M
Mommafirst
Guest
Welcome Beth!! Worry is something us parents of CFers do. Its the reason why so many of the adult CFers think we are so overprotective. Because worry makes us cautious.
I definitely was worse in the early months. Cystic fibrosis was a chorus that never stopped echoing in my ears. Its still consuming. No day goes by without it really, but I do have hours at a time where I feel relatively normal.
My best suggestion is this. Get Abella on a good preventative plan: enzymes, cpt, nebs, regular cf clinic appointments. Then step away from the computer a bit. Get informed and then trust the docs for now. If she starts coughing or has other issues, take them as they come. I know, easier said than done.
I definitely was worse in the early months. Cystic fibrosis was a chorus that never stopped echoing in my ears. Its still consuming. No day goes by without it really, but I do have hours at a time where I feel relatively normal.
My best suggestion is this. Get Abella on a good preventative plan: enzymes, cpt, nebs, regular cf clinic appointments. Then step away from the computer a bit. Get informed and then trust the docs for now. If she starts coughing or has other issues, take them as they come. I know, easier said than done.
Knowledge is empowering and will help you make better decisions about your child's health -- there is so much to learn from this site. But I do agree with seeking other anxiety relief for yourself as well as putting some self monitoring in place for what you read about and where you focus your worry. You may find that speaking with a therapist just once or twice will help you to stop spinning your wheels every night.