You can tell you're a CF'er...
- when you read these replies and say "that's totally true!"
-when you chose your job based on the # of sick days it pays and vacation schedule (be a teacher, potentially you can get a "tune-up" every 6-8 weeks
and during the summers!
-You're with friends and have a 5 minute coughing fit and nobody asks if your okay! They just keep on talking!
-when you ring the call button and say "I need to be hepped off!" (after you've taken the liberty of resetting the pump and silencing the alarm)
-when you drawn your own blood because YOU know where the best veins are (in my knuckles, with a buttlerfly)
-when you already have a typed out list of medications to hand to anyone who asks.
-when you tell people you've got asthma or allergies before they get a chance to say "that sounds good".
-when you have a separate calendar just for script exp. dates and doctor appointments
-when you can rattle off the common side effects of every antibiotic known to man.
-when you can admit that one fart can "peel the paint off the walls" (quote, my husband)
-when you say "damn, I left my enzymes in the car" and your husband already has a handful in his pocket
-when you've got the mini-fridge next to your bed (with all your meds/nebs), your vest on top, a few half-empty glasses of water and an overflowing waste-basket of tissues, some of which missed and are stuck to the carpet or wall from when you missed the trash. Along with about 50 wrappers from 5cc pre-filled saline suringes used to flush in-between IV meds at 6am, 2pm and 10pm. (god I feel bad for my cleaning lady)
- when you read these replies and say "that's totally true!"
-when you chose your job based on the # of sick days it pays and vacation schedule (be a teacher, potentially you can get a "tune-up" every 6-8 weeks
and during the summers!-You're with friends and have a 5 minute coughing fit and nobody asks if your okay! They just keep on talking!
-when you ring the call button and say "I need to be hepped off!" (after you've taken the liberty of resetting the pump and silencing the alarm)
-when you drawn your own blood because YOU know where the best veins are (in my knuckles, with a buttlerfly)
-when you already have a typed out list of medications to hand to anyone who asks.
-when you tell people you've got asthma or allergies before they get a chance to say "that sounds good".
-when you have a separate calendar just for script exp. dates and doctor appointments
-when you can rattle off the common side effects of every antibiotic known to man.
-when you can admit that one fart can "peel the paint off the walls" (quote, my husband)
-when you say "damn, I left my enzymes in the car" and your husband already has a handful in his pocket
-when you've got the mini-fridge next to your bed (with all your meds/nebs), your vest on top, a few half-empty glasses of water and an overflowing waste-basket of tissues, some of which missed and are stuck to the carpet or wall from when you missed the trash. Along with about 50 wrappers from 5cc pre-filled saline suringes used to flush in-between IV meds at 6am, 2pm and 10pm. (god I feel bad for my cleaning lady)