize that now...there must be an awful lot of superpeople on here <img src="i/expressions/face-icon-small-smile.gif" border="0">
As I was exploring the forums, I came to this section and started reading through them...it sounds like it must be so hard for some of the parents and other people to go through CF diagnosis. I don't remember my diagnosis, of course, as I was diagnosed as a baby. My parents don't talk about it much. So, reading these, I guess it must have been a very similar experience for them with my diagnosis as it is for a lot of you on here. I was not expected to make it through my first few years and there were not as many new treatments then. But obviously, I am still here, not to mention doing just great! So what I'm saying is, even though my parents must have been as crushed and scared and guilty about my diagnosis as a lot of you on here seem to be, I am doing fine. There is no reason for the guilt...I am happy. I am healthy. And I don't feel guilty...CF just becomes, basically, a part of life. I just wanted to say this, mostly for the sake of my parents...it must have been a huge struggle for them, but I don't even realize that now...there must be an awful lot of superpeople on here <img src="i/expressions/face-icon-small-smile.gif" border="0">
As I was exploring the forums, I came to this section and started reading through them...it sounds like it must be so hard for some of the parents and other people to go through CF diagnosis. I don't remember my diagnosis, of course, as I was diagnosed as a baby. My parents don't talk about it much. So, reading these, I guess it must have been a very similar experience for them with my diagnosis as it is for a lot of you on here. I was not expected to make it through my first few years and there were not as many new treatments then. But obviously, I am still here, not to mention doing just great! So what I'm saying is, even though my parents must have been as crushed and scared and guilty about my diagnosis as a lot of you on here seem to be, I am doing fine. There is no reason for the guilt...I am happy. I am healthy. And I don't feel guilty...CF just becomes, basically, a part of life. I just wanted to say this, mostly for the sake of my parents...it must have been a huge struggle for them, but I don't even realize that now...there must be an awful lot of superpeople on here <img src="i/expressions/face-icon-small-smile.gif" border="0">
As I was exploring the forums, I came to this section and started reading through them...it sounds like it must be so hard for some of the parents and other people to go through CF diagnosis. I don't remember my diagnosis, of course, as I was diagnosed as a baby. My parents don't talk about it much. So, reading these, I guess it must have been a very similar experience for them with my diagnosis as it is for a lot of you on here. I was not expected to make it through my first few years and there were not as many new treatments then. But obviously, I am still here, not to mention doing just great! So what I'm saying is, even though my parents must have been as crushed and scared and guilty about my diagnosis as a lot of you on here seem to be, I am doing fine. There is no reason for the guilt...I am happy. I am healthy. And I don't feel guilty...CF just becomes, basically, a part of life. I just wanted to say this, mostly for the sake of my parents...it must have been a huge struggle for them, but I don't even realize that now...there must be an awful lot of superpeople on here <img src="i/expressions/face-icon-small-smile.gif" border="0">
M
Mommafirst
Guest
Thanks so much for your thoughts on this. You have no idea how much it means to meet those who are years ahead on the road my daughter will travel. When a parent hears this diagnosis, part of the misery is just the unknown, the ambiguity of it all. The only certainty we get is that life will be filled with treatments and meds and hospital stays. When you look at your newborn baby, who represents your love and your hopes and your dreams, CF is not what you ever wanted for them to deal with.
But as time moves on and as we come to revise our expectations, it gets a bit easier. But having grown CFers to share their experiences, makes a huge difference in coming to this place.
So thank you -- I'm thrilled to hear that you are doing so well!!!
But as time moves on and as we come to revise our expectations, it gets a bit easier. But having grown CFers to share their experiences, makes a huge difference in coming to this place.
So thank you -- I'm thrilled to hear that you are doing so well!!!
M
Mommafirst
Guest
Thanks so much for your thoughts on this. You have no idea how much it means to meet those who are years ahead on the road my daughter will travel. When a parent hears this diagnosis, part of the misery is just the unknown, the ambiguity of it all. The only certainty we get is that life will be filled with treatments and meds and hospital stays. When you look at your newborn baby, who represents your love and your hopes and your dreams, CF is not what you ever wanted for them to deal with.
But as time moves on and as we come to revise our expectations, it gets a bit easier. But having grown CFers to share their experiences, makes a huge difference in coming to this place.
So thank you -- I'm thrilled to hear that you are doing so well!!!
But as time moves on and as we come to revise our expectations, it gets a bit easier. But having grown CFers to share their experiences, makes a huge difference in coming to this place.
So thank you -- I'm thrilled to hear that you are doing so well!!!
