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worried how my daughter will handel cf when older
- Thread starter anonymous
- Start date
hi there i am 20 wit cf and i have had it since i was born . it does affect some people mentaly when they get older it bothered me for a while and i used to be scared of tellin people bout it but after a while i started tor ealise its part of me and i have no idea wot it is like wit out it it really doesnt bother me anymore . i also have a older brother who doesnt have cf me and him dont get on to well but that is not really down to my cf he just annoys me lol but he is very supportive when i am ill and helps anyway he can . hope this helps u out from Jo x
CF can be a bear, I don't downplay that, but at your daughter's age, she probably will emotionally handle it the way you handle it. (i.e. she will pick up "Q's" from your behaviour) and she may handle it the way she sees you handle it.
As far as the pain she may endure from IV's, shots, etc. I guess by a certain age (9or 10?), I just got used to it & tried to be strong. Finally I got to the point where I'd rather go get shots or blood drawn than to go to school because I was used to shots, etc. Hopefully, as time goes on, it will be easier for her to handle<img src="i/expressions/sun.gif" border="0">
I wish you the best and hang in there.
Hope this makes sense and I am not trying to be mean or anything like that.
As far as the pain she may endure from IV's, shots, etc. I guess by a certain age (9or 10?), I just got used to it & tried to be strong. Finally I got to the point where I'd rather go get shots or blood drawn than to go to school because I was used to shots, etc. Hopefully, as time goes on, it will be easier for her to handle<img src="i/expressions/sun.gif" border="0">
I wish you the best and hang in there.
Hope this makes sense and I am not trying to be mean or anything like that.
To the original poster
I know how you feel, I have a 9 year old daughter with CF. I often wonder how she will handle CF as an adult. I know that she has seen me upset and cry when she is sick and she knows that I am always worrying about her. I am trying to get better at handling her illness. She has 2 siblings without CF and they get along really good and I believe that they always will, I treat them all the same and when Kait is sick her brother and sister are so supportive and try to help her as much as they can, They always tell me that when they get older Kait is going to live with them so they can help take care of her when she is sick, My biggest concern is I worry about her maybe not taking her treatments and getting sick. She knows that I am a real stickler when it comes to her treatments and her taking care of herself, I try to let her be more involved in her treatments now but there are alot of times when she needs reminding, I am sure she thinks that i am a nagging mother. Anyway, I know how you feel and all i can say is pray and teach your child how important it really is to take good care of themselves.
Kaitmom<img src="i/expressions/rose.gif" border="0">
I know how you feel, I have a 9 year old daughter with CF. I often wonder how she will handle CF as an adult. I know that she has seen me upset and cry when she is sick and she knows that I am always worrying about her. I am trying to get better at handling her illness. She has 2 siblings without CF and they get along really good and I believe that they always will, I treat them all the same and when Kait is sick her brother and sister are so supportive and try to help her as much as they can, They always tell me that when they get older Kait is going to live with them so they can help take care of her when she is sick, My biggest concern is I worry about her maybe not taking her treatments and getting sick. She knows that I am a real stickler when it comes to her treatments and her taking care of herself, I try to let her be more involved in her treatments now but there are alot of times when she needs reminding, I am sure she thinks that i am a nagging mother. Anyway, I know how you feel and all i can say is pray and teach your child how important it really is to take good care of themselves.
Kaitmom<img src="i/expressions/rose.gif" border="0">
Emily65Roses
New member
I see a therapist and I'm on anti-depressants. I deal okay. I had a harder time in mid-teen years, but most of that was regular teenage angst junk. I had a few CF-related things (I felt like I would run out of time before I could get married and have kids and all that), but most of it was unrequited love, etc. My sister doesn't have CF and now that the both of us are out of the bitchy teenage phases, we get along just fine.
Hi, could'nt help to reply 2 your situation. I am 25 and married 2 a beautifull cf sufferer, i knew of her condision before we were dating and felt a need 2 b there for her in time of need. She, aswell as i am christians although we don't go to church often. Just what i wanted to tell u is that you should teach your child everything there is 2 know obout cf and the implicasions if she does not look after herself.
I myself had many hardships with my wife in the past 2 look after herself and regularly using her nebuliser, even if she feels there's no need to. Your job is to actually find her friends/friend from an early age, those who will care for her mentaly and spiritually-----nico
I myself had many hardships with my wife in the past 2 look after herself and regularly using her nebuliser, even if she feels there's no need to. Your job is to actually find her friends/friend from an early age, those who will care for her mentaly and spiritually-----nico
I think mentally, throughout my life; when I was younger, it didnt really bother me that I had it, cause I was so healthy I seemed to forget that I was sick, in fact the only thing that bothered me was not understanding fully why I had to take so many meds and couldnt go out and play when I wanted to. Nowadays as I am older, and have a child, I have more worries about when Im gonna be too sick to be there for her. It really scares me to think about it.
tessa55454
New member
You have to look at the progress that CF has made. The time yoru daughter reaches late teens, Cf again will look entirly different then it does now.
I think right now, CF is like a value. Meaning: If have to instill it like one. You have to lay out the choices, and the conaquences with those. Show by example, be a mentor as much as you can. Ultimatley, it will be up to her. But, again Cf will change so much in the next 10-15 years. CF paitents telling there stories at the age they are now, will be totally different, let's say when your daughter reaches my age which is 27. The technology moves by leaps and bounds...seriously.
Tessa 27 w/cf
I think right now, CF is like a value. Meaning: If have to instill it like one. You have to lay out the choices, and the conaquences with those. Show by example, be a mentor as much as you can. Ultimatley, it will be up to her. But, again Cf will change so much in the next 10-15 years. CF paitents telling there stories at the age they are now, will be totally different, let's say when your daughter reaches my age which is 27. The technology moves by leaps and bounds...seriously.
