Worried sick...

tammykrumrey · Jun 7, 2007

I would push for the full ambry test as well. I do not remember my daughters tasting salty when they were babies, well at least my oldest. My youngest one I thought did because I was so worried that she had CF (which she did). Even at one week old, while waiting for the test to come back, I was telling everyone that I just knew in my heart she had it. Of course everyone thought I was overreacting.

I do not know what my oldest daughters sweat test results were, but I know my second daughters was 115.

They do taste salty to me now that they are older and sweat more often while running around playing. And I think that salty sweat has a destinctive smell to it, especially in their hair when they sweat.

I do hope that it comes back negative, but if not...we are here for you<img src="i/expressions/face-icon-small-smile.gif" border="0">

tammykrumrey · Jun 7, 2007

I would push for the full ambry test as well. I do not remember my daughters tasting salty when they were babies, well at least my oldest. My youngest one I thought did because I was so worried that she had CF (which she did). Even at one week old, while waiting for the test to come back, I was telling everyone that I just knew in my heart she had it. Of course everyone thought I was overreacting.

I do not know what my oldest daughters sweat test results were, but I know my second daughters was 115.

They do taste salty to me now that they are older and sweat more often while running around playing. And I think that salty sweat has a destinctive smell to it, especially in their hair when they sweat.

I do hope that it comes back negative, but if not...we are here for you<img src="i/expressions/face-icon-small-smile.gif" border="0">

tammykrumrey · Jun 7, 2007

I would push for the full ambry test as well. I do not remember my daughters tasting salty when they were babies, well at least my oldest. My youngest one I thought did because I was so worried that she had CF (which she did). Even at one week old, while waiting for the test to come back, I was telling everyone that I just knew in my heart she had it. Of course everyone thought I was overreacting.

I do not know what my oldest daughters sweat test results were, but I know my second daughters was 115.

They do taste salty to me now that they are older and sweat more often while running around playing. And I think that salty sweat has a destinctive smell to it, especially in their hair when they sweat.

I do hope that it comes back negative, but if not...we are here for you<img src="i/expressions/face-icon-small-smile.gif" border="0">

tammykrumrey · Jun 7, 2007

I would push for the full ambry test as well. I do not remember my daughters tasting salty when they were babies, well at least my oldest. My youngest one I thought did because I was so worried that she had CF (which she did). Even at one week old, while waiting for the test to come back, I was telling everyone that I just knew in my heart she had it. Of course everyone thought I was overreacting.

I do not know what my oldest daughters sweat test results were, but I know my second daughters was 115.

They do taste salty to me now that they are older and sweat more often while running around playing. And I think that salty sweat has a destinctive smell to it, especially in their hair when they sweat.

I do hope that it comes back negative, but if not...we are here for you<img src="i/expressions/face-icon-small-smile.gif" border="0">

Alyssa · Jun 7, 2007

Ditto to Dana's post.... yes I would be pushing for the gentic testing -- and when you do, insist on FULL genetic testing for over 1500 genes -- don't settle for anything less... all you do then is wonder if two genes were missed because they didn't look for them all.

No, not everyone tastes salty, so you can quit licking your daughter now