M
Mommafirst
Guest
Thanks so much for your thoughts on this. You have no idea how much it means to meet those who are years ahead on the road my daughter will travel. When a parent hears this diagnosis, part of the misery is just the unknown, the ambiguity of it all. The only certainty we get is that life will be filled with treatments and meds and hospital stays. When you look at your newborn baby, who represents your love and your hopes and your dreams, CF is not what you ever wanted for them to deal with.
But as time moves on and as we come to revise our expectations, it gets a bit easier. But having grown CFers to share their experiences, makes a huge difference in coming to this place.
So thank you -- I'm thrilled to hear that you are doing so well!!!
But as time moves on and as we come to revise our expectations, it gets a bit easier. But having grown CFers to share their experiences, makes a huge difference in coming to this place.
So thank you -- I'm thrilled to hear that you are doing so well!!!
M
Mommafirst
Guest
Thanks so much for your thoughts on this. You have no idea how much it means to meet those who are years ahead on the road my daughter will travel. When a parent hears this diagnosis, part of the misery is just the unknown, the ambiguity of it all. The only certainty we get is that life will be filled with treatments and meds and hospital stays. When you look at your newborn baby, who represents your love and your hopes and your dreams, CF is not what you ever wanted for them to deal with.
But as time moves on and as we come to revise our expectations, it gets a bit easier. But having grown CFers to share their experiences, makes a huge difference in coming to this place.
So thank you -- I'm thrilled to hear that you are doing so well!!!
But as time moves on and as we come to revise our expectations, it gets a bit easier. But having grown CFers to share their experiences, makes a huge difference in coming to this place.
So thank you -- I'm thrilled to hear that you are doing so well!!!
M
Mommafirst
Guest
Thanks so much for your thoughts on this. You have no idea how much it means to meet those who are years ahead on the road my daughter will travel. When a parent hears this diagnosis, part of the misery is just the unknown, the ambiguity of it all. The only certainty we get is that life will be filled with treatments and meds and hospital stays. When you look at your newborn baby, who represents your love and your hopes and your dreams, CF is not what you ever wanted for them to deal with.
<br />
<br />But as time moves on and as we come to revise our expectations, it gets a bit easier. But having grown CFers to share their experiences, makes a huge difference in coming to this place.
<br />
<br />So thank you -- I'm thrilled to hear that you are doing so well!!!
<br />
<br />But as time moves on and as we come to revise our expectations, it gets a bit easier. But having grown CFers to share their experiences, makes a huge difference in coming to this place.
<br />
<br />So thank you -- I'm thrilled to hear that you are doing so well!!!
Thank you so much for your post. As Heather summarized, you envision a life of hospital visits and medications for you child. It's a very difficult realization to make and it was extremely overwhelming when the diagnosis was made. It still is...I'm sure I will continue to feel this way. I also think about whether Ellie will be able to have children of her own and will she live long enough for them to know her. I know...morbid way of thinking, but those thoughts creep into my mind no matter how optimistic I try to be. I'm glad you're doing well...it gives me hope for my little Ellie. How old are you?
Thank you so much for your post. As Heather summarized, you envision a life of hospital visits and medications for you child. It's a very difficult realization to make and it was extremely overwhelming when the diagnosis was made. It still is...I'm sure I will continue to feel this way. I also think about whether Ellie will be able to have children of her own and will she live long enough for them to know her. I know...morbid way of thinking, but those thoughts creep into my mind no matter how optimistic I try to be. I'm glad you're doing well...it gives me hope for my little Ellie. How old are you?
Thank you so much for your post. As Heather summarized, you envision a life of hospital visits and medications for you child. It's a very difficult realization to make and it was extremely overwhelming when the diagnosis was made. It still is...I'm sure I will continue to feel this way. I also think about whether Ellie will be able to have children of her own and will she live long enough for them to know her. I know...morbid way of thinking, but those thoughts creep into my mind no matter how optimistic I try to be. I'm glad you're doing well...it gives me hope for my little Ellie. How old are you?
Thank you so much for your post. As Heather summarized, you envision a life of hospital visits and medications for you child. It's a very difficult realization to make and it was extremely overwhelming when the diagnosis was made. It still is...I'm sure I will continue to feel this way. I also think about whether Ellie will be able to have children of her own and will she live long enough for them to know her. I know...morbid way of thinking, but those thoughts creep into my mind no matter how optimistic I try to be. I'm glad you're doing well...it gives me hope for my little Ellie. How old are you?
Thank you so much for your post. As Heather summarized, you envision a life of hospital visits and medications for you child. It's a very difficult realization to make and it was extremely overwhelming when the diagnosis was made. It still is...I'm sure I will continue to feel this way. I also think about whether Ellie will be able to have children of her own and will she live long enough for them to know her. I know...morbid way of thinking, but those thoughts creep into my mind no matter how optimistic I try to be. I'm glad you're doing well...it gives me hope for my little Ellie. How old are you?