Tessa 27 w/cf
serendipity730
New member
Hi. Like Emily, I also see a therapist and am on antidepressants. About 5 years ago, I felt very depressed. It took me over a year to really turn things around, but I am doing great now. I am in graduate school and engaged. If there were a few things I could recommend to parents of children with CF in hindisight it would be:
1. Try to make your child feel as normal as possible. Growing up, feeling different was a big issue for me.
2. Pre-emptively seen your child to counseling as an adolescent. He/she may not like it, but I think it will help alleviate some of the issues that come up with growing up.
3. BE HONEST with your child. I found out about the life expectancy from the internet - don't let this happen to your child.
1. Try to make your child feel as normal as possible. Growing up, feeling different was a big issue for me.
2. Pre-emptively seen your child to counseling as an adolescent. He/she may not like it, but I think it will help alleviate some of the issues that come up with growing up.
3. BE HONEST with your child. I found out about the life expectancy from the internet - don't let this happen to your child.
S
Sunny
Guest
Be honest and open about Cf with your child. She'll cope - We all do. You just look at life more like a gift than other people... and enjoy every day more because of this!!
Hello, I agree with much of what the others have said. I'm sure you are giving your daughter unconditional love and support. CF people do have alot of challenges to meet in life, your positive attitude along the way will benefit her acceptance of Cystic Fibrosis. Most CF people I have known seem to have alot of strength, and are truely lovely human beings!! You will have times of doubt and concerns. As a CF parent myself, I know you feel the pain and suffering of your loved ones. Each day is precious, try not to think about years later. I am one of the oldies still around and coped with handling my CF thru'out the decades!!!! This forum is an excellent support service, you will meet alot of caring like-minded people here.
Your little daughter is young, by the time she reaches her teens a cure could well be on the way!!
Stay happy!! Good luck.
Cheers Eileen.<img src="i/expressions/sun.gif" border="0">
Your little daughter is young, by the time she reaches her teens a cure could well be on the way!!
Stay happy!! Good luck.
Cheers Eileen.<img src="i/expressions/sun.gif" border="0">
Hey there, I am almost 17 and have had cf since i was born. I've just been through a bad time the past year with infections, liver problems, diabetes, blah blah blah and to be honest i did find it hard compared to other times when i was younger. i asked all the regular questions a teenager asks themselves like "why me" and "those doctors are heartless" etc., but i got over it! as much as we hate to admit it, us teenagers are extremely difficult sometimes, cf or no cf! Now though in the past few months iv'e gained a whole new perspective life with cf i realised that when i'm sick i don't get anywhere worrying, moaning or being stubborn cos it's all still there when i'm finished giving out bout it, i also think, in a way, that i'm lucky to have cf because it makes me appreciate life when i'm well all the more, i know it inspires my relatives and people i know to appreciate their lives too. I'm probably blabbering on but i just have 1 more thing to say, the main reason i have learned to look at my illness in this optimistic way is all down to my mum and dad, they have been amazing and so supportive (and patient) with me. my mum, comforts me and cares for me better than any nurse or doctor and my dad is always there with his wise advice and knowledge (and comforting bear hugs), everytime i'm sick and he says "we'll deal with it" i know everything will be fine and that sentence will never get old! so, really as much as it is easier said than done, you should enjoy you're daughter's childhood and take everthing as it comes and the best cure you can give her is your tlc, a normal life and to tell her get a grip when she feels sorry for herself! you seem like a very loving mum, just like mine, and you have a cure that is better than any medicine, your love and support.
If you have any more questions you can email me if ya like, my address is shauna_wawna_fawna@yahoo.com x<img src="i/expressions/heart.gif" border="0">x
If you have any more questions you can email me if ya like, my address is shauna_wawna_fawna@yahoo.com x<img src="i/expressions/heart.gif" border="0">x
Hey there, I am almost 17 and have had cf since i was born. I've just been through a bad time the past year with infections, liver problems, diabetes, blah blah blah and to be honest i did find it hard compared to other times when i was younger. i asked all the regular questions a teenager asks themselves like "why me" and "those doctors are heartless" etc., but i got over it! as much as we hate to admit it, us teenagers are extremely difficult sometimes, cf or no cf! Now though in the past few months iv'e gained a whole new perspective life with cf i realised that when i'm sick i don't get anywhere worrying, moaning or being stubborn cos it's all still there when i'm finished giving out bout it, i also think, in a way, that i'm lucky to have cf because it makes me appreciate life when i'm well all the more, i know it inspires my relatives and people i know to appreciate their lives too. I'm probably blabbering on but i just have 1 more thing to say, the main reason i have learned to look at my illness in this optimistic way is all down to my mum and dad, they have been amazing and so supportive (and patient) with me. my mum, comforts me and cares for me better than any nurse or doctor and my dad is always there with his wise advice and knowledge (and comforting bear hugs), everytime i'm sick and he says "we'll deal with it" i know everything will be fine and that sentence will never get old! so, really as much as it is easier said than done, you should enjoy you're daughter's childhood and take everthing as it comes and the best cure you can give her is your tlc, a normal life and to tell her get a grip when she feels sorry for herself! you seem like a very loving mum, just like mine, and you have a cure that is better than any medicine, your love and support.
If you have any more questions you can email me if ya like, my address is shauna_wawna_fawna@yahoo.co.uk x<img src="i/expressions/heart.gif" border="0">x
If you have any more questions you can email me if ya like, my address is shauna_wawna_fawna@yahoo.co.uk x<img src="i/expressions/heart.gif" border="0">x